Re: mitoldies: for MitomumX3 neurology appts update

[Guest guest]

...long QT gap ...My cardio. checks magnesium and potassium as

low magnesium causes lots of problems including long QT according to

her...maybe worth checking if your cardio has done those levels as

sometimes these Docs are so very busy..

Gillian

> I went for my neurology appt. yesterday.......

> He said he spoke to the cardiologist last night and that I have a

long QT

> sydrome..(cardio failed to mention that part) he also agred taht

I need to

> start coumadin. But another thing was that at the neuro appt I

asked him if I

> could have my drivers license back yet and he said no as my

reflexes are so

> spastic he felt it wasnt safe to drive yet. He said my reflexes

are a 5. I

> apparently have clonus what ever that is. I failed the romberg

test and the

> hoffman and pronator drift. My hands have gotten extrememly weak

also. My right

> hand shakes like a leaf.

> He said my myocloic jerks have progressed and I have sound

myoclonus. When

> he claps his hands I have myoclonic jerks. I knew I jumped out of

my skin

> with sharp or loud sounds..

> He is uping my depakote to 1500 mg daily and adding neurontin.

still on the

> tegretol...

> He got me back into hte neurosurgeon and is ordering another

round of spinal

> MRI's. I just did them in dec, March and august..Im sick of

them. He is

> worried that lesion in my spine has gotten worse ...he never does

the brain

> though..weird huh?

> I go to the neurosurgeon today...well see what he thins....

>

>

>

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