Re: Newbie Kim/ Athena Labs

[Guest guest]

Anne-Marie,

My pains don't last as long. They're so severe I'm stopped, can't

talk, and sometimes sit down right where I'm at and do my best to

breath until it's over. They're almost always in my right temple

area.

The two more common forms of glycogen storage were ruled out in St

Louis. They can't test for the other forms there. I was told

Athena would test for a dozen or so other glycogen storage

diseases. Since the first biopsy was PAS positive, the docs been

talking more about gsd than mito. I'm not sure they're telling me

all the details of what tests are being run.

What other lab is better?

Kim

>

>

> That's why I wonder if I may have mito (or MELAS). They always

> assumed I had a stroke in college, some 20 years ago. Again 2 1/2

> years ago they had to rule out stroke. With the new technology,

> they could tell I've never actually had a stroke. I've had

> absolutely terrible sharp pains in my head on and off as long as I

> can remember. I've even had my right hand, arm, and side of my

face

> go numb for weeks. I have a couple calcifications on my MRI

also.

>

>

>

>

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[Guest guest]

Have you been evaluated for chronic sinustis? Sometimes migraine and

sinus pain seem very similar, I think sinus when pain radiates. As

can tell you, sinus pain or infection can lead to

neurological symptoms.

Take care,

RH

>

>

> That's why I wonder if I may have mito (or MELAS). They always

> assumed I had a stroke in college, some 20 years ago. Again 2 1/2

> years ago they had to rule out stroke. With the new technology,

> they could tell I've never actually had a stroke. I've had

> absolutely terrible sharp pains in my head on and off as long as I

> can remember. I've even had my right hand, arm, and side of my

face

> go numb for weeks. I have a couple calcifications on my MRI also.

>

>

>

>

> ----------

>

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.300 / Virus Database: 266.5.7 - Release Date: 3/1/2005

>

>

>