Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 It's been a long time since I've written to you all. My life has been filled with going to doctors or being too tired to even write an e-mail. I kept telling the doctors that I have air hunger. Well, my 02 sat. rate was up and down, generally about 91. I finally made an issue about it and to the doctor that listens to me. I have a pulmanologist, but he was taking too long. I've put up with this for over a year now. He arranged an oxygen saturation machine to be put on me for 24 hours, at my home. I would walk from my living room to the kitchen and my heart rate would go to 110 and my oxygen would plummet to 82. The next day, I was on oxygen 24/7. I, also, wanted a scooter. But, I was told, correctly, that a motorized wheelchair would be better with my mito, because I wouldn't have the strength to hold my arms up long enough for a scooter. I thought about it and think they are right. Just the fact that my O2 level went down when I walked, was enough reason to get a motorized wheelchair. If you need a motorized wheelchair, tell the doctors that you need one for indoors. Mito can be different throughout the day. Sure, I can walk, but should I have to endure the pain, or have to hold onto things and slowly waddle off to bed? Next week, I get my Jazzy wheelchair that totally breaks down enough to be put into a car's trunk and Medicare and medicaid will pay for it 100%. Next, we will be contacting people who volunteer to put in wheelchair ramps and a lift for my van. Blessings to all, Kaspick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 It is nice to hear from you. I am so glad you are finally getting some things to help you. I think you were wise to get the chair rather than the scooter. I have had 2 scooters and now have a chair. I like it so much better. laurie > It's been a long time since I've written to you all. My life has been > filled with going to doctors or being too tired to even write an e-mail. I > kept telling the doctors that I have air hunger. Well, my 02 sat. rate was > up and down, generally about 91. I finally made an issue about it and to > the doctor that listens to me. I have a pulmanologist, but he was taking > too long. I've put up with this for over a year now. He arranged an oxygen > saturation machine to be put on me for 24 hours, at my home. I would walk > from my living room to the kitchen and my heart rate would go to 110 and my > oxygen would plummet to 82. The next day, I was on oxygen 24/7. I, also, > wanted a scooter. But, I was told, correctly, that a motorized wheelchair > would be better with my mito, because I wouldn't have the strength to hold > my arms up long enough for a scooter. I thought about it and think they are > right. Just the fact that my O2 level went down when I walked, was enough > reason to get a motorized wheelchair. If you need a motorized wheelchair, > tell the doctors that you need one for indoors. Mito can be different > throughout the day. Sure, I can walk, but should I have to endure the pain, > or have to hold onto things and slowly waddle off to bed? Next week, I get > my Jazzy wheelchair that totally breaks down enough to be put into a car's > trunk and Medicare and medicaid will pay for it 100%. Next, we will be > contacting people who volunteer to put in wheelchair ramps and a lift for my > van. > > Blessings to all, > Kaspick > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 My Aunt in Nebraska has a Roboround or Rotoround (not sure of the spelling) it is made by the same company that sells scooters but she needed something for indoors as well as outdoors and it to be compact enough to fit in the trunk of a car, It easily folds down (someway), so I am told. I'm not sure if this would be of any help to anyone but thought I would give it a shot. Dolores Laurie Fitzgerald laurie.fitzgerald@...> wrote: It is nice to hear from you. I am so glad you are finally getting some things to help you. I think you were wise to get the chair rather than the scooter. I have had 2 scooters and now have a chair. I like it so much better. laurie > It's been a long time since I've written to you all. My life has been > filled with going to doctors or being too tired to even write an e-mail. I > kept telling the doctors that I have air hunger. Well, my 02 sat. rate was > up and down, generally about 91. I finally made an issue about it and to > the doctor that listens to me. I have a pulmanologist, but he was taking > too long. I've put up with this for over a year now. He arranged an oxygen > saturation machine to be put on me for 24 hours, at my home. I would walk > from my living room to the kitchen and my heart rate would go to 110 and my > oxygen would plummet to 82. The next day, I was on oxygen 24/7. I, also, > wanted a scooter. But, I was told, correctly, that a motorized wheelchair > would be better with my mito, because I wouldn't have the strength to hold > my arms up long enough for a scooter. I thought about it and think they are > right. Just the fact that my O2 level went down when I walked, was enough > reason to get a motorized wheelchair. If you need a motorized wheelchair, > tell the doctors that you need one for indoors. Mito can be different > throughout the day. Sure, I can walk, but should I have to endure the pain, > or have to hold onto things and slowly waddle off to bed? Next week, I get > my Jazzy wheelchair that totally breaks down enough to be put into a car's > trunk and Medicare and medicaid will pay for it 100%. Next, we will be > contacting people who volunteer to put in wheelchair ramps and a lift for my > van. > > Blessings to all, > Kaspick > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Hi , When I went to get my scooter they evaluated me at the MDA Wheelchair Clinic and suggested that I might want to go with a motorized wheelchair instead of a scooter. That was 2 yrs. ago. I also have problems and weakness with my arms, fingers and hands. But I was at a time in my life that I thought that getting a scooter would be better b/c I didn't want to be disabled nor did I want people to view me as disabled, even tho I am. :-[ So I went with the scooter instead. I love it very much, but I should have put my pride in my back pocket and gone with the wheelchair. But I am a very stubborn lady at times :-D So when I am ready for another it will definitely be a motorized wheelchair. Lessons learned..... Sorry to hear that your O2 stats are low, but it is good that you are getting things to help you. Enjoy your new chair... Hugs, Ann-Marie At 02:14 PM 6/11/2005, Laurie wrote: > > >It is nice to hear from you. I am so glad you are finally getting some >things to help you. I think you were wise to get the chair rather than >the scooter. I have had 2 scooters and now have a chair. I like it so >much better. wrote: I, also, > wanted a scooter. But, I was told, correctly, that a motorized wheelchair > would be better with my mito, because I wouldn't have the strength to hold > my arms up long enough for a scooter. I thought about it and think they are > right. Just the fact that my O2 level went down when I walked, was enough > reason to get a motorized wheelchair. If you need a motorized wheelchair, > tell the doctors that you need one for indoors. Mito can be different Quote Link to comment Share on other sites More sharing options...
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