An answer for the twitching

[Guest guest]

I saw the Neuro Wed. afternoon. He watched my legs wiggle around and

twitch. He also noted the I the muscle wasting in the calves has

become more pronounced. After a few minutes of an exam he " got out

the ole neuro books " :-) He told me that I am going to cost him

money,lol, because he is going to have to buy some new books specific

for Mito. Now that he is seeing me, my son and another young girl

with Mito, he is need of mito friendly literature. He told me that

the movements are neither RLS or Myoclonus, but rather,

Fasciculations. That is a specific type of twitching caused by motor

neuron death. The exact type of muscle movements are seen in ALS. He

didn't know if it is also seen in Mito, so he was off to make some

calls and do some investigationg. He didn't want to start any meds

until he learns more about the fasciculations and the relationship to

Mito. I am glad that we are on the right tract now, but I hate to be

told that it is another problem that can't be fixed and will only get

worse :-( Man am I am sick of hearing that. Thanks for all the help

about this problem for me.