Re: Hello and thank you for being here

[Guest guest]

Hi folks. I'm in northern Delaware and go to Christiana Care Health System at

Christiana Hospital. We've got a much needed Pulmonary Hypertension Clinic. My

doc is Gerald O'Brien. He is great. He was transplant coordinator at Temple. I

was going to both Christiana and Temple. Temple said Dr. O'Brien would be great.

We have a few others in the Delaware area that I have yet to meet. I want to

include their patients in my support group as well. I get calls from patients

who also go to HUP, Temple and Jefferson.

I believe we are fortunate in this area with so many good facilities.

Have a blessed day! You all are in my prayers.

Be blessed,

ette

Northern Delaware

SLE 99, TTP 99, Spine 98, PF noted 98, MS 04, AH/PBC 04, PF&PH 06, HS 09...???

Sent from my Verizon Wireless BlackBerry

[Guest guest]

Thank you! I will have to take a look see at my world map on the wall - yep

still have one of those - and see where you are.

As I remember diagnosis that are relevant, I have to expand that list.

I am a challenge to my team of physicians and never know which condition are

causing symptoms many times. Talking about wanted to be different? This isn't

what was on my mind!

Be blessed,

ette

SLE 99, TTP 99, Raynauds 99, Spine 98, PF noted 98, MS 04, AH/PBC 04, PF&PH 06,

HS 09...???

Sent from my Verizon Wireless BlackBerry

[Guest guest]

Thank you! I will have to take a look see at my world map on the wall - yep

still have one of those - and see where you are.

As I remember diagnosis that are relevant, I have to expand that list.

I am a challenge to my team of physicians and never know which condition are

causing symptoms many times. Talking about wanted to be different? This isn't

what was on my mind!

Be blessed,

ette

SLE 99, TTP 99, Raynauds 99, Spine 98, PF noted 98, MS 04, AH/PBC 04, PF&PH 06,

HS 09...???

Sent from my Verizon Wireless BlackBerry

[Guest guest]

Thanks - I'll look into Penn...Would love to go to Duke... I hear they have the best lung center in the country?

To: Breathe-Support Sent: Sunday, April 12, 2009 5:44:10 PMSubject: Re: Hello and thank you for being here

Colleen, I don't know about Temple...all my regular docs said...go to Penn!

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Colleen McCloud wrote:

Hi ,

Tanks for the warm welcome. I'm south of Philly. I go to Temple Lung is HUP better?

From: Zion <ljz741 (AT) verizon (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Saturday, April 4, 2009 3:57:54 PMSubject: Re: Hello and thank you for being here

Colleen, Welcome to the air family. where in PA?I'm near Philadelphia! And I go to HUP.

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Colleen McCloud wrote:

Welcome,

I am new too and trying to get caught up. looking forward to learning with you.Colleen McCloud, PAPF 2007

From: couple_of_parkers <couple_of_parkers@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 3:41:05 PMSubject: Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or

attachments that others send in their messages?

[Guest guest]

Thanks - I'll look into Penn...Would love to go to Duke... I hear they have the best lung center in the country?

To: Breathe-Support Sent: Sunday, April 12, 2009 5:44:10 PMSubject: Re: Hello and thank you for being here

Colleen, I don't know about Temple...all my regular docs said...go to Penn!

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Colleen McCloud wrote:

Hi ,

Tanks for the warm welcome. I'm south of Philly. I go to Temple Lung is HUP better?

From: Zion <ljz741 (AT) verizon (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Saturday, April 4, 2009 3:57:54 PMSubject: Re: Hello and thank you for being here

Colleen, Welcome to the air family. where in PA?I'm near Philadelphia! And I go to HUP.

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Colleen McCloud wrote:

Welcome,

I am new too and trying to get caught up. looking forward to learning with you.Colleen McCloud, PAPF 2007

From: couple_of_parkers <couple_of_parkers@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 3:41:05 PMSubject: Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or

attachments that others send in their messages?

[Guest guest]

Thanks - I'll look into Penn...Would love to go to Duke... I hear they have the best lung center in the country?

To: Breathe-Support Sent: Sunday, April 12, 2009 5:44:10 PMSubject: Re: Hello and thank you for being here

Colleen, I don't know about Temple...all my regular docs said...go to Penn!

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Colleen McCloud wrote:

Hi ,

Tanks for the warm welcome. I'm south of Philly. I go to Temple Lung is HUP better?

From: Zion <ljz741 (AT) verizon (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Saturday, April 4, 2009 3:57:54 PMSubject: Re: Hello and thank you for being here

Colleen, Welcome to the air family. where in PA?I'm near Philadelphia! And I go to HUP.

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Colleen McCloud wrote:

Welcome,

I am new too and trying to get caught up. looking forward to learning with you.Colleen McCloud, PAPF 2007

From: couple_of_parkers <couple_of_parkers@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 3:41:05 PMSubject: Hello and thank you for being here

My name is Theresa and I wanted to introduce myself to the group. I am 50 years old (soon to be 51) and was diagnosed with DIP in january of 2008. I am told I need a double lung transplant but to be listed I had to lose close to 90 pounds....i am happy to say that i have lost 65 as of now and quit smoking in the process. I visit my pulmonary doctor this month and will find out what she thinks about my progress. My transplant will be performed at the University of Wa. and i have met with the surgeon once. I am on oxygen 24/7 at 4 litre's. and take about 7 or 8 meds along with nebulizers and inhalers. I have sleeep apnea, depreession, anxiety and lack of energy in general. I used to work as a mental health case manager for an outreach agency but had to retire because of my disability. I miss the activity and people.Hoping to get some replies to this and do more posting as time goes by. One question I have is how do I see pictures or

attachments that others send in their messages?