Re: Phone call from Pitt (UPMC) for Phil

[Guest guest]

beating something up sounds good!

[Guest guest]

I agree Narice,

cancer really does STINK.!!!!!!!!!! It's okay to be down I guess once in a

while, Strong gets tiring , doesn't it? Good luck to you all, I will keep you

in my prayers..........Lora Ann

flipper759@... wrote:

Well gang

We are going back to Pittsburgh July 5 to have UPMC do nuclear medicine

pictures of the pump in Phil's liver 7 AM Tuesday, July 5. Yippee

Phil told them he had a meeting that evening and would he be back. The

receptionist said

" We can't tell you it depends what they find "

.. So of course Phil is nervous as am I.

Really the worst thing they can find is that it isn't working at least that

is the worst I can figure out.

I'm just not up for the whole thing but know it could be worse so guess I'll

just have to deal with it. Seems like every summer is a major fiasco lately.

It would be so nice to have some peace!! Seems whenever you get a little

hope something else happens. I'm so tired of being STRONG whatever that really

means. But I try anyway.

Oh well, sorry I'm just feeling down lately. Cancer truly stinks!!!

Narice

[Guest guest]

Well here is hoping for some good news on the July 5th.. I know the feeling.

I used to have that when my kids were growing up. It seemed like if

things got too quiet I knew something

was going to happen with one of the kids. Somtimes it was minor but

other times it wasn't. Seems Like

I walked around waiting for an axe to drop all the time. Now and again I

worry about the grand daughters.

I come by this apprehension honestly.. My mom used to wake me up to make

sure I was okay. The one time she

dreamt that the book of knowledge (our encyclopedia set) had fallen on

me. LOL... Mom did this to my sisters as well

with differenet bad dreams. LOL.. We joked about it but it wasn't always

so funny.

Keep the faith Narice, this too shall pass and hopefully somewhere along

the line Phil will get some relief.

Just got a call from my Onc in San Antonino. My CT scan which is for my

chest is for July 15, but he wants to schedule one

for my spine as well. All these years my back has bothered me off and on

and now they are going to check it out. Doesn't hurt as much as it did

in the beginning. Just now and then when I am really tired, and I take a

percocet and it it fine.. so what that CT scan will show that the

other one won't I don't know. Now Friday I have to go by CT scan and

schedule the othet test. Always something. I am going to be really mad

if he starts getting paranoid now that I am NOT NED. That is what I want

to hear... and soon after my chemo is done. Hugs and Prayers Jolene.

flipper759@... wrote:

> Well gang

>

> We are going back to Pittsburgh July 5 to have UPMC do nuclear medicine

> pictures of the pump in Phil's liver 7 AM Tuesday, July 5. Yippee

>

> Phil told them he had a meeting that evening and would he be back. The

> receptionist said

> " We can't tell you it depends what they find "

> . So of course Phil is nervous as am I.

> Really the worst thing they can find is that it isn't working at least

> that

> is the worst I can figure out.

>

> I'm just not up for the whole thing but know it could be worse so

> guess I'll

> just have to deal with it. Seems like every summer is a major fiasco

> lately.

> It would be so nice to have some peace!! Seems whenever you get a little

> hope something else happens. I'm so tired of being STRONG whatever

> that really

> means. But I try anyway.

>

> Oh well, sorry I'm just feeling down lately. Cancer truly stinks!!!

>

> Narice

>

>

>

>

>

[Guest guest]

Hang on Narice. Find you a dark corner somewhere, or a closet you can

shut yourself into and scream for all it is worth. It will relieve the

tension. Then Let Go and Let God handle it all. You know it will,

though it will take time and cause some anquish. We are here for you...

Or get one of those blow up things that rock back and forth, and beat

the crap out of it. Try a pillow...Big Hugs Jolene

ME wrote:

> I agree Narice,

> cancer really does STINK.!!!!!!!!!! It's okay to be down I guess once

> in a while, Strong gets tiring , doesn't it? Good luck to you all, I

> will keep you in my prayers..........Lora Ann

>

> flipper759@... wrote:

> Well gang

>

> We are going back to Pittsburgh July 5 to have UPMC do nuclear medicine

> pictures of the pump in Phil's liver 7 AM Tuesday, July 5. Yippee

>

> Phil told them he had a meeting that evening and would he be back. The

> receptionist said

> " We can't tell you it depends what they find "

> . So of course Phil is nervous as am I.

> Really the worst thing they can find is that it isn't working at least

> that

> is the worst I can figure out.

>

> I'm just not up for the whole thing but know it could be worse so

> guess I'll

> just have to deal with it. Seems like every summer is a major fiasco

> lately.

> It would be so nice to have some peace!! Seems whenever you get a little

> hope something else happens. I'm so tired of being STRONG whatever

> that really

> means. But I try anyway.

>

> Oh well, sorry I'm just feeling down lately. Cancer truly stinks!!!

>

> Narice

>

>

>

>

>

[Guest guest]

Good luck, Jolene! You are in my prayers.

Re: Phone call from Pitt (UPMC) for Phil

Well here is hoping for some good news on the July 5th.. I know the feeling.

I used to have that when my kids were growing up. It seemed like if

things got too quiet I knew something

was going to happen with one of the kids. Somtimes it was minor but

other times it wasn't. Seems Like

I walked around waiting for an axe to drop all the time. Now and again I

worry about the grand daughters.

I come by this apprehension honestly.. My mom used to wake me up to make

sure I was okay. The one time she

dreamt that the book of knowledge (our encyclopedia set) had fallen on

me. LOL... Mom did this to my sisters as well

with differenet bad dreams. LOL.. We joked about it but it wasn't always

so funny.

Keep the faith Narice, this too shall pass and hopefully somewhere along

the line Phil will get some relief.

Just got a call from my Onc in San Antonino. My CT scan which is for my

chest is for July 15, but he wants to schedule one

for my spine as well. All these years my back has bothered me off and on

and now they are going to check it out. Doesn't hurt as much as it did

in the beginning. Just now and then when I am really tired, and I take a

percocet and it it fine.. so what that CT scan will show that the

other one won't I don't know. Now Friday I have to go by CT scan and

schedule the othet test. Always something. I am going to be really mad

if he starts getting paranoid now that I am NOT NED. That is what I want

to hear... and soon after my chemo is done. Hugs and Prayers Jolene.

flipper759@... wrote:

> Well gang

>

> We are going back to Pittsburgh July 5 to have UPMC do nuclear medicine

> pictures of the pump in Phil's liver 7 AM Tuesday, July 5. Yippee

>

> Phil told them he had a meeting that evening and would he be back. The

> receptionist said

> " We can't tell you it depends what they find "

> . So of course Phil is nervous as am I.

> Really the worst thing they can find is that it isn't working at least

> that

> is the worst I can figure out.

>

> I'm just not up for the whole thing but know it could be worse so

> guess I'll

> just have to deal with it. Seems like every summer is a major fiasco

> lately.

> It would be so nice to have some peace!! Seems whenever you get a little

> hope something else happens. I'm so tired of being STRONG whatever

> that really

> means. But I try anyway.

>

> Oh well, sorry I'm just feeling down lately. Cancer truly stinks!!!

>

> Narice

>

>

>

>

>

[Guest guest]

In a message dated 6/28/2005 8:53:07 PM Eastern Standard Time,

flipper759@... writes:

beating something up sounds good!

I'm staying out of Narice's way until someone sends her more PAXIL!!!! LOL

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

Oh Narice, you are so right about this being strong stuff. Sending you some

loving hugs.

karima

Re: Phone call from Pitt (UPMC) for Phil

I agree Narice,

cancer really does STINK.!!!!!!!!!! It's okay to be down I guess once in a

while, Strong gets tiring , doesn't it? Good luck to you all, I will keep you

in my prayers..........Lora Ann

flipper759@... wrote:

Well gang

We are going back to Pittsburgh July 5 to have UPMC do nuclear medicine

pictures of the pump in Phil's liver 7 AM Tuesday, July 5. Yippee

Phil told them he had a meeting that evening and would he be back. The

receptionist said

" We can't tell you it depends what they find "

. So of course Phil is nervous as am I.

Really the worst thing they can find is that it isn't working at least that

is the worst I can figure out.

I'm just not up for the whole thing but know it could be worse so guess I'll

just have to deal with it. Seems like every summer is a major fiasco lately.

It would be so nice to have some peace!! Seems whenever you get a little

hope something else happens. I'm so tired of being STRONG whatever that really

means. But I try anyway.

Oh well, sorry I'm just feeling down lately. Cancer truly stinks!!!

Narice

[Guest guest]

I'm taking it now Donelle

In a message dated 6/28/2005 10:39:52 PM Eastern Standard Time,

Grandmommyandme@... writes:

In a message dated 6/28/2005 8:53:07 PM Eastern Standard Time,

flipper759@... writes:

beating something up sounds good!

I'm staying out of Narice's way until someone sends her more PAXIL!!!! LOL

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

(((Narice)))(((Phil)))

I totally understand about the peace thing , or lack there off.

and about the dashing of hope, yesterday we found out that the kids and myself

will be back on Joe's insurance as of July 1st , YAY!!

Today we found out that Dani's neurosurgeon doesnt except that insurance so as

it stands at this EXACT moment ,

Dani surgery will be out of network to the tune of THREE THOUSAND dollars that

we will have to pay , yes that may seem small compared to the cost of the whole

insurance , but heck that might as well be 3 million for all we can afford it.

We are trying to get her qualified for some insurance for Special needs kids, (

we THINK her condition qualifies her for that )

If so then they will pick up the 3000 dollar tab.

Please keep your fingers crossed they do.

I will say an extra prayer for Phil and you today ,

I also am having a big problem with remaining strong

Deb

flipper759@... wrote:

Well gang

We are going back to Pittsburgh July 5 to have UPMC do nuclear medicine

pictures of the pump in Phil's liver 7 AM Tuesday, July 5. Yippee

Phil told them he had a meeting that evening and would he be back. The

receptionist said

" We can't tell you it depends what they find "

.. So of course Phil is nervous as am I.

Really the worst thing they can find is that it isn't working at least that

is the worst I can figure out.

I'm just not up for the whole thing but know it could be worse so guess I'll

just have to deal with it. Seems like every summer is a major fiasco lately.

It would be so nice to have some peace!! Seems whenever you get a little

hope something else happens. I'm so tired of being STRONG whatever that really

means. But I try anyway.

Oh well, sorry I'm just feeling down lately. Cancer truly stinks!!!

Narice

[Guest guest]

Dear Deb,

" Fear not, for I am with you " .............do you know that quote.

Just close your eyes and reach out your hand and you will have the strength you

need.

Karima

Re: Phone call from Pitt (UPMC) for Phil

(((Narice)))(((Phil)))

I totally understand about the peace thing , or lack there off.

and about the dashing of hope, yesterday we found out that the kids and myself

will be back on Joe's insurance as of July 1st , YAY!!

Today we found out that Dani's neurosurgeon doesnt except that insurance so as

it stands at this EXACT moment ,

Dani surgery will be out of network to the tune of THREE THOUSAND dollars that

we will have to pay , yes that may seem small compared to the cost of the whole

insurance , but heck that might as well be 3 million for all we can afford it.

We are trying to get her qualified for some insurance for Special needs kids,

( we THINK her condition qualifies her for that )

If so then they will pick up the 3000 dollar tab.

Please keep your fingers crossed they do.

I will say an extra prayer for Phil and you today ,

I also am having a big problem with remaining strong

Deb

flipper759@... wrote:

Well gang

We are going back to Pittsburgh July 5 to have UPMC do nuclear medicine

pictures of the pump in Phil's liver 7 AM Tuesday, July 5. Yippee

Phil told them he had a meeting that evening and would he be back. The

receptionist said

" We can't tell you it depends what they find "

. So of course Phil is nervous as am I.

Really the worst thing they can find is that it isn't working at least that

is the worst I can figure out.

I'm just not up for the whole thing but know it could be worse so guess I'll

just have to deal with it. Seems like every summer is a major fiasco lately.

It would be so nice to have some peace!! Seems whenever you get a little

hope something else happens. I'm so tired of being STRONG whatever that really

means. But I try anyway.

Oh well, sorry I'm just feeling down lately. Cancer truly stinks!!!

Narice