for TRACY- school and diet

[Guest guest]

On Sun, 11 Feb 2001 20:39:56 -0800 " TnT Pilger " tntpilger@...>

writes:

,

Hi, my son is only in a class of six so there are only 5 days to worry

about other birthday parties but I have it preety well set up for this.

Some moms bring Happy Meals in. The teacher lets me know ahaed of time,

and I go to McD's and get clean wrappers for the entire meal and make my

own Happy Meal up for LJ and send it in. Works out very well.

AS FAR AS PIZZA, THAT IS A PROBLEM, BUT LJ knows he's on a special diet.

He is only 6 and has been on this diet for 10 months and really accepts

it well. I didn't know the first thing of how to explain to him about

autism and GFCF and all of that, so I just told him he's allergic and can

get BooBoos if he eats other food. On Fridays most of the lkids get

pizza, LJ goes to school with a real meaty sloppy joe that I make and I

send that in with GFCF hard corn taco flat shells and tell him its his

special pizza, and try and make sure he has a dessert he loves.

My son has an allergy to soy, plus being GFCF so there is alot of no no

items but I make what he is allowed fun.

Good luck !+

on LOng Island New York

> cake etc. No good alternative for pizza in my opinion and we just

> cant

> attend. It is very isolating . How am I going to handle this? I

> also want

> change

?? How do explain to a kid who is aware enough to know he is not

> eating

> what the others eat but cant have what they eat when cognitively

> they just

> dont understand this. Besides hwat 3 year old does?? Does a

> five/six year

> old understand this even? Thank you for thoughts, sorry so long.

> Frustrated and sad mom,

>

> Newbie Here! Hello!

>

>

> >

> > Hello all,

> >

> > First let me start by saying " Thank Goodness " for Gluten Free

> Companies! I

> > couldn't do this with out them. I " HATE " (AND I DO NOT LIKE THAT

> WORD) TO

> > COOK! I always have, so it is very strange to me that I should get

> stuck

> in

> > the kitchen night and day! But that's my life, so I am there,

> along with

> all

> > of you. Ms. Robens and Specialty Selects send us big boxes and I

> smile

> every

> > time. We may have to move to a smaller house one day, but I'd do

> it in a

> > minute to stay out of the kitchen.LOL!!

> >

> > I am still learning all the different companies and recipes out

> there!

> >

> > The last year and a half has been tough. I don't know if I am the

> only

> one

> > on this list that has a child with CELIAC'S Disease or not??? The

> doctors

> > wouldn't listen to me and thought that I was nuts complaining

> about having

> a

> > skinny child. " Some kids are skinny " , only to find out when they

> finally

> did

> > listen to me that he was slowly dying from Celiac's Disease. When

> they

> > finally did the biopsy he had NO VILLI left in his small

> intestines, they

> > were completely flat, and he had been living in pain, but knew no

> different

> > and never said one word. He couldn't ride is bike from the pain,

> and

> > everyone but me thought he was uncoordinated. At 7 years old??

> Needless to

> > say we changed doctors and I won't let a doctor not listen to me

> ever

> again!

> > He has osteoporosis, so his bones are very brittle. He can't ski

> this

> year,

> > we live in New Hampshire and Daddy ski patrols so that is hard on

> him.

> He's

> > a great kid and takes it all much better than I ever thought he

> would.

> Pizza

> > party at Scouts Friday night and he never said one word.

> >

> > He started a club in our town called The I Can't Eat " THAT " Club!

> For all

> > kids with any type of food issue. They have 6 members and meet

> once a

> month.

> > They had a candy free Halloween Party with little prizes, made

> trick or

> > treating more fun, because they got to trade all the BAD candy for

> good

> > candy when they got home. They also had a piñata stuffed with toys

> instead

> > of candy. They all have the attitude that they will not miss out

> on fun

> > things at school or home because of this. My son goes to birthday

> parties

> > and brings his own cake and a scope of ice cream in a baggie and

> when its

> > time, I scope it onto the place, no one is the wiser most times.

> He

> doesn't

> > hide it, because Celiac's is so serious, but he doesn't make it an

> issue

> > either. He refuses to let it hold him back! I hope he is well

> soon, as he

> is

> > still a very sick little boy!

> >

> > Some of you might be wondering why I didn't join a Celiac's List,

> I have,

> > but I am very interested in learning about GF/CF diet in regards

> to Autism

> > as well. My younger son has DSI(Dysfunction of Sensory

> Integration)or SID.

> > We know he has an addiction to sugar, so we are interested to see

> that

> > connection to Gluten as well. I am also interested because what he

> eats

> does

> > seem to effect his DSI symptoms. I do know enough about Autism to

> know

> that

> > these children also have DSI issues as well. My son has changed so

> very

> much

> > since DSI therapy, both with a therapist and and OT. He is

> thriving in

> first

> > grade which is something I truly never thought possible a year

> ago. Before

> > therapy he was out of control. The book The OUT of SYNC CHILD<

> saved our

> > lives.

> >

> > I have started a support group in Londonderry, NH for DSI this

> past June.

> I

> > have recently joined forces with Dr. Lucy Jane ( who has

> worked in

> DSI

> > for 30 years) , I have helped a mom near her in Denver start

> another group

> > out there and Dr, will be announcing DSI PARENT CONNECTIONS

> at this

> > weeks LA Conference with many top people in the field. We have

> 30(We hope)

> > groups set to start this spring around the country. More to follow

> as word

> > spreads that we are looking for parents to host one meeting once a

> month.

> > Soon parents will be able to log onto

> > SInetwork.org and search by state to find a DSI PARENT CONNECTION

> near

> them.

> > I am now a true believer in the POWER OF ONE!!!!

> >

> > I am sure someone has posted the POWER OF ONE day coming up in

> March in

> > Washington, DC. It is sure to be exciting and get National

> attention. I am

> > thrilled for that.

> >

> > Sorry for the long intro. Now for my questions!

> > 1. Are there any other Celiac Parents on this group?

> >

> > 2. How many of you know about the connection to DSI with Autism

> and also

> > FOOD?

> >

> > 3.Fast FOOD is our BIG ISSUE, as I haven't had a minute to search

> outside

> of

> > my home, except Mcs. They have a list on their website,

> which is

> > wonderful, but,THey have for example Pickles on the GF list, well

> they

> have

> > distilled vinegar in them.( THIS is OK, for some on GF diet, but

> not

> > CELIACS) So I am so afraid to take him anywhere. Anyone have any

> help

> here??

> >

> > Thanks so much for all your help in advance!

> >

> > God Bless,

> > Laurie Renke

> >

> >

> >

> >