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Hi,

In reply to your mailing, I am on disability and retired from work.

Hope that helps with your poll.

Gentle fibro hugs

Luv

Lin x from England

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Guest guest

Hi,

In reply to your mailing, I am on disability and retired from work.

Hope that helps with your poll.

Gentle fibro hugs

Luv

Lin x from England

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Guest guest

I'm not working :*( and on disability.

Rhonda

poll

is it possible to do a poll on how many of us are working, not

working, on diability, applying for disability, ect....

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I'm not working :*( and on disability.

Rhonda

poll

is it possible to do a poll on how many of us are working, not

working, on diability, applying for disability, ect....

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Guest guest

It took me from November 1999 through March 2001 to get my benefits. I

got an attorney to help me who specializes in SS. I have been off of

work 3 years now - officially TODAY. I stopped working May 21, 1999. I

also have long term disability - very lucky to have this. They are

reviewing it now, since its been 3 years. I sure hope they don't reject

me because I would never be able to survive without it.

Sherri, did you keep trying? I was turned down 3 times before it

finally went before a judge and I was approved 4 months later.

Keep a positive thought for me Please!

Cathy

> I'm not working and have been turned down for SS

>

> Cyberhugs,

> Sherri

>

>

>

>

> SEND POST TO: fibromyalgia-cfs

>

> HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-

> cfs.html

> LIST OWNER:  " Missy " Parrot004@...>

> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

>

>

>

>

>

>

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Guest guest

It took me from November 1999 through March 2001 to get my benefits. I

got an attorney to help me who specializes in SS. I have been off of

work 3 years now - officially TODAY. I stopped working May 21, 1999. I

also have long term disability - very lucky to have this. They are

reviewing it now, since its been 3 years. I sure hope they don't reject

me because I would never be able to survive without it.

Sherri, did you keep trying? I was turned down 3 times before it

finally went before a judge and I was approved 4 months later.

Keep a positive thought for me Please!

Cathy

> I'm not working and have been turned down for SS

>

> Cyberhugs,

> Sherri

>

>

>

>

> SEND POST TO: fibromyalgia-cfs

>

> HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-

> cfs.html

> LIST OWNER:  " Missy " Parrot004@...>

> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

>

>

>

>

>

>

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Guest guest

It took me from November 1999 through March 2001 to get my benefits. I

got an attorney to help me who specializes in SS. I have been off of

work 3 years now - officially TODAY. I stopped working May 21, 1999. I

also have long term disability - very lucky to have this. They are

reviewing it now, since its been 3 years. I sure hope they don't reject

me because I would never be able to survive without it.

Sherri, did you keep trying? I was turned down 3 times before it

finally went before a judge and I was approved 4 months later.

Keep a positive thought for me Please!

Cathy

> I'm not working and have been turned down for SS

>

> Cyberhugs,

> Sherri

>

>

>

>

> SEND POST TO: fibromyalgia-cfs

>

> HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-

> cfs.html

> LIST OWNER:  " Missy " Parrot004@...>

> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

>

>

>

>

>

>

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Guest guest

Hi,

I work full-time, and have not considered applying for Social

Security yet. I think I would go crazy if I didn't work, as much as

it hurts me to do so. Mentally, it's beneficial, especially now that

I'm on Zoloft, and am not unintentionally making things harder for

myself anymore. I am looking for a different job, preferably with a

bigger company, where I would have a specified amount of sick days I

could take, and that way, I'd be able to take a day off if I needed

it without getting a nasty lecture from my boss.

Take care everyone,

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  • 2 years later...
Guest guest

1.  Name?? Chippy Dee

2.  Age?? 51

3.  State you live in?? Louisiana

4.  Are you married and how long?? Yes I am married...30 years...

5.  How old were you when you were diagnosed?? I got my first ANA

test etc. about two years ago when i had borderline ANA...diagnoses with

Discoid Lupus last Nov.

6.  When you are in you flare what are you symptoms?? My inside

joints of my hips hurt very badly.

7.  If you could give advice to someone with disease what would it

be?? Learn how to stay inside away from the sun and flourescent

lights...

8.  If you could go anywhere with just you and your dh or so where

would it be?? To see my kids...they live far away and my only other

daughter living here is moving up there with them.

9.  Do you have any pets??  (what kind and there names) I have a

siamese cat named Gizzy I have a deaf cat named Nermal cause she is way

not normal. I have a licky cat name . Licky cause she likes to

lick. I have a navy cat named Max. Navy cat cause he loves to be

sitting in water. I have a big dal named ...he is liver and

white and I have a black and tan weenie dog that is the spawn of satan

and his name is rudy.

10.  What is your favorite color?? red

11. Additional items...

I am a special education preschool teacher. I also have written about

300 children's songs and chants that I use on a daily basis in my

classroom. I have written plays and have directed them. These plays

star kindergarten children.

I love to work in my garden and i also drive 1826 miles to see my kids

and grandbaby one way. I will not fly.

I cannot cook a stick.

Chippy

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Guest guest

1.  Name?? Chippy Dee

2.  Age?? 51

3.  State you live in?? Louisiana

4.  Are you married and how long?? Yes I am married...30 years...

5.  How old were you when you were diagnosed?? I got my first ANA

test etc. about two years ago when i had borderline ANA...diagnoses with

Discoid Lupus last Nov.

6.  When you are in you flare what are you symptoms?? My inside

joints of my hips hurt very badly.

7.  If you could give advice to someone with disease what would it

be?? Learn how to stay inside away from the sun and flourescent

lights...

8.  If you could go anywhere with just you and your dh or so where

would it be?? To see my kids...they live far away and my only other

daughter living here is moving up there with them.

9.  Do you have any pets??  (what kind and there names) I have a

siamese cat named Gizzy I have a deaf cat named Nermal cause she is way

not normal. I have a licky cat name . Licky cause she likes to

lick. I have a navy cat named Max. Navy cat cause he loves to be

sitting in water. I have a big dal named ...he is liver and

white and I have a black and tan weenie dog that is the spawn of satan

and his name is rudy.

10.  What is your favorite color?? red

11. Additional items...

I am a special education preschool teacher. I also have written about

300 children's songs and chants that I use on a daily basis in my

classroom. I have written plays and have directed them. These plays

star kindergarten children.

I love to work in my garden and i also drive 1826 miles to see my kids

and grandbaby one way. I will not fly.

I cannot cook a stick.

Chippy

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  • 11 months later...
Guest guest

Altman is the one who founded this board. He died in 2004 after a long

courageous battle with stage 4 colon cancer, His family has graciously kept

this site up and running since then according to 's final wishes. The

information he had posted is helpful if you use it. did a lot of research

for all of us on various treatment options etc. saving us hours of leg work

and helping many of us find hope.

You are entitled to your opinion, but I for one will be forever grateful for

all those ALTMAN posts.

They quite possibly have prolonged my husband's life and given me hope.

Narice

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Guest guest

In a message dated 6/30/2005 9:50:02 AM Eastern Standard Time,

jehret@... writes:

I really don't believe that THEOTHERS have taken over this sight. Are

whole lot more of us than them. I just hit delete key when I

get something from someone I don't want to hear from. I get messages in

my email and that way I can delete them as I see fit.

You are losing more than you know my choosing not to come to this site,

as I said there are more of us with good information, advice, and help

than those others. ignore them ... Half time I don't evern read what

they put out... I will be thinking about you.. You don't have to

apologize, you can do whatever you want but don't let these others chase

you away from good place to be. Jolene

I must have missed something Jolene...what poll? And what " others " ??

Are we talking about " others " with Cancer?? Fill me in, girlie!!! I've

been Yahooed again!!! LOL

Lots of hugs and prayers, Donelle

Caregiver to Glenn

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Guest guest

for some reason I could not vote on the poll.

But I thought this site was for colon cancer only.

I do not like all of the posting from altman on here.

I know i haven't been on here long. but enjoy the group that

was posting. So I will not keep comming back to this site. has

gotten taken over by others.

I know others are in need of this infomation you are posting. but

please go back to another site for all this. sorry to be so negitave

about this. but this is how i feel.

I guess every one has their own feelings about this. and i will

probely be the only one to express mine. sorry

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In a message dated 6/30/2005 12:22:15 PM Eastern Standard Time,

peachfuzz_0121@... writes:

I am lost, can someone please explain to me who THE OTHERS are? Thank

you.....Lora Ann

Don't feel bad, Lora Ann.... I'm lost, too!!! Wanna be lost together???

LOL Just hoping " the others " are US!!!! LOL

Lots of hugs and prayers, Donelle

Caregiver to Glenn

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Guest guest

Priscilla responded to this as well.. I don't know about the poll, maybe

was something at the group site. But the posts were altman posts which

Priscilla stated were the former or owner of this club who has since

passed away. I really was just responding to her comment about " the

club being 'taken over' by these elements " which such is NOT the case at

all. Check Priscillas post.... I will find it and post it here.

Well be darned I can't find it. If anything I deleted it and should be

in my trash but it is no where. She did it this morning, maybe an hour

or so ago.. Arghhhh. I hate when that happens.. Trying to remember who

posted the messagein first place. Might have been hanky but can't

remember for sure.

Sorry Jolene

Grandmommyandme@... wrote:

>

> In a message dated 6/30/2005 9:50:02 AM Eastern Standard Time,

> jehret@... writes:

>

> I really don't believe that THEOTHERS have taken over this sight. Are

> whole lot more of us than them. I just hit delete key when I

> get something from someone I don't want to hear from. I get messages in

> my email and that way I can delete them as I see fit.

> You are losing more than you know my choosing not to come to this site,

> as I said there are more of us with good information, advice, and help

> than those others. ignore them ... Half time I don't evern read what

> they put out... I will be thinking about you.. You don't have to

> apologize, you can do whatever you want but don't let these others chase

> you away from good place to be. Jolene

>

>

>

> I must have missed something Jolene...what poll? And what " others " ??

> Are we talking about " others " with Cancer?? Fill me in, girlie!!! I've

> been Yahooed again!!! LOL

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>

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Guest guest

Hmmm Lost here too

Deb

Grandmommyandme@... wrote:

In a message dated 6/30/2005 12:22:15 PM Eastern Standard Time,

peachfuzz_0121@... writes:

I am lost, can someone please explain to me who THE OTHERS are? Thank

you.....Lora Ann

Don't feel bad, Lora Ann.... I'm lost, too!!! Wanna be lost together???

LOL Just hoping " the others " are US!!!! LOL

Lots of hugs and prayers, Donelle

Caregiver to Glenn

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Guest guest

I add my name to the " lost here " list. I would like to have an

explanation of who " the others " are too!

Carolyn

>

>

> In a message dated 6/30/2005 12:22:15 PM Eastern Standard Time,

> peachfuzz_0121@y... writes:

>

> I am lost, can someone please explain to me who THE OTHERS are?

Thank

> you.....Lora Ann

>

>

>

> Don't feel bad, Lora Ann.... I'm lost, too!!! Wanna be lost

together???

> LOL Just hoping " the others " are US!!!! LOL

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>

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Guest guest

In a message dated 6/30/2005 3:19:30 PM Eastern Standard Time,

hanky39@... writes:

HI, yes it was Hanky 39 who responded, I was reading our post this

morning, and the alltman post started comming on. I quit at 135 of

them.

I did not know

Alltman?

was the founder of this siste, but if he died who is putting all this

back on here?? sounded like he was on another site and it went dead,

so he came here.

I don't remember the number of the post to tell you. Think the last

number was 61 or 62.

Didn't mean to offend any one who need all that information. I just

though this was a chat site to help each other out.

Hi Hanky!!! I think you were TRULY Yahooed somehow!!! Did the posts just

keep coming up in your email mailbox??? That's wild!!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

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Guest guest

In a message dated 6/30/2005 3:19:30 PM Eastern Standard Time,

hanky39@... writes:

HI, yes it was Hanky 39 who responded, I was reading our post this

morning, and the alltman post started comming on. I quit at 135 of

them.

I did not know

Alltman?

was the founder of this siste, but if he died who is putting all this

back on here?? sounded like he was on another site and it went dead,

so he came here.

I don't remember the number of the post to tell you. Think the last

number was 61 or 62.

Didn't mean to offend any one who need all that information. I just

though this was a chat site to help each other out.

Hi Hanky!!! I think you were TRULY Yahooed somehow!!! Did the posts just

keep coming up in your email mailbox??? That's wild!!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

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