Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 Kathy, it was really great to hear back from another mom who is virtually in the same boat. I was hoping a mom would write me back and say what you did. That's my son too! I'm just stealing a second here before trucking off to work (part-time) but I will be in touch. Feel free to e-mail me on the list or privately (jwhite@...) whenever you like. Where do you live? We are in Santa Barbara. All the best, and looking forward to sharing more thoughts re: our little adorable ones... Jeanne > > Hello everyone, > > > > I'm new to the list. My son is an adorable 2 1/2 years old. He > has > > been gfcf for the past 5 months with beneficial results - however, > > nothing dramatic. I believe we are finding there may be other > issues > > affecting my son at this time and we're still researching it. He > is > > sociable with us, eye contact is not too bad, smiles a lot, enjoys > > himself. He has been in speech therapy for the past 4 months and > has > > a daily functional vocabulary of about 15 words that he uses > reguarly > > and has attempted to say many more than that. > > > > He did not gain all his skills and then lose them. He did not have > a > > series of ear infections. He did not have a terribly negative > > reaction after any one of his vaccinations. What I can say is that > > he seemed quite easily frustrated and " intense " from birth. He > > didn't nurse all that well. However, he developed all his physical > > milestones on time or even early. His verbal and eye contact > seemed > > good. What I think is that his language never " took " . We'd hear a > > word and think, hooray! It's starting! But then we wouldn't hear > it > > again after his initial attempts - maybe twice. And in conjunction > > with that, he was increasingly hard to keep in a group with his > > little peers. I was constantly the mom running to round him up and > > have him stay with the other kids and their moms. He preferred to > be > > off doing his own thing. I used to wonder why I had to work 3 > times > > as hard as the other moms in the groups. > > > > The day I realized something was wrong was this: It was about at > 22 > > months. One of the other moms said to me, " I told little that > > he was going to see your son and all his little friends today and > he > > got SO excited! " I smiled and my heart just sank to the floor. I > > knew that not only would my son not even react to that statement, > but > > that he wouldn't even have understood my saying that to him. And > > that's when I started to realize that his pushing the stroller in > the > > backyard in circles was not normal play, etc. > > > > Long story short, we PANICKED! We took him to specialists, read > the > > Seroussi book, put him on the diet. With the implementation of > lots > > of play and speech therapy, he was fairly easy to turn around in > many > > ways and the prognosis looks better and better. However, I have > many > > challenges. > > > > I have since learned that my son has poor auditory processing and > > something called developmental verbal apraxia. This is sometimes > mis- > > diagnosed as PDD or autism, but I suspect he has both the apraxia > > (poor oral motor planning) and autistic like features. He is > sensory- > > defensive and inwardly directed. If you try to make him sit on > your > > lap and sing songs face to face, you'd think you were trying to put > a > > cat in a bathtub! But when he settles down, I get eye contact and > > him watching my mouth. > > > > Where was I??? What a long post: > > > > Okay current problems. > > > > 1) He is on a food rebellion and will only eat a few items. What > > have others have you done in terms of waiting out the rebellion? > > Sneaking in foods into other items he will eat? > > > > 2) We are authorized to see an allergist. His IgE was high - 475 > > (normal should be reference range at or below 12). Is it worth it > to > > do the skin testing or should we ask for blood testing? We may be > > giving him other things he's allergic to. > > > > Thanks for listening, > > > > Jeanne Quote Link to comment Share on other sites More sharing options...
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