I must confess to being a bad mother - or not LOL

[Guest guest]

Okay, this really is a bad thing and not a joke at all, but our

biggest sin in this has been waiting too long to get something done

and not trusting our gut instinct the first time around. Both very

bad things in this case, I admit, but sometimes you just get tired of

having to fight to get anything acomplished.

So, here it is. Kai's foot is relapsing again This time it is

really my fault because I have not put his shoes on him since before

Christmas. That is because his shoes hurt him. At first I thought

it was because the bar was getting too small - which it was - but

sent us a new bar and it did not help. When he sent us a new

bar he was supposed to send the materials to make a mold of Kai's

foot to have a new shoe made, but he forgot. However, I am not sure

that would have made any difference. Kai hasnt outgrown the shoe.

The problem is the so called " dynamic adduction " of his forefoot that

Dr Mosca was sure would self-correct without casting. I wanted him

to cast for it back in August, but I did not push the issue.

It reminds me of back at the beginning of our saga when Dr Mosca

thought the foot was corrected and Dr Ponseti said " trust him, he is

a good doctor " . Well, this time Dr Ponseti originally felt that

another cast or two might be needed based on photos but later advised

that if Dr Mosca really thought it was dynamic adduction then it

would be ok.

Well, it wasnt ok. It never changed and eventually - after 3 months

or so - the sandals began to hurt Kai's foot where the big toe meets

the metatarsal. I would take his shoes off and see a red mark

there. I thought it was from the hole in the yellow stuff, so I

adjusted things a bit. But it was there every day. Then the crying

started. Kai would fall asleep fine and then wake up inconolable in

the middle of the night and cry until I took his shoes off. Only

then would he sleep again. We kept this up for a while thinking

different things would help but they never did. Mind you, Kai still

cant talk, so he could not just tell us " owie " So, finally I gave up

and figured I would get to make a new shoe. That is easier said

than done, tho. I havent been able to get a mold done of Kai's foot

for the new shoe, and in the mean time his foot has started to turn

under again He still has good dorsiflexion, but I know what I am

seeing and he is walking on the outside of his foot and the little

toe is rolling under the outside of his foot just like last time.

I have made arrangements for a local orthotist to make a mold of

Kai's foot and send it to , but I don't know if just going back

into the shoes will work. I think he is going to have a cast or two

to at least correct the adduction before he can go back into the

shoes

We have an appointment with Dr Mosca in Feb 9. I dont know what to

say. It is very hard to say to a doctor " You were wrong - again -

now fix it - again. " Don't get me wrong, I still feel Dr Mosca is a

great doc, but I swear we have the worst luck with Kai's foot fooling

him into believing something that just isnt true! We have talked

about taking Kai back to Iowa. It isnt that Dr Mosca cant fix what

is wrong - it really should be an easy fix considering how easy Kai's

foot is to manipulate - it's just that, well, I dont know what it

is. I never had to argue with Dr Ponseti. I told him the problem

and he went out and learned about it and learned how to fix it. He

never questioned our knowledge on the subject. He understood that a

parent sees everyday what a doctor cannot. He has always taken our

concerns of relapse seriously and examined the photos with our

descriptions of what else was going on in mind.

What would you guys do? It isnt easy getting to Iowa from here, and

not undertaken lightly when I know the problem CAN be taken care of

closer to home. SIGH.

Angel