Janet,Larry and others with neuropathy question

[Guest guest]

Janet and or Larry , How is your neuropathy doing? Any better yet ?

Joe's is getting worse as the time goes by , he now has it in his hands , feet ,

ankles , calves, knees.

What if anything are yall doing for yours?

Joe is taking his vitamins including B-6 , and Calcium magnesium pill.

Any ideas at all??

The other day he was standing at work , and his right ankle started hurting

horrible , just like if he had sprained it.

Feet hurt the worse .

Deb

33yrold husband Joe, was diagnosed with CC in Sept,

resection on Sept 27th 2004

found mets to the abdominal wall lining 3 lymph nodes involved

open wound from infection until Jan 2005

Ileostomy reversal Dec 7th 2004

Chemo regiment begun Jan 2005

5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines

Calcium Magnesium added for the Tingles Feb 28 2005

Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found

April 1 2005 PET scan done awaiting results

April 11 PET SCAN SHOWS

NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

May 9 Plateletts are low 75,000

__________________________________________________

[Guest guest]

Hi Deb,

My hands are worse, so it is frustrating to do things that require fine motor

skills. Makes me think how frustrating it must be for infants. : ) My feet may

actually be ever so slightly better. I can't quite judge yet. But one thing I

notice is that the longer I am on my feet, the worse they get. I also noticed

that it seemed to go up my arms and lower legs, but mostly after I have been

sitting for a while. I have tried massage, but it didn't seem to affect it.

My acupuncturist is out of the country for a month, so no laser treatments for

the duration. It will be interesting to see how that affects the whole thing.

that had been the one thing that helped me. I haven't added the B-6

supplements, which I should probably do, but I have bveen taking many chinese

herbs and a special calcium/magnesium for chemo (2-AEP calcium and 2- AEP

magnesium ). I am also drinking Chlorofresh (liquid chlorophyll) mixed with

soluble vitaminc crystals in a huge glass of water to help make my body purge

the heavy metals in the body, and let's face it,,,they were putting platinum in

our bodies. I am also doing a detox bath of: 2 c. Epson Salts, 2 c. baking

soda and 1 c. Sea Salt, in a very warm bath for 20 minutes. I am getting more

stamina, but I think that it will just take time, and lots of it : ( , for this

neuropathy to go away. If you find something that helps, please let me know,

and I will do the same.

Janet

deb vamdembos debbied31@...> wrote:

Janet and or Larry , How is your neuropathy doing? Any better yet ?

Joe's is getting worse as the time goes by , he now has it in his hands , feet ,

ankles , calves, knees.

What if anything are yall doing for yours?

Joe is taking his vitamins including B-6 , and Calcium magnesium pill.

Any ideas at all??

The other day he was standing at work , and his right ankle started hurting

horrible , just like if he had sprained it.

Feet hurt the worse .

Deb

33yrold husband Joe, was diagnosed with CC in Sept,

resection on Sept 27th 2004

found mets to the abdominal wall lining 3 lymph nodes involved

open wound from infection until Jan 2005

Ileostomy reversal Dec 7th 2004

Chemo regiment begun Jan 2005

5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines

Calcium Magnesium added for the Tingles Feb 28 2005

Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found

April 1 2005 PET scan done awaiting results

April 11 PET SCAN SHOWS

NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

May 9 Plateletts are low 75,000

__________________________________________________

[Guest guest]

Well hope everyone Joe, Janet and others who are plagued with the

neuropathy get it out of your system soon. I am just starting to feel

some of the effects -- numb fingertips, and it appears my aches and

pains in my legs are coming back, knees and hips. I am taking a b

complex... Still looking for Calcium magnesium, though have not looked

in GNC or other health food store. Have a GNC in the mall and another

one that I can't think of the name right now.

My back doesn't really bother me anymore and I can handle it with

Tylenol, didn't want to get to rely on the percocet so that is good.

I do have one little problem that rather bugs me but is controllable.

They talked about mouth sores, but I have not really sores but

something in my nose... Could be part of my allergy, but I think it is

chemo related. My nose gets really stuffy and I blow it and it is partly

really nasty looking snot, and blood... Is more annoying than

anything. What I need to get is some saline nose drops, which I forgot

yesterday when I went to Walmart... Grrrr. Dread going out today but

traffic is not bad, good portion of crazy drivers went out of town to

kill themselves somewhere else..

Gdaughter is listening to Phantom of the Opera soundtrack AGAIN or

should say STILL... They watch the movie all night on Friday. Finally

took it away and daughter Laurie borrowed so they won't have it for a

week, and then it will be rationed to one day a week or so. I like the

Phantom too but constantly is way too much for me. Well am washing

clothes or finishing up washing finally. Take care everyone, have safe

and happy 4th. I made Potato Salad which is half gone already. That is

okay still have beans to make. LOL... We grill tomorrow, just us

folks... Take care Jolene