Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 Hi - I've just found out about your group. My brother is 51 yrs old and was diagnosed about 4 yrs ago with MELAS. That was when he had a severe heart failure problem. He recently had another heart failure problem and his cardiologist feels like there is nothing else he can for him. He became diabetic and started losing hearing in his early 20s and had WPW then - has gone downhill slowly but surely since then. We're now trying to find about Drs affiliated with MDA since he is on Medicare and hope to get him to a specialist who has treated adults with MELAS. Recently he has a new gastro problem that I'm wondering could be a part of the mito problem. Has this happened to any of you? And have you had a wonderful, experienced Dr? We live in Columbia SC but are willing to travel for help. Any thoughts you have would be appreciated. Thank You! Annie Antley Quote Link to comment Share on other sites More sharing options...
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