Re: Success rate of Cutler protocol

[Guest guest]

Hi ,

I'm a chelating adult and I'm also chelating my 2 neurotypical kids. We've done

something

like 65 rounds in almost two years, having taken an extended break this year.

No regrets, and significant progress. We saw a lot of progress in the

beginning, then sort of

a stall (this is normal), and then things went to hell in a handbasket for me.

It turned out I had a bad fungal infection in my gut, as well as food

intolerances which

needed to be addresssed. Also, somewhat messed up adrenals and thyroid and sex

hormones.

IME, people who just chelate, but don't sufficiently address the other systems

which need

support or fixing, don't fare as well. There is a reason Amalgam Illness is

jam-packed with a

lot of info besides just " how to chelate " .

Good luck,

[Guest guest]

> No regrets, and significant progress. We saw a lot of progress in

the beginning, then sort of

> a stall (this is normal), and then things went to hell in a

handbasket for me.

Could you please explain what happened? Did you recover from the

regression period? How are you doing now?

[Guest guest]

> No regrets, and significant progress. We saw a lot of progress in

the beginning, then sort of

> a stall (this is normal), and then things went to hell in a

handbasket for me.

Could you please explain what happened? Did you recover from the

regression period? How are you doing now?

[Guest guest]

Hi guys, its been a long time! Some of the old timers will remember me. I have

been active off and on in this group for the past couple of years, and this

thread caught my attention, and I'd like to throw my two cents in. Like

, I have made progress on the Cutler protocol and believe it is the

safest way to chelate, and is the only protocol I would recommend to anyone. So

for those of you who aren't sure or are newbies, you are in the right place and

doing the right thing. There are wonderful people here to help you. I know it

can be discouraging to here of people still chelating and not totally well after

a couple of years, but there are a number of variables involved, and this won't

be the same for all. First of all, some of us are just more toxic than others,

and it's going to take a very long time to safely lower our levels. I think

has eluded to the fact that she will probably be chelating for many years.

I don't see myself being a quick fix either. And secondly, like what happened

to , other things happen, life happens, and we get side-tracked or

derailed. This also happened to me. I got my amalgams out in 2005 and

chelation was going pretty well for over a year. In the summer of 2006, I was

feeling pretty good, and was very hopeful that " I was on my way " to recovery,

that all I had to do was keep chelating and I would recover my health. Then the

wheels fell off for me also, my appendix ruptured in August and the ER didn't

figure it out and sent me home. Lucky I didn't die. Anyway, I wound up having

three medical procedures in 2006 and a couple rounds of heavy duty antibiotics,

and I also went to hell in a handbasket that fall and regressed horribly. I had

a horrible winter, and finally went to see in February. She has

definitely helped me, but because of continued family stress, I haven't been

able to keep myself on track and have done very little chelation this year. So

I totally understand 's situation, that other things happen, and it has

nothing to do with chelation, but it gets you off track, so this whole process

may take longer for some than others. So there can be a number of reasons why

people end up chelating for longer periods, so don't assume it's because the

protocol doesn't work. Sometimes life happens, and it throws a wrench in our

plans.

Jackie T.

In frequent-dose-chelation , mmc2315 wrote:

>

> Could you please explain what happened? Did you recover from the

> regression period? How are you doing now?

>

The turning point was the severe fungal infection in my gut. I was on 2 rounds

of

antibiotics for an illness, dealing with a family crisis, and then felt

everything start to go

downhill after that. I don't think I was nearly aggressive enough with the

probiotics, and I

was not on an anti-candida diet.

I did a GI test, and the fungal infection turned out to be a type of fungus

which is a known

contaminant of kefir grains. I suspect the homemade kefir I was guzzling was

contaminated and contributed to the severity of the infection.

The GI test also showed I was gluten intolerant, and soy intolerant. The

problems in my

gut were likely straining my adrenals, and pushing my thryoid down.

In addition, I'm fairly sure I'm low on progesterone (perimenopause), but I'm

taking it one

little step at a time, and saving money to do some testing so there is less

guesswork.

I've been gluten free since mid-July, anti-candida diet, I'm taking an herbal

antifungal, lots

of probiotics, digestive enzymes...and I'm feeling a whole lot better.

It's got nothing to do with chelating perse.

HTH,

[Guest guest]

>

> I all,

> I am considering using the protocol--Already had a hair test and

> counting rules indicate I'm mercury toxic...

>

> I was wondering, about what percent of people who did the protocol as

> Andy recommends found that they had elimination or lessening of

> symptoms. Are there any stats on the success rate--or even

anecdotally

> are there people here who tried it with success?

>

> Thanks,

>

>

: This protocol saved my life. I got tested at a regional

chelation clinic Sring 2006 and believe my progress was hindered by the

huge amount of lead and mercury I stirred up doing that IV push testing.

Its been about 18 months since I got on the Cutler protocol; I lurked

around on this site for about 6 weeks; I was so scared of again getting

the awful side effects like I had experienced in that IV test. But I

couldnt stay like I was; my kidney function was so impaired.

I stayed under a naturopath's care with homeopathic drainage products

to help the kidneys [ I did that for a month before starting this to

help relieve the kidney burden as much as possible ] and kept up

minimal amounts of supplements at first; my system was so overloaded.

I was able to later to add; nowadays Im on a minimal amount, muscle

testing shows Im okay - saving me money!

This protocol is like that " traditional " IV setup only you dont drown

your body in those chelation agents all at once and stir up that toxic

mess so badly; you dose small and frequently over several days. I

slowly added days on and then days off.

I never did raise my dosages above 12.5 mg of DMSA for 4 months and

then ALA at 12.5 mg. I would do 2 doses of the DMSA before starting

the ALA and finish up with 2 doses of DMSA by itself to help " clean up "

after the ALA helped bring metals through the BBBarrier.

[note: Now I know it doesnt exactly do that; but ALA does help make

the BBB more permeable, and thus allows the DMSA or whatever agent to

pull metals out of the brain.. please no replies on that... i hope

anyone reading this HAS READ all the prior postings and the files

section... if not, please do so NOW! ]

Others do it differently and increase their dosing to tolerance of the

side effects - their body composition allows them that - good for them!

You just have to figure that part out for yourself, and by reading

reading reading on this group site....

Long story short, I started feeling MUCH better after 6-7 months and

continue to do so. I purposely didnt up my doses because I had a

quality of life I could handle and knew that I was going slow but

steady.

I've lost over 20 lbs., can exercise and not be so winded, no more

dizzy spells, no more candida, no more awful sick spells.

I am sooo blessed to have found this site and the wonderful people that

post here and help others like me. My hair is coming back in like

gangbusters and that nasty green line around the base of my teeth are

gone.. mosquitos bite me again after years of avoiding my arms and

legs! lol

Yeah, its a big ol' honkin' HASSLE to get up and take your chelation

agents all day and night...

.... but the pay-off is HUGE - you can get your health back.

So, , read up all you can. GO SLOW and steady. Dont think of a

year or two -that's overwhelming - think THIS WEEK - I can do the dose

schedule THIS WEEK.

Dont take on too much at home or work, get plenty of naps as you can,

esp when on doses. Find a good naturopath or other health practitioner

who will be a partner in this. They are out there, keep hunting!

Good luck in this, Donna in TX

[Guest guest]

I do find it interesting that there are 2 long term chelators that got

serious gut problems after a while. I hope this has nohing to do with

the chelation per se.

[Guest guest]

I do find it interesting that there are 2 long term chelators that got

serious gut problems after a while. I hope this has nohing to do with

the chelation per se.

[Guest guest]

>

> I do find it interesting that there are 2 long term chelators that got

> serious gut problems after a while. I hope this has nohing to do with

> the chelation per se.

>

What I hope you got out of my post and Jackie's post, is that we were both ill.

I was on 2

rounds of antibiotics in a short period of time for something having zip, zero,

nada to do

with chelating or mercury. That, on top of not taking enough probiotics, and

guzzling

kefir that was likely contaminated with yeast, threw my gut way, way off, which

in turn

threw my hormone balance off. Plus, I had hidden food intolerances I had not

been

addressing.

Jackie clearly said she had a ruptured appendix. Having had one myself back

when I was

in junior high (and young and healthy!), I can tell you it was no walk in the

park.

My kids are chelating and doing very well, with no major setbacks. We are,

however,

investigating food intolerances for them too, since I discovered I'm gluten

intolerant and it

can run in families.

[Guest guest]

>

> I do find it interesting that there are 2 long term chelators that got

> serious gut problems after a while. I hope this has nohing to do with

> the chelation per se.

>

What I hope you got out of my post and Jackie's post, is that we were both ill.

I was on 2

rounds of antibiotics in a short period of time for something having zip, zero,

nada to do

with chelating or mercury. That, on top of not taking enough probiotics, and

guzzling

kefir that was likely contaminated with yeast, threw my gut way, way off, which

in turn

threw my hormone balance off. Plus, I had hidden food intolerances I had not

been

addressing.

Jackie clearly said she had a ruptured appendix. Having had one myself back

when I was

in junior high (and young and healthy!), I can tell you it was no walk in the

park.

My kids are chelating and doing very well, with no major setbacks. We are,

however,

investigating food intolerances for them too, since I discovered I'm gluten

intolerant and it

can run in families.

[Guest guest]

>

> Hi guys, its been a long time! Some of the old timers will remember me. I

have been

active off and on in this group for the past couple of years, and this thread

caught my

attention, and I'd like to throw my two cents in. Like , I have made

progress on the

Cutler protocol and believe it is the safest way to chelate, and is the only

protocol I would

recommend to anyone. So for those of you who aren't sure or are newbies, you

are in the

right place and doing the right thing.

I completely agree with Jackie. And I'll add, there are a lot of

recommendations in Amalgam

Illness for ameliorating symptoms, and with capital letters (you'll feel MUCH,

MUCH better if

you...). That's a huge part to getting well, esp. for those who are more

severely poisoned.

[Guest guest]

This is a quote from one of Andy's posts on depression:

" If your mood is bouncing and the period is days or longer, it can be you are

reacting to

dietary issues you haven't figured out yet, or you are chemically sensitive. In

these cases all

of the above won't help much until you avoid the offending foods or chemicals,

then you may

not need much help. "

I may be really slow to catch on, or maybe I thought I'd just wither up and die

if I did an

elimination diet and found out I had to give up some foods.

Giving up gluten has been huge for me. I think it goes a long way to explain

why I'd have

good days or bad days, seemingly out of the blue. I'm willing to bet my

youngest is gluten

intolerant too. Testing pending...

[Guest guest]

>

> I all,

> I am considering using the protocol--Already had a hair test and

> counting rules indicate I'm mercury toxic...

>

> I was wondering, about what percent of people who did the protocol as

> Andy recommends found that they had elimination or lessening of

> symptoms.

From reading chelation group archives I would say that just about

everyone who is metal toxic and who chelates *properly* with Cutler's

protocol has lessoning of symptoms. This is very easy to see in the

autism mercury archives because parents are very anxious to report

improvements as soon as they see one, and kids heal quickly. It's a

bit more tricky to see in the adult group archives because often

adults start out with some serious damage caused by what Andy calls

the 'harmful inappropriate' methods or 'witch doctor' protocols, some

people don't take the time to study his book and address the

individual problems that need to be addressed (diet, supplements, gut,

liver, adrenals, thyroid, etc, etc, etc), people get distracted with

other things, and adults heal more slowly than kids. The biggest

mistake that people make (imo) is starting with doses of chelators

that are too high and then give up. (I did this myself at first).

I have been keeping track of some of the progress reports as they go

past. Have a look. I'm planning to put these in the files section

eventually. If anyone would rather I leave their post out please just

email me and let me know.

progress

http://health.groups.yahoo.com/group/frequent-dose-chelation/message/11224?l=1

http://health.groups.yahoo.com/group/frequent-dose-chelation/message/11275?l=1

http://health.groups.yahoo.com/group/frequent-dose-chelation/message/11530

http://health.groups.yahoo.com/group/frequent-dose-chelation/message/11557

http://health.groups.yahoo.com/group/frequent-dose-chelation/message/11563

I have to believe what Andy says is true

http://health.groups.yahoo.com/group/frequent-dose-chelation/message/11098?l=1

dmsa chelation has eliminated enough hg for me to lose 80 percent of

my chronic allergies

http://health.groups.yahoo.com/group/frequent-dose-chelation/message/11014?l=1

Dean is cured

http://health.groups.yahoo.com/group/frequent-dose-chelation/message/16718

http://health.groups.yahoo.com/group/frequent-dose-chelation/message/16728

http://health.groups.yahoo.com/group/frequent-dose-chelation/message/16738

H progress

http://health.groups.yahoo.com/group/frequent-dose-chelation/message/18706

>Are there any stats on the success rate--

Andy is the only one who would have those stats.

J

>or even anecdotally

> are there people here who tried it with success?

>

> Thanks,

>

>

[Guest guest]

> My kids are chelating and doing very well, with no major setbacks.

We are, however,

> investigating food intolerances for them too, since I discovered I'm

gluten intolerant and it

> can run in families.

>

>

Great to hear that your kids are doing well. I always thought food

intollerances are caused by mercury toxicity?

[Guest guest]

Thanks . I think it's important that people understand that other

things can happen that have nothing to do with chelation, so I'm glad you agree.

I just had a really bad year last year, having ***3*** medical procedures,

including the ruptured appendix, which was quite traumatic and draining on my

body. And I have had alot of family stress during this whole time also, with my

mom's long drawn-out illness, ending with her passing away just this August.

And I also have two 13-year-olds who are both involved in sports. So I get

pulled in alot of directions, and it is hard to stay focused on what I need to

be doing for myself. So in my case, there are ***alot*** of other factors that

come into play regarding my health. So I don't consider myself a

run-of-the-mill case, and others shouldn't get scared off from chelation, just

because of the problems I have had. In the last couple years, usually when I

have felt the best and most functional, has been when I have been on rounds of

chelation, so I know it is what I need to do and is the right thing for me. I

still believe that Cutler's protocol is what will eventually save me, I'm just

having more bumps in the road along the way than others do.

Jackie

In frequent-dose-chelation mmc2315 wrote:

>

> I do find it interesting that there are 2 long term chelators that got

> serious gut problems after a while. I hope this has nohing to do with

> the chelation per se.

>

What I hope you got out of my post and Jackie's post, is that we were both

ill. I was on 2

rounds of antibiotics in a short period of time for something having zip,

zero, nada to do

with chelating or mercury. That, on top of not taking enough probiotics, and

guzzling

kefir that was likely contaminated with yeast, threw my gut way, way off,

which in turn

threw my hormone balance off. Plus, I had hidden food intolerances I had not

been

addressing.

Jackie clearly said she had a ruptured appendix. Having had one myself back

when I was

in junior high (and young and healthy!), I can tell you it was no walk in the

park.

My kids are chelating and doing very well, with no major setbacks. We are,

however,

investigating food intolerances for them too, since I discovered I'm gluten

intolerant and it

can run in families.