Re: Management of multiple doctors/Laurie

[Guest guest]

Thanks, this helps. It's nice to know this type of cooperation does

exist.

Maggie

> > > I called a local genetics/metabolics clinic, to see if I could

get

> > to

> > > see them sooner than Dr. K, and this local doctor's office

person

> > was

> > > grilling me about if I " only wanted to see what they thought,

but

> > > wouldn't listen to them " . It seems since they aren't at

a " big

> > > hospital " , people see them because it is convenient, but go

> > against

> > > their advice to follow specialists from around the country

(U.S.

> > in

> > > this case) or even around the world.

> > >

> > > I was straight with them, in that I told them I wanted to find

out

> > if

> > > I have a urea cycle disorder (in addition to mitochondrial

> > disease),

> > > and that was my main goal. My MDA neuro is my " main doctor " ,

and

> > I

> > > have about five others that are specialists in other areas.

> > >

> > > Most of my doctors are conservative, so they

aren't " interfering "

> > > with each others specialities too much. But I find it

frustrating

> > > that a doctor's office would say " I don't want to be your

doctor

> > if

> > > you have a lot of doctors already " (I don't have a metabolics

> > doctor

> > > yet, but am visiting Dr. K later this year). Are a lot of

people

> > in

> > > this situation?

> > >

> > > Perhaps many of you are like me, that you're afraid if there

are

> > no

> > > local doctors familiar with your case, there'll be big trouble

if

> > you

> > > go to the ER. Even so, this " local doctor " is 45 minutes

away, so

> > > I'd have to notify people that I'd want to go to that hospital

if

> > I

> > > have a problem. I am 50 miles away from Phila. and NYC, so

don't

> > > have big reputable medical centers available at the drop of a

hat.

> > >

> > > Thanks,

> > > RH

> >

> >

> >

> >

> >

> >

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