Re: Hello and thank you for being here

[Guest guest]

Hi Theresa and welcome. You are in the best place you can be.

I see you're going to UofW, where do you live? I live near Portland OR and will be going there too for an evaluation even tho' I was dx 3 years ago. I've been fairly stable until the last few months and decided it was time to go where they specialize in ILDs.

How you receive your mail depends on what you will see. Some get mail into their private inbox and some get read from the web page.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or attachments that others send in their messages?

[Guest guest]

Theresa

We're sorry you need to be here but happy you are since you do have DIP.

It sounds like you're doing an incredible job in preparing yourself for

a future transplant.

As to seeing pictures that are attached to the posts, I don't see them

either because I don't get individual emails. However, there are a lot

of photos posted on the web pages under " photos. "

>

> My name is Theresa and I wanted to introduce myself to the group. I

am 50 years old (soon to be 51) and was diagnosed with DIP in january of

2008. I am told I need a double lung transplant but to be listed I had

to lose close to 90 pounds....i am happy to say that i have lost 65 as

of now and quit smoking in the process. I visit my pulmonary doctor

this month and will find out what she thinks about my progress. My

transplant will be performed at the University of Wa. and i have met

with the surgeon once.

>

> I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along

with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety

and lack of energy in general. I used to work as a mental health case

manager for an outreach agency but had to retire because of my

disability. I miss the activity and people.

>

> Hoping to get some replies to this and do more posting as time goes

by. One question I have is how do I see pictures or attachments that

others send in their messages?

>

[Guest guest]

Theresa,

Hi and welcome! You've been around reading for a little while so you're at least somewhat familiar with the way the board works. There are places on the group website where pictures can be posted by members and a file section where there is helpful information posted. As for attachments, the only way to see email attachments is if you receive the board messages as indivisdual emails. Many members set their membership up that way and enjoy it. Others find the amount of email you receive this way is overwhelming. But in the end that's the only way to receive email attachments.

If you need help switching your message preferences, please just let me know. Again welcome to the board!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, March 27, 2009 3:41:05 PMSubject: Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or

attachments that others send in their messages?

[Guest guest]

Welcome,

I am new too and trying to get caught up. looking forward to learning with you.Colleen McCloud, PAPF 2007

To: Breathe-Support Sent: Friday, March 27, 2009 3:41:05 PMSubject: Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or

attachments that others send in their messages?

[Guest guest]

Welcome,

I am new too and trying to get caught up. looking forward to learning with you.Colleen McCloud, PAPF 2007

To: Breathe-Support Sent: Friday, March 27, 2009 3:41:05 PMSubject: Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or

attachments that others send in their messages?

[Guest guest]

Theresa... Whoopee for you weight loss and stopping smoking as well! You deserve a band to play for you...

I'll be going to UofWMC too for an eval. this summer.

Where do you live? I'm South of Portland.

I too have sleep apnea (cpap at night) depression, anxiety and extreme fatigue.

I too worked in MH and had to give it up.

I so miss it.

It depends on how you read your mail...home inbox or on the web. I think on the web you miss the attachments/pictures.

Is that right MB?

Later.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or attachments that others send in their messages?

[Guest guest]

Theresa... Whoopee for you weight loss and stopping smoking as well! You deserve a band to play for you...

I'll be going to UofWMC too for an eval. this summer.

Where do you live? I'm South of Portland.

I too have sleep apnea (cpap at night) depression, anxiety and extreme fatigue.

I too worked in MH and had to give it up.

I so miss it.

It depends on how you read your mail...home inbox or on the web. I think on the web you miss the attachments/pictures.

Is that right MB?

Later.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or attachments that others send in their messages?

[Guest guest]

Theresa... Whoopee for you weight loss and stopping smoking as well! You deserve a band to play for you...

I'll be going to UofWMC too for an eval. this summer.

Where do you live? I'm South of Portland.

I too have sleep apnea (cpap at night) depression, anxiety and extreme fatigue.

I too worked in MH and had to give it up.

I so miss it.

It depends on how you read your mail...home inbox or on the web. I think on the web you miss the attachments/pictures.

Is that right MB?

Later.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or attachments that others send in their messages?

[Guest guest]

Colleen, Welcome to the air family. where

in PA?

I'm near Philadelphia!And I go to HUP.

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Colleen McCloud wrote:

Welcome,

I am new too and trying to get caught up. looking forward to

learning with you.

Colleen McCloud, PA

PF 2007

From:

couple_of_parkers <couple_of_parkers (AT) yahoo (DOT) com>

To: Breathe-Support

Sent: Friday, March

27, 2009 3:41:05 PM

Subject:

Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group.

I am 50 years old (soon to be 51) and was diagnosed with DIP in january

of 2008. I am told I need a double lung transplant but to be listed I

had to lose close to 90 pounds....i am happy to say that i have lost 65

as of now and quit smoking in the process. I visit my pulmonary doctor

this month and will find out what she thinks about my progress. My

transplant will be performed at the University of Wa. and i have met

with the surgeon once.

I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with

nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and

lack of energy in general. I used to work as a mental health case

manager for an outreach agency but had to retire because of my

disability. I miss the activity and people.

Hoping to get some replies to this and do more posting as time goes by.

One question I have is how do I see pictures or attachments that others

send in their messages?

[Guest guest]

Colleen, Welcome to the air family. where

in PA?

I'm near Philadelphia!And I go to HUP.

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Colleen McCloud wrote:

Welcome,

I am new too and trying to get caught up. looking forward to

learning with you.

Colleen McCloud, PA

PF 2007

From:

couple_of_parkers <couple_of_parkers (AT) yahoo (DOT) com>

To: Breathe-Support

Sent: Friday, March

27, 2009 3:41:05 PM

Subject:

Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group.

I am 50 years old (soon to be 51) and was diagnosed with DIP in january

of 2008. I am told I need a double lung transplant but to be listed I

had to lose close to 90 pounds....i am happy to say that i have lost 65

as of now and quit smoking in the process. I visit my pulmonary doctor

this month and will find out what she thinks about my progress. My

transplant will be performed at the University of Wa. and i have met

with the surgeon once.

I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with

nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and

lack of energy in general. I used to work as a mental health case

manager for an outreach agency but had to retire because of my

disability. I miss the activity and people.

Hoping to get some replies to this and do more posting as time goes by.

One question I have is how do I see pictures or attachments that others

send in their messages?

[Guest guest]

Colleen, Welcome to the air family. where

in PA?

I'm near Philadelphia!And I go to HUP.

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Colleen McCloud wrote:

Welcome,

I am new too and trying to get caught up. looking forward to

learning with you.

Colleen McCloud, PA

PF 2007

From:

couple_of_parkers <couple_of_parkers (AT) yahoo (DOT) com>

To: Breathe-Support

Sent: Friday, March

27, 2009 3:41:05 PM

Subject:

Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group.

I am 50 years old (soon to be 51) and was diagnosed with DIP in january

of 2008. I am told I need a double lung transplant but to be listed I

had to lose close to 90 pounds....i am happy to say that i have lost 65

as of now and quit smoking in the process. I visit my pulmonary doctor

this month and will find out what she thinks about my progress. My

transplant will be performed at the University of Wa. and i have met

with the surgeon once.

I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with

nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and

lack of energy in general. I used to work as a mental health case

manager for an outreach agency but had to retire because of my

disability. I miss the activity and people.

Hoping to get some replies to this and do more posting as time goes by.

One question I have is how do I see pictures or attachments that others

send in their messages?

[Guest guest]

Hi ,

Tanks for the warm welcome. I'm south of Philly. I go to Temple Lung is HUP better?

To: Breathe-Support Sent: Saturday, April 4, 2009 3:57:54 PMSubject: Re: Hello and thank you for being here

Colleen, Welcome to the air family. where in PA?I'm near Philadelphia! And I go to HUP.

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Colleen McCloud wrote:

Welcome,

I am new too and trying to get caught up. looking forward to learning with you.Colleen McCloud, PAPF 2007

From: couple_of_parkers <couple_of_parkers@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 3:41:05 PMSubject: Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or

attachments that others send in their messages?

[Guest guest]

Hi ,

Tanks for the warm welcome. I'm south of Philly. I go to Temple Lung is HUP better?

To: Breathe-Support Sent: Saturday, April 4, 2009 3:57:54 PMSubject: Re: Hello and thank you for being here

Colleen, Welcome to the air family. where in PA?I'm near Philadelphia! And I go to HUP.

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Colleen McCloud wrote:

Welcome,

I am new too and trying to get caught up. looking forward to learning with you.Colleen McCloud, PAPF 2007

From: couple_of_parkers <couple_of_parkers@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 3:41:05 PMSubject: Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or

attachments that others send in their messages?

[Guest guest]

Colleen, I don't know about

Temple...all my regular docs said...go to Penn!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild†PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara      

“I’m

gonna be iron like a lion in Zionâ€Â  Bob Marley

Vinca

Minor-periwinkle is my flower

 

 

Colleen McCloud wrote:

Hi ,

 Tanks for the warm welcome. I'm south of Philly. I go to Temple

Lung is HUP better?

From:

Zion <ljz741 (AT) verizon (DOT) net>

To: Breathe-Support

Sent: Saturday, April

4, 2009 3:57:54 PM

Subject: Re:

Hello and thank you for being here

Colleen, Welcome to the air family.

where in PA?

I'm near Philadelphia! And I go to HUP.

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s

too!!

No, NSIP was not self-inflicted…I

never smoked!

Potter, reader,carousel lover and

MomMom to Darah and Sara      

“I’m

gonna be iron like a lion in Zionâ€Â  Bob Marley

Vinca Minor-periwinkle is my

flower

 

 

Colleen McCloud wrote:

Welcome,

 I am new too and trying to get caught up. looking forward to

learning with you.

Colleen McCloud, PA

PF 2007

From:

couple_of_parkers <couple_of_parkers@ yahoo.com>

To: Breathe-Support@

yahoogroups. com

Sent: Friday, March

27, 2009 3:41:05 PM

Subject:

Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the

group. I am 50 years old (soon to be 51) and was diagnosed with DIP in

january of 2008. I am told I need a double lung transplant but to be

listed I had to lose close to 90 pounds....i am happy to say that i

have lost 65 as of now and quit smoking in the process. I visit my

pulmonary doctor this month and will find out what she thinks about my

progress. My transplant will be performed at the University of Wa. and

i have met with the surgeon once.

I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with

nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and

lack of energy in general. I used to work as a mental health case

manager for an outreach agency but had to retire because of my

disability. I miss the activity and people.

Hoping to get some replies to this and do more posting as time goes by.

One question I have is how do I see pictures or attachments that others

send in their messages?

[Guest guest]

Colleen, I don't know about

Temple...all my regular docs said...go to Penn!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild†PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara      

“I’m

gonna be iron like a lion in Zionâ€Â  Bob Marley

Vinca

Minor-periwinkle is my flower

 

 

Colleen McCloud wrote:

Hi ,

 Tanks for the warm welcome. I'm south of Philly. I go to Temple

Lung is HUP better?

From:

Zion <ljz741 (AT) verizon (DOT) net>

To: Breathe-Support

Sent: Saturday, April

4, 2009 3:57:54 PM

Subject: Re:

Hello and thank you for being here

Colleen, Welcome to the air family.

where in PA?

I'm near Philadelphia! And I go to HUP.

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s

too!!

No, NSIP was not self-inflicted…I

never smoked!

Potter, reader,carousel lover and

MomMom to Darah and Sara      

“I’m

gonna be iron like a lion in Zionâ€Â  Bob Marley

Vinca Minor-periwinkle is my

flower

 

 

Colleen McCloud wrote:

Welcome,

 I am new too and trying to get caught up. looking forward to

learning with you.

Colleen McCloud, PA

PF 2007

From:

couple_of_parkers <couple_of_parkers@ yahoo.com>

To: Breathe-Support@

yahoogroups. com

Sent: Friday, March

27, 2009 3:41:05 PM

Subject:

Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the

group. I am 50 years old (soon to be 51) and was diagnosed with DIP in

january of 2008. I am told I need a double lung transplant but to be

listed I had to lose close to 90 pounds....i am happy to say that i

have lost 65 as of now and quit smoking in the process. I visit my

pulmonary doctor this month and will find out what she thinks about my

progress. My transplant will be performed at the University of Wa. and

i have met with the surgeon once.

I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with

nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and

lack of energy in general. I used to work as a mental health case

manager for an outreach agency but had to retire because of my

disability. I miss the activity and people.

Hoping to get some replies to this and do more posting as time goes by.

One question I have is how do I see pictures or attachments that others

send in their messages?

[Guest guest]

Colleen, I don't know about

Temple...all my regular docs said...go to Penn!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild†PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara      

“I’m

gonna be iron like a lion in Zionâ€Â  Bob Marley

Vinca

Minor-periwinkle is my flower

 

 

Colleen McCloud wrote:

Hi ,

 Tanks for the warm welcome. I'm south of Philly. I go to Temple

Lung is HUP better?

From:

Zion <ljz741 (AT) verizon (DOT) net>

To: Breathe-Support

Sent: Saturday, April

4, 2009 3:57:54 PM

Subject: Re:

Hello and thank you for being here

Colleen, Welcome to the air family.

where in PA?

I'm near Philadelphia! And I go to HUP.

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s

too!!

No, NSIP was not self-inflicted…I

never smoked!

Potter, reader,carousel lover and

MomMom to Darah and Sara      

“I’m

gonna be iron like a lion in Zionâ€Â  Bob Marley

Vinca Minor-periwinkle is my

flower

 

 

Colleen McCloud wrote:

Welcome,

 I am new too and trying to get caught up. looking forward to

learning with you.

Colleen McCloud, PA

PF 2007

From:

couple_of_parkers <couple_of_parkers@ yahoo.com>

To: Breathe-Support@

yahoogroups. com

Sent: Friday, March

27, 2009 3:41:05 PM

Subject:

Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the

group. I am 50 years old (soon to be 51) and was diagnosed with DIP in

january of 2008. I am told I need a double lung transplant but to be

listed I had to lose close to 90 pounds....i am happy to say that i

have lost 65 as of now and quit smoking in the process. I visit my

pulmonary doctor this month and will find out what she thinks about my

progress. My transplant will be performed at the University of Wa. and

i have met with the surgeon once.

I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with

nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and

lack of energy in general. I used to work as a mental health case

manager for an outreach agency but had to retire because of my

disability. I miss the activity and people.

Hoping to get some replies to this and do more posting as time goes by.

One question I have is how do I see pictures or attachments that others

send in their messages?

[Guest guest]

Hi Colleen

don't remember if i welcomed you,

i live north of philly and go to Penn

there is another person on the board from Cherry Hill who goes to Temple

but we haven't heard from her for awhile

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: Hello and thank you for being hereTo: Breathe-Support Date: Sunday, April 12, 2009, 12:46 PM

Hi ,

Tanks for the warm welcome. I'm south of Philly. I go to Temple Lung is HUP better?

From: Zion <ljz741 (AT) verizon (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Saturday, April 4, 2009 3:57:54 PMSubject: Re: Hello and thank you for being here

Colleen, Welcome to the air family. where in PA?I'm near Philadelphia! And I go to HUP.

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Colleen McCloud wrote:

Welcome,

I am new too and trying to get caught up. looking forward to learning with you.Colleen McCloud, PAPF 2007

From: couple_of_parkers <couple_of_parkers@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 3:41:05 PMSubject: Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or

attachments that others send in their messages?

[Guest guest]

Hi Joyce,

Thanks for the welcome. How do you like penn?Colleen McCloud 42, PAPF 2007

To: Breathe-Support Sent: Wednesday, April 15, 2009 8:48:57 PMSubject: Re: Hello and thank you for being here

Hi Colleen

don't remember if i welcomed you,

i live north of philly and go to Penn

there is another person on the board from Cherry Hill who goes to Temple

but we haven't heard from her for awhile

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund. org

Welcome,

I am new too and trying to get caught up. looking forward to learning with you.Colleen McCloud, PAPF 2007

From: couple_of_parkers <couple_of_parkers@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 3:41:05 PMSubject: Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or

attachments that others send in their messages?

[Guest guest]

Hi Joyce,

Thanks for the welcome. How do you like penn?Colleen McCloud 42, PAPF 2007

To: Breathe-Support Sent: Wednesday, April 15, 2009 8:48:57 PMSubject: Re: Hello and thank you for being here

Hi Colleen

don't remember if i welcomed you,

i live north of philly and go to Penn

there is another person on the board from Cherry Hill who goes to Temple

but we haven't heard from her for awhile

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund. org

Welcome,

I am new too and trying to get caught up. looking forward to learning with you.Colleen McCloud, PAPF 2007

From: couple_of_parkers <couple_of_parkers@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 3:41:05 PMSubject: Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or

attachments that others send in their messages?

[Guest guest]

Theresa... well we are narrowing it down...

We're about 20 miles from Ptld, near ville (about 6 miles).

I'm hoping one day it will be easy to meet each other.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hello and thank you for being here> > > > > > My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. > > > > I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.> > > > Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or attachments that others send in their messages?> >>

[Guest guest]

Theresa... well we are narrowing it down...

We're about 20 miles from Ptld, near ville (about 6 miles).

I'm hoping one day it will be easy to meet each other.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hello and thank you for being here> > > > > > My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. > > > > I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.> > > > Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or attachments that others send in their messages?> >>

[Guest guest]

Theresa,

I am behind in posts so just getting to yours and I am so jealous you live in Forks! Like everyone else I am sooo into Meyer's vampire series. I don't usually like vampire books and neither do my kids but all of us ( sons, daughter, daughter-in-laws) devoured the books this last month and its been all we are talking about. Have you had tons of looky loos about? And has your little town been changed by all the publicity? Take care- R. (53) Sarcoid/PF 3/2006 Carlsbad, California

Subject: Re: Hello and thank you for being hereTo: Breathe-Support Date: Thursday, April 16, 2009, 4:36 PM

Hi again Sher

I am in Forks, Wa. I was born and raised here. My mom lives in Vancouver Wa. thats pretty close to portland!!

Theresa

> >> > Theresa... Whoopee for you weight loss and stopping smoking as well! You deserve a band to play for you...> > > > I'll be going to UofWMC too for an eval. this summer.> > Where do you live? I'm South of Portland.> > I too have sleep apnea (cpap at night) depression, anxiety and extreme fatigue.> > I too worked in MH and had to give it up.> > I so miss it.> > > > It depends on how you read your mail...home inbox or on the web. I think on the web you miss the attachments/ pictures. > > Is that right MB?> > Later.> > > > > >

MamaSher; 70, IPF 3-06, OR. > > Nasturtiums> > Don't fret about tomorrow, God is already there!> > > > Hello

and thank you for being here> > > > > > My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. > > > > I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.> > > > Hoping to get

some replies to this and do more posting as time goes by. One question I have is how do I see pictures or attachments that others send in their messages?> >>

[Guest guest]

Theresa,

Just read down further and saw all of the answers to my previous questions (lol). First, welcome to our group and second a huge congratulations on losing 65 pounds AND quitting smoking! I was diagnosed three years ago right after my 50th birthday. I was a middle school teacher and adjusting to an early retirement has been hard at times, but overall not having to get up each morning to go to work has been wonderful. I have no clue why I have loved the vampire series so much but I seem to have a lot of company. If you are a reader I definitely recommend them. I live in Carlsbad, just north of San Diego and have the mildest weather in the US. I love love love the sunshine and living close to the beach, but at the moment I am dreaming about the misty forests of Forks! Take care- R. (53) Sarcoid/PF 3/2006 Carlsbad, California

Subject: Re: Hello and thank you for being hereTo: Breathe-Support Date: Thursday, April 16, 2009, 4:02 PM

thank you Sher I live on the tip of the olympic peninsula in the town known from the "Twightlite" book and movie. I have to admit i haven't read any of the 4 books or seen the movie but i do see the tourists from all over the world descending upon our town.....who would have ever thought a town that was known for its logging has now become known for vampires!

Glad you responded and hope that all is going well

Theresa>> Theresa... Whoopee for you weight loss and stopping smoking as well! You deserve a band to play for you...> > I'll be going to UofWMC too for an eval. this summer.> Where do you live? I'm South of Portland.> I too have sleep apnea (cpap at night) depression, anxiety and extreme fatigue.> I too worked in MH and had to give it up.> I so miss it.> > It depends on how you read your mail...home inbox or on the web. I think on the web you miss the attachments/ pictures. > Is that right MB?> Later.> > > MamaSher; 70, IPF 3-06, OR. > Nasturtiums> Don't fret about tomorrow, God is already there!>

> Hello and thank you for being here> > > My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung

transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. > > I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.> > Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or attachments that others send in their messages?>

[Guest guest]

Theresa,

Just read down further and saw all of the answers to my previous questions (lol). First, welcome to our group and second a huge congratulations on losing 65 pounds AND quitting smoking! I was diagnosed three years ago right after my 50th birthday. I was a middle school teacher and adjusting to an early retirement has been hard at times, but overall not having to get up each morning to go to work has been wonderful. I have no clue why I have loved the vampire series so much but I seem to have a lot of company. If you are a reader I definitely recommend them. I live in Carlsbad, just north of San Diego and have the mildest weather in the US. I love love love the sunshine and living close to the beach, but at the moment I am dreaming about the misty forests of Forks! Take care- R. (53) Sarcoid/PF 3/2006 Carlsbad, California

Subject: Re: Hello and thank you for being hereTo: Breathe-Support Date: Thursday, April 16, 2009, 4:02 PM

thank you Sher I live on the tip of the olympic peninsula in the town known from the "Twightlite" book and movie. I have to admit i haven't read any of the 4 books or seen the movie but i do see the tourists from all over the world descending upon our town.....who would have ever thought a town that was known for its logging has now become known for vampires!

Glad you responded and hope that all is going well

Theresa>> Theresa... Whoopee for you weight loss and stopping smoking as well! You deserve a band to play for you...> > I'll be going to UofWMC too for an eval. this summer.> Where do you live? I'm South of Portland.> I too have sleep apnea (cpap at night) depression, anxiety and extreme fatigue.> I too worked in MH and had to give it up.> I so miss it.> > It depends on how you read your mail...home inbox or on the web. I think on the web you miss the attachments/ pictures. > Is that right MB?> Later.> > > MamaSher; 70, IPF 3-06, OR. > Nasturtiums> Don't fret about tomorrow, God is already there!>

> Hello and thank you for being here> > > My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung

transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. > > I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.> > Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or attachments that others send in their messages?>

[Guest guest]

Colleen

Penn is a good choice for me. I see Dr Kreider for pulmonary and Dr Ahya for transplant. They tend to be up front, will answer questions and will explain things. The respiratory therapists who do the 6 min walk and PFTs tend to be very knowledgeable, supportive, sensitive and helpful.

Even though the disease is negative, my experience at Penn is positive.

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: Hello and thank you for being hereTo: Breathe-Support Date: Thursday, April 16, 2009, 12:28 PM

Hi Joyce,

Thanks for the welcome. How do you like penn?Colleen McCloud 42, PAPF 2007

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, April 15, 2009 8:48:57 PMSubject: Re: Hello and thank you for being here

Hi Colleen

don't remember if i welcomed you,

i live north of philly and go to Penn

there is another person on the board from Cherry Hill who goes to Temple

but we haven't heard from her for awhile

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund. org

Welcome,

I am new too and trying to get caught up. looking forward to learning with you.Colleen McCloud, PAPF 2007

From: couple_of_parkers <couple_of_parkers@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 3:41:05 PMSubject: Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or

attachments that others send in their messages?