Re: DMSA did me more harm than good

February 1, 2008

What was the dose of DMSA that you used?

I wonder if there was some amalgam trapped somewhere in your GI tract

after amalgam removal. Did the dentist use a rubber dam? Are you

sure he got all the amalgam out?

>

> After getting rid of my amalgams (this took 8 months) I felt better

> than i had for many years. I then allowed two weeks before starting

> DMSA. After three rounds of taking DMSA - the right way every 4 hours,

> I became very ill. I had stomach pains, stress, urinating every 1-2

> hours, and generally feeling as bad as ever with the amalgams in. My

> doctor has given me lansoprazole which has quietened the stomach

> problem and temazepam for the stress and insomnia. To be honest I wish

> i had never used the stuff.

> I now have to wait another month before I can try ALA, which I hope

> will be totally different.

> Has anyone had this reaction to DMSA? and what are your recommendations

> for the future use of ALA. I would apppreciate members responding to

> these questions. yours faithfuly ,in the UK.

>

February 1, 2008

What was the dose of DMSA that you used?

I wonder if there was some amalgam trapped somewhere in your GI tract

after amalgam removal. Did the dentist use a rubber dam? Are you

sure he got all the amalgam out?

>

> After getting rid of my amalgams (this took 8 months) I felt better

> than i had for many years. I then allowed two weeks before starting

> DMSA. After three rounds of taking DMSA - the right way every 4 hours,

> I became very ill. I had stomach pains, stress, urinating every 1-2

> hours, and generally feeling as bad as ever with the amalgams in. My

> doctor has given me lansoprazole which has quietened the stomach

> problem and temazepam for the stress and insomnia. To be honest I wish

> i had never used the stuff.

> I now have to wait another month before I can try ALA, which I hope

> will be totally different.

> Has anyone had this reaction to DMSA? and what are your recommendations

> for the future use of ALA. I would apppreciate members responding to

> these questions. yours faithfuly ,in the UK.

>

February 1, 2008

:

Can you tell us what dose you were taking? Also, did you feel fine after

the first two rounds? Did the illness begin suddenly after the third round?

Any details you can recall will be helpful.

Thanks,

Dean

DMSA did me more harm than good

After getting rid of my amalgams (this took 8 months) I felt better

than i had for many years. I then allowed two weeks before starting

DMSA. After three rounds of taking DMSA - the right way every 4 hours,

I became very ill. I had stomach pains, stress, urinating every 1-2

hours, and generally feeling as bad as ever with the amalgams in. My

doctor has given me lansoprazole which has quietened the stomach

problem and temazepam for the stress and insomnia. To be honest I wish

i had never used the stuff.

I now have to wait another month before I can try ALA, which I hope

will be totally different.

Has anyone had this reaction to DMSA? and what are your recommendations

for the future use of ALA. I would apppreciate members responding to

these questions. yours faithfuly ,in the UK.

February 1, 2008

:

Can you tell us what dose you were taking? Also, did you feel fine after

the first two rounds? Did the illness begin suddenly after the third round?

Any details you can recall will be helpful.

Thanks,

Dean

DMSA did me more harm than good

After getting rid of my amalgams (this took 8 months) I felt better

than i had for many years. I then allowed two weeks before starting

DMSA. After three rounds of taking DMSA - the right way every 4 hours,

I became very ill. I had stomach pains, stress, urinating every 1-2

hours, and generally feeling as bad as ever with the amalgams in. My

doctor has given me lansoprazole which has quietened the stomach

problem and temazepam for the stress and insomnia. To be honest I wish

i had never used the stuff.

I now have to wait another month before I can try ALA, which I hope

will be totally different.

Has anyone had this reaction to DMSA? and what are your recommendations

for the future use of ALA. I would apppreciate members responding to

these questions. yours faithfuly ,in the UK.

February 2, 2008

>

> After getting rid of my amalgams (this took 8 months) I felt

better

> than i had for many years. I then allowed two weeks before

starting

> DMSA. After three rounds of taking DMSA - the right way every 4

hours,

> I became very ill. I had stomach pains, stress, urinating every 1-

2

> hours, and generally feeling as bad as ever with the amalgams in.

My

> doctor has given me lansoprazole which has quietened the stomach

> problem and temazepam for the stress and insomnia. To be honest I

wish

> i had never used the stuff.

> I now have to wait another month before I can try ALA, which I

hope

> will be totally different.

> Has anyone had this reaction to DMSA? and what are your

recommendations

> for the future use of ALA. I would apppreciate members responding

to

> these questions. yours faithfuly ,in the UK.

>

February 2, 2008

>

> After getting rid of my amalgams (this took 8 months) I felt

better

> than i had for many years. I then allowed two weeks before

starting

> DMSA. After three rounds of taking DMSA - the right way every 4

hours,

> I became very ill. I had stomach pains, stress, urinating every 1-

2

> hours, and generally feeling as bad as ever with the amalgams in.

My

> doctor has given me lansoprazole which has quietened the stomach

> problem and temazepam for the stress and insomnia. To be honest I

wish

> i had never used the stuff.

> I now have to wait another month before I can try ALA, which I

hope

> will be totally different.

> Has anyone had this reaction to DMSA? and what are your

recommendations

> for the future use of ALA. I would apppreciate members responding

to

> these questions. yours faithfuly ,in the UK.

>

February 2, 2008

>

> After getting rid of my amalgams (this took 8 months) I felt

better

> than i had for many years. I then allowed two weeks before

starting

> DMSA. After three rounds of taking DMSA - the right way every 4

hours,

> I became very ill. I had stomach pains, stress, urinating every 1-

2

> hours, and generally feeling as bad as ever with the amalgams in.

My

> doctor has given me lansoprazole which has quietened the stomach

> problem and temazepam for the stress and insomnia. To be honest I

wish

> i had never used the stuff.

> I now have to wait another month before I can try ALA, which I

hope

> will be totally different.

> Has anyone had this reaction to DMSA? and what are your

recommendations

> for the future use of ALA. I would apppreciate members responding

to

> these questions. yours faithfuly ,in the UK.

>

February 2, 2008

In frequent-dose-chelation robertdavies14 wrote:

>

> :

>

> Can you tell us what dose you were taking? Also, did you feel fine

after

> the first two rounds? Did the illness begin suddenly after the

third round?

> Any details you can recall will be helpful.

>

> Thanks,

> Dean

--------------------------------

dear Dean. My first two rounds were with 50mg. That wasn't too

comfortable. On the third and last round I went down to 12.5mg, that

was the one that appeared to make me dreadful.

-----------, I'm sorry things didn't go well, and sometimes it takes

some experimenting to figure out what is going to work best for you. DMSA might

not be your thing. Everyone is different, and some people do better on

different chelators than others, and you won't know until you try them. But I

did have another thought, I believe you said you were dosing every 4 hours?

Some people are fast metabolizers, and need to dose more frequently, to keep

their blood levels more even. This shows up in a hair test as a low Ca/P ratio.

Did you feel the chelator wearing off before the next dose was due? That's

another sign of this. Your blood levels are fluctuating too much when this

happens, causing redistribution, and making you feel worse. So I'm not sure if

you would even consider trying it again, but if you did, I would suggest taking

the DMSA every 3 hours and see how you do. And possibly even a lower dose yet,

like 6mg.-------------Jackie

Thanks Rob. I am

considering ALA in a months time. Any suggestions for dosages?

-------------Since you reacted like this to DMSA, I would suggest starting

very low, like 12.5mg or even lower, and see how you do. I think you might

agree that it would be better to start really low and have an *uneventful*

round, than to start too high and have problems again. If you have no side

effects from low dosages, you can always increase later. And a case like yours

is exactly why we suggest that everybody starts at low dosages, because we

cannot predict who can handle how much, regardless of your

weight.------------Jackie

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February 2, 2008

Jackie:

Andy - who has more experience with this than anyone - has indeed found that

some people require more frequent dosing in order to tolerate chelation. So

your suggestion is entirely reasonable I think.

Perhaps another possibility is that developed a sensitivity or

allergy to DMSA after the first two doses. Sometimes people do not develop

sensitivities or allergies to substances until they've been exposed and some

time has passed.

If in fact is a fast metabolizer, then he should keep in mind that

the normal frequency of ALA is 3 hours, and he may even need it more often

than that. I've recently been doing ALA every 2 to 2.5 hours, 25 mg, and I

find I'm doing quite well with it. The last of my psoriasis seems to be

disappearing, and my asthma seems to have lightened some more. I say " seems

to " because progress is so maddeningly slow with chelation! At the same

time, the progress is steady, and chelation is the only health intervention

of the gazillion I've tried that has made any difference whatsoever. Over

the 23 rounds of chelation I've done, my health concerns have gone from

being in the foreground of my life to being far in the background. They are

no longer a factor whatsoever in my day-to-day life. Just a little

discomfort I notice only when I'm not busy with something else.

Dean

In frequent-dose-chelation Jackie wrote:

In frequent-dose-chelation Dean wrote:

I wish I had some insight to offer, but I really don't know why 12.5 mg

would make you worse when 50 mg did not.

-----------Dean, I mentioned this to in another post, but possibly

part of his problem might be that he's a fast metabolizer, and needs to dose

more frequently than every 4 hours. So every time he has tried a round, he

has caused more redistribution, regardless of what dose he took. What do you

think? Otherwise, he may just be one of those people who doesn't tolerate

DMSA.--------Jackie

February 2, 2008

In frequent-dose-chelation Dean wrote:

Jackie:

Andy - who has more experience with this than anyone - has indeed found that

some people require more frequent dosing in order to tolerate chelation. So

your suggestion is entirely reasonable I think.

-----------Yes, Andy mentions it in AI and it has been discussed many times on

the various groups, so I brought it up as a possibility. I also do better with

more frequent dosing, and my hair test says I'm a fast

metabolizer.---------Jackie

Perhaps another possibility is that developed a sensitivity or

allergy to DMSA after the first two doses. Sometimes people do not develop

sensitivities or allergies to substances until they've been exposed and some

time has passed.

------------Yes, I agree, he may just be one of them who doesn't tolerate

DMSA. I remember TK couldn't tolerate it at all, and had to use

DMPS.---------Jackie

If in fact is a fast metabolizer, then he should keep in mind that

the normal frequency of ALA is 3 hours, and he may even need it more often

than that. I've recently been doing ALA every 2 to 2.5 hours, 25 mg, and I

find I'm doing quite well with it.

----------Thanks for pointing this out and giving your example, I think that

helps everybody to understand that it is ok to dose more frequently and might

actually make you feel better.-----------Jackie

The last of my psoriasis seems to be

disappearing, and my asthma seems to have lightened some more. I say " seems

to " because progress is so maddeningly slow with chelation! At the same

time, the progress is steady, and chelation is the only health intervention

of the gazillion I've tried that has made any difference whatsoever.

----------This is a point I have been trying to make to my oldest sister, who

has tried lots of things, especially food and diets, for 30 years. I've told

her that chelation is the one thing she hasn't tried, and maybe it's what will

do the trick, that these other problems will never go away until she chelates.

She has two gold caps left in her mouth, and probably a small amalgam near one,

but they're on baby teeth, and probably wouldn't survive a reivsion, so she

doesn't have the money to take care of them yet. But I would love to see if

chelation would help her.---------Jackie

Over

the 23 rounds of chelation I've done, my health concerns have gone from

being in the foreground of my life to being far in the background. They are

no longer a factor whatsoever in my day-to-day life. Just a little

discomfort I notice only when I'm not busy with something else.

----------This is like a great mini progress report Dean, and maybe should be

posted as such. I am glad to hear you are doing so well. You need to remember

to post your improvements, because I think it's important for others to hear.

My chelation has been interrupted alot lately, so I can't post personal

progress, but have been doing fairly well with lots of supplementing. I have

recovered from a surgery in December, and will resume chelation pretty soon.

I'm hoping to have a successful chelation year also, when I get back at

it.-----------Jackie

Dean

In frequent-dose-chelation Jackie wrote:

In frequent-dose-chelation Dean wrote:

I wish I had some insight to offer, but I really don't know why 12.5 mg

would make you worse when 50 mg did not.

-----------Dean, I mentioned this to in another post, but possibly

part of his problem might be that he's a fast metabolizer, and needs to dose

more frequently than every 4 hours. So every time he has tried a round, he

has caused more redistribution, regardless of what dose he took. What do you

think? Otherwise, he may just be one of those people who doesn't tolerate

DMSA.--------Jackie

_._,_.___

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February 3, 2008

> I wish I had some insight to offer, but I really don't know why

> 12.5 mg would make you worse when 50 mg did not.

I think the reason the smaller dose might have made feel worse

might be same as why some people, like me, did fine with a few

DMPS/EDTA IV's and then suddenly, on about the third or fourth round,

have a complete meltdown: I think it might not be so much the actual

dosing but the fact that your body is getting used to the idea of

detoxing, the metals get more " loosened up " each time and then.......

whamo. A simple dose of just about ANY chelator might cause your body

to suddenly free up too much toxins.

In fact, in my case, my worst reaction was not, seemingly, to the third

IV chelation session but to the 100 mg of DMSA I took a day afterward

to " mop up " as my doctor recommended. It was like the straw that broke

the camel's back.

~robin

February 3, 2008

What do your adrenal look like? Were you on the supplements Andy

recommends for chelation? Treat gut yeast? Taking probiotics?

Usually stomach pains are due to yeast or constipation during

chelation. It is important to keep " things moving " and keep Candida

under control. Urinating a lot during chelation is normal, it is how

your body dumps the metals. Drink tons of water.

Feeling bad: are you on liver support? Milk thistle? Mercury toxic

people have slow or poor liver function,which needs help to tolerate

chelation more comfortably.

Stress: usually is adrenals. Many people with Hg have adrenal fatigue

from the mercury and do better if this is treated with adrenal cortex

or with a doctor prescribing hydrocortisone. Testing by saliva hormone

panel is recommended first.

Insomnia is very common with DMSA especially in the beginning, this

also had to do with adrenal fatigue. Taking melatonin and getting your

adrenals looked into/treated would help this.

You may find ALA less tolerable or more. I was not able to touch it

until I had done 16 rounds of dmsa alone and it had been 16 months

post removal. If you react poorly to ALA you may have too much mercury

in your blood still to use it, at which point you would do more dmsa

and wait. Some people do find with the ALA, so this may not happen at

all. Just good to know about.

Also this post does not say what dose you were on. Sometimes lowering

it is needed to tolerate it. But taking the right supplements is

really important to minimizing side effects. Some people do best with

both chelators rather than one.

I am sorry you had such a bad time with it. Perhaps some of these

suggestion can help in finding what might help you.

>

> After getting rid of my amalgams (this took 8 months) I felt better

> than i had for many years. I then allowed two weeks before starting

> DMSA. After three rounds of taking DMSA - the right way every 4 hours,

> I became very ill. I had stomach pains, stress, urinating every 1-2

> hours, and generally feeling as bad as ever with the amalgams in. My

> doctor has given me lansoprazole which has quietened the stomach

> problem and temazepam for the stress and insomnia. To be honest I wish

> i had never used the stuff.

> I now have to wait another month before I can try ALA, which I hope

> will be totally different.

> Has anyone had this reaction to DMSA? and what are your recommendations

> for the future use of ALA. I would apppreciate members responding to

> these questions. yours faithfuly ,in the UK.

>

February 3, 2008

What do your adrenal look like? Were you on the supplements Andy

recommends for chelation? Treat gut yeast? Taking probiotics?

Usually stomach pains are due to yeast or constipation during

chelation. It is important to keep " things moving " and keep Candida

under control. Urinating a lot during chelation is normal, it is how

your body dumps the metals. Drink tons of water.

Feeling bad: are you on liver support? Milk thistle? Mercury toxic

people have slow or poor liver function,which needs help to tolerate

chelation more comfortably.

Stress: usually is adrenals. Many people with Hg have adrenal fatigue

from the mercury and do better if this is treated with adrenal cortex

or with a doctor prescribing hydrocortisone. Testing by saliva hormone

panel is recommended first.

Insomnia is very common with DMSA especially in the beginning, this

also had to do with adrenal fatigue. Taking melatonin and getting your

adrenals looked into/treated would help this.

You may find ALA less tolerable or more. I was not able to touch it

until I had done 16 rounds of dmsa alone and it had been 16 months

post removal. If you react poorly to ALA you may have too much mercury

in your blood still to use it, at which point you would do more dmsa

and wait. Some people do find with the ALA, so this may not happen at

all. Just good to know about.

Also this post does not say what dose you were on. Sometimes lowering

it is needed to tolerate it. But taking the right supplements is

really important to minimizing side effects. Some people do best with

both chelators rather than one.

I am sorry you had such a bad time with it. Perhaps some of these

suggestion can help in finding what might help you.

>

> After getting rid of my amalgams (this took 8 months) I felt better

> than i had for many years. I then allowed two weeks before starting

> DMSA. After three rounds of taking DMSA - the right way every 4 hours,

> I became very ill. I had stomach pains, stress, urinating every 1-2

> hours, and generally feeling as bad as ever with the amalgams in. My

> doctor has given me lansoprazole which has quietened the stomach

> problem and temazepam for the stress and insomnia. To be honest I wish

> i had never used the stuff.

> I now have to wait another month before I can try ALA, which I hope

> will be totally different.

> Has anyone had this reaction to DMSA? and what are your recommendations

> for the future use of ALA. I would apppreciate members responding to

> these questions. yours faithfuly ,in the UK.

>

February 5, 2008

>

> What do your adrenal look like? Were you on the supplements Andy

> recommends for chelation? Treat gut yeast? Taking probiotics?

> Usually stomach pains are due to yeast or constipation during

> chelation. It is important to keep " things moving " and keep Candida

> under control. Urinating a lot during chelation is normal, it is how

> your body dumps the metals. Drink tons of water.

>

> Feeling bad: are you on liver support? Milk thistle? Mercury toxic

> people have slow or poor liver function,which needs help to tolerate

> chelation more comfortably.

>

> Stress: usually is adrenals. Many people with Hg have adrenal

fatigue

> from the mercury and do better if this is treated with adrenal

cortex

> or with a doctor prescribing hydrocortisone. Testing by saliva

hormone

> panel is recommended first.

> Insomnia is very common with DMSA especially in the beginning, this

> also had to do with adrenal fatigue. Taking melatonin and getting

your

> adrenals looked into/treated would help this.

>

> You may find ALA less tolerable or more. I was not able to touch it

> until I had done 16 rounds of dmsa alone and it had been 16 months

> post removal. If you react poorly to ALA you may have too much

mercury

> in your blood still to use it, at which point you would do more dmsa

> and wait. Some people do find with the ALA, so this may not happen

at

> all. Just good to know about.

>

> Also this post does not say what dose you were on. Sometimes

lowering

> it is needed to tolerate it. But taking the right supplements is

> really important to minimizing side effects. Some people do best

with

> both chelators rather than one.

> I am sorry you had such a bad time with it. Perhaps some of these

> suggestion can help in finding what might help you.

>

> >

>

THanks for your reply. I have tried many of the supplements and most

just make me worse ie forskolin, gaba, while other candida treatments

do not help either. I sometimes wonder if Candida gets all the bad

press and is not responsible? I have never come across a way of

really diagnosing whether candida is truly at fault

Regards RObert-UK

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