school and diet

[Guest guest]

Hi all,

First, Laurie

so glad to hear that your son is finding ways to not feel left out--it must

be very difficult.

My son is 3 1/2 and for Vlentines day they are having pizza at school. He

wont be going to school that day--I am very frustrated by it. My daughter

is in Kindergarten and atleast once a week there is a pizza party or a

birthday for one of the kids--tons of crap is brought to school. Not only

is it not GFCF but it is the most unhealthy food you could pull from the

grocery shelf (besides the liquor dept. I suppose When my son is in

Kindergarten, I will not be able to pull him oyut once a week. I hope by

then he will understand cognitively why he cant eat what the other kids are

eating but my heart breaks thinking about how left out he will feel. How

left out we all already are. We use to hang out w/ a moms club group but so

many of the activitioes include food, or all birthday parties have pizza,

cake etc. No good alternative for pizza in my opinion and we just cant

attend. It is very isolating . How am I going to handle this? I also want

to put my son in a typical preschool program however the good ones I have

found include snack problems:

One school has the parents who work that day bring the snack: probably

cheese , goldfish crackers etc. Do we have to avoid this school becuz of

the snack?????

Second school provides the snack which is usually fruit--apples, bananas,

and oranges. Tend to avoid these due to phenols......Would they change

fruit or should I let him eat it or bring something else???? Ugh!!

Really quite frustrated by this... Is this asolvable problem for a ny of

you?? How do explain to a kid who is aware enough to know he is not eating

what the others eat but cant have what they eat when cognitively they just

dont understand this. Besides hwat 3 year old does?? Does a five/six year

old understand this even? Thank you for thoughts, sorry so long.

Frustrated and sad mom,

Newbie Here! Hello!

>

> Hello all,

>

> First let me start by saying " Thank Goodness " for Gluten Free Companies! I

> couldn't do this with out them. I " HATE " (AND I DO NOT LIKE THAT WORD) TO

> COOK! I always have, so it is very strange to me that I should get stuck

in

> the kitchen night and day! But that's my life, so I am there, along with

all

> of you. Ms. Robens and Specialty Selects send us big boxes and I smile

every

> time. We may have to move to a smaller house one day, but I'd do it in a

> minute to stay out of the kitchen.LOL!!

>

> I am still learning all the different companies and recipes out there!

>

> The last year and a half has been tough. I don't know if I am the only

one

> on this list that has a child with CELIAC'S Disease or not??? The doctors

> wouldn't listen to me and thought that I was nuts complaining about having

a

> skinny child. " Some kids are skinny " , only to find out when they finally

did

> listen to me that he was slowly dying from Celiac's Disease. When they

> finally did the biopsy he had NO VILLI left in his small intestines, they

> were completely flat, and he had been living in pain, but knew no

different

> and never said one word. He couldn't ride is bike from the pain, and

> everyone but me thought he was uncoordinated. At 7 years old?? Needless to

> say we changed doctors and I won't let a doctor not listen to me ever

again!

> He has osteoporosis, so his bones are very brittle. He can't ski this

year,

> we live in New Hampshire and Daddy ski patrols so that is hard on him.

He's

> a great kid and takes it all much better than I ever thought he would.

Pizza

> party at Scouts Friday night and he never said one word.

>

> He started a club in our town called The I Can't Eat " THAT " Club! For all

> kids with any type of food issue. They have 6 members and meet once a

month.

> They had a candy free Halloween Party with little prizes, made trick or

> treating more fun, because they got to trade all the BAD candy for good

> candy when they got home. They also had a piñata stuffed with toys instead

> of candy. They all have the attitude that they will not miss out on fun

> things at school or home because of this. My son goes to birthday parties

> and brings his own cake and a scope of ice cream in a baggie and when its

> time, I scope it onto the place, no one is the wiser most times. He

doesn't

> hide it, because Celiac's is so serious, but he doesn't make it an issue

> either. He refuses to let it hold him back! I hope he is well soon, as he

is

> still a very sick little boy!

>

> Some of you might be wondering why I didn't join a Celiac's List, I have,

> but I am very interested in learning about GF/CF diet in regards to Autism

> as well. My younger son has DSI(Dysfunction of Sensory Integration)or SID.

> We know he has an addiction to sugar, so we are interested to see that

> connection to Gluten as well. I am also interested because what he eats

does

> seem to effect his DSI symptoms. I do know enough about Autism to know

that

> these children also have DSI issues as well. My son has changed so very

much

> since DSI therapy, both with a therapist and and OT. He is thriving in

first

> grade which is something I truly never thought possible a year ago. Before

> therapy he was out of control. The book The OUT of SYNC CHILD< saved our

> lives.

>

> I have started a support group in Londonderry, NH for DSI this past June.

I

> have recently joined forces with Dr. Lucy Jane ( who has worked in

DSI

> for 30 years) , I have helped a mom near her in Denver start another group

> out there and Dr, will be announcing DSI PARENT CONNECTIONS at this

> weeks LA Conference with many top people in the field. We have 30(We hope)

> groups set to start this spring around the country. More to follow as word

> spreads that we are looking for parents to host one meeting once a month.

> Soon parents will be able to log onto

> SInetwork.org and search by state to find a DSI PARENT CONNECTION near

them.

> I am now a true believer in the POWER OF ONE!!!!

>

> I am sure someone has posted the POWER OF ONE day coming up in March in

> Washington, DC. It is sure to be exciting and get National attention. I am

> thrilled for that.

>

> Sorry for the long intro. Now for my questions!

> 1. Are there any other Celiac Parents on this group?

>

> 2. How many of you know about the connection to DSI with Autism and also

> FOOD?

>

> 3.Fast FOOD is our BIG ISSUE, as I haven't had a minute to search outside

of

> my home, except Mcs. They have a list on their website, which is

> wonderful, but,THey have for example Pickles on the GF list, well they

have

> distilled vinegar in them.( THIS is OK, for some on GF diet, but not

> CELIACS) So I am so afraid to take him anywhere. Anyone have any help

here??

>

> Thanks so much for all your help in advance!

>

> God Bless,

> Laurie Renke

>

>

>

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