Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 went in on Thursday for her first chemotherapy treatment. We were there from about 10:00 in the a.m. to 3:30 p.m. They gave her the following medications: Dolasetron (Anzemet) 100 mg, Dexamethasone (Decadron) 10mg, Magnesium 8 mg, Leucovorin 240 mg, Oxaliplatin 120 mg, Magnesium Solfate 8mg, 5FU (5-Fluorouracil), Lorazepam (Ativan) .5 mg, and Procrit. So far the biggest side effect that I am seeing is her being really tired. is usually a bundle of energy so seeing her so lethargic really gets to me. I'm not used to seeing that in her. But from what I have read that is one of the most common side effects. We go back in today (Saturday) so they can disconnect the pump. She'll be happy to get rid of that for a little while anyway. I've read things about what she could do about fatigue but I would rather ask the question in here for those who have gone through the same treatment. Any information would help immensly. Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 Well Dan the lethargy is just something she will have to work through. I am in my lethargic state right now, coming off chemo and it will last a couple days, but then I will be fine. I went out quickly this morning to get some errands done and was home just in time. Was carrying items from car to porch and grabbed a couple bags to take in the house. Lots my balance for a second, thought sure I was going off the porch, but just ended up on my hands and knees. So that was a sign to get in the house and chill a bit. LOL.. I am fine now, but can tell the whoozies are setting in. Just tell her to chill and not over do things. It will pass and she will be fine.. Did they give her decadron to take at home? I get it small dose on days 2-4 once chemo starts. So I don't come down from chemo until probably Saturday evening. Sunday and Monday are a bit mushy but by Wed I am fine again. Just keep eye on her that she doesn't try to do stuff when she is in the mushy stage. Her come down will probably start on Sunday evening or so... Just go with the flow. Usually once I am off chemo I take my b complex. how it helps I don't know but it doesn't hurt that I can tell.. I will drink regular or instant coffee for the caffeine boost. It helps just a bit, though I don't drink but a cup or two during the day and then it is weak. I do drink ice tea (without the lemon) but not alot of that either.. Water is the main beverage here, help flush out the chemo crap. I am rambling.. sorry.. She will be fine... Hugs Jolene djw52566 wrote: > went in on Thursday for her first chemotherapy treatment. We > were there from about 10:00 in the a.m. to 3:30 p.m. > > They gave her the following medications: Dolasetron (Anzemet) 100 > mg, Dexamethasone (Decadron) 10mg, Magnesium 8 mg, Leucovorin 240 mg, > Oxaliplatin 120 mg, Magnesium Solfate 8mg, 5FU (5-Fluorouracil), > Lorazepam (Ativan) .5 mg, and Procrit. > > So far the biggest side effect that I am seeing is her being really > tired. is usually a bundle of energy so seeing her so > lethargic really gets to me. I'm not used to seeing that in her. > But from what I have read that is one of the most common side effects. > > We go back in today (Saturday) so they can disconnect the pump. > She'll be happy to get rid of that for a little while anyway. > > I've read things about what she could do about fatigue but I would > rather ask the question in here for those who have gone through the > same treatment. Any information would help immensly. > > Dan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 While the tiredness is not pleasant it is preferable to some of the other side effects. I hope it continues this way for her and that while she may look lethargic her body will be kicking some major cancer butt! You go girl!!! Hugs and prayers Narice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 Jolene, We just love you. You always give it straight and don't cut corners, that is what I like about you. I will hang in there and pass your message on to her. I will also talk to the doctor about decadron on Monday. I know that she was anemic before the chemo and that is why they gave her the Procrit (at least that is what they said) and I'm sure that the chemo has a worse side effect on your energy level than the anemia so we'll get through this. She is always trying to do something around the house, she is usually a bundle of energy so seeing her laying down almost the entire day is something different that I'll have to get used to. Thank you and God Bless You Jolene and all that have given us great advice. Dan & > > > went in on Thursday for her first chemotherapy treatment. We > > were there from about 10:00 in the a.m. to 3:30 p.m. > > > > They gave her the following medications: Dolasetron (Anzemet) 100 > > mg, Dexamethasone (Decadron) 10mg, Magnesium 8 mg, Leucovorin 240 mg, > > Oxaliplatin 120 mg, Magnesium Solfate 8mg, 5FU (5-Fluorouracil), > > Lorazepam (Ativan) .5 mg, and Procrit. > > > > So far the biggest side effect that I am seeing is her being really > > tired. is usually a bundle of energy so seeing her so > > lethargic really gets to me. I'm not used to seeing that in her. > > But from what I have read that is one of the most common side effects. > > > > We go back in today (Saturday) so they can disconnect the pump. > > She'll be happy to get rid of that for a little while anyway. > > > > I've read things about what she could do about fatigue but I would > > rather ask the question in here for those who have gone through the > > same treatment. Any information would help immensly. > > > > Dan > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 Narice, Thank you and I'll pass your message on to her! Be Blessed Always, Dan & > While the tiredness is not pleasant it is preferable to some of the other > side effects. > I hope it continues this way for her and that while she may look lethargic > her body will be kicking some major cancer butt! > You go girl!!! > Hugs and prayers > Narice > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 I had the same chemo treatment, except for the Decadron and Procrit. I got bad headaches from Decadron so the doc substituted Kytril. Yes, she will be tired. Frequent naps help. Was she told to wear gloves when going into the fridge, etc? Thats helps. Even my eyes were sensitive to cold.If that happens, she can wear shades. My feet were tingly. I didn't take any extra calcium/magnesium. Does she take any vitamins? I know theres a restriction on vitamins A,C, and E the day before, day of and day after treatment. Why don't you ask the doctor about vitamins and some energy booster foods? I found that vitamins helped me alot, but I have been taking them way before I got cancer. There are some foods that will boost her energy. I loved fruit and couldn't eat cold oranges, apples, etc. Maybe she can leave some on the table. The only thing is that fruits may give her the runs because of the 5FU. This became frustrating for me. It gets easier as her treatment continues. Saying prayers Carolyn > went in on Thursday for her first chemotherapy treatment. We > were there from about 10:00 in the a.m. to 3:30 p.m. > > They gave her the following medications: Dolasetron (Anzemet) 100 > mg, Dexamethasone (Decadron) 10mg, Magnesium 8 mg, Leucovorin 240 mg, > Oxaliplatin 120 mg, Magnesium Solfate 8mg, 5FU (5-Fluorouracil), > Lorazepam (Ativan) .5 mg, and Procrit. > > So far the biggest side effect that I am seeing is her being really > tired. is usually a bundle of energy so seeing her so > lethargic really gets to me. I'm not used to seeing that in her. > But from what I have read that is one of the most common side effects. > > We go back in today (Saturday) so they can disconnect the pump. > She'll be happy to get rid of that for a little while anyway. > > I've read things about what she could do about fatigue but I would > rather ask the question in here for those who have gone through the > same treatment. Any information would help immensly. > > Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 Carolyn, Thank you for your help. The ocn nurse said she would be sensitive to cold so we are watching that like a hawk. She has messed up a couple of times and drank something cold and she could feel it. They did say that she may become sensitive to light also. I'll talk to the doctor tomorrow about vitamins. I know she is still taking her iron and we have her on this stuff called " Super Food " that you put in a drink, kind of nasty looking but helps increase her energy level before the chemo. You've brought up some interesting stuff that I will talk to the chemo doctor about. We use a lot of the Dr. Schultz herbal stuff so I may call them also and see what they say. Thanks a million and keep fighting.... Dan & > > went in on Thursday for her first chemotherapy treatment. > We > > were there from about 10:00 in the a.m. to 3:30 p.m. > > > > They gave her the following medications: Dolasetron (Anzemet) 100 > > mg, Dexamethasone (Decadron) 10mg, Magnesium 8 mg, Leucovorin 240 > mg, > > Oxaliplatin 120 mg, Magnesium Solfate 8mg, 5FU (5-Fluorouracil), > > Lorazepam (Ativan) .5 mg, and Procrit. > > > > So far the biggest side effect that I am seeing is her being > really > > tired. is usually a bundle of energy so seeing her so > > lethargic really gets to me. I'm not used to seeing that in her. > > But from what I have read that is one of the most common side > effects. > > > > We go back in today (Saturday) so they can disconnect the pump. > > She'll be happy to get rid of that for a little while anyway. > > > > I've read things about what she could do about fatigue but I would > > rather ask the question in here for those who have gone through > the > > same treatment. Any information would help immensly. > > > > Dan Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.