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Hello to all,

I am undiagnosed, but my regular PCP is considering mito with me. I

feel like I have little to offer the group at this time due to my

limited knowledge, but wondered if I could ask yet another round of

questions.

My symptoms started a year ago last April, so I haven't been dealing

with them long. They seem to come and go. One of my initial

symptoms was incoordination/balance issues. It was terrible for

about six months and then seemed to go away until just recently.

I have noticed that I am again having trouble maintaing my balance,

and am having difficulty again with getting up from setting positions-

I start to stand up and only get about 3 inches up, but then its

like the message doesn't get to my legs fast enough, or the muscle

just don't work and I end up back in a setting position.

I am also having a terrible time with dropping things. I can't seem

to hold onto anything for the life of me.

I saw my doctor recently because the area just below my right wrist

is swollen and it hurts to move it. He said he believes its due to a

muscle issue, but isn't sure. He said its a weird place to see

swelling and I have had to wear a wrist brace for the last 3 weeks.

I guess my questions are, with any kind of mito disease, can symptoms

come and go, and can swelling of body parts be an issue? My ankles

and knees also swell each day. I have also been waking up in the

middle of the night to eat, and I really don't understand it. It

almost feels like an animal instinct. Does anyone else have to do

this?

Most days I just deal with fatigue, muscle spasms,vision issues and

sensory problems. I seem to go through cycles of gastrointestinal

problems, and at times seem to cycle through other types of symptoms

as well. I have also recently started having problems with misuse of

words when I write and speak which was another initial symptom I

started with that seems to wax and wane.

I'm just really frustrated because I don't understand what is

happening to my body. I don't seem to be any worse than I was at

this time last year, but I'm not any better either. I also have days

of debilitating fatigue and I wake up everday in a lot of pain that

last several hours each morning, and then I am usually pain free a

couple hours but I end up going to bed hurting each night as well.

Any thoughts or suggestions? I am on an anti-inflammatory and

sleeping medication.

Thanks,

a

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