Re: Air hunger -

[Guest guest]

I've been getting echos every two years, and EKG's once or twice per

year. I understand that to be the guidelines for mito patients

*without* heart symptoms. I only got the exercise stress test and

event monitor because I was having chest pain and palpitations. My

heart seems to be pretty good so far, except for some arrhythmias

(slow and variable).

Take care,

RH

> >

> >

> >

> > Thanks for your welcome. I am still trying to absorb the fact

that I

> > have this disease and how to deal with it. It's good to know

there

> > are other people struggling with this also. I see the

cardiologist

> > on Thursday. Does anyone have any suggestions on what I should

> > expect in regard to Mito ? Also, how do you deal with the

shortness

> > of breath? SOmetimes, I feel like I just can't get a deep breath

in

> > and it is frightening. I am on advair and albuterol for asthma

but I

> > can't tell much difference. My pulmo. doc said I may not since

> > asthma is not my main problem but the muscle weakness is. I feel

> > helpless with this- not sure how to improve my breathing. ANy

> > suggestions would be welcome. Thanks again.

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Medical advice, information, opinions, data and statements

contained herein

> > are not necessarily those of the list moderators. The author of

this e mail

> > is entirely responsible for its content. List members are

reminded of their

> > responsibility to evaluate the content of the postings and

consult with

> > their physicians regarding changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who

sends one is

> > automatically moderated or removed depending on the severity of

the attack.

> >

> >