Guest guest Posted November 28, 2002 Report Share Posted November 28, 2002 Hi - I think it's bad because doctors do not get it right if you do fall into their category of " fine " (routine thyroid labs in normal range-well, there are thyroid labs that they don't routinely do). I had RAI at the age of 24 and never felt right after that (I did OK on ATDs). I had many physical problems that no younger person should have. They insisted that nothing I had going on was thyroid related. But they could never figure out what was wrong. Thank goodness that they couldn't dismiss the problems as psychosomatic. When they couldn't explain it, they shrugged their shoulders and said that the problems were related to some autoimmune phenomenon (some were but many were thyroid related) At the age of 36, it was finally discovered that I had a problem converting T4 to T3 because my endo felt it WAS thyroid related (I was very lucky to find him). I had very low FT3 levels and TBG levels which aren't routinely tested for. The endo felt this had been a problem for quite some time. I'm lucky I found him even after over 11 years. Many people go their entire lives without help after their thyroids have been surgically removed or ablated. Thyroid hormone drives the metabolism in every cell of your body. If you aren't lucky enough to fall into the category of " normal " after your thyroid has been removed, you'll probably have trouble finding a doctor that will treat you effectively. Take care, dx & RAI 1987 (at age 24) > Wow, I am new here and I would like to learn why the radioactive iodine thing is such a bad way to go. > > Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2002 Report Share Posted November 28, 2002 Hi , I am very glad to hear from you, thanks. I definitely think I'll ask my endo more questions next time. I do know this...he does some " full panel " of tests, and never wanted to see what my OB had done (not enough, according to him). Would you mind telling me about your physical problems that you mentioned? I'm one of those people probably not even listening to my own body. Thanks, -RAI Hi - I think it's bad because doctors do not get it right if you do fall into their category of " fine " (routine thyroid labs in normal range-well, there are thyroid labs that they don't routinely do). I had RAI at the age of 24 and never felt right after that (I did OK on ATDs). I had many physical problems that no younger person should have. They insisted that nothing I had going on was thyroid related. But they could never figure out what was wrong. Thank goodness that they couldn't dismiss the problems as psychosomatic. When they couldn't explain it, they shrugged their shoulders and said that the problems were related to some autoimmune phenomenon (some were but many were thyroid related) At the age of 36, it was finally discovered that I had a problem converting T4 to T3 because my endo felt it WAS thyroid related (I was very lucky to find him). I had very low FT3 levels and TBG levels which aren't routinely tested for. The endo felt this had been a problem for quite some time. I'm lucky I found him even after over 11 years. Many people go their entire lives without help after their thyroids have been surgically removed or ablated. Thyroid hormone drives the metabolism in every cell of your body. If you aren't lucky enough to fall into the category of " normal " after your thyroid has been removed, you'll probably have trouble finding a doctor that will treat you effectively. Take care, dx & RAI 1987 (at age 24) > Wow, I am new here and I would like to learn why the radioactive iodine thing is such a bad way to go. > > Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2002 Report Share Posted November 28, 2002 , Yes. I'm still here. Had pie. They don't make pie with no sugar, go I shall type one more before I find the couch. Here is the best site: http://www.suite101.com/articles.cfm/9630/41-60 Stick with us, and then you will know the right questions to ask of your endo. They tend to gloss over things , but once you ask exact questions and demand proper testing, you WILL get answers. On the home page, you will also find a COMPLETE list of hyper and hypo symptoms. We tend to be busy, and it sounds like you sure are, and then symptoms are with us for so long we think it is normal for us. But if you do have a small problem , and your meds can be optimized, you will feel so much better. I have not had RAI, but know many that have. It seems the thyroid does not die completely for years. So it is possible that yours may be changing, and again, PROPER tests will tell what has changed. The TSI antibodies are the ones primarily responsible, and RAI does nothing to address this. Jody, will be along and tell you her story about eyes and antibodies. It will probably surprise you. Since your eyes can still change, I personally would want the TSI antibodies checked before any kind of surgery that could even remotely set things off and make it worse. ...are you here ? OK...I am off to the couch...it may not let me back up. = :-o OH... don't feel ignorant. You are very correct. All the books I found in the beginning say much of nothing, and I didn't get a computer the first few years of this dang disease either. OH well...we are here now. :-) -Pam L- 3 1/2 yr.Graves and TED, PTU, Remission due to education, SLOW reduction of PTU, improved lifestyle, excellent nutrition,herbs, and looking at the BIG picture ! Pills alone only fix symptoms. We must help our bodies to heal. Quote Link to comment Share on other sites More sharing options...
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