Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 You didn't sound so terrific in the Posts a few days ago Sher... are you all better??? I'm trying to shift into more 'productive' waters now that I feel I've got my diet/weight issues travelling along OK... how to make all that work on Auto Pilot so I can do other stuff! As well I'm attending to some long overdue 'Maintenance' health issues that I've ignored for many years... I want it all out of the way BEFORE I get too compromised with the PF & having an anaesthetic becomes a real issue. So I'm trying to be an Oraganised creature & give up 'Floating in the Ocean of Time' for the next littkle while . I'm exceptionally talented at the last mentioned state of being!!!!! BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this! So far so good! Lotsa, GIO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 ... you sound so cheerful and busy and focused. Buzzin' around like a little bee you are I'm doing 'ok'. Maybe you've seen my posts about going to UofWMC @ Seattle WA. Probably in Aug or Sept. Since I had this last little progression I decided the time is right to go now and have a thorough eval. Enjoy your lovely clean bedroom...I love it when rooms are all clean and shiny! Spring is trying so hard to pop through here in Oregon. Take good care of you. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! To Mama Sher from GIO You didn't sound so terrific in the Posts a few days ago Sher... are you all better??? I'm trying to shift into more 'productive' waters now that I feel I've got my diet/weight issues travelling along OK... how to make all that work on Auto Pilot so I can do other stuff! As well I'm attending to some long overdue 'Maintenance' health issues that I've ignored for many years... I want it all out of the way BEFORE I get too compromised with the PF & having an anaesthetic becomes a real issue. So I'm trying to be an Oraganised creature & give up 'Floating in the Ocean of Time' for the next littkle while . I'm exceptionally talented at the last mentioned state of being!!!!! BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this! So far so good! Lotsa, GIO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 ... you sound so cheerful and busy and focused. Buzzin' around like a little bee you are I'm doing 'ok'. Maybe you've seen my posts about going to UofWMC @ Seattle WA. Probably in Aug or Sept. Since I had this last little progression I decided the time is right to go now and have a thorough eval. Enjoy your lovely clean bedroom...I love it when rooms are all clean and shiny! Spring is trying so hard to pop through here in Oregon. Take good care of you. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! To Mama Sher from GIO You didn't sound so terrific in the Posts a few days ago Sher... are you all better??? I'm trying to shift into more 'productive' waters now that I feel I've got my diet/weight issues travelling along OK... how to make all that work on Auto Pilot so I can do other stuff! As well I'm attending to some long overdue 'Maintenance' health issues that I've ignored for many years... I want it all out of the way BEFORE I get too compromised with the PF & having an anaesthetic becomes a real issue. So I'm trying to be an Oraganised creature & give up 'Floating in the Ocean of Time' for the next littkle while . I'm exceptionally talented at the last mentioned state of being!!!!! BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this! So far so good! Lotsa, GIO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 No I'd missed that Buzz Sher..... going for a Full Evaluation sounds like a timely move......over here I don't know if there IS such a thing.....other than the PFT's, a quick waltz up n' down the 'Disabled' access ramp out the front of the surgery, chuck on the Oxometer... she'll be right mate! Oh & a bi-annual HRCT scan plus the annual blood tests for ANA markers...that's the extent of it! I met another lady in Lismore with advanced PF at our Lung Suport Meeting on Friday...she's huffing N'a puffing.. was told last October she'd propably last until Xmas... she wasn't even on O2....she was told "Oh THAT won't help you... you've got STIFF LUNGS you know!" I'm FREAKING OUT about this attitude over here... it really does seem to be seen as indicated only for Paliative Care only & I don't know why! What REALLY freaks me out is that her Respiratory Physicain is also MINE!!!!!!!!!!!!!!!!! HELP! It's no use going up to Brisbane... they've got the same attitude from what I can gather via yet another lady whose mother is at End Stage & SHE isn't on O2 yet either! HELP! Could you lot ALL ask your caring ,sensible & up-dated Pulmos to get fleas in the ears of these HICKS Downunder & TEACH 'em about O2 & IPF! PLEASE! GIO >> ... you sound so cheerful and busy and focused. Buzzin' around like a little bee you are > I'm doing 'ok'. Maybe you've seen my posts about going to UofWMC @ Seattle WA. Probably in Aug or Sept. Since I had this last little progression I decided the time is right to go now and have a thorough eval.> Enjoy your lovely clean bedroom...I love it when rooms are all clean and shiny!> Spring is trying so hard to pop through here in Oregon.> Take good care of you. > MamaSher; 70, IPF 3-06, OR. > Nasturtiums> Don't fret about tomorrow, God is already there!> > To Mama Sher from GIO> > > > You didn't sound so terrific in the Posts a few days ago Sher... are you all better???> I'm trying to shift into more 'productive' waters now that I feel I've got my diet/weight issues travelling along OK... how to make all that work on Auto Pilot so I can do other stuff!> As well I'm attending to some long overdue 'Maintenance' health issues that I've ignored for many years... I want it all out of the way BEFORE I get too compromised with the PF & having an anaesthetic becomes a real issue. > So I'm trying to be an Oraganised creature & give up 'Floating in the Ocean of Time' for the next littkle while . I'm exceptionally talented at the last mentioned state of being!!!!!> BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this!> So far so good!> Lotsa,> GIO> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 GIO But the sad thing is that isn't even pallative care when they express such an attitude toward oxygen and mislead someone so regarding that and regarding life expectancy. > > > > ... you sound so cheerful and busy and focused. Buzzin' around > like a little bee you are > > I'm doing 'ok'. Maybe you've seen my posts about going to UofWMC @ > Seattle WA. Probably in Aug or Sept. Since I had this last little > progression I decided the time is right to go now and have a thorough > eval. > > Enjoy your lovely clean bedroom...I love it when rooms are all clean > and shiny! > > Spring is trying so hard to pop through here in Oregon. > > Take good care of you. > > MamaSher; 70, IPF 3-06, OR. > > Nasturtiums > > Don't fret about tomorrow, God is already there! > > > > To Mama Sher from GIO > > > > > > > > You didn't sound so terrific in the Posts a few days ago Sher... are > you all better??? > > I'm trying to shift into more 'productive' waters now that I feel I've > got my diet/weight issues travelling along OK... how to make all that > work on Auto Pilot so I can do other stuff! > > As well I'm attending to some long overdue 'Maintenance' health issues > that I've ignored for many years... I want it all out of the way BEFORE > I get too compromised with the PF & having an anaesthetic becomes a real > issue. > > So I'm trying to be an Oraganised creature & give up 'Floating in the > Ocean of Time' for the next littkle while . I'm exceptionally talented > at the last mentioned state of being!!!!! > > BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... > one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! > I promise myself... can't go into SHOCK over all this! > > So far so good! > > Lotsa, > > GIO > > > > > > > > > > http://www.smileycentral.com/dl/index.jhtml?partner=ZSzeb098_ZSYYYYYYYY\ \ > AU&utm_id=7926> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 GIO But the sad thing is that isn't even pallative care when they express such an attitude toward oxygen and mislead someone so regarding that and regarding life expectancy. > > > > ... you sound so cheerful and busy and focused. Buzzin' around > like a little bee you are > > I'm doing 'ok'. Maybe you've seen my posts about going to UofWMC @ > Seattle WA. Probably in Aug or Sept. Since I had this last little > progression I decided the time is right to go now and have a thorough > eval. > > Enjoy your lovely clean bedroom...I love it when rooms are all clean > and shiny! > > Spring is trying so hard to pop through here in Oregon. > > Take good care of you. > > MamaSher; 70, IPF 3-06, OR. > > Nasturtiums > > Don't fret about tomorrow, God is already there! > > > > To Mama Sher from GIO > > > > > > > > You didn't sound so terrific in the Posts a few days ago Sher... are > you all better??? > > I'm trying to shift into more 'productive' waters now that I feel I've > got my diet/weight issues travelling along OK... how to make all that > work on Auto Pilot so I can do other stuff! > > As well I'm attending to some long overdue 'Maintenance' health issues > that I've ignored for many years... I want it all out of the way BEFORE > I get too compromised with the PF & having an anaesthetic becomes a real > issue. > > So I'm trying to be an Oraganised creature & give up 'Floating in the > Ocean of Time' for the next littkle while . I'm exceptionally talented > at the last mentioned state of being!!!!! > > BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... > one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! > I promise myself... can't go into SHOCK over all this! > > So far so good! > > Lotsa, > > GIO > > > > > > > > > > http://www.smileycentral.com/dl/index.jhtml?partner=ZSzeb098_ZSYYYYYYYY\ \ > AU&utm_id=7926> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 ...I think our evaluations here are pretty much the same, but more; autoimmune and other 'stuff'...I don't know yet what all but I do know I will feel better to have a full eval. with those who SPECIALIZE in ILDs. I like my pulmodude fine but after UofWMC I think I will have a keener confidence. I've never had a true dx....did not want the lung bio so pulmodude is pretty much going by CT and PFTs and I think it's pretty accurate. First it was IPF and now it's NSIP.... I will hopefully know this summer. If I were farther away I may not go but Seattle is less than a 3 hr drive for us. We can stay a couple days and enjoy the trip. I thank God, literally, that we have this board to keep us aware of things we need to know. I can't imagine a person being told she doesn't need O2 because of stiff lungs! I guess, come to think of it, our care really is 'palliative. To keep us comfortable as long as possible... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! To Mama Sher from GIO> > > > You didn't sound so terrific in the Posts a few days ago Sher... are you all better???> I'm trying to shift into more 'productive' waters now that I feel I've got my diet/weight issues travelling along OK... how to make all that work on Auto Pilot so I can do other stuff!> As well I'm attending to some long overdue 'Maintenance' health issues that I've ignored for many years... I want it all out of the way BEFORE I get too compromised with the PF & having an anaesthetic becomes a real issue. > So I'm trying to be an Oraganised creature & give up 'Floating in the Ocean of Time' for the next littkle while . I'm exceptionally talented at the last mentioned state of being!!!!!> BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this!> So far so good!> Lotsa,> GIO> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 ...I think our evaluations here are pretty much the same, but more; autoimmune and other 'stuff'...I don't know yet what all but I do know I will feel better to have a full eval. with those who SPECIALIZE in ILDs. I like my pulmodude fine but after UofWMC I think I will have a keener confidence. I've never had a true dx....did not want the lung bio so pulmodude is pretty much going by CT and PFTs and I think it's pretty accurate. First it was IPF and now it's NSIP.... I will hopefully know this summer. If I were farther away I may not go but Seattle is less than a 3 hr drive for us. We can stay a couple days and enjoy the trip. I thank God, literally, that we have this board to keep us aware of things we need to know. I can't imagine a person being told she doesn't need O2 because of stiff lungs! I guess, come to think of it, our care really is 'palliative. To keep us comfortable as long as possible... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! To Mama Sher from GIO> > > > You didn't sound so terrific in the Posts a few days ago Sher... are you all better???> I'm trying to shift into more 'productive' waters now that I feel I've got my diet/weight issues travelling along OK... how to make all that work on Auto Pilot so I can do other stuff!> As well I'm attending to some long overdue 'Maintenance' health issues that I've ignored for many years... I want it all out of the way BEFORE I get too compromised with the PF & having an anaesthetic becomes a real issue. > So I'm trying to be an Oraganised creature & give up 'Floating in the Ocean of Time' for the next littkle while . I'm exceptionally talented at the last mentioned state of being!!!!!> BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this!> So far so good!> Lotsa,> GIO> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 , That is distressing to say the least. It's especially so when you are doing everything you can to be as healthy as possible, looking after all the things that you have control of. It would be nice if the docs would play their part and do what's necessary to keep you healthy and functioning well for as long as possible. To hear that attitude about oxygen is scary. I guess I just didn't realize how different it is for you. I'm thinking of you! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Tuesday, March 24, 2009 12:55:44 AMSubject: Re: To Mama Sher from GIO No I'd missed that Buzz Sher..... going for a Full Evaluation sounds like a timely move......over here I don't know if there IS such a thing.....other than the PFT's, a quick waltz up n' down the 'Disabled' access ramp out the front of the surgery, chuck on the Oxometer... she'll be right mate! Oh & a bi-annual HRCT scan plus the annual blood tests for ANA markers...that' s the extent of it! I met another lady in Lismore with advanced PF at our Lung Suport Meeting on Friday...she' s huffing N'a puffing.. was told last October she'd propably last until Xmas... she wasn't even on O2....she was told "Oh THAT won't help you... you've got STIFF LUNGS you know!" I'm FREAKING OUT about this attitude over here... it really does seem to be seen as indicated only for Paliative Care only & I don't know why! What REALLY freaks me out is that her Respiratory Physicain is also MINE!!!!!!!! !!!!!!!!! HELP! It's no use going up to Brisbane... they've got the same attitude from what I can gather via yet another lady whose mother is at End Stage & SHE isn't on O2 yet either! HELP! Could you lot ALL ask your caring ,sensible & up-dated Pulmos to get fleas in the ears of these HICKS Downunder & TEACH 'em about O2 & IPF! PLEASE! GIO >> ... you sound so cheerful and busy and focused. Buzzin' around like a little bee you are > I'm doing 'ok'. Maybe you've seen my posts about going to UofWMC @ Seattle WA. Probably in Aug or Sept. Since I had this last little progression I decided the time is right to go now and have a thorough eval.> Enjoy your lovely clean bedroom...I love it when rooms are all clean and shiny!> Spring is trying so hard to pop through here in Oregon.> Take good care of you. > MamaSher; 70, IPF 3-06, OR. > Nasturtiums> Don't fret about tomorrow, God is already there!> > To Mama Sher from GIO> > > > You didn't sound so terrific in the Posts a few days ago Sher... are you all better???> I'm trying to shift into more 'productive' waters now that I feel I've got my diet/weight issues travelling along OK... how to make all that work on Auto Pilot so I can do other stuff!> As well I'm attending to some long overdue 'Maintenance' health issues that I've ignored for many years... I want it all out of the way BEFORE I get too compromised with the PF & having an anaesthetic becomes a real issue. > So I'm trying to be an Oraganised creature & give up 'Floating in the Ocean of Time' for the next littkle while . I'm exceptionally talented at the last mentioned state of being!!!!!> BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this!> So far so good!> Lotsa,> GIO> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 , That is distressing to say the least. It's especially so when you are doing everything you can to be as healthy as possible, looking after all the things that you have control of. It would be nice if the docs would play their part and do what's necessary to keep you healthy and functioning well for as long as possible. To hear that attitude about oxygen is scary. I guess I just didn't realize how different it is for you. I'm thinking of you! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Tuesday, March 24, 2009 12:55:44 AMSubject: Re: To Mama Sher from GIO No I'd missed that Buzz Sher..... going for a Full Evaluation sounds like a timely move......over here I don't know if there IS such a thing.....other than the PFT's, a quick waltz up n' down the 'Disabled' access ramp out the front of the surgery, chuck on the Oxometer... she'll be right mate! Oh & a bi-annual HRCT scan plus the annual blood tests for ANA markers...that' s the extent of it! I met another lady in Lismore with advanced PF at our Lung Suport Meeting on Friday...she' s huffing N'a puffing.. was told last October she'd propably last until Xmas... she wasn't even on O2....she was told "Oh THAT won't help you... you've got STIFF LUNGS you know!" I'm FREAKING OUT about this attitude over here... it really does seem to be seen as indicated only for Paliative Care only & I don't know why! What REALLY freaks me out is that her Respiratory Physicain is also MINE!!!!!!!! !!!!!!!!! HELP! It's no use going up to Brisbane... they've got the same attitude from what I can gather via yet another lady whose mother is at End Stage & SHE isn't on O2 yet either! HELP! Could you lot ALL ask your caring ,sensible & up-dated Pulmos to get fleas in the ears of these HICKS Downunder & TEACH 'em about O2 & IPF! PLEASE! GIO >> ... you sound so cheerful and busy and focused. Buzzin' around like a little bee you are > I'm doing 'ok'. Maybe you've seen my posts about going to UofWMC @ Seattle WA. Probably in Aug or Sept. Since I had this last little progression I decided the time is right to go now and have a thorough eval.> Enjoy your lovely clean bedroom...I love it when rooms are all clean and shiny!> Spring is trying so hard to pop through here in Oregon.> Take good care of you. > MamaSher; 70, IPF 3-06, OR. > Nasturtiums> Don't fret about tomorrow, God is already there!> > To Mama Sher from GIO> > > > You didn't sound so terrific in the Posts a few days ago Sher... are you all better???> I'm trying to shift into more 'productive' waters now that I feel I've got my diet/weight issues travelling along OK... how to make all that work on Auto Pilot so I can do other stuff!> As well I'm attending to some long overdue 'Maintenance' health issues that I've ignored for many years... I want it all out of the way BEFORE I get too compromised with the PF & having an anaesthetic becomes a real issue. > So I'm trying to be an Oraganised creature & give up 'Floating in the Ocean of Time' for the next littkle while . I'm exceptionally talented at the last mentioned state of being!!!!!> BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this!> So far so good!> Lotsa,> GIO> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 GIO/MB The sad thing too is that they use " fuzzy science " to support their attitudes. For instance, they do some poorly run study which shows that supplemental oxygen doesn't impact the disease or life expectancy from it. First, the study doesn't meet any standards. However, far more seriously it completely ignores indirect impact and quality of life. They completely ignore Pulmonary Hypertension and heart damage. They ignore deterioration in overall condition through less activity. They ignore pneumonia through lack of air. So, ignore all factors except the one they use to support a hair brained concept intended for nothing other than saving money. Totally unrelated to our disease several years ago I had a frozen shoulder. I had it manipulated as a surgical type procedure (no actually cutting) and was well the day after. This was done once they were sure of the diagnosis. I have a friend with a diagnosed frozen shoulder in another country where that procedure is not done as the policy is to live with the pain and non-use of the arm (yes, mine was 0% usable, even to lift a stapler) because typically it will thaw itself in about three years. > > > > ... you sound so cheerful and busy and focused. Buzzin' around like a little bee you are > > I'm doing 'ok'. Maybe you've seen my posts about going to UofWMC @ Seattle WA. Probably in Aug or Sept. Since I had this last little progression I decided the time is right to go now and have a thorough eval. > > Enjoy your lovely clean bedroom...I love it when rooms are all clean and shiny! > > Spring is trying so hard to pop through here in Oregon. > > Take good care of you. > > MamaSher; 70, IPF 3-06, OR. > > Nasturtiums > > Don't fret about tomorrow, God is already there! > > > > To Mama Sher from GIO > > > > > > > > You didn't sound so terrific in the Posts a few days ago Sher... are you all better??? > > I'm trying to shift into more 'productive' waters now that I feel I've got my diet/weight issues travelling along OK... how to make all that work on Auto Pilot so I can do other stuff! > > As well I'm attending to some long overdue 'Maintenance' health issues that I've ignored for many years... I want it all out of the way BEFORE I get too compromised with the PF & having an anaesthetic becomes a real issue. > > So I'm trying to be an Oraganised creature & give up 'Floating in the Ocean of Time' for the next littkle while . I'm exceptionally talented at the last mentioned state of being!!!!! > > BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this! > > So far so good! > > Lotsa, > > GIO > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Thanks MB, Mama & Bruce for replying to my anxieties... MB you've totally hit on the right descriptor... DISTRESSING... I get quite anxious when I think of my future... BEGGING for O2.....I will want it to stay active in my brain And my body ... I won't be a Happy Camper if I'm expected to just sit still to keep my O2 up! It gets hard sometimes reading all the u-beaut attention & monitoring a lot of you receive... Regional Oz SUCKS when it comes to Chronic Illness Health Care... it's just a reflection of our tiny population & just not enough Health $$$$$$ to go around... even the BIG Killers like Heart Disease/Cancer get short shift in the country areas. Statistically it is known that the life span for country folk with Heart Disease. Any of the Cancers etc is very much shorter than for their city counterparts. People here often chose not to have follow up radiation treatment because they have to travel to Brisbane or Sydney & they just can't afford the travel/accomodation costs let alone organise family life & partner work committments. Many country towns have absolutely no facilities even for Chemo treatment. Lismore is much better placed than many... at least there is 1 oncologist (well until HE falls over from over-work & exhaustion!) Mind you, when all is said n' done I'd never want to trade Country Life for any of our cities... one just has to accept a shorter life span when one of the 'Biggies' hits! Live for Today for Tomorrow May Never Come! Cheers, GIO > >> > ... you sound so cheerful and busy and focused. Buzzin' around like a little bee you are > > I'm doing 'ok'. Maybe you've seen my posts about going to UofWMC @ Seattle WA. Probably in Aug or Sept. Since I had this last little progression I decided the time is right to go now and have a thorough eval.> > Enjoy your lovely clean bedroom...I love it when rooms are all clean and shiny!> > Spring is trying so hard to pop through here in Oregon.> > Take good care of you. > > MamaSher; 70, IPF 3-06, OR. > > Nasturtiums> > Don't fret about tomorrow, God is already there!> > > > To Mama Sher from GIO> > > > > > > > You didn't sound so terrific in the Posts a few days ago Sher... are you all better???> > I'm trying to shift into more 'productive' waters now that I feel I've got my diet/weight issues travelling along OK... how to make all that work on Auto Pilot so I can do other stuff!> > As well I'm attending to some long overdue 'Maintenance' health issues that I've ignored for many years... I want it all out of the way BEFORE I get too compromised with the PF & having an anaesthetic becomes a real issue. > > So I'm trying to be an Oraganised creature & give up 'Floating in the Ocean of Time' for the next littkle while . I'm exceptionally talented at the last mentioned state of being!!!!!> > BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this!> > So far so good!> > Lotsa,> > GIO> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Thanks MB, Mama & Bruce for replying to my anxieties... MB you've totally hit on the right descriptor... DISTRESSING... I get quite anxious when I think of my future... BEGGING for O2.....I will want it to stay active in my brain And my body ... I won't be a Happy Camper if I'm expected to just sit still to keep my O2 up! It gets hard sometimes reading all the u-beaut attention & monitoring a lot of you receive... Regional Oz SUCKS when it comes to Chronic Illness Health Care... it's just a reflection of our tiny population & just not enough Health $$$$$$ to go around... even the BIG Killers like Heart Disease/Cancer get short shift in the country areas. Statistically it is known that the life span for country folk with Heart Disease. Any of the Cancers etc is very much shorter than for their city counterparts. People here often chose not to have follow up radiation treatment because they have to travel to Brisbane or Sydney & they just can't afford the travel/accomodation costs let alone organise family life & partner work committments. Many country towns have absolutely no facilities even for Chemo treatment. Lismore is much better placed than many... at least there is 1 oncologist (well until HE falls over from over-work & exhaustion!) Mind you, when all is said n' done I'd never want to trade Country Life for any of our cities... one just has to accept a shorter life span when one of the 'Biggies' hits! Live for Today for Tomorrow May Never Come! Cheers, GIO > >> > ... you sound so cheerful and busy and focused. Buzzin' around like a little bee you are > > I'm doing 'ok'. Maybe you've seen my posts about going to UofWMC @ Seattle WA. Probably in Aug or Sept. Since I had this last little progression I decided the time is right to go now and have a thorough eval.> > Enjoy your lovely clean bedroom...I love it when rooms are all clean and shiny!> > Spring is trying so hard to pop through here in Oregon.> > Take good care of you. > > MamaSher; 70, IPF 3-06, OR. > > Nasturtiums> > Don't fret about tomorrow, God is already there!> > > > To Mama Sher from GIO> > > > > > > > You didn't sound so terrific in the Posts a few days ago Sher... are you all better???> > I'm trying to shift into more 'productive' waters now that I feel I've got my diet/weight issues travelling along OK... how to make all that work on Auto Pilot so I can do other stuff!> > As well I'm attending to some long overdue 'Maintenance' health issues that I've ignored for many years... I want it all out of the way BEFORE I get too compromised with the PF & having an anaesthetic becomes a real issue. > > So I'm trying to be an Oraganised creature & give up 'Floating in the Ocean of Time' for the next littkle while . I'm exceptionally talented at the last mentioned state of being!!!!!> > BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this!> > So far so good!> > Lotsa,> > GIO> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 ... reading this post makes me feel sad, that you can't/don't receive FULL health benefits. I guess the balance is the beautiful paradise you live in and love so much. I don't think there is ever really a 'trade off' but I am glad you are content where you are even w/o more of what you should have. Keep on keepin' on . MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! To Mama Sher from GIO> > > > > > > > You didn't sound so terrific in the Posts a few days ago Sher... are you all better???> > I'm trying to shift into more 'productive' waters now that I feel I've got my diet/weight issues travelling along OK... how to make all that work on Auto Pilot so I can do other stuff!> > As well I'm attending to some long overdue 'Maintenance' health issues that I've ignored for many years... I want it all out of the way BEFORE I get too compromised with the PF & having an anaesthetic becomes a real issue. > > So I'm trying to be an Oraganised creature & give up 'Floating in the Ocean of Time' for the next littkle while . I'm exceptionally talented at the last mentioned state of being!!!!!> > BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this!> > So far so good!> > Lotsa,> > GIO> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 GIO/Sher It does serve as a minor. Erma Bombeck use to say " the grass is always greener over the septic tank " as opposed to " on the other side of the fence " . I learned long ago that anyplace in the world you choose to live has its advantages and disadvantages. I've lived from rural Mississippi to Midtown Manhattan, from the Florida beaches to North Texas. In post you see another example where there is not even a radiologist. There are so many aspects of living where lives I would just love (in addition to the fact she's there). However, I doubt I would adapt well to the lack of certain things I take for granted. I'm sure she'd hate the concrete jungle I live in though. There is zero scenic beauty in the Dallas Fort Worth Metroplex. You live in a beautiful area Sher but one that many people moving in to find very depressing at times. You appreciate the green and the beauty and I've known many from Oregon, especially Portland, who would never consider living anywhere else. When I moved around I just decided that I would always concentrate on finding the good and learn to live with the bad of my new home. When I last considered where I wanted to live (2006-2007 I spent much time thinking about it), I realized that there were certain things I couldn't adapt to at this point. That was before the PF. Now there would be more. I say couldn't adapt. Certainly I could. I'd just prefer not to now. My cousin has a beautiful place in Coastal NC. What a peaceful setting. Except for hurricanes. Except for the nearest grocery being over 20 miles away. Except for the fact that with a storm and power outage they are the last area to be restored and could be without for a couple of weeks easily. Except the nearest hospital I'd want to be admitted to with PF is 175 miles away. So a great place to visit, but I wouldn't want to live there. > > > > > > ... you sound so cheerful and busy and focused. Buzzin' around like a little bee you are > > > I'm doing 'ok'. Maybe you've seen my posts about going to UofWMC @ Seattle WA. Probably in Aug or Sept. Since I had this last little progression I decided the time is right to go now and have a thorough eval. > > > Enjoy your lovely clean bedroom...I love it when rooms are all clean and shiny! > > > Spring is trying so hard to pop through here in Oregon. > > > Take good care of you. > > > MamaSher; 70, IPF 3-06, OR. > > > Nasturtiums > > > Don't fret about tomorrow, God is already there! > > > > > > To Mama Sher from GIO > > > > > > > > > > > > You didn't sound so terrific in the Posts a few days ago Sher... are you all better??? > > > I'm trying to shift into more 'productive' waters now that I feel I've got my diet/weight issues travelling along OK... how to make all that work on Auto Pilot so I can do other stuff! > > > As well I'm attending to some long overdue 'Maintenance' health issues that I've ignored for many years... I want it all out of the way BEFORE I get too compromised with the PF & having an anaesthetic becomes a real issue. > > > So I'm trying to be an Oraganised creature & give up 'Floating in the Ocean of Time' for the next littkle while . I'm exceptionally talented at the last mentioned state of being!!!!! > > > BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroom yesterday... one room at a time I figure....next stop ... the LOUNGE ROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this! > > > So far so good! > > > Lotsa, > > > GIO > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 Oregon truly is a beautiful State...with mts. and coast line each within 2 hours. I hear you loud and clear Bruce. I lived in Longview TX for four years. 3 years more than I wanted. I do not like TX. The heat nearly kills me. There is a lot of rain here but only for a few days and then sun pops out for a few and more rain. We get nice breaks in between. Ahhhh yes, the concrete jungles. Enjoy...lol MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! To Mama Sher from GIO> > >> > >> > >> > > You didn't sound so terrific in the Posts a few days ago Sher...are you all better???> > > I'm trying to shift into more 'productive' waters now that Ifeel I've got my diet/weight issues travelling along OK... how to makeall that work on Auto Pilot so I can do other stuff!> > > As well I'm attending to some long overdue 'Maintenance' healthissues that I've ignored for many years... I want it all out of the wayBEFORE I get too compromised with the PF & having an anaesthetic becomesa real issue.> > > So I'm trying to be an Oraganised creature & give up 'Floatingin the Ocean of Time' for the next littkle while . I'm exceptionallytalented at the last mentioned state of being!!!!!> > > BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroomyesterday... one room at a time I figure....next stop ... the LOUNGEROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this!> > > So far so good!> > > Lotsa,> > > GIO> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 Oregon truly is a beautiful State...with mts. and coast line each within 2 hours. I hear you loud and clear Bruce. I lived in Longview TX for four years. 3 years more than I wanted. I do not like TX. The heat nearly kills me. There is a lot of rain here but only for a few days and then sun pops out for a few and more rain. We get nice breaks in between. Ahhhh yes, the concrete jungles. Enjoy...lol MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! To Mama Sher from GIO> > >> > >> > >> > > You didn't sound so terrific in the Posts a few days ago Sher...are you all better???> > > I'm trying to shift into more 'productive' waters now that Ifeel I've got my diet/weight issues travelling along OK... how to makeall that work on Auto Pilot so I can do other stuff!> > > As well I'm attending to some long overdue 'Maintenance' healthissues that I've ignored for many years... I want it all out of the wayBEFORE I get too compromised with the PF & having an anaesthetic becomesa real issue.> > > So I'm trying to be an Oraganised creature & give up 'Floatingin the Ocean of Time' for the next littkle while . I'm exceptionallytalented at the last mentioned state of being!!!!!> > > BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroomyesterday... one room at a time I figure....next stop ... the LOUNGEROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this!> > > So far so good!> > > Lotsa,> > > GIO> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 Oregon truly is a beautiful State...with mts. and coast line each within 2 hours. I hear you loud and clear Bruce. I lived in Longview TX for four years. 3 years more than I wanted. I do not like TX. The heat nearly kills me. There is a lot of rain here but only for a few days and then sun pops out for a few and more rain. We get nice breaks in between. Ahhhh yes, the concrete jungles. Enjoy...lol MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! To Mama Sher from GIO> > >> > >> > >> > > You didn't sound so terrific in the Posts a few days ago Sher...are you all better???> > > I'm trying to shift into more 'productive' waters now that Ifeel I've got my diet/weight issues travelling along OK... how to makeall that work on Auto Pilot so I can do other stuff!> > > As well I'm attending to some long overdue 'Maintenance' healthissues that I've ignored for many years... I want it all out of the wayBEFORE I get too compromised with the PF & having an anaesthetic becomesa real issue.> > > So I'm trying to be an Oraganised creature & give up 'Floatingin the Ocean of Time' for the next littkle while . I'm exceptionallytalented at the last mentioned state of being!!!!!> > > BIG NEWS BULLETIN... I PROPERLY cleaned my lovely bedroomyesterday... one room at a time I figure....next stop ... the LOUNGEROOM! Tomorrow ! I promise myself... can't go into SHOCK over all this!> > > So far so good!> > > Lotsa,> > > GIO> > >> >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.