Guest guest Posted April 19, 2009 Report Share Posted April 19, 2009 I keep seeing people post about this. Can someone explain who or what it is? Is it in Boston? Are there good doctors in Boston? I just started with the pulmo guy I'm seeing. But, I'd like to know as much as possible. I feel like the only way yo fight this is to stay as informed as I can. Nan 49, Massachusetts ILD '02 PF '08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2009 Report Share Posted April 19, 2009 It is a company in Boston...notice the word " company " . It's a business that was set up initially by two doctors from Harvard and is either the greatest thing ever or a self-serving, self-appointed organization of questionable value. Here is it's web address: http://www.bestdoctors.com/bd/index.php It is mainly used by insurance companies as a resource. Again, debatable. The companies would say " to insure you get the right diagnosis " while some might say " to try to avoid incurring further expense where possible. " The way it works is your files, labs, or other information is sent to this company and then reviewed by other doctors. While that might be helpful in some cases, I personally want a second opinion by someone who sees me and who I can see in person. It may or may not be a valuable additional resource. Now, as to Interstitial Lung Diseases, there is an established network of medical centers with expertise in the area. This is available at www.ipfnet.org There are also some excellent doctors and facilities in Boston. We have members here who go to Brigham and Womens Hospital there and are very pleased with them. I don't know which other facilities or doctors we have members using in Boston. > > I keep seeing people post about this. Can someone explain who or what it is? Is it in Boston? Are there good doctors in Boston? I just started with the pulmo guy I'm seeing. But, I'd like to know as much as possible. I feel like the only way yo fight this is to stay as informed as I can. > Nan 49, Massachusetts > ILD '02 PF '08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2009 Report Share Posted April 19, 2009 It is a company in Boston...notice the word " company " . It's a business that was set up initially by two doctors from Harvard and is either the greatest thing ever or a self-serving, self-appointed organization of questionable value. Here is it's web address: http://www.bestdoctors.com/bd/index.php It is mainly used by insurance companies as a resource. Again, debatable. The companies would say " to insure you get the right diagnosis " while some might say " to try to avoid incurring further expense where possible. " The way it works is your files, labs, or other information is sent to this company and then reviewed by other doctors. While that might be helpful in some cases, I personally want a second opinion by someone who sees me and who I can see in person. It may or may not be a valuable additional resource. Now, as to Interstitial Lung Diseases, there is an established network of medical centers with expertise in the area. This is available at www.ipfnet.org There are also some excellent doctors and facilities in Boston. We have members here who go to Brigham and Womens Hospital there and are very pleased with them. I don't know which other facilities or doctors we have members using in Boston. > > I keep seeing people post about this. Can someone explain who or what it is? Is it in Boston? Are there good doctors in Boston? I just started with the pulmo guy I'm seeing. But, I'd like to know as much as possible. I feel like the only way yo fight this is to stay as informed as I can. > Nan 49, Massachusetts > ILD '02 PF '08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2009 Report Share Posted April 19, 2009 It is a company in Boston...notice the word " company " . It's a business that was set up initially by two doctors from Harvard and is either the greatest thing ever or a self-serving, self-appointed organization of questionable value. Here is it's web address: http://www.bestdoctors.com/bd/index.php It is mainly used by insurance companies as a resource. Again, debatable. The companies would say " to insure you get the right diagnosis " while some might say " to try to avoid incurring further expense where possible. " The way it works is your files, labs, or other information is sent to this company and then reviewed by other doctors. While that might be helpful in some cases, I personally want a second opinion by someone who sees me and who I can see in person. It may or may not be a valuable additional resource. Now, as to Interstitial Lung Diseases, there is an established network of medical centers with expertise in the area. This is available at www.ipfnet.org There are also some excellent doctors and facilities in Boston. We have members here who go to Brigham and Womens Hospital there and are very pleased with them. I don't know which other facilities or doctors we have members using in Boston. > > I keep seeing people post about this. Can someone explain who or what it is? Is it in Boston? Are there good doctors in Boston? I just started with the pulmo guy I'm seeing. But, I'd like to know as much as possible. I feel like the only way yo fight this is to stay as informed as I can. > Nan 49, Massachusetts > ILD '02 PF '08 > Quote Link to comment Share on other sites More sharing options...
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