Xeloda and Avastin together.... thoughts?

[Guest guest]

Hi: I am sorta new here. Diagnosed over 2.5 years ago with Stage 4,

mets to liver and most recently seeds in the lungs and possibly in my

uterus. I have a colostomy bag. I have had oxiliplatin and then

avastin. I am currently on Xeloda but the count is going up, but

hardly at all. Every 2 weeks the count is narrowing. The onc of course

wants it to GO DOWN. I think it will, but he wants me to go on avastin

again. I told him no to the leucovorin etc as I was deathly ill from

it. He is agreeing to keep me on the Xeloda for a bit longer. (I also

refused erbitux... but that's another discussion.)

I am also on a rather unorthodox protocol that was developed by a

veterinarian. He managed to help his pet patients with this simple

protocol (small doses of Kenalog and armorthyroid). I've been on this

for a month and I feel TERRIFIC! I will get my blood results back soon

to see how I am doing. I truly believe that the reason my count is not

climbing dramatically and I feel so energetic is because of this

protocol. Let me know if you want to discuss this more. Last time I

mentioned it on another cancer site I was accused of " spamming. "

Nothing could be further from the truth. I was merely trying to offer

a new approach and NOT a replacement to anything an onc can dream up!

Anyway, want to hear from anyone who has tried the above treatments

together.

Thank you for your time.

[Guest guest]

> I am curious what your onc says about your vet protocol or does

he/she know?

He knows. The vet would NOT proceed without the onc's okay. They

spoke, but it took about a month to get everyone on the same

page...dosages etc etc... it was difficult. But I think definitely

worth the trouble. And the most amazing thing? The drugs cost me $3 --

total (I do have insurance, but this was jaw dropping.)

[Guest guest]

Talking about vets..... As I have posted I am changing from my surgeon and in

fact have a appt with oncologist at Wilmont Cancer Center on the 1st. My last

Pet showed a spot on colon where the stapeles are. Last year they same spot

showed but biopsy showed not cancer. After this Pet I asked him if I could get a

ct and see what that showed. Years ago I had a reaction to the dye so now I take

predisone and benadryl before have a cat scan. He informed me I had problems

with cat scans after as many as he has sent me for. I told him no I did not have

a problem just took the medication. He informed me it might not be a problem for

me but it was a problem for him to call it in to pharmacy. That did it! Was very

upset that day and I just told him never mind I would just take the dogs pills:)

I then called my regular Dr who insisted I come see him as he could tell how

upset I was. I had not told him about the dog pills but when I went in he

already knew. I would have loved to have heard what the surgeon told him. My Dr

agreed the dogs pills were the same thing and did not blame me when I told him I

would not be seeing that surgeon again!

My dog has severe allergies and is on predisone and benadryl daily. One night

before a cat scan In the middle of the night I had been half awake to take the

pred and some how it did not hit my mouth and I could not find it. Well I did

not want to mess up getting the scan so took 10 of the dogs 5mg pred to equal

the 50 mg I was suppose to take:) At 3 am there was no one to call but called

vets office as soon as they opened and was told they were the same thing not to

worry. Of course the surgeon had no idea when I said I would just take the dogs

pills. I was furious he thought it was a problem for him to have his nurse make

a phone call.

Hil