Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 Okay, I know we have discussed this many times before, but I am really suffering with RLS the last 3-4 days. I went to the movies last night and the entire time my calves kept twiching and cramping. I came home and rested but the I got worse during the night! I was up so many times trying to reposition myself so that I would not be putting pressure on my legs. Unfortunately this did not good and I am feeling the effects of this this morning. I have had bouts of myopathy that have been so severe I have spent 6 months in a wheelchair. I often need to use a cane or walker when the myopathy gets severe. I have taken Quinine in the past but my old Neuro took me off of it and put me on Folic Acid Supplements over the counter. When I get in one of these bouts I am sure to trigger a myopathy that will make my legs like " jelly " . My legs are already beginning to buckle. I can tell that I am going to end up wobbeling around my house all day. I am stubborn and I will only use the cane or walker when I absolutely need to..........maybe not the brightest but it emotionally makes me feel like I have some control. , LOL. I was wondering if any of you who also suffer with RLS can give me some advise about what I can do to get over this episode. I am going to the doc (PCP) tomorrow for a F/U for my neck and PT I have been in for several months. I plan to ask him if going back on the Quinine will be helpful. Dr Cohen started me on it several years ago and although the symptoms didn't disappear it did seem to be less bothersome. My old Neuro decided that the Quinine wasn't good for me and felt the Folic Acid was a better choice for the long term. Thanks for any help you can send my way! Ps Welcome to our lastest member! Quote Link to comment Share on other sites More sharing options...
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