Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Hi all, I will be going on no mail for about 2 weeks. I know I haven't been posting lately, been so busy. Have been praying for you all and trying to keep up on just the readings. My oldest just turned 16 and just got his learners permit. My next just turned 13 and now they want to test him for marfans syndrome. Joe will be getting a skin biopsy while we are in DC for -Lemli-Optiz syndrome. I just wish the docs would quit adding more diagnosis!!! Not sure how much more I can handle. I feel like a genetic freak of nature!!!! Leaving tonight, so i will get my mail today Saturday. Will not have internet access so I am not sure I will be able to go back and catch up .... just know you all are in my families thoughts and prayer daily. Thank you all for your support, knowledge and cyber hugs.... it makes it easier to get through the days sometimes. luv you all. Praying for us all, AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine issues, heart now slightly affected) Married to my best friend Rick, Very Busy Mom to (16), (13) - testing him for Marfan's syndrome, Cassandra (7) - Sensory Integration and Joe (5 1/2) (testing him for -Lemli-Opitz) - complex IV, lactic acidosis, CP, tethered chord syndrome, dysautonomia, and a smile that never quits :-) Quote Link to comment Share on other sites More sharing options...
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