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Hello,

I had some blood work done yesterday. It took the hospital an hour

to figure out how to do it, they had to call my doctor to ask him

because they had never seen lab orders like those before, so I am

hoping it was done correctly.

My doctor emailed me a couple hours later and said all my inital lab

results were normal (i did fast)- (CPK-muscle enzymes, ammonia,

Lactic acid, serum ketones) and that we are now waiting on the

carnitine results which were a send out lab.

I thought I read somewhere that lab work can still come back normal

and one could still have mito issues. Does anyone know how true this

is?

I really wanted to have a sleep study done since I think it is my

muscle spasms that are waking me up several times a night, and wanted

my doctor to have some clinical evidence other than just what I say.

Unfortunetly sleep studies are not covered for adults under medicaid.

Guess I am feeling frustrated because I know something is wrong with

my body, but all my testing comes back normal.

Thanks,

a

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