Restless Leg Syndrome in full force!

January 16, 2005

Okay, I know we have discussed this many times before, but I am

really suffering with RLS the last 3-4 days. I went to the movies

last night and the entire time my calves kept twiching and cramping.

I came home and rested but the I got worse during the night! I was

up so many times trying to reposition myself so that I would not be

putting pressure on my legs. Unfortunately this did not good and I am

feeling the effects of this this morning. I have had bouts of

myopathy that have been so severe I have spent 6 months in a

wheelchair. I often need to use a cane or walker when the myopathy

gets severe. I have taken Quinine in the past but my old Neuro took

me off of it and put me on Folic Acid Supplements over the counter.

When I get in one of these bouts I am sure to trigger a myopathy that

will make my legs like " jelly " . My legs are already beginning to

buckle. I can tell that I am going to end up wobbeling around my

house all day. I am stubborn and I will only use the cane or walker

when I absolutely need to..........maybe not the brightest but it

emotionally makes me feel like I have some control. , LOL.

I was wondering if any of you who also suffer with RLS can give me

some advise about what I can do to get over this episode. I am going

to the doc (PCP) tomorrow for a F/U for my neck and PT I have been

in for several months. I plan to ask him if going back on the Quinine

will be helpful. Dr Cohen started me on it several years ago and

although the symptoms didn't disappear it did seem to be less

bothersome. My old Neuro decided that the Quinine wasn't good for me

and felt the Folic Acid was a better choice for the long term.

Thanks for any help you can send my way!

Ps Welcome to our lastest member!

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