Re: How PF has NOT improved my life

March 27, 2009

I can honestly say IPF has ruined my life... I live a good happy life but that is the Grace of God. I want to be able to do all the things and I had planned for our retirement.. not happening... The ONLY thing positive is the wonderful friends I have here. Again each and every one is God sent so This is all Gods plan so here I am.Today I am sick as a dog. fever,cough that would wake the dead. in general sick.. A few prayers would help I am sure. At this stage the cough hurts more the body aches.. just nasty. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." I have given myself permission to think of me first instead of being at the end of a long list of others who "need me." I have given myself permission to say "NO", I can't do that anymore....like babysitting, even tho' I adore my little great-grandkids. I don't feel guilty anymore if I wear nice pjs all day AND no bra! Comfort makes a difference in the day... I have learned to accept what I can't change and I forced myself to go out with the O2. I hated it at first and now it doesn't bother me. Now I'm grateful I have the O2 when I need it. My life in general is so much calmer. I'm not driven to do this do that anymore.I've made peace with my disease and I try to be helpful to others on the board.My life is absolutely different for sure but when I stopped "fighting" what I cannot change I found the peace I've looked for...even before dx. It is what it is. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! How PF has improved my lifeOk....I know to some, especially newcomers, this is an insane topic.But, I know there are many ways in which the diagnosis and subsequentevents have actually made my life better. I know things I've gained. I'mgoing to reserve my list a bit and just want to hear others answer.While none of us would have chosen to have PF, I think it's important toremind ourselves of the good aspects of our lives and to instill amongthe newcomers the hope, not of a cure, but of a good life. So, what haveyou gained or what is better than before or what have you done sincediagnosis that you might not have otherwise?

March 27, 2009

I can honestly say IPF has ruined my life... I live a good happy life but that is the Grace of God. I want to be able to do all the things and I had planned for our retirement.. not happening... The ONLY thing positive is the wonderful friends I have here. Again each and every one is God sent so This is all Gods plan so here I am.Today I am sick as a dog. fever,cough that would wake the dead. in general sick.. A few prayers would help I am sure. At this stage the cough hurts more the body aches.. just nasty. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." I have given myself permission to think of me first instead of being at the end of a long list of others who "need me." I have given myself permission to say "NO", I can't do that anymore....like babysitting, even tho' I adore my little great-grandkids. I don't feel guilty anymore if I wear nice pjs all day AND no bra! Comfort makes a difference in the day... I have learned to accept what I can't change and I forced myself to go out with the O2. I hated it at first and now it doesn't bother me. Now I'm grateful I have the O2 when I need it. My life in general is so much calmer. I'm not driven to do this do that anymore.I've made peace with my disease and I try to be helpful to others on the board.My life is absolutely different for sure but when I stopped "fighting" what I cannot change I found the peace I've looked for...even before dx. It is what it is. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! How PF has improved my lifeOk....I know to some, especially newcomers, this is an insane topic.But, I know there are many ways in which the diagnosis and subsequentevents have actually made my life better. I know things I've gained. I'mgoing to reserve my list a bit and just want to hear others answer.While none of us would have chosen to have PF, I think it's important toremind ourselves of the good aspects of our lives and to instill amongthe newcomers the hope, not of a cure, but of a good life. So, what haveyou gained or what is better than before or what have you done sincediagnosis that you might not have otherwise?

March 27, 2009

I can honestly say IPF has ruined my life... I live a good happy life but that is the Grace of God. I want to be able to do all the things and I had planned for our retirement.. not happening... The ONLY thing positive is the wonderful friends I have here. Again each and every one is God sent so This is all Gods plan so here I am.Today I am sick as a dog. fever,cough that would wake the dead. in general sick.. A few prayers would help I am sure. At this stage the cough hurts more the body aches.. just nasty. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." I have given myself permission to think of me first instead of being at the end of a long list of others who "need me." I have given myself permission to say "NO", I can't do that anymore....like babysitting, even tho' I adore my little great-grandkids. I don't feel guilty anymore if I wear nice pjs all day AND no bra! Comfort makes a difference in the day... I have learned to accept what I can't change and I forced myself to go out with the O2. I hated it at first and now it doesn't bother me. Now I'm grateful I have the O2 when I need it. My life in general is so much calmer. I'm not driven to do this do that anymore.I've made peace with my disease and I try to be helpful to others on the board.My life is absolutely different for sure but when I stopped "fighting" what I cannot change I found the peace I've looked for...even before dx. It is what it is. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! How PF has improved my lifeOk....I know to some, especially newcomers, this is an insane topic.But, I know there are many ways in which the diagnosis and subsequentevents have actually made my life better. I know things I've gained. I'mgoing to reserve my list a bit and just want to hear others answer.While none of us would have chosen to have PF, I think it's important toremind ourselves of the good aspects of our lives and to instill amongthe newcomers the hope, not of a cure, but of a good life. So, what haveyou gained or what is better than before or what have you done sincediagnosis that you might not have otherwise?

March 27, 2009

Peggy,

Dear heart I'm sorry you feel so awful today. Did you call the doctor? Girl if you're running a fever you probably need an antibiotic. I'm sure they'll call it in for you but don't wait. You've got alot going on right now my friend but please take care of you.

Love and prayers,

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, March 27, 2009 2:48:15 PMSubject: Re: How PF has NOT improved my lifeI can honestly say IPF has ruined my life... I live a good happy life but that is the Grace of God. I want to be able to do all the things and I had planned for our retirement.. not happening... The ONLY thing positive is the wonderful friends I have here. Again each and every one is God sent so This is all Gods plan so here I am

March 27, 2009

Peggy,

Dear heart I'm sorry you feel so awful today. Did you call the doctor? Girl if you're running a fever you probably need an antibiotic. I'm sure they'll call it in for you but don't wait. You've got alot going on right now my friend but please take care of you.

Love and prayers,

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, March 27, 2009 2:48:15 PMSubject: Re: How PF has NOT improved my lifeI can honestly say IPF has ruined my life... I live a good happy life but that is the Grace of God. I want to be able to do all the things and I had planned for our retirement.. not happening... The ONLY thing positive is the wonderful friends I have here. Again each and every one is God sent so This is all Gods plan so here I am

March 27, 2009

Peggy,

Dear heart I'm sorry you feel so awful today. Did you call the doctor? Girl if you're running a fever you probably need an antibiotic. I'm sure they'll call it in for you but don't wait. You've got alot going on right now my friend but please take care of you.

Love and prayers,

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, March 27, 2009 2:48:15 PMSubject: Re: How PF has NOT improved my lifeI can honestly say IPF has ruined my life... I live a good happy life but that is the Grace of God. I want to be able to do all the things and I had planned for our retirement.. not happening... The ONLY thing positive is the wonderful friends I have here. Again each and every one is God sent so This is all Gods plan so here I am

March 27, 2009

ï»¿

Peggy... I'm sure you and are grieving the losses in your life and everyone of us can't make up for what no longer be. Maybe we can just make it tolerable.

I'm sorry you are sick today Peggy...sounds like it's time to call the dr. You know that, now silly girl, go do it!

We love ya.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

ï¿½ How PF has improved my life

Ok....I know to some, especially newcomers, this is an insane topic.But, I know there are many ways in which the diagnosis and subsequentevents have actually made my life better. I know things I've gained. I'mgoing to reserve my list a bit and just want to hear others answer.While none of us would have chosen to have PF, I think it's important toremind ourselves of the good aspects of our lives and to instill amongthe newcomers the hope, not of a cure, but of a good life. So, what haveyou gained or what is better than before or what have you done sincediagnosis that you might not have otherwise?

March 27, 2009

ï»¿

Peggy... I'm sure you and are grieving the losses in your life and everyone of us can't make up for what no longer be. Maybe we can just make it tolerable.

I'm sorry you are sick today Peggy...sounds like it's time to call the dr. You know that, now silly girl, go do it!

We love ya.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

ï¿½ How PF has improved my life

Ok....I know to some, especially newcomers, this is an insane topic.But, I know there are many ways in which the diagnosis and subsequentevents have actually made my life better. I know things I've gained. I'mgoing to reserve my list a bit and just want to hear others answer.While none of us would have chosen to have PF, I think it's important toremind ourselves of the good aspects of our lives and to instill amongthe newcomers the hope, not of a cure, but of a good life. So, what haveyou gained or what is better than before or what have you done sincediagnosis that you might not have otherwise?

March 27, 2009

ï»¿

Peggy... I'm sure you and are grieving the losses in your life and everyone of us can't make up for what no longer be. Maybe we can just make it tolerable.

I'm sorry you are sick today Peggy...sounds like it's time to call the dr. You know that, now silly girl, go do it!

We love ya.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

ï¿½ How PF has improved my life

Ok....I know to some, especially newcomers, this is an insane topic.But, I know there are many ways in which the diagnosis and subsequentevents have actually made my life better. I know things I've gained. I'mgoing to reserve my list a bit and just want to hear others answer.While none of us would have chosen to have PF, I think it's important toremind ourselves of the good aspects of our lives and to instill amongthe newcomers the hope, not of a cure, but of a good life. So, what haveyou gained or what is better than before or what have you done sincediagnosis that you might not have otherwise?

March 27, 2009

I e-mailed her this AM. has gone in to get it.. I am just going to bed.Thanks everyone for your support. I love ya all. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Peggy,Dear heart I'm sorry you feel so awful today. Did you call the doctor? Girl if you're running a fever you probably need an antibiotic. I'm sure they'll call it in for you but don't wait. You've got alot going on right now my friend but please take care of you.Love and prayers, BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08From: Peggy To: Breathe-Support Sent: Friday, March 27, 2009 2:48:15 PMSubject: Re: How PF has NOT improved my lifeI can honestly say IPF has ruined my life... I live a good happy life but that is the Grace of God. I want to be able to do all the things and I had planned for our retirement.. not happening... The ONLY thing positive is the wonderful friends I have here. Again each and every one is God sent so This is all Gods plan so here I am.Today I am sick as a dog. fever,cough that would wake the dead. in general sick.. A few prayers would help I am sure. At this stage the cough hurts more the body aches.. just nasty. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." <1.3868279160>I have given myself permission to think of me first instead of being at the end of a long list of others who "need me." I have given myself permission to say "NO", I can't do that anymore....like babysitting, even tho' I adore my little great-grandkids. I don't feel guilty anymore if I wear nice pjs all day AND no bra! Comfort makes a difference in the day... I have learned to accept what I can't change and I forced myself to go out with the O2. I hated it at first and now it doesn't bother me. Now I'm grateful I have the O2 when I need it. My life in general is so much calmer. I'm not driven to do this do that anymore.I've made peace with my disease and I try to be helpful to others on the board.My life is absolutely different for sure but when I stopped "fighting" what I cannot change I found the peace I've looked for...even before dx. It is what it is. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! How PF has improved my lifeOk....I know to some, especially newcomers, this is an insane topic.But, I know there are many ways in which the diagnosis and subsequentevents have actually made my life better. I know things I've gained. I'mgoing to reserve my list a bit and just want to hear others answer.While none of us would have chosen to have PF, I think it's important toremind ourselves of the good aspects of our lives and to instill amongthe newcomers the hope, not of a cure, but of a good life. So, what haveyou gained or what is better than before or what have you done sincediagnosis that you might not have otherwise?

March 27, 2009

Peggy

Good. You know we're going to harass you until you get what you need and

get well. Just the way we are and you're stuck with us all.

>

> I have given myself permission to think of me first instead of being

> at the end of a long list of others who " need me. "

>

> I have given myself permission to say " NO " , I can't do that

> anymore....like babysitting, even tho' I adore my little great-

> grandkids.

>

> I don't feel guilty anymore if I wear nice pjs all day AND no bra!

> Comfort makes a difference in the day...

>

> I have learned to accept what I can't change and I forced myself to

> go out with the O2. I hated it at first and now it doesn't bother me.

> Now I'm grateful I have the O2 when I need it.

>

> My life in general is so much calmer. I'm not driven to do this do

> that anymore.

> I've made peace with my disease and I try to be helpful to others on

> the board.

> My life is absolutely different for sure but when I stopped

> " fighting " what I cannot change I found the peace I've looked

> for...even before dx. It is what it is.

>

> MamaSher; 70, IPF 3-06, OR.

> Nasturtiums

> Don't fret about tomorrow, God is already there!

> How PF has improved my life

>

> Ok....I know to some, especially newcomers, this is an insane topic.

> But, I know there are many ways in which the diagnosis and subsequent

> events have actually made my life better. I know things I've gained.

I'm

> going to reserve my list a bit and just want to hear others answer.

> While none of us would have chosen to have PF, I think it's important

to

> remind ourselves of the good aspects of our lives and to instill among

> the newcomers the hope, not of a cure, but of a good life. So, what

have

> you gained or what is better than before or what have you done since

> diagnosis that you might not have otherwise?

>

March 27, 2009

ï»¿

Peggy....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

ï¿½ How PF has improved my life

Ok....I know to some, especially newcomers, this is an insane topic.But, I know there are many ways in which the diagnosis and subsequentevents have actually made my life better. I know things I've gained. I'mgoing to reserve my list a bit and just want to hear others answer.While none of us would have chosen to have PF, I think it's important toremind ourselves of the good aspects of our lives and to instill amongthe newcomers the hope, not of a cure, but of a good life. So, what haveyou gained or what is better than before or what have you done sincediagnosis that you might not have otherwise?

March 27, 2009

Peggy

hope you feel better tomorrow

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: How PF has NOT improved my lifeTo: Breathe-Support Date: Friday, March 27, 2009, 2:48 PM

I can honestly say IPF has ruined my life... I live a good happy life but that is the Grace of God. I want to be able to do all the things and I had planned for our retirement.. not happening... The ONLY thing positive is the wonderful friends I have here. Again each and every one is God sent so This is all Gods plan so here I am.

Today I am sick as a dog. fever,cough that would wake the dead. in general sick.. A few prayers would help I am sure. At this stage the cough hurts more the body aches.. just nasty.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

I have given myself permission to think of me first instead of being at the end of a long list of others who "need me."

I have given myself permission to say "NO", I can't do that anymore....like babysitting, even tho' I adore my little great-grandkids.

I don't feel guilty anymore if I wear nice pjs all day AND no bra! Comfort makes a difference in the day...

I have learned to accept what I can't change and I forced myself to go out with the O2. I hated it at first and now it doesn't bother me. Now I'm grateful I have the O2 when I need it.

My life in general is so much calmer. I'm not driven to do this do that anymore.

I've made peace with my disease and I try to be helpful to others on the board.

My life is absolutely different for sure but when I stopped "fighting" what I cannot change I found the peace I've looked for...even before dx. It is what it is.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

How PF has improved my life

Ok....I know to some, especially newcomers, this is an insane topic.But, I know there are many ways in which the diagnosis and subsequentevents have actually made my life better. I know things I've gained. I'mgoing to reserve my list a bit and just want to hear others answer.While none of us would have chosen to have PF, I think it's important toremind ourselves of the good aspects of our lives and to instill amongthe newcomers the hope, not of a cure, but of a good life. So, what haveyou gained or what is better than before or what have you done sincediagnosis

that you might not have otherwise?

March 27, 2009

Oh Peggy, I am so sorry you are not feeling well today. I hope you are better soon. Hang in there and you are definitely getting prayers sent from here!! Hugs!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

To: Breathe-Support Sent: Friday, March 27, 2009 2:45:20 PMSubject: Re: How PF has NOT improved my life

ï»¿ Peggy... I'm sure you and are grieving the losses in your life and everyone of us can't make up for what no longer be. Maybe we can just make it tolerable.

I'm sorry you are sick today Peggy...sounds like it's time to call the dr. You know that, now silly girl, go do it!

We love ya.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

ï¿½ How PF has improved my life

Ok....I know to some, especially newcomers, this is an insane topic.But, I know there are many ways in which the diagnosis and subsequentevents have actually made my life better. I know things I've gained. I'mgoing to reserve my list a bit and just want to hear others answer.While none of us would have chosen to have PF, I think it's important toremind ourselves of the good aspects of our lives and to instill amongthe newcomers the hope, not of a cure, but of a good life. So, what haveyou gained or what is better than before or what have you done sincediagnosis that you might not have otherwise?

March 27, 2009

Oh Peggy, I am so sorry you are not feeling well today. I hope you are better soon. Hang in there and you are definitely getting prayers sent from here!! Hugs!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

To: Breathe-Support Sent: Friday, March 27, 2009 2:45:20 PMSubject: Re: How PF has NOT improved my life

ï»¿ Peggy... I'm sure you and are grieving the losses in your life and everyone of us can't make up for what no longer be. Maybe we can just make it tolerable.

I'm sorry you are sick today Peggy...sounds like it's time to call the dr. You know that, now silly girl, go do it!

We love ya.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

ï¿½ How PF has improved my life

Ok....I know to some, especially newcomers, this is an insane topic.But, I know there are many ways in which the diagnosis and subsequentevents have actually made my life better. I know things I've gained. I'mgoing to reserve my list a bit and just want to hear others answer.While none of us would have chosen to have PF, I think it's important toremind ourselves of the good aspects of our lives and to instill amongthe newcomers the hope, not of a cure, but of a good life. So, what haveyou gained or what is better than before or what have you done sincediagnosis that you might not have otherwise?

March 27, 2009

ï»¿

Peggy... why are you so stubborn about seeing a dr? I know you hate 'em but have you given up??

I'll keep

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

ï¿½ How PF has improved my life

Ok....I know to some, especially newcomers, this is an insane topic.But, I know there are many ways in which the diagnosis and subsequentevents have actually made my life better. I know things I've gained. I'mgoing to reserve my list a bit and just want to hear others answer.While none of us would have chosen to have PF, I think it's important toremind ourselves of the good aspects of our lives and to instill amongthe newcomers the hope, not of a cure, but of a good life. So, what haveyou gained or what is better than before or what have you done sincediagnosis that you might not have otherwise?

March 27, 2009

Peggy,

I'm sorry you are feeling so badly today. I'm glad you are getting antibiotics

and plenty of prayers.

I send you many hugs XXXXXX!

FL

IPF dx1/06

>

> I have given myself permission to think of me first instead of being

> at the end of a long list of others who " need me. "

>

> I have given myself permission to say " NO " , I can't do that

> anymore....like babysitting, even tho' I adore my little great-

> grandkids.

>

> I don't feel guilty anymore if I wear nice pjs all day AND no bra!

> Comfort makes a difference in the day...

>

> I have learned to accept what I can't change and I forced myself to

> go out with the O2. I hated it at first and now it doesn't bother me.

> Now I'm grateful I have the O2 when I need it.

>

> My life in general is so much calmer. I'm not driven to do this do

> that anymore.

> I've made peace with my disease and I try to be helpful to others on

> the board.

> My life is absolutely different for sure but when I stopped

> " fighting " what I cannot change I found the peace I've looked

> for...even before dx. It is what it is.

>

> MamaSher; 70, IPF 3-06, OR.

> Nasturtiums

> Don't fret about tomorrow, God is already there!

> How PF has improved my life

>

> Ok....I know to some, especially newcomers, this is an insane topic.

> But, I know there are many ways in which the diagnosis and subsequent

> events have actually made my life better. I know things I've gained. I'm

> going to reserve my list a bit and just want to hear others answer.

> While none of us would have chosen to have PF, I think it's important to

> remind ourselves of the good aspects of our lives and to instill among

> the newcomers the hope, not of a cure, but of a good life. So, what have

> you gained or what is better than before or what have you done since

> diagnosis that you might not have otherwise?

>

March 27, 2009