Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 Gee, thanks Sher! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Sunday, March 22, 2009 12:32:54 PMSubject: Re: Off To National Jewish Gee MB...can I put a check in the mail for you to write posts for me? ;o) Joyce... yeah, what MB said.... :>} I'll be watching for your posts. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Off To National Jewish Well, I am off to Jewish hospital tomorrow morning and I look forward to it with anticipation! I have 3 1/2 days of tests tests tests and hope they can tell me WHY and come up with a plan of action. Joyce AZ IPF 11-08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 MB... so frequently I read a post, read your answer too and everything I woulda-coulda-shoulda- said you just did. lol. I'll let you do the 'work' ") and I'll just add, 'Yeah, what MB said'. Ohhhhhh, that pool sounds wonderful. That has got to be the best exercise! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Off To National Jewish Well, I am off to Jewish hospital tomorrow morning and I look forward to it with anticipation! I have 3 1/2 days of tests tests tests and hope they can tell me WHY and come up with a plan of action. Joyce AZ IPF 11-08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 MB... so frequently I read a post, read your answer too and everything I woulda-coulda-shoulda- said you just did. lol. I'll let you do the 'work' ") and I'll just add, 'Yeah, what MB said'. Ohhhhhh, that pool sounds wonderful. That has got to be the best exercise! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Off To National Jewish Well, I am off to Jewish hospital tomorrow morning and I look forward to it with anticipation! I have 3 1/2 days of tests tests tests and hope they can tell me WHY and come up with a plan of action. Joyce AZ IPF 11-08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 sher, I never thought about home health,,, We have had the VNA coming to take his vitals but they only stay for 30 minutes.I will check with the insurance company to see if they will pay. I have a church family,they are a small group and most are in there "golden years" . It's funny but i am on the committee to help our fellow parishioners .I do have a very nice neighbor who comes and sits with him and they talk. Well I will just keep on keeping on,for now. Love to you for your prayers and suggestions . Kay R.52.ipf.09,PA To: Breathe-Support Sent: Sunday, March 29, 2009 1:50:51 PMSubject: Re: sher Kay... a lot of us here know tired and sob. To keep going in spite of really takes energy and commitment. I'm sure you are looking ahead and maybe there can be someone who can step in and help. What about Home Health Care or do you have that there? Are there any teens in your family who could help out...your church? I'll keep . You keep on keepin' on. MamaSher; 70, IPF 3-06, OR.. NasturtiumsDon't fret about tomorrow, God is already there! first visit to pulmo guy (Newby) Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs. He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years.. He did a complete exam and must have talked to me for a hour. I was so afraid. He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus. Does anyone on this board have lupus??? He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion. I thank god for all of you to talk to...My family thinks this is something a pill can cure. Please write back Kay R.52.ipf.09, PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 sher, I never thought about home health,,, We have had the VNA coming to take his vitals but they only stay for 30 minutes.I will check with the insurance company to see if they will pay. I have a church family,they are a small group and most are in there "golden years" . It's funny but i am on the committee to help our fellow parishioners .I do have a very nice neighbor who comes and sits with him and they talk. Well I will just keep on keeping on,for now. Love to you for your prayers and suggestions . Kay R.52.ipf.09,PA To: Breathe-Support Sent: Sunday, March 29, 2009 1:50:51 PMSubject: Re: sher Kay... a lot of us here know tired and sob. To keep going in spite of really takes energy and commitment. I'm sure you are looking ahead and maybe there can be someone who can step in and help. What about Home Health Care or do you have that there? Are there any teens in your family who could help out...your church? I'll keep . You keep on keepin' on. MamaSher; 70, IPF 3-06, OR.. NasturtiumsDon't fret about tomorrow, God is already there! first visit to pulmo guy (Newby) Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs. He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years.. He did a complete exam and must have talked to me for a hour. I was so afraid. He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus. Does anyone on this board have lupus??? He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion. I thank god for all of you to talk to...My family thinks this is something a pill can cure. Please write back Kay R.52.ipf.09, PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 Kay... VNA or HHC or even your local hospital/clinic should have information on respite care if not more. You are in a double-bind there with both you and hubby needing help and chances are you would be eligible under different plans or agencies. What about the dr who did the surgery? HE surely should have info to help you. Go to your priest and talk to him. If you're on a helping committee you may have overlooked something you already know about... I'm thinking now, make yourself a list of what you NEED in the way of help...for you, for him....or together. Then you can be clear when you seek assistance. Your hands are so full. I don't mean to be a butt-inski, guess that's why I'm mamasher. I'm the old mother-hen here. ;o) Good luck! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! first visit to pulmo guy (Newby) Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs. He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years.. He did a complete exam and must have talked to me for a hour. I was so afraid. He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus. Does anyone on this board have lupus??? He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion. I thank god for all of you to talk to...My family thinks this is something a pill can cure. Please write back Kay R.52.ipf.09, PA Quote Link to comment Share on other sites More sharing options...
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