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Amy - Monday

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Poor baby. At 2 it is nearly impossible to get them to sit still.

Since I have worked with little ones here is an idea you can try.

If Amy is up to it have Paige come in and sit her at a table to draw

pictures for Mommy.

If she's looking for snuggle time tell her Mommy has to take a nap can you

pat Mommy's back to help her get to sleep. Trust me she'll do it especially if

you get a nurse in on it and have the nurse tell Paige she is her special

helper. 2 year olds eat that up!!

Narice

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How often do the docs come a day Deb?? That is horrible, is your dad

ok to help your mom when you aren't there??

Thinking of you,

Peta

Yes Paige will be in tomorrow to see Amy for her birthday but it will

be a short visit. Amy doesn't have the energy right now to be with

Paige. She finds it really difficult when Paige wants to climb all

over her. Today Paige was in for a visit and she was trying to climb

on Amy's bed but Amy felt really sick so she asked my mom to take Paige

out of the room for a minute anf the poor little darling started crying

and screaming " I WANT MY MOMMMY!!! " Breaks you heart.....

Anyways, my mom, my mom's best friend and my other sister have been

taking care of Paige when Amy's husband is with her at the hospital and

at work. My mom or dad lives with me when I am at the hospital to take

care of my baby (my husband is at work as well) and when I come home

one of them goes to the hospital. Someone is always with Amy 24 hours

a day.

> Peta...who is watching Paige during all this?? Bless her

heart...and Amy,

> too!!

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>

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How often do the docs come a day Deb?? That is horrible, is your dad

ok to help your mom when you aren't there??

Thinking of you,

Peta

Yes Paige will be in tomorrow to see Amy for her birthday but it will

be a short visit. Amy doesn't have the energy right now to be with

Paige. She finds it really difficult when Paige wants to climb all

over her. Today Paige was in for a visit and she was trying to climb

on Amy's bed but Amy felt really sick so she asked my mom to take Paige

out of the room for a minute anf the poor little darling started crying

and screaming " I WANT MY MOMMMY!!! " Breaks you heart.....

Anyways, my mom, my mom's best friend and my other sister have been

taking care of Paige when Amy's husband is with her at the hospital and

at work. My mom or dad lives with me when I am at the hospital to take

care of my baby (my husband is at work as well) and when I come home

one of them goes to the hospital. Someone is always with Amy 24 hours

a day.

> Peta...who is watching Paige during all this?? Bless her

heart...and Amy,

> too!!

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>

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Thanks Narice,

That is a great idea. We actually try to plan that Paige has her nap

with Amy. The snuggle together in the bed and Paige falls asleep with

Amy.

But we will have to try your idea!!!

Sincerely

Peta

> Poor baby. At 2 it is nearly impossible to get them to sit still.

> Since I have worked with little ones here is an idea you can try.

> If Amy is up to it have Paige come in and sit her at a table to draw

> pictures for Mommy.

> If she's looking for snuggle time tell her Mommy has to take a nap

can you

> pat Mommy's back to help her get to sleep. Trust me she'll do it

especially if

> you get a nurse in on it and have the nurse tell Paige she is her

special

> helper. 2 year olds eat that up!!

>

> Narice

>

>

>

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Peta, Please give Amy a hug from all of us here and Please tell her

we all wish her a Happy Birthday!!! Praying hard for her!!! Ingrid

> Hello Everyone

>

> Hope you all had a good weekend. Tomorrow is Amy's 30th birthday

and

> unfortunately she will be spending it in the hospital. There is a

> lounge on the floor that Amy is on that they are reserving for her

> birthday party. My mom ordered two cakes to give to the staff on

the

> 14th floor for being so wonderful this past month (yes is has been

1

> month this past Saturday that Amy was admitted). I was in to see

her

> this morning and she didn't look well again. She was sick again

last

> night and was feeling quite nauseous today. They are doing another

> abdomenol x-ray today to check for a blockage again. Tomorrow Amy

will

> have her lungs tapped again and then they will most likely start

the

> pleurodesis procedure (putting in a chest tube and creating

scarring

> around the lung so no more fluid can get in). The team of docs

from

> the Toronto General first have to approve that Amy is eligible for

this

> procedure. I have said to Amy that when she has had enough she

needs

> to let us know (as surgeons will keep trying to solve the problems

as

> long as Amy lets them). And as she glances at Paige's picture she

> says, " i know " (her 2 year old daughter). Amy will fight right to

the

> end - she is so strong.

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Peta....this is just so sad and so hard for you, your family and Amy!! It

just brings tears to my eyes and I wish I could do something for you to ease

your pain and saddness. I am praying for you all for strength and peace of

mind. Know that you are loved and we all wish we could be there for you to

help in some way, even if just a hug....but this cyberhug will have to do...

{{{{ Peta }}}}

Lots of hugs and prayers, Donelle

Caregiver to Glenn

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Hey All

Thank you again for all your notes. Deb, glad to hear your mom is

doing a little better and that she is home. Donelle how is Glenn??

Amy is sleeping a lot today which is good to see her resting. The

Palliative care doc came in today and told me that it is time to

tell my other sis to take some time off work as things are becoming

more iminent. They are slowing down the IV's for Amy as she has

edema sp?? really bad. The poor thing has gone up 4 sizes in undies

and they are still cutting into her skin. She is having a very

difficult time breathing so she is having her right lung tapped

tomorrow to give some short term relief so she can have a quick

visit with her friends and Paige over the next couple of days.

So sad but I don't want to see her suffer anymore. This is not

quality of life.........

Signing off for the night

Hopefully she will sleep ok.....

hugs

peta

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Peta, Thank you for posting and lettting us know how it is going. It

is good that Amy is getting some rest today. I hope she can get some

relief with breathing once they tap the fluid our of her other lung.

I am praying so hard for her. Ingrid

> Hey All

>

> Thank you again for all your notes. Deb, glad to hear your mom is

> doing a little better and that she is home. Donelle how is Glenn??

>

> Amy is sleeping a lot today which is good to see her resting. The

> Palliative care doc came in today and told me that it is time to

> tell my other sis to take some time off work as things are becoming

> more iminent. They are slowing down the IV's for Amy as she has

> edema sp?? really bad. The poor thing has gone up 4 sizes in

undies

> and they are still cutting into her skin. She is having a very

> difficult time breathing so she is having her right lung tapped

> tomorrow to give some short term relief so she can have a quick

> visit with her friends and Paige over the next couple of days.

>

> So sad but I don't want to see her suffer anymore. This is not

> quality of life.........

>

> Signing off for the night

> Hopefully she will sleep ok.....

> hugs

> peta

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Peta, Thank you for posting and lettting us know how it is going. It

is good that Amy is getting some rest today. I hope she can get some

relief with breathing once they tap the fluid our of her other lung.

I am praying so hard for her. Ingrid

> Hey All

>

> Thank you again for all your notes. Deb, glad to hear your mom is

> doing a little better and that she is home. Donelle how is Glenn??

>

> Amy is sleeping a lot today which is good to see her resting. The

> Palliative care doc came in today and told me that it is time to

> tell my other sis to take some time off work as things are becoming

> more iminent. They are slowing down the IV's for Amy as she has

> edema sp?? really bad. The poor thing has gone up 4 sizes in

undies

> and they are still cutting into her skin. She is having a very

> difficult time breathing so she is having her right lung tapped

> tomorrow to give some short term relief so she can have a quick

> visit with her friends and Paige over the next couple of days.

>

> So sad but I don't want to see her suffer anymore. This is not

> quality of life.........

>

> Signing off for the night

> Hopefully she will sleep ok.....

> hugs

> peta

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I just want to put my arms around you and give you a

big ((((((HUG)))))). I know how difficult this is,

I've been there, and it hurts so bad to see the one

you love in so much misery. Sppend every moment you

can with her and talk to her about the good times

you've had together in the past, she will here it even

if she does not respond. My prayer is that God will

give Amy rest and that He will hold you and your

family in His arms granting you His grace and His

strength to carry you through the days ahead.

Hugs & prayers,

H

--- petakerr2002 petakerr2002@...> wrote:

> Hey All

>

> Thank you again for all your notes. Deb, glad to

> hear your mom is

> doing a little better and that she is home. Donelle

> how is Glenn??

>

> Amy is sleeping a lot today which is good to see her

> resting. The

> Palliative care doc came in today and told me that

> it is time to

> tell my other sis to take some time off work as

> things are becoming

> more iminent. They are slowing down the IV's for

> Amy as she has

> edema sp?? really bad. The poor thing has gone up 4

> sizes in undies

> and they are still cutting into her skin. She is

> having a very

> difficult time breathing so she is having her right

> lung tapped

> tomorrow to give some short term relief so she can

> have a quick

> visit with her friends and Paige over the next

> couple of days.

>

> So sad but I don't want to see her suffer anymore.

> This is not

> quality of life.........

>

> Signing off for the night

> Hopefully she will sleep ok.....

> hugs

> peta

>

>

>

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