Re: Leaving from IN for DC/MD

[Guest guest]

Have a safe trip, Good Luck and God Bless!!!!! Dolores

AM L wisecam@...> wrote:Hi all,

I will be going on no mail for about 2 weeks.

I know I haven't been posting lately, been so busy.

Have been praying for you all and trying to keep up

on just the readings. My oldest just turned 16 and

just got his learners permit. My next just turned 13 and now they

want to test him for marfans syndrome. Joe will be

getting a skin biopsy while we are in DC for

-Lemli-Optiz syndrome. I just wish the docs would

quit adding more diagnosis!!! Not sure how much more I

can handle. I feel like a genetic freak of nature!!!!

Leaving tonight, so i will get my mail today Saturday.

Will not have internet access so I am not sure I will be able

to go back and catch up .... just know you all are in my families

thoughts and prayer daily.

Thank you all for your support, knowledge and cyber hugs.... it

makes it easier to get through the days sometimes.

luv you all.

Praying for us all,

AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine

issues, heart now slightly affected)

Married to my best friend Rick,

Very Busy Mom to (16), (13) - testing him for Marfan's syndrome,

Cassandra (7) - Sensory Integration and

Joe (5 1/2) (testing him for -Lemli-Opitz) - complex IV, lactic

acidosis, CP,

tethered chord syndrome, dysautonomia,

and a smile that never quits :-)

Medical advice, information, opinions, data and statements contained herein are

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entirely responsible for its content. List members are reminded of their

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Personal attacks are not permitted on the list and anyone who sends one is

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---------------------------------

[Guest guest]

Ann-Marie

Good luck with all the testing.

laurie

> Have a safe trip, Good Luck and God Bless!!!!! Dolores

>

> AM L wisecam@...> wrote:Hi all,

> I will be going on no mail for about 2 weeks.

> I know I haven't been posting lately, been so busy.

> Have been praying for you all and trying to keep up

> on just the readings. My oldest just turned 16 and

> just got his learners permit. My next just turned 13 and now they

> want to test him for marfans syndrome. Joe will be

> getting a skin biopsy while we are in DC for

> -Lemli-Optiz syndrome. I just wish the docs would

> quit adding more diagnosis!!! Not sure how much more I

> can handle. I feel like a genetic freak of nature!!!!

> Leaving tonight, so i will get my mail today Saturday.

> Will not have internet access so I am not sure I will be able

> to go back and catch up .... just know you all are in my families

> thoughts and prayer daily.

> Thank you all for your support, knowledge and cyber hugs.... it

> makes it easier to get through the days sometimes.

> luv you all.

> Praying for us all,

> AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine

> issues, heart now slightly affected)

> Married to my best friend Rick,

> Very Busy Mom to (16), (13) - testing him for Marfan's syndrome,

> Cassandra (7) - Sensory Integration and

> Joe (5 1/2) (testing him for -Lemli-Opitz) - complex IV, lactic

> acidosis, CP,

> tethered chord syndrome, dysautonomia,

> and a smile that never quits :-)

[Guest guest]

Hi AnnMarie L.

I think everyone has been busy lately, especially with graduation

ceremonies, graduation parties, etc...

I am sorry that the doctors keep adding more and more possible diagnosis to

your list. It is frustrating to say the least.

I am interested in knowing what symptoms your 13yr.old is having that they

want to test him for Marfans syndrome. The reason I am asking is that I

know someone who is very close to me who has this and it isn't a disease

that is heard

often. Does anyone else in your family have Marfans? I hope and pray for

the best for him.

Have a safe trip and I will keep you and your family in my thoughts and

prayers. Update us when you return.

Hugs,

Ann-Marie M.

At 12:01 PM 6/11/2005, you wrote:

>Hi all,

>I will be going on no mail for about 2 weeks.

>I know I haven't been posting lately, been so busy.

>Have been praying for you all and trying to keep up

>on just the readings. My oldest just turned 16 and

>just got his learners permit. My next just turned 13 and now they

>want to test him for marfans syndrome. Joe will be

>getting a skin biopsy while we are in DC for

>-Lemli-Optiz syndrome. I just wish the docs would

>quit adding more diagnosis!!! Not sure how much more I

>can handle. I feel like a genetic freak of nature!!!!

>Leaving tonight, so i will get my mail today Saturday.

>Will not have internet access so I am not sure I will be able

>to go back and catch up .... just know you all are in my families

>thoughts and prayer daily.

>Thank you all for your support, knowledge and cyber hugs.... it

>makes it easier to get through the days sometimes.

>luv you all.

>Praying for us all,

>AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine

>issues, heart now slightly affected)

>Married to my best friend Rick,

>Very Busy Mom to (16), (13) - testing him for Marfan's syndrome,

>Cassandra (7) - Sensory Integration and

>Joe (5 1/2) (testing him for -Lemli-Opitz) - complex IV, lactic

>acidosis, CP,

>tethered chord syndrome, dysautonomia,

>and a smile that never quits :-)

>

>

>

>Medical advice, information, opinions, data and statements contained

>herein are not necessarily those of the list moderators. The author of

>this e mail is entirely responsible for its content. List members are

>reminded of their responsibility to evaluate the content of the postings

>and consult with their physicians regarding changes in their own treatment.

>

>Personal attacks are not permitted on the list and anyone who sends one is

>automatically moderated or removed depending on the severity of the attack.

>

>

>

>

>----------

>