soooo frustrated!

[Guest guest]

Which is why I won't even attempt to do this through doctors. The

frustration is too much, and the road too long. But wouldn't it be nice to

find someone, anyone, who knew more about all of this? And within driving

distance.

Lolita

>Subject: soooo frustrated!

>

>Been there not long ago. It took me about 36 hours to regroup and that

>was with a lot of support from this group. I feel better just knowing

>what I want to do is right for my son even if the medical establishment

>won't help and for some of us at times that is the only comfort we have,

>Determination will get us through (with the help of this list!).

>Hang in there,

>Sharon in Virginia

>

>On Tue, 13 Mar 2001 19:12:00 -0600 " jelovnik " jelovnik@...> writes:

> > Hi!

> > Yes, the customer is always right! Some Drs. just need to learn

> > this

> > the hard way. I've seen my share of them. I've learned to demand

> > (not

> > request) certain things. You should make it perfectly clear that if

> > they

> > refuse to approve the tests you want done, then they will lose at

> > least one

> > patient (plus your family and all those you reach by word of mouth).

> > In a

> > small town, this method is very effective.

> > To be fair to your Dr. though, you need to be aware that there

> > are

> > people out there that blindly follow their Dr's every word. Also,

> > most Drs.

> > only believe what they were taught in medical school -- they never

> > look

> > beyond that.

> > Maybe you could get some hard evidence (print some stuff up) to

> > your Dr.

> > supporting the tests you want. It couldn't hurt anyway...

> > Good Luck!

> > soooo frustrated!

> >

> >

> > > Hey all:

> > >

> > > We got back from our allergy appointment at 1:30 this afternoon

> > and it has

> > > taken me this long to even be able to sit down and write what I am

> > feeling.

> > > I know other people have had bad doctor experiences, but other

> > than our

> > > original pediatrician (who told me that even if Ebony did have

> > autism, it

> > > wasn't worth testing for because there's not much you can do about

> > it), I

> > > have had pretty positive experiences. I went into this

> > appointment

> > thinking

> > > that when I explained what I wanted to do with the IgG testing and

> > that I

> > > was more interested in intolerances and sensitivities to food,

> > rather than

> > > actual physical allergies, that the doctor would be willing to

> > help me.

> > > WRONG!! Every single thing that I said to support the testing was

> > ignored

> > > and I was repeatedly told that allergies were only tested

> > accurately with

> > > skin prick tests and they could do six food items. (soy, peanuts,

> > eggs,

> > > fish, milk, and wheat) Of course, they came back negative, as I

> > told him

> > > they would. I am in shock that every thing I said was ignored. I

> > have

> > > always worked in customer service and the whole " customer is

> > right " thing

> > is

> > > really ingrained in me. Are we, as the patients, not a customer.

> > What I

> > > wanted him to do would not have harmed anything, even if he

> > thought that

> > it

> > > was not very usefull.

> > >

> > > Anyway, time to start over. Now I have to figure out another way

> > to get

> > the

> > > tests done that I want to get done...and still have my insurance

> > cover it.

> > > What a pain. I tell you, I left that doctor's office so mad that

> > I wanted

> > > to bite someone. I have never been violent, but I really feel

> > like

> > hitting

> > > something or someone would have felt so relieving. I am over that

> > now,

> > > though, and ready to start figuring out what to do next.

> > >

> > > Thanks for letting me get all that out!

> > >

> > > Tamara, mom to Ebony-3 yrs old, autistic

> > >