Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 Prayers will continue for all of you. Karima update on Dani Hey all , its late and im exhausted but I wanted to say thank you from the bottom of my heart for all the support and prayers for Dani today. We got there at 930am surgery was scheduled for 1130 , they gave her 2 vallium to calm her nerves which made her very silly , which is way better than scared. Unfortunately her surgery was put off til 130 pm as the surgeon was behind , which by this time the vallium had worn off. They called on the waiting room phone at 330 to say they had just made the first incision !! TWO hours to position her, shave head start I.V etc ,hopefully they knocked her out as soon as she got in there. This is what they wound up doing to her( not for weak stomachs) The made an incisioni from the base of her skull / neck area (where your hairline starts ) up 4-5 inches , they removed a wedge of bone about 2cm across , then cut into the dura covering of brain , which exposed the brain /spine , they then cut and removed the very top 1/3 of top vertebrae , lasered the cerebellum tonsils up out of the spinal canal ( they arent suppose to be there) then they made an incision on the top of her head , and removed a membrane from just under the skin and ontop of the skull, they used this membrane to create a graft for where they cut into the dura covering at. She did well , no blood transfusion needed, her face is extremely puffy ( yours would be too if you laid on it for 6hours She is still very much sedated , woke briefly for 3sec is all. She will be monitored in Peds ICU for tonight and maybe tomorrow , then go to reg room for 3-14 days , she will have an MRI in 3-4 months to see if the syrinx in spinal canal has shrunk , if not then another in 6months , if its still the same then she will have to have spine surgery to insert shunt to drain the syrinx into her stomach. HOWEVER we are praying that this surgery itself fixes everything Thanks for everything deb 33yrold husband Joe, was diagnosed with CC in Sept, resection on Sept 27th 2004 found mets to the abdominal wall lining 3 lymph nodes involved open wound from infection until Jan 2005 Ileostomy reversal Dec 7th 2004 Chemo regiment begun Jan 2005 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines Calcium Magnesium added for the Tingles Feb 28 2005 Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found April 1 2005 PET scan done awaiting results April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! May 9 Plateletts are low 75,000 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2005 Report Share Posted July 13, 2005 I am so glad that the surgery went well Deb, I will continue to keep your family in my prayers....Lora Ann Barbara Gari karima1@...> wrote:Prayers will continue for all of you. Karima update on Dani Hey all , its late and im exhausted but I wanted to say thank you from the bottom of my heart for all the support and prayers for Dani today. We got there at 930am surgery was scheduled for 1130 , they gave her 2 vallium to calm her nerves which made her very silly , which is way better than scared. Unfortunately her surgery was put off til 130 pm as the surgeon was behind , which by this time the vallium had worn off. They called on the waiting room phone at 330 to say they had just made the first incision !! TWO hours to position her, shave head start I.V etc ,hopefully they knocked her out as soon as she got in there. This is what they wound up doing to her( not for weak stomachs) The made an incisioni from the base of her skull / neck area (where your hairline starts ) up 4-5 inches , they removed a wedge of bone about 2cm across , then cut into the dura covering of brain , which exposed the brain /spine , they then cut and removed the very top 1/3 of top vertebrae , lasered the cerebellum tonsils up out of the spinal canal ( they arent suppose to be there) then they made an incision on the top of her head , and removed a membrane from just under the skin and ontop of the skull, they used this membrane to create a graft for where they cut into the dura covering at. She did well , no blood transfusion needed, her face is extremely puffy ( yours would be too if you laid on it for 6hours She is still very much sedated , woke briefly for 3sec is all. She will be monitored in Peds ICU for tonight and maybe tomorrow , then go to reg room for 3-14 days , she will have an MRI in 3-4 months to see if the syrinx in spinal canal has shrunk , if not then another in 6months , if its still the same then she will have to have spine surgery to insert shunt to drain the syrinx into her stomach. HOWEVER we are praying that this surgery itself fixes everything Thanks for everything deb 33yrold husband Joe, was diagnosed with CC in Sept, resection on Sept 27th 2004 found mets to the abdominal wall lining 3 lymph nodes involved open wound from infection until Jan 2005 Ileostomy reversal Dec 7th 2004 Chemo regiment begun Jan 2005 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines Calcium Magnesium added for the Tingles Feb 28 2005 Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found April 1 2005 PET scan done awaiting results April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! May 9 Plateletts are low 75,000 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2005 Report Share Posted July 13, 2005 Deb and Joe... Prayers for both of you and little Dani....God, why does she have to go through this?? What actually caused this Debbie? I'm sure you told us a while ago, but my senile brain is not functioning....LOL Take care of you and Joe, Debbie. You rest when Dani is resting...all bodies need sleep to heal. Lots of hugs and prayers, Donelle Caregiver to Glenn Quote Link to comment Share on other sites More sharing options...
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