Re: Re: Weird symptom- Itchy feet

[Guest guest]

Bruce; I think you are right that it is neurological. I have MS and whenever I have weird things happen it is usually nerve endings going haywire. Kathy Seweryn IPF 02/15/2009

Subject: Re: Weird symptom- Itchy feetTo: Breathe-Support Date: Thursday, March 19, 2009, 10:55 AM

PinkI have restless limb syndrome and peripheral neuropathy. The feelingwith it is one that is difficult to describe but you feel like you mustmove your feet or legs or hands or whichever limb it is. Most just haveit in their legs. It can be sort of a tingling or prickly type feeling,but I wouldn't describe it like bug bites. Now, there's another diseasetoo and that it PAD (Peripheral Artery Disease). It is the most commonform of PVD (Peripheral Vascular Disease). Fortunately, the symptomsthey describe do not fit PAD.I had not thought of it for a while, but I was experiencing the feelingas if there were insects biting my legs at night about two years ago. Itwas intermittent but there was a period it was especially bad. Until nowI never associated it at all, but since I've been on oxygen for sleep donot recall experiencing it. I just thought it was related to a skinproblem or

something.>>> From: denise randel dnsrndl (AT) yahoo (DOT) com>> Subject: Weird symptom- Itchy feet> To: "Breath Support" <breathe-support@ yahoogroups. com>> Date: Tuesday, March 17, 2009, 7:55 PM>>>>>>>>>> Happy Saint 's Day to All!>> May the luck of the Irish be with you! I am back from mywonderful vacation in Laguna and had lots of sunshine, good food, andeven saw dolphins each morning. My siblings and I slept late

each day,did lots of shopping and sat looking at the gorgeous waves from outhotel room. On Sunday, we visited our parents graves. left flowers andEaster eggs and thanked God that their lives had so blessed ours.> It sounds like Peggy and gang had a great time in Orlando AND hadjust as much sunshine. ( Leanne you looked pretty good in the bathingbeauty shot!) I am back to school work and insurance and medical stuffagain. It seems like it is never ending. I also have a really weirdnew symptom. At night my feet itch so bad I keep waking up. Hasanyone else experienced this? I don't know if it is related to comingoff the prednisone or if it means something else. I've tried changingsoaps, shoes, socks, etc., but it is getting worse and worse and drivesme crazy at night.. I have no rash and no swelling. Help!->>> R. (53) Sarcoid/PF 3/2006 Carlsbad,

California>

[Guest guest]

Bruce; I think you are right that it is neurological. I have MS and whenever I have weird things happen it is usually nerve endings going haywire. Kathy Seweryn IPF 02/15/2009

Subject: Re: Weird symptom- Itchy feetTo: Breathe-Support Date: Thursday, March 19, 2009, 10:55 AM

PinkI have restless limb syndrome and peripheral neuropathy. The feelingwith it is one that is difficult to describe but you feel like you mustmove your feet or legs or hands or whichever limb it is. Most just haveit in their legs. It can be sort of a tingling or prickly type feeling,but I wouldn't describe it like bug bites. Now, there's another diseasetoo and that it PAD (Peripheral Artery Disease). It is the most commonform of PVD (Peripheral Vascular Disease). Fortunately, the symptomsthey describe do not fit PAD.I had not thought of it for a while, but I was experiencing the feelingas if there were insects biting my legs at night about two years ago. Itwas intermittent but there was a period it was especially bad. Until nowI never associated it at all, but since I've been on oxygen for sleep donot recall experiencing it. I just thought it was related to a skinproblem or

something.>>> From: denise randel dnsrndl (AT) yahoo (DOT) com>> Subject: Weird symptom- Itchy feet> To: "Breath Support" <breathe-support@ yahoogroups. com>> Date: Tuesday, March 17, 2009, 7:55 PM>>>>>>>>>> Happy Saint 's Day to All!>> May the luck of the Irish be with you! I am back from mywonderful vacation in Laguna and had lots of sunshine, good food, andeven saw dolphins each morning. My siblings and I slept late

each day,did lots of shopping and sat looking at the gorgeous waves from outhotel room. On Sunday, we visited our parents graves. left flowers andEaster eggs and thanked God that their lives had so blessed ours.> It sounds like Peggy and gang had a great time in Orlando AND hadjust as much sunshine. ( Leanne you looked pretty good in the bathingbeauty shot!) I am back to school work and insurance and medical stuffagain. It seems like it is never ending. I also have a really weirdnew symptom. At night my feet itch so bad I keep waking up. Hasanyone else experienced this? I don't know if it is related to comingoff the prednisone or if it means something else. I've tried changingsoaps, shoes, socks, etc., but it is getting worse and worse and drivesme crazy at night.. I have no rash and no swelling. Help!->>> R. (53) Sarcoid/PF 3/2006 Carlsbad,

California>

[Guest guest]

now that you mention bacterial infection, there is also fungus or "athlete's foot"

i see that stuff advertised a lot

if it's not better in a few days, consult your doctor

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Weird symptom- Itchy feetTo: Breathe-Support Date: Thursday, March 19, 2009, 5:28 PM

KathyIf neosporin seems to sooth it then that might well indicate thepossibility of some form of bacterial infection. They are amazingly easyto get and can drive you crazy.>>> From: denise randel dnsrndl (AT) yahoo (DOT) com>> Subject: Weird symptom- Itchy feet> To: "Breath Support" <breathe-support@ yahoogroups. com>> Date: Tuesday,

March 17, 2009, 7:55 PM>>>>>>>>>> Happy Saint 's Day to All!>> May the luck of the Irish be with you! I am back from mywonderful vacation in Laguna and had lots of sunshine, good food, andeven saw dolphins each morning. My siblings and I slept late each day,did lots of shopping and sat looking at the gorgeous waves from outhotel room. On Sunday, we visited our parents graves. left flowers andEaster eggs and thanked God that their lives had so blessed ours.> It sounds like Peggy and gang had a great time in Orlando AND hadjust as much sunshine. ( Leanne you looked pretty good in the bathingbeauty shot!) I am back to school work and insurance and medical stuffagain. It seems like it is never ending. I also have a really weirdnew symptom. At night my feet itch so bad I keep waking up. Hasanyone else experienced this? I

don't know if it is related to comingoff the prednisone or if it means something else. I've tried changingsoaps, shoes, socks, etc., but it is getting worse and worse and drivesme crazy at night. I have no rash and no swelling. Help!->>> R. (53) Sarcoid/PF 3/2006 Carlsbad, California>

[Guest guest]

now that you mention bacterial infection, there is also fungus or "athlete's foot"

i see that stuff advertised a lot

if it's not better in a few days, consult your doctor

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Weird symptom- Itchy feetTo: Breathe-Support Date: Thursday, March 19, 2009, 5:28 PM

KathyIf neosporin seems to sooth it then that might well indicate thepossibility of some form of bacterial infection. They are amazingly easyto get and can drive you crazy.>>> From: denise randel dnsrndl (AT) yahoo (DOT) com>> Subject: Weird symptom- Itchy feet> To: "Breath Support" <breathe-support@ yahoogroups. com>> Date: Tuesday,

March 17, 2009, 7:55 PM>>>>>>>>>> Happy Saint 's Day to All!>> May the luck of the Irish be with you! I am back from mywonderful vacation in Laguna and had lots of sunshine, good food, andeven saw dolphins each morning. My siblings and I slept late each day,did lots of shopping and sat looking at the gorgeous waves from outhotel room. On Sunday, we visited our parents graves. left flowers andEaster eggs and thanked God that their lives had so blessed ours.> It sounds like Peggy and gang had a great time in Orlando AND hadjust as much sunshine. ( Leanne you looked pretty good in the bathingbeauty shot!) I am back to school work and insurance and medical stuffagain. It seems like it is never ending. I also have a really weirdnew symptom. At night my feet itch so bad I keep waking up. Hasanyone else experienced this? I

don't know if it is related to comingoff the prednisone or if it means something else. I've tried changingsoaps, shoes, socks, etc., but it is getting worse and worse and drivesme crazy at night. I have no rash and no swelling. Help!->>> R. (53) Sarcoid/PF 3/2006 Carlsbad, California>

[Guest guest]

It isn't a bacterial infection, there is no rash and no increase in symptoms, nor is it continous. I think the pain reliver in neosporin soothed the nerve, or maybe it just stopped on it own. Who knows, it really isn't aggravating enough to go to a Doctor, more an annoyance. It is just weird. Kathy Seweryn IPF 02/5/09

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Weird symptom- Itchy feetTo: Breathe-Support@ yahoogroups. comDate: Thursday, March 19, 2009, 5:28 PM

KathyIf neosporin seems to sooth it then that might well indicate thepossibility of some form of bacterial infection. They are amazingly easyto get and can drive you crazy.>>> From: denise

randel dnsrndl (AT) yahoo (DOT) com>> Subject: Weird symptom- Itchy feet> To: "Breath Support" <breathe-support@ yahoogroups. com>> Date: Tuesday, March 17, 2009, 7:55 PM>>>>>>>>>> Happy Saint 's Day to All!>> May the luck of the Irish be with you! I am back from mywonderful vacation in Laguna and had lots of sunshine, good food, andeven saw dolphins each morning. My siblings and I slept late each day,did lots of shopping and sat looking at the gorgeous waves from outhotel room. On Sunday, we visited our parents graves. left flowers andEaster eggs and thanked God that their lives had so blessed ours.> It sounds like Peggy and gang had a great time in Orlando AND hadjust as much sunshine. ( Leanne you looked pretty good in the bathingbeauty shot!) I am back to school work and insurance and

medical stuffagain. It seems like it is never ending. I also have a really weirdnew symptom. At night my feet itch so bad I keep waking up. Hasanyone else experienced this? I don't know if it is related to comingoff the prednisone or if it means something else. I've tried changingsoaps, shoes, socks, etc., but it is getting worse and worse and drivesme crazy at night. I have no rash and no swelling. Help!->>> R. (53) Sarcoid/PF 3/2006 Carlsbad, California>

[Guest guest]

It isn't a bacterial infection, there is no rash and no increase in symptoms, nor is it continous. I think the pain reliver in neosporin soothed the nerve, or maybe it just stopped on it own. Who knows, it really isn't aggravating enough to go to a Doctor, more an annoyance. It is just weird. Kathy Seweryn IPF 02/5/09

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Weird symptom- Itchy feetTo: Breathe-Support@ yahoogroups. comDate: Thursday, March 19, 2009, 5:28 PM

KathyIf neosporin seems to sooth it then that might well indicate thepossibility of some form of bacterial infection. They are amazingly easyto get and can drive you crazy.>>> From: denise

randel dnsrndl (AT) yahoo (DOT) com>> Subject: Weird symptom- Itchy feet> To: "Breath Support" <breathe-support@ yahoogroups. com>> Date: Tuesday, March 17, 2009, 7:55 PM>>>>>>>>>> Happy Saint 's Day to All!>> May the luck of the Irish be with you! I am back from mywonderful vacation in Laguna and had lots of sunshine, good food, andeven saw dolphins each morning. My siblings and I slept late each day,did lots of shopping and sat looking at the gorgeous waves from outhotel room. On Sunday, we visited our parents graves. left flowers andEaster eggs and thanked God that their lives had so blessed ours.> It sounds like Peggy and gang had a great time in Orlando AND hadjust as much sunshine. ( Leanne you looked pretty good in the bathingbeauty shot!) I am back to school work and insurance and

medical stuffagain. It seems like it is never ending. I also have a really weirdnew symptom. At night my feet itch so bad I keep waking up. Hasanyone else experienced this? I don't know if it is related to comingoff the prednisone or if it means something else. I've tried changingsoaps, shoes, socks, etc., but it is getting worse and worse and drivesme crazy at night. I have no rash and no swelling. Help!->>> R. (53) Sarcoid/PF 3/2006 Carlsbad, California>

[Guest guest]

Hi Bruce,

Right now my prescription for oxygen is only for walking and exercise. I started using it at night because I was waking up with headaches and I thought I might need it. I have never done a sleep study or used an overnight oximeter. Awhile ago I stopped having headaches and was feeling better so I quit using it at night. I have felt fine except for the itchy feet, but I think was right and I probably picked up something at the hotel. 's vicks vabor rub did the trick ( at least it did last night and hopefully tonight is the same!) Take care-

R. (53) Sarcoid/PF 3/2006 Carlsbad, California

Subject: Re: Weird symptom- Itchy feetTo: Breathe-Support Date: Thursday, March 19, 2009, 10:24 AM

Why did you stop oxygen at night? All our sats drop at night? Did you doan overnight oximeter that said you didn't need it?>>> From: denise randel dnsrndl (AT) yahoo (DOT) com>> Subject: Weird symptom- Itchy feet> To: "Breath Support" <breathe-support@ yahoogroups. com>> Date: Tuesday, March 17, 2009, 7:55 PM>>>>>>>>>> Happy Saint 's Day to All!>> May the luck of the Irish be with you! I am back from mywonderful vacation in Laguna and had lots of sunshine, good food, andeven saw dolphins each morning. My siblings and I slept late each day,did lots of shopping and sat looking at the gorgeous waves from outhotel room. On Sunday, we visited our parents graves. left flowers andEaster eggs and thanked God that their lives had so blessed ours.> It sounds like Peggy and gang had a great

time in Orlando AND hadjust as much sunshine. ( Leanne you looked pretty good in the bathingbeauty shot!) I am back to school work and insurance and medical stuffagain. It seems like it is never ending. I also have a really weirdnew symptom. At night my feet itch so bad I keep waking up. Hasanyone else experienced this? I don't know if it is related to comingoff the prednisone or if it means something else. I've tried changingsoaps, shoes, socks, etc., but it is getting worse and worse and drivesme crazy at night. I have no rash and no swelling. Help!->>> R. (53) Sarcoid/PF 3/2006 Carlsbad, California>

[Guest guest]

Hi Bruce,

Right now my prescription for oxygen is only for walking and exercise. I started using it at night because I was waking up with headaches and I thought I might need it. I have never done a sleep study or used an overnight oximeter. Awhile ago I stopped having headaches and was feeling better so I quit using it at night. I have felt fine except for the itchy feet, but I think was right and I probably picked up something at the hotel. 's vicks vabor rub did the trick ( at least it did last night and hopefully tonight is the same!) Take care-

R. (53) Sarcoid/PF 3/2006 Carlsbad, California

Subject: Re: Weird symptom- Itchy feetTo: Breathe-Support Date: Thursday, March 19, 2009, 10:24 AM

Why did you stop oxygen at night? All our sats drop at night? Did you doan overnight oximeter that said you didn't need it?>>> From: denise randel dnsrndl (AT) yahoo (DOT) com>> Subject: Weird symptom- Itchy feet> To: "Breath Support" <breathe-support@ yahoogroups. com>> Date: Tuesday, March 17, 2009, 7:55 PM>>>>>>>>>> Happy Saint 's Day to All!>> May the luck of the Irish be with you! I am back from mywonderful vacation in Laguna and had lots of sunshine, good food, andeven saw dolphins each morning. My siblings and I slept late each day,did lots of shopping and sat looking at the gorgeous waves from outhotel room. On Sunday, we visited our parents graves. left flowers andEaster eggs and thanked God that their lives had so blessed ours.> It sounds like Peggy and gang had a great

time in Orlando AND hadjust as much sunshine. ( Leanne you looked pretty good in the bathingbeauty shot!) I am back to school work and insurance and medical stuffagain. It seems like it is never ending. I also have a really weirdnew symptom. At night my feet itch so bad I keep waking up. Hasanyone else experienced this? I don't know if it is related to comingoff the prednisone or if it means something else. I've tried changingsoaps, shoes, socks, etc., but it is getting worse and worse and drivesme crazy at night. I have no rash and no swelling. Help!->>> R. (53) Sarcoid/PF 3/2006 Carlsbad, California>

[Guest guest]

Hi my sweet , so sorry you have itchy feet and what vicks has to do with it is beyond me.lolPlease have an over night 02 done. I was like you just for exertion. When the head aches started I knew somethin was up. Our sats drop substantially while we sleep. So it isn't worth taking the chancesince nothing with this horrible disease is reversible.. I love you and worry you need 02 at night. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Hi Bruce,  Right now my prescription for oxygen is only for walking and exercise.  I started using it at night because I was waking up with headaches and I thought I might need it.  I have never done a sleep study or used an overnight oximeter.  Awhile ago I stopped having headaches and was feeling better so I quit using it at night.  I have felt fine except for the itchy feet, but I think was right and I probably picked up something at the hotel.  's vicks vabor rub did the trick ( at least it did last night and hopefully tonight is the same!)  Take care-   R. (53)  Sarcoid/PF  3/2006   Carlsbad, California--- On Thu, 3/19/09, Bruce Moreland <brucemoreland (AT) gmail (DOT) com>wrote:From: Bruce Moreland <brucemoreland (AT) gmail (DOT) com>Subject: Re: Weird symptom- Itchy feetTo: Breathe-Support Date: Thursday, March 19, 2009, 10:24 AMWhy did you stop oxygen at night? All our sats drop at night? Did you doan overnight oximeter that said you didn't need it?>>> From: denise randel dnsrndl (AT) yahoo (DOT) com>> Subject: Weird symptom- Itchy feet> To: "Breath Support" <breathe-support@ yahoogroups. com>> Date: Tuesday, March 17, 2009, 7:55 PM>>>>>>>>>> Happy Saint 's Day to All!>> May the luck of the Irish be with you! I am back from mywonderful vacation in Laguna and had lots of sunshine, good food, andeven saw dolphins each morning. My siblings and I slept late each day,did lots of shopping and sat looking at the gorgeous waves from outhotel room. On Sunday, we visited our parents graves. left flowers andEaster eggs and thanked God that their lives had so blessed ours.> It sounds like Peggy and gang had a great time in Orlando AND hadjust as much sunshine. ( Leanne you looked pretty good in the bathingbeauty shot!) I am back to school work and insurance and medical stuffagain. It seems like it is never ending. I also have a really weirdnew symptom. At night my feet itch so bad I keep waking up. Hasanyone else experienced this? I don't know if it is related to comingoff the prednisone or if it means something else. I've tried changingsoaps, shoes, socks, etc., but it is getting worse and worse and drivesme crazy at night. I have no rash and no swelling. Help!->>> R. (53) Sarcoid/PF 3/2006 Carlsbad, California>

[Guest guest]

Hi my sweet , so sorry you have itchy feet and what vicks has to do with it is beyond me.lolPlease have an over night 02 done. I was like you just for exertion. When the head aches started I knew somethin was up. Our sats drop substantially while we sleep. So it isn't worth taking the chancesince nothing with this horrible disease is reversible.. I love you and worry you need 02 at night. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Hi Bruce,  Right now my prescription for oxygen is only for walking and exercise.  I started using it at night because I was waking up with headaches and I thought I might need it.  I have never done a sleep study or used an overnight oximeter.  Awhile ago I stopped having headaches and was feeling better so I quit using it at night.  I have felt fine except for the itchy feet, but I think was right and I probably picked up something at the hotel.  's vicks vabor rub did the trick ( at least it did last night and hopefully tonight is the same!)  Take care-   R. (53)  Sarcoid/PF  3/2006   Carlsbad, California--- On Thu, 3/19/09, Bruce Moreland <brucemoreland (AT) gmail (DOT) com>wrote:From: Bruce Moreland <brucemoreland (AT) gmail (DOT) com>Subject: Re: Weird symptom- Itchy feetTo: Breathe-Support Date: Thursday, March 19, 2009, 10:24 AMWhy did you stop oxygen at night? All our sats drop at night? Did you doan overnight oximeter that said you didn't need it?>>> From: denise randel dnsrndl (AT) yahoo (DOT) com>> Subject: Weird symptom- Itchy feet> To: "Breath Support" <breathe-support@ yahoogroups. com>> Date: Tuesday, March 17, 2009, 7:55 PM>>>>>>>>>> Happy Saint 's Day to All!>> May the luck of the Irish be with you! I am back from mywonderful vacation in Laguna and had lots of sunshine, good food, andeven saw dolphins each morning. My siblings and I slept late each day,did lots of shopping and sat looking at the gorgeous waves from outhotel room. On Sunday, we visited our parents graves. left flowers andEaster eggs and thanked God that their lives had so blessed ours.> It sounds like Peggy and gang had a great time in Orlando AND hadjust as much sunshine. ( Leanne you looked pretty good in the bathingbeauty shot!) I am back to school work and insurance and medical stuffagain. It seems like it is never ending. I also have a really weirdnew symptom. At night my feet itch so bad I keep waking up. Hasanyone else experienced this? I don't know if it is related to comingoff the prednisone or if it means something else. I've tried changingsoaps, shoes, socks, etc., but it is getting worse and worse and drivesme crazy at night. I have no rash and no swelling. Help!->>> R. (53) Sarcoid/PF 3/2006 Carlsbad, California>

[Guest guest]

even the doc prescribed the O2 for exertion, i gradually found the need to increase it on my own. When i did, i would inform the doc on my next visit and she would document it.

we know our bodies, if you think you need more o2, then ask your doc to increase the prescription

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Re: Weird symptom- Itchy feetTo: Breathe-Support Date: Friday, March 20, 2009, 2:21 PM

Hi my sweet , so sorry you have itchy feet and what vicks has to do with it is beyond me.lol

Please have an over night 02 done. I was like you just for exertion. When the head aches started I

knew somethin was up. Our sats drop substantially while we sleep. So it isn't worth taking the chance

since nothing with this horrible disease is reversible..

I love you and worry you need 02 at night.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

Hi Bruce,

Right now my prescription for oxygen is only for walking and exercise. I started using it at night because I was waking up with headaches and I thought I might need it. I have never done a sleep study or used an overnight oximeter. Awhile ago I stopped having headaches and was feeling better so I quit using it at night. I have felt fine except for the itchy feet, but I think was right and I probably picked up something at the hotel. 's vicks vabor rub did the trick ( at least it did last night and hopefully tonight is the same!) Take care-

R. (53) Sarcoid/PF 3/2006 Carlsbad, California

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Weird symptom- Itchy feetTo: Breathe-Support@ yahoogroups. comDate: Thursday, March 19, 2009, 10:24 AM

Why did you stop oxygen at night? All our sats drop at night? Did you doan overnight oximeter that said you didn't need it?>>> From: denise randel dnsrndl (AT) yahoo (DOT) com>> Subject: Weird symptom- Itchy feet> To: "Breath Support" <breathe-support@ yahoogroups. com>> Date: Tuesday, March 17, 2009, 7:55 PM>>>>>>>>>> Happy Saint 's Day to All!>> May the luck of the Irish be with you! I am back from mywonderful vacation in Laguna and had lots of sunshine, good food, andeven saw dolphins each morning. My siblings and I slept late each day,did lots of shopping and sat looking at the gorgeous waves from outhotel room. On Sunday, we visited our parents graves. left flowers andEaster eggs and thanked God that their lives had so blessed ours.> It sounds like Peggy and gang had a great time in Orlando AND hadjust as much sunshine. ( Leanne you looked pretty good in the bathingbeauty shot!) I am back to school work and insurance and medical stuffagain. It seems like it is never ending. I also have a really weirdnew symptom. At night my feet itch so bad I keep waking up. Hasanyone else experienced this? I don't know if it is related to comingoff the prednisone or if it means something else. I've tried changingsoaps, shoes, socks, etc., but it is getting worse and worse and drivesme crazy at night. I have no rash and no swelling. Help!->>> R. (53) Sarcoid/PF 3/2006 Carlsbad, California>

[Guest guest]

i got a phone call in the middle of writing this post

not sure that i said what i wanted to say the way i wanted to say it

discuss the o2 issue with your doc

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Re: Weird symptom- Itchy feetTo: Breathe-Support Date: Friday, March 20, 2009, 7:58 PM

even the doc prescribed the O2 for exertion, i gradually found the need to increase it on my own. When i did, i would inform the doc on my next visit and she would document it.

we know our bodies, if you think you need more o2, then ask your doc to increase the prescription

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: Re: Weird symptom- Itchy feetTo: Breathe-Support Date: Friday, March 20, 2009, 2:21 PM

Hi my sweet , so sorry you have itchy feet and what vicks has to do with it is beyond me.lol Please have an over night 02 done. I was like you just for exertion. When the head aches started I

knew somethin was up. Our sats drop substantially while we sleep. So it isn't worth taking the chance

since nothing with this horrible disease is reversible..

I love you and worry you need 02 at night.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

Hi Bruce,

Right now my prescription for oxygen is only for walking and exercise. I started using it at night because I was waking up with headaches and I thought I might need it. I have never done a sleep study or used an overnight oximeter. Awhile ago I stopped having headaches and was feeling better so I quit using it at night. I have felt fine except for the itchy feet, but I think was right and I probably picked up something at the hotel. 's vicks vabor rub did the trick ( at least it did last night and hopefully tonight is the same!) Take care-

R. (53) Sarcoid/PF 3/2006 Carlsbad, California

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Weird symptom- Itchy feetTo: Breathe-Support@ yahoogroups. comDate: Thursday, March 19, 2009, 10:24 AM

Why did you stop oxygen at night? All our sats drop at night? Did you doan overnight oximeter that said you didn't need it?>>> From: denise randel dnsrndl (AT) yahoo (DOT) com>> Subject: Weird symptom- Itchy feet> To: "Breath Support" <breathe-support@ yahoogroups. com>> Date: Tuesday, March 17, 2009, 7:55 PM>>>>>>>>>> Happy Saint 's Day to All!>> May the luck of the Irish be with you! I am back from mywonderful vacation in Laguna and had lots of sunshine, good food, andeven saw dolphins each morning. My siblings and I slept late each day,did lots of shopping and sat looking at the gorgeous waves from outhotel room. On Sunday, we visited our parents graves. left flowers andEaster eggs and thanked God that their lives had so blessed ours.> It sounds like Peggy and gang had a great time in Orlando AND hadjust as much sunshine. ( Leanne you looked pretty good in the bathingbeauty shot!) I am back to school work and insurance and medical stuffagain. It seems like it is never ending. I also have a really weirdnew symptom. At night my feet itch so bad I keep waking up. Hasanyone else experienced this? I don't know if it is related to comingoff the prednisone or if it means something else. I've tried changingsoaps, shoes, socks, etc., but it is getting worse and worse and drivesme crazy at night. I have no rash and no swelling. Help!->>> R. (53) Sarcoid/PF 3/2006 Carlsbad, California>