Guest guest Posted February 22, 2005 Report Share Posted February 22, 2005 Donna I'm glad Dr. Grubb is trying this. Tegretol can also act like DDAVP. That is a very good web site. I have been to it. laurie > > Reply-To: > Date: Tue, 22 Feb 2005 10:10:03 -0500 > To: > Subject: [bULK] Re: need for hydration > > > Sorry Laurie, > I forgot to mention at one time an MRI showed that had a small tumor > on his pituitary gland and now they are not sure so I will have them keep an > eye on this. Also Dr. Grubb put him on a low dose of Florinef for the > Dysautonomia/ POTS and he mentioned we could use the florinef or DDAVP as he > feels they would maybe help him to retain some extra fluid. Here is a websight > that is very good Rita is a friend of mine she is an RN and has POTS and 3 of > her 4 children also do. > www.dysautonomia-eduinfo.org/ > Hugs, > Donna K > ---- Laureta Fitzgerald lfitzger@...> wrote: >> >> Hi >> >> I was wondering if those of you who require frequent IV hydration have had >> your levels of vasopressin checked. During the night it popped into my head >> that a student of mine who had to have her pituitary glad removed, had to >> take DDAVP, along with all other hormone replacements to control the loss of >> fluid. >> >> laurie >> >> >> >> >> Medical advice, information, opinions, data and statements contained herein >> are not necessarily those of the list moderators. The author of this e mail >> is entirely responsible for its content. List members are reminded of their >> responsibility to evaluate the content of the postings and consult with their >> physicians regarding changes in their own treatment. >> >> Personal attacks are not permitted on the list and anyone who sends one is >> automatically moderated or removed depending on the severity of the attack. >> >> Quote Link to comment Share on other sites More sharing options...
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