if aquaphor is not enough ?

[Guest guest]

Try A&D ointment and other baby products made for diaper rash. If it is in

the anal area Preparation H or Tucks might help " cool " the area. There is also

a product called

Buttpaste which a lot of people here use. These are available in drug stores

and places like Wal-Mart in the states and are hopefully available to you in

Turkey.

Narice

In a message dated 9/30/2005 5:21:41 AM Eastern Standard Time,

eleyla@... writes:

Does anyone have a better recommendation than Aquaphor for severe

burning sensation in the rectum? Any medicated creams?

Mehpare takes oxycodone as a last resort, but we were wondering

whether the " experts " : ) have any in between suggestions?

Thanks, & continued prayers and best wishes to all from

Istanbul,Turkey

Leyla

eleyla2002, istanbul , turkey

* sister in law Mehpare 36;

has 4 kids ( age 4-11)

dxd with Stage 4 ccr

with multiple liver mets in Feb 2005.

6 weeks of radition and 5fu

Underwent colon and liver resection in june .

finished 4th round of Folfox

with tolerable side effects.

[Guest guest]

Try A&D ointment and other baby products made for diaper rash. If it is in

the anal area Preparation H or Tucks might help " cool " the area. There is also

a product called

Buttpaste which a lot of people here use. These are available in drug stores

and places like Wal-Mart in the states and are hopefully available to you in

Turkey.

Narice

In a message dated 9/30/2005 5:21:41 AM Eastern Standard Time,

eleyla@... writes:

Does anyone have a better recommendation than Aquaphor for severe

burning sensation in the rectum? Any medicated creams?

Mehpare takes oxycodone as a last resort, but we were wondering

whether the " experts " : ) have any in between suggestions?

Thanks, & continued prayers and best wishes to all from

Istanbul,Turkey

Leyla

eleyla2002, istanbul , turkey

* sister in law Mehpare 36;

has 4 kids ( age 4-11)

dxd with Stage 4 ccr

with multiple liver mets in Feb 2005.

6 weeks of radition and 5fu

Underwent colon and liver resection in june .

finished 4th round of Folfox

with tolerable side effects.

[Guest guest]

Does anyone have a better reccomendation than Aquaphor for severe

burning sensation in the rectum ? Any medicated creams ?

Mehpare takes oxycodone as a last resort, but we were wondering

whether the " experts " : ) have any in between suggestions?

Thanks, & continued prayers and best wishes to all from

Istanbul,Turkey

Leyla

eleyla2002, istanbul , turkey

* sister in law Mehpare 36;

has 4 kids ( age 4-11)

dxd with Stage 4 ccr

with multiple liver mets in Feb 2005.

6 weeks of radition and 5fu

Underwent colon and liver resection in june .

finished 4th round of Folfox

with tolerable side effects.

[Guest guest]

Thank you Narice.

We have friends returning from the US this week and will ask them to

get us some buttpaste (what a name, it sure sounds promising : ))

Also, Re Erbitux : Mehpare's experience for what it was worth was

as follows: She was diagnosed as stage 3 in March 2005 with a tumor

in the colon, and was perscribed and underwent 5fu and Radiation .

Doctors reccomended she get Erbitux once a week also, but said it

was up to her. The first time she tried it ( on the first

traumatic day when she took 5fu, and her first day of radiation )

she felt overwhelmed. She also had some skin rashes a few days later

and decided to opt out of Erbitux . In retrospect, I wish she had

stuck with it. But who knows ?...

As it turned out , 6 weeks of radiation and 5fu later , the pet

scan revealed 2 spots on the liver , even though her colon tumor had

shrunk . Thus she was restaged as 4 just before her colon surgery,

which then included a simultaneous liver resection as well.

Unfortunately, a month after her surgery as she started her Folfox

plus Avastin regimen- the base line scan they took revealed 2 more

liver lesions...

Needless to say we are holding our breath for her next scan in a

week or so, after she completes round 5/12 of chemo.

I feel that If chemo is the preferred choice of treatment, perhaps

one needs to be as aggressive as possible, with whatever is

available incl Erbitux - while weighing the side effects of course.

( Sorry for overstating the obvious - but these problems end up

making one lost for words as we all know )

Hoping Phil continues to do well.. I appreciate the support .

Leyla

>

>

>

> Try A&D ointment and other baby products made for diaper rash. If

it is in

> the anal area Preparation H or Tucks might help " cool " the area.

There is also

> a product called

> Buttpaste which a lot of people here use. These are available in

drug stores

> and places like Wal-Mart in the states and are hopefully

available to you in

> Turkey.

> Narice

>

>

> In a message dated 9/30/2005 5:21:41 AM Eastern Standard Time,

> eleyla@s... writes:

>

>

>

> Does anyone have a better recommendation than Aquaphor for severe

> burning sensation in the rectum? Any medicated creams?

> Mehpare takes oxycodone as a last resort, but we were wondering

> whether the " experts " : ) have any in between suggestions?

>

> Thanks, & continued prayers and best wishes to all from

> Istanbul,Turkey

>

> Leyla

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> eleyla2002, istanbul , turkey

>

> * sister in law Mehpare 36;

> has 4 kids ( age 4-11)

> dxd with Stage 4 ccr

> with multiple liver mets in Feb 2005.

> 6 weeks of radition and 5fu

> Underwent colon and liver resection in june .

> finished 4th round of Folfox

> with tolerable side effects.

>

>

>

>

>

>

>

[Guest guest]

Thank you Narice.

We have friends returning from the US this week and will ask them to

get us some buttpaste (what a name, it sure sounds promising : ))

Also, Re Erbitux : Mehpare's experience for what it was worth was

as follows: She was diagnosed as stage 3 in March 2005 with a tumor

in the colon, and was perscribed and underwent 5fu and Radiation .

Doctors reccomended she get Erbitux once a week also, but said it

was up to her. The first time she tried it ( on the first

traumatic day when she took 5fu, and her first day of radiation )

she felt overwhelmed. She also had some skin rashes a few days later

and decided to opt out of Erbitux . In retrospect, I wish she had

stuck with it. But who knows ?...

As it turned out , 6 weeks of radiation and 5fu later , the pet

scan revealed 2 spots on the liver , even though her colon tumor had

shrunk . Thus she was restaged as 4 just before her colon surgery,

which then included a simultaneous liver resection as well.

Unfortunately, a month after her surgery as she started her Folfox

plus Avastin regimen- the base line scan they took revealed 2 more

liver lesions...

Needless to say we are holding our breath for her next scan in a

week or so, after she completes round 5/12 of chemo.

I feel that If chemo is the preferred choice of treatment, perhaps

one needs to be as aggressive as possible, with whatever is

available incl Erbitux - while weighing the side effects of course.

( Sorry for overstating the obvious - but these problems end up

making one lost for words as we all know )

Hoping Phil continues to do well.. I appreciate the support .

Leyla

>

>

>

> Try A&D ointment and other baby products made for diaper rash. If

it is in

> the anal area Preparation H or Tucks might help " cool " the area.

There is also

> a product called

> Buttpaste which a lot of people here use. These are available in

drug stores

> and places like Wal-Mart in the states and are hopefully

available to you in

> Turkey.

> Narice

>

>

> In a message dated 9/30/2005 5:21:41 AM Eastern Standard Time,

> eleyla@s... writes:

>

>

>

> Does anyone have a better recommendation than Aquaphor for severe

> burning sensation in the rectum? Any medicated creams?

> Mehpare takes oxycodone as a last resort, but we were wondering

> whether the " experts " : ) have any in between suggestions?

>

> Thanks, & continued prayers and best wishes to all from

> Istanbul,Turkey

>

> Leyla

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> eleyla2002, istanbul , turkey

>

> * sister in law Mehpare 36;

> has 4 kids ( age 4-11)

> dxd with Stage 4 ccr

> with multiple liver mets in Feb 2005.

> 6 weeks of radition and 5fu

> Underwent colon and liver resection in june .

> finished 4th round of Folfox

> with tolerable side effects.

>

>

>

>

>

>

>