Re: GIO

[Guest guest]

GIO, I can't see why anyone couldn't get into a pool with a 25' of tubing. Of course the tank would have to be secured.Can't go under but ya could sure get wet. Sounds so good. Wet hugs are a wonderful thing too.   Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Well Princess Hee Hee... my hug would've been a WET, Drippy one with that warm temperature & all that water about..... I would've been climbing in & out of that pool all day long!I've been looking at the pool where I do my antics & wonder if in time they'll cope with me having an O2 tank tied to a Flag post just near the edge! I can't imagine giving up the POOL!Do any of you Tankers use swimming pools with you O2 in use???????GIO > > > >> > > >> > > > Hi. My name is Barb and I was diagnosed about three years ago > with> > > > IPF. Then several months later I got diagnosed with Adult > Pulmonary> > > > Langerhan's Cell Histiocytosis. So, what do I have? I don't > have a> > > > clue, but whatever it is it is killing me. I am on four liters of> > > > oxygen 24/7. I have developed heart problems and am on prednisone> > > > daily. I have difficulty walking a few feet without running > out of> > > > breath. I just spent two months in three different hospitals and> > > > three weeks in a nursing home. I will be returning to the nursing> > > > home this coming Tuesday, because my 49 year old sister who works> > > > third shift found out it is hard to take care of someone in my> > > > shape, May God Bless her, at least she gave it a try. After one> > > > week, she is exhausted.> > > >> > > > I have read your posts and can relate to the post that talked > about> > > > pain. Yes, I know what they are talking about. It is pain, but > not> > > > pain. It is very scary trying to catch your breath and can't > and it> > > > kinda hurts. Anyway, it is a daily thing for me to feel this> > kind of> > > > pain.> > > >> > > > I am gaining a lot of water weight and wondering if anyone > else is> > > > blowing up like a balloon. Also, I have a lot of swelling of the> > > > feet and legs. My diabetes is out of control. I am up to three> > > > shots a day. Anybody else feel like their life has spun out of> > > control?> > > >> > > > I joined this group to offer support to other sufferer's of this> > lung> > > > disease and I also joined it to get much needed support. I feel> > like> > > > my life is at the end and it is frightening.> > > >> > > > May God Bless You All,> > > >> > > > Barb> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > 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My name is Barb and I am a 51 year old female who lives in> > > > southern Kentucky. I was a member two years ago. Now, I am back.> > > > I have had two diagnoses one is IPF and the other is Adult> > Pulmonary> > > > Langerhan's Cell Histiocytosis. Which one do I have? I don't > have a> > > > clue. All I know is it is pretty apparent I am dying. Dummy me,> > > > quit smoking New Year's Eve of this year and about two weeks > ago I> > > > smoked two cigarettes and had a big set back and am still > trying to> > > > recover. I would give anything had I quit smoking when I was > first> > > > diagnosed.> > > >> > > > I am on four liters of oxygen, prednisone, warfarin, heart> > medication> > > > and so much more. Yep, now my lungs are affecting my heart. I> > > > can't walk but a few feet and I am totally out of breath. I just> > > > spent two months in the hospital, originally admitted for my> > > > breathing or lack of, congestive heart failure, then I somehow> > > > managed to cough so much that I tore open the vessels in my lower> > > > stomach and almost died of internal bleed. I had to have several> > > > pints of blood and plasma. At least that is what they tell me. > When> > > > the dr.'s found the bleed, they put me on diladah (not sure of > the> > > > spelling, but it is a strong pain killer given to me in my IV).> > > > So, most of what I know about the bleed is hearsay. After > being in> > > > three different hospitals (transferred from one to the other), I> > > > spent twenty days in the nursing home doing rehabilitation, > because> > > > my legs became so weak from lying on my back that I had to get > the> > > > strength back in them so I could walk. Now, I am living with > my 49> > > > year old sister who works third shift and who has decided after a> > > > week with me being here, that I am just to much to care for, so> > I am> > > > being readmitted to the nursing home this coming Tuesday. There I> > > > will be until I die.> > > >> > > > I read your posts and can relate to the pain thing. That is all I> > > > know to call it is pain. It is pain , but it isn't pain. It is> > > > kinda smothering with the sense of pressure on my chest.> > > >> > > > I am having tremendous difficulty with water weight. Is anyone > else> > > > blowing up like a balloon? Also, I am having memory problems. I> > > > can't even remember what my screen name was when I was in this> > group> > > > last. Anyone else having memory problems?> > > >> > > > I joined this group to get encouragement to go on, I also want to> > > > provide encouragement to others. So, please feel free to ask me> > > > questions or offer me advice.> > > >> > > > May God Bless You All,> > > >> > > > Barb> > > >> > >> >>