Re: mitoldies: neurology appts update

[Guest guest]

That must be real discouraging. Being able to drive is being given freedom.

I would like to make a suggestion. You might want to ask the doctor about a

professional driving evaluation. These folks look at all the things that the

doctor cited and see if there are accomodations that can be made to the

vehicle to made it possible to drive safely. These folks are often

occupational therapists with special certification in doing driving evals. I

had one before the purchase of my last van. They may agree with the doctor,

but then you will have this additional piece of paper.

Clonic is stiffening, similar to myoclonus, but often lastiing longer. It

can be seizure activity or other things.

Good luck! I will be thinking of you.

Hugs,

laurie

> From: MitomomX3@...

> Reply-To:

> Date: Thu, 6 Jan 2005 08:01:27 EST

> To:

> Subject: : neurology appts update

>

> I went for my neurology appt. yesterday.......

> He said he spoke to the cardiologist last night and that I have a long QT

> sydrome..(cardio failed to mention that part) he also agred taht I need to

> start coumadin. But another thing was that at the neuro appt I asked him if I

> could have my drivers license back yet and he said no as my reflexes are so

> spastic he felt it wasnt safe to drive yet. He said my reflexes are a 5. I

> apparently have clonus what ever that is. I failed the romberg test and the

> hoffman and pronator drift. My hands have gotten extrememly weak also. My

> right

> hand shakes like a leaf.

> He said my myocloic jerks have progressed and I have sound myoclonus. When

> he claps his hands I have myoclonic jerks. I knew I jumped out of my skin

> with sharp or loud sounds..

> He is uping my depakote to 1500 mg daily and adding neurontin. still on the

> tegretol...

> He got me back into hte neurosurgeon and is ordering another round of spinal

> MRI's. I just did them in dec, March and august..Im sick of them. He is

> worried that lesion in my spine has gotten worse ...he never does the brain

> though..weird huh?

> I go to the neurosurgeon today...well see what he thins....

>

>

>

>

[Guest guest]

--- Wow, I have all of those issues and never thought of it keeping

me from driving. My reflexes are at a 4 not as brisk as yours are

and I do not have many myoclonic jerks. I dont always have clonus.I

feel fortunate!!! I am sorry you are not able to drive. Laurie has a

great suggestion regarding a driving evaluation.

In , MitomomX3@a... wrote:

> I went for my neurology appt. yesterday.......

> He said he spoke to the cardiologist last night and that I have a

long QT

> sydrome..(cardio failed to mention that part) he also agred taht

I need to

> start coumadin. But another thing was that at the neuro appt I

asked him if I

> could have my drivers license back yet and he said no as my

reflexes are so

> spastic he felt it wasnt safe to drive yet. He said my reflexes

are a 5. I

> apparently have clonus what ever that is. I failed the romberg

test and the

> hoffman and pronator drift. My hands have gotten extrememly weak

also. My right

> hand shakes like a leaf.

> He said my myocloic jerks have progressed and I have sound

myoclonus. When

> he claps his hands I have myoclonic jerks. I knew I jumped out of

my skin

> with sharp or loud sounds..

> He is uping my depakote to 1500 mg daily and adding neurontin.

still on the

> tegretol...

> He got me back into hte neurosurgeon and is ordering another

round of spinal

> MRI's. I just did them in dec, March and august..Im sick of

them. He is

> worried that lesion in my spine has gotten worse ...he never does

the brain

> though..weird huh?

> I go to the neurosurgeon today...well see what he thins....

>

>

>

>