Re: [GFCFKidsOT,Jay-incontinence/regression-a better day

[Guest guest]

Well, the pediatrician was a new one today- she said

the urine sample cameback perfectily fine and Jay

shows no sign of infecton or inflamation- of coarse

we'd have a better idea had he not hid when the lab

person came to draw his blood. We'll try monday, I

was too tired to fight a loosing battle and we simply

left after I told him we'd be back latter to talk to

doctor about it.

The Doctor agreed that school was a rediculous option

at the moment and gave me a note for him to stay home

until the meeting 4/2 and she was very excited to hear

how much sucess Jay had made on the diet. Her formal

diagnosis on the release form was PDD Regression. She

said maybe if given a break Jay also would be able to

regroup himself.

The special ed director is very nice also and asked

if we could atleast agree to not decide until we meet

all together- I told him OK but my opion was that the

teacher and counsellor were also very tired and

fustrated and needed a break and really were not

understanding the effects of regression on his

abilities. He asked if I really believed that if Jay

continued school this would lead to them needing to

call the ambulence and I said yes, unquestionably. I

have lived this before and its all down hill once he

needs restraint daily. I stressed again the necessity

for a one on one who could just pull him when hes

aggitated and sit and read with him so he calms down

and stressed that I never let it get that far out of

hand at home!

Then amazingly even more, God works in mysterious

ways- I ran into his teacher today- his school was

closed today for meetings or something, she took the

time to approach me, had not yet talked to the special

ed director, and asked how was. She looked a

little tentative but altleast was not aloof or

avoiding my eye contact -which was a relief- if she

gives up on Jay then there is really just not point in

pursuing this program - and I was relieved to see in

her eyes that she hadn't. We talked and she said that

she'd been thinking he had already acheived alot this

school year and perhaps he'd simply reached his

plateau- I agreed. Going from not writing the abc's

to reading and writing almost third grade is alot for

one year! I said perhaps the best we can do right now

is to prevent him from loosing what he has gained. I

also shared with her that this has happened 3 of the

last 4 years at the end of February/begining of March.

The only year it didn't happen so severe was last year

and as I recall -Feb and March were no picinic because

he was adjusting to the new school haveing just come

home from the psych hospital-and there were multiple

restraints. The doctor questioned it being possible a

lack of sunshine disorder- I told her I have a full

spectrum light at home because that is an issue for me

too but maybe I will call her and ask for a

prescription for one in the classroom and add this at

the IEP meeting.

I have an appointment on tuesday with the psychiatrist

in the same town as the school and made arrangements

to meet afterwards with special ed director-after his

meeting with teacher & staff while Jay attends class

briefly for the afternoon.

So all in all I'd have to say its a much better day--

and boy does my little boy look good today. I keep

pumping him up- two days-no restraint But he says

thats because you dont restrain me- I say because you

chose not to hurt me or yourself- and calm down. He

said today --it was good day only because Grandma wont

restrain me--I said yes and she wouldnt let you come

if she had to restrain you, she trusts you. I could

just see the gears a-spinning to process that one. He

was quiet after that. At school he just throws

himself into a situation that makes restraint

impossible- at grandma's its simply all play and no

stress (grandma couldnt handle the stress)--at home I

catch it before it ever goes that far- when he's a

bouncy ball- it means there's words in there that

arent coming out like -I cant focous to put on the

shoes you just asked me to and need help, or I'm

hungry or I cant focus and organize the steps to pick

out my clothes for the day or its over whelming to

feel the water touching me when I get in the shower.

Smile- hes just a little language pressure cooker- its

all in there, it just cant get out right now. I think

ita going to be a great weekend!

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