Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 , I'm in a similar situation, in that I feel I have to deal with the adrenals before beginning chelation. I have tried to talk to my own doctor, and showed her the results of my 4x/day saliva test, which shows I have low cortisol. But she would only refer me to an endocrinologist. He said that " saliva tests for low cortisol are meaningless " . Then he tried to convince me that my problems were no worse than anyone else's, which he couldn't know after only 7-8 minutes. Finally, he ordered the ACTH stimulation test, which I had last Wednesday. I'm supposed to get the results this week, but I'm pretty sure it'll be some variant of there's nothing wrong with me. So I can really relate. I think the sticking point is wanting, or rather, _needing_ to have it covered by insurance. I can't find anybody who takes insurance who will deal with any of this. Even more so in my case because I'm disabled and on medicare. I wish you luck. SoCal is certainly a better place to be looking for enlightened doctors than rural New England and I hope you find one. But you may want to start doing some more reading and start figuring out what you can do for yourself. For many of us, we are our only choice. > > Hi, everyone. > > I simply must get my out of control adrenal fatigue symptoms corrected before starting > Andy's chelation protocol, otherwise, I fear I will disturb myself and my family greatly. > > Dean advised I find an " Adrenal Aware " doctor, which can be hard. I went to an > endocrinologist today, told him all my " classic adrenal fatigue " symptoms, he examined > me, and I asked for an ACTH stress test. He said he wouldn't be able to interpret it, even if > he gave me one. He said the ACTH stress test isn't taken seriously by any self-respecting > endocrinologist because " there's no baseline level of cortisol--it may go up, it may go > down, who knows. " So instead, he ordered a cortisol blood test for me (blood test first, > then injection with ACTH and then another blood draw an hour after that), to " stimulate the > adrenals and see if they produce cortisol. " I don't know how reliable this test is going to > be. He said my symptoms are pretty common things most people have, without having > " Adrenal Disease. " I think, after doing some reading, that my symptoms are things my > family and I absolutely cannot put up with . . . and all I did is have 3 little fillings removed > 2 months ago--I haven't even started chelating yet! I have to wait a week and see how he > interprets the results, but he would prescribe Hydrocortisone if he thinks I'm hypoadrenal, > and then treat the symptoms. > > So--does anyone in Southern California (USA) know of a good " adrenal aware " doctor in > the area? I'm in Long Beach. I'm hoping for someone contracted with BlueCross PPO, like > my current endocrinologist is. > > Thanks! > > Abrenica > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 Just a thought, have you tried the DAN! docs in your area. They tend to be more receptive to treating adrenal fatigue. http://www.healing-arts.org/children/amyholmes.htm#danlist > > > > -----snip----- > > So--does anyone in Southern California (USA) know of a good " adrenal aware " doctor in the area? I'm in Long Beach. I'm hoping for someone contracted with BlueCross PPO, like > > my current endocrinologist is. > > > > Thanks! > > > > Abrenica > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 I don't, but I do know that you can get isocort and try to work this out for yourself. He is right about it being likely that you don't have adrenal disease. The problem is generally not the adrenals, but the brain. Mercury blocks the signals from the brain to the adrenals, so that you don't produce cortisol. This is why, even if some cortisol can help, spending too much time with the endocrinologist can be a big mistake. It's impossible to fix the problem without detox. Dave. ------------- Posted by: " jennifer.robinsong " jennifer.robinsong@... jennifer.robinsong@...?Subject=%20Re%3ATreating%20adrenals%20First\ --doctor%20in%20SoCal%3F> jennifer.robinsong http://profiles.yahoo.com/jennifer.robinsong> Mon Mar 10, 2008 3:29 pm (PDT) Hi, everyone. I simply must get my out of control adrenal fatigue symptoms corrected before starting Andy's chelation protocol, otherwise, I fear I will disturb myself and my family greatly. Dean advised I find an " Adrenal Aware " doctor, which can be hard. I went to an endocrinologist today, told him all my " classic adrenal fatigue " symptoms, he examined me, and I asked for an ACTH stress test. He said he wouldn't be able to interpret it, even if he gave me one. He said the ACTH stress test isn't taken seriously by any self-respecting endocrinologist because " there's no baseline level of cortisol--it may go up, it may go down, who knows. " So instead, he ordered a cortisol blood test for me (blood test first, then injection with ACTH and then another blood draw an hour after that), to " stimulate the adrenals and see if they produce cortisol. " I don't know how reliable this test is going to be. He said my symptoms are pretty common things most people have, without having " Adrenal Disease. " I think, after doing some reading, that my symptoms are things my family and I absolutely cannot put up with . . . and all I did is have 3 little fillings removed 2 months ago--I haven't even started chelating yet! I have to wait a week and see how he interprets the results, but he would prescribe Hydrocortisone if he thinks I'm hypoadrenal, and then treat the symptoms. So--does anyone in Southern California (USA) know of a good " adrenal aware " doctor in the area? I'm in Long Beach. I'm hoping for someone contracted with BlueCross PPO, like my current endocrinologist is. Thanks! Abrenica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 I don't, but I do know that you can get isocort and try to work this out for yourself. He is right about it being likely that you don't have adrenal disease. The problem is generally not the adrenals, but the brain. Mercury blocks the signals from the brain to the adrenals, so that you don't produce cortisol. This is why, even if some cortisol can help, spending too much time with the endocrinologist can be a big mistake. It's impossible to fix the problem without detox. Dave. ------------- Posted by: " jennifer.robinsong " jennifer.robinsong@... jennifer.robinsong@...?Subject=%20Re%3ATreating%20adrenals%20First\ --doctor%20in%20SoCal%3F> jennifer.robinsong http://profiles.yahoo.com/jennifer.robinsong> Mon Mar 10, 2008 3:29 pm (PDT) Hi, everyone. I simply must get my out of control adrenal fatigue symptoms corrected before starting Andy's chelation protocol, otherwise, I fear I will disturb myself and my family greatly. Dean advised I find an " Adrenal Aware " doctor, which can be hard. I went to an endocrinologist today, told him all my " classic adrenal fatigue " symptoms, he examined me, and I asked for an ACTH stress test. He said he wouldn't be able to interpret it, even if he gave me one. He said the ACTH stress test isn't taken seriously by any self-respecting endocrinologist because " there's no baseline level of cortisol--it may go up, it may go down, who knows. " So instead, he ordered a cortisol blood test for me (blood test first, then injection with ACTH and then another blood draw an hour after that), to " stimulate the adrenals and see if they produce cortisol. " I don't know how reliable this test is going to be. He said my symptoms are pretty common things most people have, without having " Adrenal Disease. " I think, after doing some reading, that my symptoms are things my family and I absolutely cannot put up with . . . and all I did is have 3 little fillings removed 2 months ago--I haven't even started chelating yet! I have to wait a week and see how he interprets the results, but he would prescribe Hydrocortisone if he thinks I'm hypoadrenal, and then treat the symptoms. So--does anyone in Southern California (USA) know of a good " adrenal aware " doctor in the area? I'm in Long Beach. I'm hoping for someone contracted with BlueCross PPO, like my current endocrinologist is. Thanks! Abrenica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 I see. Actually, I re-read the passage in Amalgam Illness last night where Andy said that very thing--nothing's wrong with the way the adrenals work--it's that the pituitary is sending the wrong instructions to the adrenals. But wouldn't an endocrinologist know about a failing pituitary? I'm telling you, ALL my hormones are failing. If there's any organ an endocrinologist should be able to deal with, shouldn't it be the master hormone-producer, the pituitary? But this doctor never said anything about that possibility, and I'd unfortunately forgotten about that being the issue, until after I had the cortisol stimulation test and went home. I think I should call right away and have that test cancelled, so I don't have to pay for it. > > I don't, but I do know that you can get isocort and try to work this out > for yourself. > > He is right about it being likely that you don't have adrenal disease. > The problem is generally not the adrenals, but the brain. Mercury > blocks the signals from the brain to the adrenals, so that you don't > produce cortisol. This is why, even if some cortisol can help, spending > too much time with the endocrinologist can be a big mistake. It's > impossible to fix the problem without detox. > > Dave. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 I see. Actually, I re-read the passage in Amalgam Illness last night where Andy said that very thing--nothing's wrong with the way the adrenals work--it's that the pituitary is sending the wrong instructions to the adrenals. But wouldn't an endocrinologist know about a failing pituitary? I'm telling you, ALL my hormones are failing. If there's any organ an endocrinologist should be able to deal with, shouldn't it be the master hormone-producer, the pituitary? But this doctor never said anything about that possibility, and I'd unfortunately forgotten about that being the issue, until after I had the cortisol stimulation test and went home. I think I should call right away and have that test cancelled, so I don't have to pay for it. > > I don't, but I do know that you can get isocort and try to work this out > for yourself. > > He is right about it being likely that you don't have adrenal disease. > The problem is generally not the adrenals, but the brain. Mercury > blocks the signals from the brain to the adrenals, so that you don't > produce cortisol. This is why, even if some cortisol can help, spending > too much time with the endocrinologist can be a big mistake. It's > impossible to fix the problem without detox. > > Dave. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 We are up to our ears in this too. I have a 12 yr dd whose saliva cortisol was deplorably low and they don't want to treat her. The test he gave you is the right one Serum cortisol and ACTH Stim test), it will show a baseline cortisol and then whether or not your pituitary is working. If it is, then the problem lies in the glands themselves..which they probably won't treat you for. It does sound like this guy is very arrogant, and usually know it all arrogant doctors don't listen to their patients or help them. I would make sure you get copies of all the labs he does so you can take them with you and find someone who is not going to be condescending and ignore your problem. (if you can find someone like that) We are still looking. What we have done is get on adrenal support once those tests are done. You can try adrenal cortex or Isocort to help maintain yourself while you undergo chelation. The reason your symptoms are so common is that many people have adrenal fatigue that is untreated. Endo's mainly only treat 's or Cushings..which most of us don't have. We have adrenal damage, from various factors...one being mercury. And most doctors never heard of mercury, or at least act like they haven't. visit www.stopthethyroidmadness.com for tons of info on endo problems. How to interpret your tests, and how to treat it if he won't. I wish you luck in finding a doc, especially one who takes insurance..since I am finding most good ones don't. > > Hi, everyone. > > I simply must get my out of control adrenal fatigue symptoms corrected before starting > Andy's chelation protocol, otherwise, I fear I will disturb myself and my family greatly. > > Dean advised I find an " Adrenal Aware " doctor, which can be hard. I went to an > endocrinologist today, told him all my " classic adrenal fatigue " symptoms, he examined > me, and I asked for an ACTH stress test. He said he wouldn't be able to interpret it, even if > he gave me one. He said the ACTH stress test isn't taken seriously by any self-respecting > endocrinologist because " there's no baseline level of cortisol--it may go up, it may go > down, who knows. " So instead, he ordered a cortisol blood test for me (blood test first, > then injection with ACTH and then another blood draw an hour after that), to " stimulate the > adrenals and see if they produce cortisol. " I don't know how reliable this test is going to > be. He said my symptoms are pretty common things most people have, without having > " Adrenal Disease. " I think, after doing some reading, that my symptoms ar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 We are up to our ears in this too. I have a 12 yr dd whose saliva cortisol was deplorably low and they don't want to treat her. The test he gave you is the right one Serum cortisol and ACTH Stim test), it will show a baseline cortisol and then whether or not your pituitary is working. If it is, then the problem lies in the glands themselves..which they probably won't treat you for. It does sound like this guy is very arrogant, and usually know it all arrogant doctors don't listen to their patients or help them. I would make sure you get copies of all the labs he does so you can take them with you and find someone who is not going to be condescending and ignore your problem. (if you can find someone like that) We are still looking. What we have done is get on adrenal support once those tests are done. You can try adrenal cortex or Isocort to help maintain yourself while you undergo chelation. The reason your symptoms are so common is that many people have adrenal fatigue that is untreated. Endo's mainly only treat 's or Cushings..which most of us don't have. We have adrenal damage, from various factors...one being mercury. And most doctors never heard of mercury, or at least act like they haven't. visit www.stopthethyroidmadness.com for tons of info on endo problems. How to interpret your tests, and how to treat it if he won't. I wish you luck in finding a doc, especially one who takes insurance..since I am finding most good ones don't. > > Hi, everyone. > > I simply must get my out of control adrenal fatigue symptoms corrected before starting > Andy's chelation protocol, otherwise, I fear I will disturb myself and my family greatly. > > Dean advised I find an " Adrenal Aware " doctor, which can be hard. I went to an > endocrinologist today, told him all my " classic adrenal fatigue " symptoms, he examined > me, and I asked for an ACTH stress test. He said he wouldn't be able to interpret it, even if > he gave me one. He said the ACTH stress test isn't taken seriously by any self-respecting > endocrinologist because " there's no baseline level of cortisol--it may go up, it may go > down, who knows. " So instead, he ordered a cortisol blood test for me (blood test first, > then injection with ACTH and then another blood draw an hour after that), to " stimulate the > adrenals and see if they produce cortisol. " I don't know how reliable this test is going to > be. He said my symptoms are pretty common things most people have, without having > " Adrenal Disease. " I think, after doing some reading, that my symptoms ar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 I was going to ask you in that previous post if you hadn't figured out that doctors are useless yet - but then I thought the better of it. You seem to be getting the idea anyway! Dave. Posted by: " jennifer.robinsong " jennifer.robinsong@... jennifer.robinsong@...?Subject=%20Re%3A%20Treating%20adrenals%20Fi\ rst--doctor%20in%20SoCal%3F> jennifer.robinsong http://profiles.yahoo.com/jennifer.robinsong> Tue Mar 11, 2008 9:17 am (PDT) I see. Actually, I re-read the passage in Amalgam Illness last night where Andy said that very thing--nothing' s wrong with the way the adrenals work--it's that the pituitary is sending the wrong instructions to the adrenals. But wouldn't an endocrinologist know about a failing pituitary? I'm telling you, ALL my hormones are failing. If there's any organ an endocrinologist should be able to deal with, shouldn't it be the master hormone-producer, the pituitary? But this doctor never said anything about that possibility, and I'd unfortunately forgotten about that being the issue, until after I had the cortisol stimulation test and went home. I think I should call right away and have that test cancelled, so I don't have to pay for it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 " I asked for an ACTH stress test " Which, if your adrenals are shot, is just asking for trouble. As others have noted the problem may not be classic adrenal exhaustion but disregulation, as in Hg messing with the HPA. There is a simple saliva test that a smart physician who understands a bit about this stuff will know all about. And unlike the ACTH test, the saliva test will not make you more sick which the ACTH may. My issue was low adrenal reserve and disregulation. My experience was that Hydorortisone supplementation helped alot. I took VERY low dose once a day in the AM. Simple sugars and starches are a big part of the problem in my case. Read book, Adrenal Fatigue or Adrenal Disease, it's helpul. Eat no, zero sugar or simple starches or cereals in the morning. Eat protein and healthy fat in the morning and cut way way way back on sugar. Doug PS I waited to chelate until my adrenals came around Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.