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What did the doctor say about her hand?

a C Koch wrote:

>

>,

> I would take her to the doctor ASAP. That doesn't sound right

>with the fingers being almost black and ballooning up. Keep us updated

>when you can!

>

>Hugs,

>a

>

>

>

>>,

>>

>> Thanks for your quick response. They did do some testing on her

>>

>>

>which

>

>

>>showed that her Kidneys were taking out too much phosphate and warned us

>>

>>

>that she

>

>

>>may deal with brittle bone syndrome, which is why I was so surprised at

>>

>>

>the

>

>

>>Orthos response to her last night. We have been pumping in extra calcium

>>

>>

>since

>

>

>>we found this out. I am more worried about the circulation to her hand

>>

>>

>right

>

>

>>now. Her fingers are almost black in color and still look like balloons

>>

>>

>and

>

>

>>then the index being cold and all. Ughhhhh maybe I am worrying too much

>>

>>

>about

>

>

>>this one. LOL

>>

>>Hugs

>> O (Kira, , Krisalynn Mito Myopathy- MIDS)

>>

>>

>>

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