update on my joe vs neuropathy

[Guest guest]

Well heck!!!!!!!!!!!!

Joe had to have a nerve study done to see if the neuropathy was caused by the

chemo or the syrinx that the found in his neck ,

Results are in , the neuropathy is secondary to chemotherapy HOWEVER the

radiculopathy (No friggin idea) is secondary to the syrinx ,

So now they want him to go to a Neurosurgeon on Monday !

Which of course he is hollering about , and may not even go to.

( He feels pretty good other than the neuropathy and electrical jolts down spine

)

When is enough enough???????????????????????????????????????????????????????????

Sorry I havent written much lately but I think Im on the edge of a breakdown ,

called the doc and cant get into see her for THREE MONTHS !!! geeeeeeeeez oh

petes

Mom is doing ok , still not better but the diarrhea is gone , still extremely

weak , but she did get up at 330am and made potato salad!!!!!!!!!!!!!!!!!!!!!!!!

Umm dont ask why I have NO IDEA LOL

I told her no wonder she is tired she got up and cooked a meal in the middle of

night

Dani went to neurosurgeon on Monday it was a spinal Leak but it had stopped so

body will reabsorb ( Yay!!))

God bless all

Deb

33yrold husband Joe, was diagnosed with CC in Sept,

resection on Sept 27th 2004

found mets to the abdominal wall lining 3 lymph nodes involved

open wound from infection until Jan 2005

Ileostomy reversal Dec 7th 2004

Chemo regiment begun Jan 2005

5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines

Calcium Magnesium added for the Tingles Feb 28 2005

Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found

April 1 2005 PET scan done awaiting results

April 11 PET SCAN SHOWS

NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

May 9 Plateletts are low 75,000

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