Re: My adventures today - question about Sjogren's syndrome

[Guest guest]

I am suppose to have Sjogren's but I am not sure that I do. I mostly have a very dry mouth. Blood tests seem to indicate that I do have it but I haven't seen a specialist. I don't have pain in my face. Beverley

My adventures today> > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > Bruce glad to read your move went well.> > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > Hope all have a good weekend.> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

I am suppose to have Sjogren's but I am not sure that I do. I mostly have a very dry mouth. Blood tests seem to indicate that I do have it but I haven't seen a specialist. I don't have pain in my face. Beverley

My adventures today> > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > Bruce glad to read your move went well.> > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > Hope all have a good weekend.> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Beverley/

I have found where others have mentioned the hurting to cry as it does

play with your tear ducts. There are actually cases where crying

exercises are tried. So, it would make sense you were having a hard time

creating the tears.

> >

> > ... Such good news about the good results!

> > And I'm glad to returned home safe and sound. Your dogs running

around in the icewater present a funny picture in my mind.

> >

> > MamaSher; 70, IPF 3-06, OR.

> > Nasturtiums

> > Don't fret about tomorrow, God is already there!

> >

> > My adventures today

> >

> >

> >

> >

> >

> > Well good news all. The mammogram ultrasound only showed fatty

tissue growth and not cancer. They didn't know why it grew so fast and I

really don't care. It's just yet another thing that hurts that I have to

live with.

> >

> > Then I was priviledged to ride in one of the special pretty red

buses this afternoon from the doctor's office and spend a little time in

the big house. I had another TIA but thankfully that is all it was. The

doctor let me come home to rest instead of making me stay overnight.

They don't fool around if they even suspect stroke. But all is well. My

voice is returning to normal and my head does not hurt much.

> >

> > Bruce glad to read your move went well.

> >

> > We nearly got hailed to hell around here yesterday. And there were

a few funnels that formed but nothing touched the ground in Lubbock.

Gotta love West Texas in the springtime. Sherman's car had one little

place where the hail went through his backup light but that is not bad

for what collected in the backyard.

> >

> > The dogs were funny running around the backyard in the icewater.

Henry, who is a labrador, came to realize he is a water dog. Funny

stuff.

> >

> > Hope all have a good weekend.

> > S, Lubbock, TX

> > NSIP w/PF 12/2006 et al

> >

>

[Guest guest]

Beverly,

Hi, I am Sunny and I have Lupus and Sjogrens. My worst symptoms are dry eyes (they are considering putting in tubes for tear migration), dry mouth and joint pain (but that could be the Lupus or arthritis). The biggest thing I have found with Sjogrens is taking the absolute best care of your teeth. As you sleep, since you don't create saliva to kill off bacteria, it just sits and rots your teeth. Anyway, here are the things I have done at my dentist's request: Bought a Sonicare, Use Biotene toothpaste, mouth wash and mouth spray for dryness. I have lost a few teeth but overall things are looking good. Of course be sure and brush at least 3-4 times a day and floss, floss, floss! I also use Refresh Celluvisc for my eyes and that helps with the dryness. You might have to deal with some eye gunkiness but all in all I would say that for me Sjogrens has been the least of my illness'. Hope this info helps. God Bless and keep smiling!

Sunny, IPF 09, Oregon

From: Beverley Joy

Sent: Saturday, April 18, 2009 11:13 PM

To: Breathe-Support

Subject: Re: Re: My adventures today - question about Sjogren's syndrome

I am suppose to have Sjogren's but I am not sure that I do. I mostly have a very dry mouth. Blood tests seem to indicate that I do have it but I haven't seen a specialist. I don't have pain in my face. Beverley

My adventures today> > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > Bruce glad to read your move went well.> > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > Hope all have a good weekend.> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Beverly,

Hi, I am Sunny and I have Lupus and Sjogrens. My worst symptoms are dry eyes (they are considering putting in tubes for tear migration), dry mouth and joint pain (but that could be the Lupus or arthritis). The biggest thing I have found with Sjogrens is taking the absolute best care of your teeth. As you sleep, since you don't create saliva to kill off bacteria, it just sits and rots your teeth. Anyway, here are the things I have done at my dentist's request: Bought a Sonicare, Use Biotene toothpaste, mouth wash and mouth spray for dryness. I have lost a few teeth but overall things are looking good. Of course be sure and brush at least 3-4 times a day and floss, floss, floss! I also use Refresh Celluvisc for my eyes and that helps with the dryness. You might have to deal with some eye gunkiness but all in all I would say that for me Sjogrens has been the least of my illness'. Hope this info helps. God Bless and keep smiling!

Sunny, IPF 09, Oregon

From: Beverley Joy

Sent: Saturday, April 18, 2009 11:13 PM

To: Breathe-Support

Subject: Re: Re: My adventures today - question about Sjogren's syndrome

I am suppose to have Sjogren's but I am not sure that I do. I mostly have a very dry mouth. Blood tests seem to indicate that I do have it but I haven't seen a specialist. I don't have pain in my face. Beverley

My adventures today> > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > Bruce glad to read your move went well.> > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > Hope all have a good weekend.> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

DUH, DUH, should say Idaho not Oregon!

From: rpickel1@...

Sent: Wednesday, April 22, 2009 1:42 PM

To: Breathe-Support

Subject: Re: Re: My adventures today - question about Sjogren's syndrome

Beverly,

Hi, I am Sunny and I have Lupus and Sjogrens. My worst symptoms are dry eyes (they are considering putting in tubes for tear migration), dry mouth and joint pain (but that could be the Lupus or arthritis). The biggest thing I have found with Sjogrens is taking the absolute best care of your teeth. As you sleep, since you don't create saliva to kill off bacteria, it just sits and rots your teeth. Anyway, here are the things I have done at my dentist's request: Bought a Sonicare, Use Biotene toothpaste, mouth wash and mouth spray for dryness. I have lost a few teeth but overall things are looking good. Of course be sure and brush at least 3-4 times a day and floss, floss, floss! I also use Refresh Celluvisc for my eyes and that helps with the dryness. You might have to deal with some eye gunkiness but all in all I would say that for me Sjogrens has been the least of my illness'. Hope this info helps. God Bless and keep smiling!

Sunny, IPF 09, Oregon

From: Beverley Joy

Sent: Saturday, April 18, 2009 11:13 PM

To: Breathe-Support

Subject: Re: Re: My adventures today - question about Sjogren's syndrome

I am suppose to have Sjogren's but I am not sure that I do. I mostly have a very dry mouth. Blood tests seem to indicate that I do have it but I haven't seen a specialist. I don't have pain in my face. Beverley

My adventures today> > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > Bruce glad to read your move went well.> > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > Hope all have a good weekend.> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

DUH, DUH, should say Idaho not Oregon!

From: rpickel1@...

Sent: Wednesday, April 22, 2009 1:42 PM

To: Breathe-Support

Subject: Re: Re: My adventures today - question about Sjogren's syndrome

Beverly,

Hi, I am Sunny and I have Lupus and Sjogrens. My worst symptoms are dry eyes (they are considering putting in tubes for tear migration), dry mouth and joint pain (but that could be the Lupus or arthritis). The biggest thing I have found with Sjogrens is taking the absolute best care of your teeth. As you sleep, since you don't create saliva to kill off bacteria, it just sits and rots your teeth. Anyway, here are the things I have done at my dentist's request: Bought a Sonicare, Use Biotene toothpaste, mouth wash and mouth spray for dryness. I have lost a few teeth but overall things are looking good. Of course be sure and brush at least 3-4 times a day and floss, floss, floss! I also use Refresh Celluvisc for my eyes and that helps with the dryness. You might have to deal with some eye gunkiness but all in all I would say that for me Sjogrens has been the least of my illness'. Hope this info helps. God Bless and keep smiling!

Sunny, IPF 09, Oregon

From: Beverley Joy

Sent: Saturday, April 18, 2009 11:13 PM

To: Breathe-Support

Subject: Re: Re: My adventures today - question about Sjogren's syndrome

I am suppose to have Sjogren's but I am not sure that I do. I mostly have a very dry mouth. Blood tests seem to indicate that I do have it but I haven't seen a specialist. I don't have pain in my face. Beverley

My adventures today> > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > Bruce glad to read your move went well.> > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > Hope all have a good weekend.> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

I wanted to mention that I use Optive for dry eyes. It works very very well. It's a little 'thicker' than other drops and for me that's good...I get a good 'lube' job. lol

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

My adventures today> > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > Bruce glad to read your move went well.> > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > Hope all have a good weekend.> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Sher,

Thanks for the laugh today. I am having one of those very depressing days and you brightened it up.

Sunny, IPF 09, Idaho

From: Sher Bauman

Sent: Wednesday, April 22, 2009 2:16 PM

To: Breathe-Support

Subject: Re: Re: My adventures today - question about Sjogren's syndrome

I wanted to mention that I use Optive for dry eyes. It works very very well. It's a little 'thicker' than other drops and for me that's good...I get a good 'lube' job. lol

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

My adventures today> > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > Bruce glad to read your move went well.> > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > Hope all have a good weekend.> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Hi, Sunny. Your response to Beverly was very timely for me. Today, the rheumotologist told me I had Sjogren's, adding that syndrome to my growing litany of ills. She suggested over-the-counter artificial tears, as well as the Biotin products. Also a before-bed ointment to help with the dry eyes. Need to be a little careful of the dry-eye remedies, as I do have glaucoma. We also discussed the current suggested treatment-du-jour of high-dose steriods - which I do not want. The good news (bad news?) is that the Sjogren's is primary, and I do not have lupus or scleroderma or any other known connective tissue disorders.

B

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Wednesday, April 22, 2009 4:42:53 PMSubject: Re: Re: My adventures today - question about Sjogren's syndrome

Beverly,

Hi, I am Sunny and I have Lupus and Sjogrens. My worst symptoms are dry eyes (they are considering putting in tubes for tear migration), dry mouth and joint pain (but that could be the Lupus or arthritis). The biggest thing I have found with Sjogrens is taking the absolute best care of your teeth. As you sleep, since you don't create saliva to kill off bacteria, it just sits and rots your teeth. Anyway, here are the things I have done at my dentist's request: Bought a Sonicare, Use Biotene toothpaste, mouth wash and mouth spray for dryness. I have lost a few teeth but overall things are looking good. Of course be sure and brush at least 3-4 times a day and floss, floss, floss! I also use Refresh Celluvisc for my eyes and that helps with the dryness. You might have to deal with some eye gunkiness but all in all I would say that for me Sjogrens has been the least of my

illness'. Hope this info helps. God Bless and keep smiling!

Sunny, IPF 09, Oregon

From: Beverley Joy

Sent: Saturday, April 18, 2009 11:13 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Re: My adventures today - question about Sjogren's syndrome

I am suppose to have Sjogren's but I am not sure that I do. I mostly have a very dry mouth. Blood tests seem to indicate that I do have it but I haven't seen a specialist. I don't have pain in my face. Beverley

My adventures today> > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time

in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > Bruce glad to read your move went well.> > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > Hope all have a good weekend.> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Sunny...just keep on hangin' on kiddo. I know some days can be crappy and waiting for results is never an easy thing to do.

You will know tomorrow!

What mail are you using? Something like Outlook Express or from the web?

I can help w/OE but no other mail inbox.

Don't apologize for venting...we've all had a turn!

I do understand multiple health problems. I deal w/it too. Most of us here do....

Let's have a cup of tea together (wish we could) and cozy up on the sofa. I'll think of you and you can think of me.

The day will pass.

Do let us know what doc says.

Love,

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

My adventures today> > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > Bruce glad to read your move went well.> > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > Hope all have a good weekend.> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Sunny. My worst Sjogren's problem is the dry mouth and as you mentioned the teeth. Sjogren's is the least of my problems too. I have had fibromyalgia for over 20 years. That was bad enough. Now the IPF. The oxygen helps but it isn't fun being attached to a hose and a canula all of the time. I seem to be getting worse but I think that it is the prednisone that is causing it. Beverley.

My adventures today> > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > Bruce glad to read your move went well.> > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > Hope all have a good weekend.> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Sunny. My worst Sjogren's problem is the dry mouth and as you mentioned the teeth. Sjogren's is the least of my problems too. I have had fibromyalgia for over 20 years. That was bad enough. Now the IPF. The oxygen helps but it isn't fun being attached to a hose and a canula all of the time. I seem to be getting worse but I think that it is the prednisone that is causing it. Beverley.

My adventures today> > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > Bruce glad to read your move went well.> > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > Hope all have a good weekend.> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Hi people with dry mouth. I have had that from some of my meds since my

transplant. I use a mouth wash for dry mouth and there are some gels OTC. Talk

to your pharmacist and get some relief.

Good luck and

Aloha,

Judy IPF 11/06 TX 8/07

> >

> > ... Such good news about the good results!

> > And I'm glad to returned home safe and sound. Your dogs running around in

the icewater present a funny picture in my mind.

> >

> > MamaSher; 70, IPF 3-06, OR.

> > Nasturtiums

> > Don't fret about tomorrow, God is already there!

> >

> > My adventures today

> >

> >

> >

> >

> >

> > Well good news all. The mammogram ultrasound only showed fatty tissue

growth and not cancer. They didn't know why it grew so fast and I really don't

care. It's just yet another thing that hurts that I have to live with.

> >

> > Then I was priviledged to ride in one of the special pretty red buses this

afternoon from the doctor's office and spend a little time in the big house. I

had another TIA but thankfully that is all it was. The doctor let me come home

to rest instead of making me stay overnight. They don't fool around if they even

suspect stroke. But all is well. My voice is returning to normal and my head

does not hurt much.

> >

> > Bruce glad to read your move went well.

> >

> > We nearly got hailed to hell around here yesterday. And there were a few

funnels that formed but nothing touched the ground in Lubbock. Gotta love West

Texas in the springtime. Sherman's car had one little place where the hail went

through his backup light but that is not bad for what collected in the backyard.

> >

> > The dogs were funny running around the backyard in the icewater. Henry,

who is a labrador, came to realize he is a water dog. Funny stuff.

> >

> > Hope all have a good weekend.

> > S, Lubbock, TX

> > NSIP w/PF 12/2006 et al

> >

>

[Guest guest]

Hi people with dry mouth. I have had that from some of my meds since my

transplant. I use a mouth wash for dry mouth and there are some gels OTC. Talk

to your pharmacist and get some relief.

Good luck and

Aloha,

Judy IPF 11/06 TX 8/07

> >

> > ... Such good news about the good results!

> > And I'm glad to returned home safe and sound. Your dogs running around in

the icewater present a funny picture in my mind.

> >

> > MamaSher; 70, IPF 3-06, OR.

> > Nasturtiums

> > Don't fret about tomorrow, God is already there!

> >

> > My adventures today

> >

> >

> >

> >

> >

> > Well good news all. The mammogram ultrasound only showed fatty tissue

growth and not cancer. They didn't know why it grew so fast and I really don't

care. It's just yet another thing that hurts that I have to live with.

> >

> > Then I was priviledged to ride in one of the special pretty red buses this

afternoon from the doctor's office and spend a little time in the big house. I

had another TIA but thankfully that is all it was. The doctor let me come home

to rest instead of making me stay overnight. They don't fool around if they even

suspect stroke. But all is well. My voice is returning to normal and my head

does not hurt much.

> >

> > Bruce glad to read your move went well.

> >

> > We nearly got hailed to hell around here yesterday. And there were a few

funnels that formed but nothing touched the ground in Lubbock. Gotta love West

Texas in the springtime. Sherman's car had one little place where the hail went

through his backup light but that is not bad for what collected in the backyard.

> >

> > The dogs were funny running around the backyard in the icewater. Henry,

who is a labrador, came to realize he is a water dog. Funny stuff.

> >

> > Hope all have a good weekend.

> > S, Lubbock, TX

> > NSIP w/PF 12/2006 et al

> >

>

[Guest guest]

i had dry eyes, dry mouth and dry feet -- probably due to the meds

the eye doctor told me to use hydro-eyes for my eyes [ i got it on line]

the hydro - eyes or tears, don't remember the exact name, cleared up my dry mouth and dry feet too

it is an omega 3 fatty acid

when the cardiologist saw that i was taking this over the counter -- 4 per day, he prescribed Lovaza, i take that 2 per day

he informed what it is good for re: heart, but i forget the reason

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: My adventures today - question about Sjogren's syndromeTo: Breathe-Support Date: Wednesday, April 22, 2009, 10:14 PM

Hi people with dry mouth. I have had that from some of my meds since my transplant. I use a mouth wash for dry mouth and there are some gels OTC. Talk to your pharmacist and get some relief.Good luck andAloha,Judy IPF 11/06 TX 8/07> >> > ... Such good news about the good results!> > And I'm glad to returned home safe and sound. Your dogs running around in the icewater present a funny picture in my mind.> > > > MamaSher; 70, IPF 3-06, OR. > > Nasturtiums> > Don't fret about tomorrow, God is already there!> > > >

My adventures today> > > > > > > > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > > > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > > > Bruce glad to read your move went well.> > > > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched

the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > > > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > > > Hope all have a good weekend.> > S, Lubbock, TX> > NSIP w/PF 12/2006 et al> >>

[Guest guest]

i had dry eyes, dry mouth and dry feet -- probably due to the meds

the eye doctor told me to use hydro-eyes for my eyes [ i got it on line]

the hydro - eyes or tears, don't remember the exact name, cleared up my dry mouth and dry feet too

it is an omega 3 fatty acid

when the cardiologist saw that i was taking this over the counter -- 4 per day, he prescribed Lovaza, i take that 2 per day

he informed what it is good for re: heart, but i forget the reason

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: My adventures today - question about Sjogren's syndromeTo: Breathe-Support Date: Wednesday, April 22, 2009, 10:14 PM

Hi people with dry mouth. I have had that from some of my meds since my transplant. I use a mouth wash for dry mouth and there are some gels OTC. Talk to your pharmacist and get some relief.Good luck andAloha,Judy IPF 11/06 TX 8/07> >> > ... Such good news about the good results!> > And I'm glad to returned home safe and sound. Your dogs running around in the icewater present a funny picture in my mind.> > > > MamaSher; 70, IPF 3-06, OR. > > Nasturtiums> > Don't fret about tomorrow, God is already there!> > > >

My adventures today> > > > > > > > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > > > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > > > Bruce glad to read your move went well.> > > > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched

the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > > > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > > > Hope all have a good weekend.> > S, Lubbock, TX> > NSIP w/PF 12/2006 et al> >>

[Guest guest]

i had dry eyes, dry mouth and dry feet -- probably due to the meds

the eye doctor told me to use hydro-eyes for my eyes [ i got it on line]

the hydro - eyes or tears, don't remember the exact name, cleared up my dry mouth and dry feet too

it is an omega 3 fatty acid

when the cardiologist saw that i was taking this over the counter -- 4 per day, he prescribed Lovaza, i take that 2 per day

he informed what it is good for re: heart, but i forget the reason

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: My adventures today - question about Sjogren's syndromeTo: Breathe-Support Date: Wednesday, April 22, 2009, 10:14 PM

Hi people with dry mouth. I have had that from some of my meds since my transplant. I use a mouth wash for dry mouth and there are some gels OTC. Talk to your pharmacist and get some relief.Good luck andAloha,Judy IPF 11/06 TX 8/07> >> > ... Such good news about the good results!> > And I'm glad to returned home safe and sound. Your dogs running around in the icewater present a funny picture in my mind.> > > > MamaSher; 70, IPF 3-06, OR. > > Nasturtiums> > Don't fret about tomorrow, God is already there!> > > >

My adventures today> > > > > > > > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > > > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > > > Bruce glad to read your move went well.> > > > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched

the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > > > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > > > Hope all have a good weekend.> > S, Lubbock, TX> > NSIP w/PF 12/2006 et al> >>

[Guest guest]

Sher

As to Fibromyalgia, while rheumatologists generally do diagnose it

because they are eliminating autoimmune diseases, it is a neurological

disorder so if your rheumatologist doesn't treat it, always possible to

see your neurologist if you have one or find one.

> >

> > ... Such good news about the good results!

> > And I'm glad to returned home safe and sound. Your dogs

running around in the icewater present a funny picture in my mind.

> >

> > MamaSher; 70, IPF 3-06, OR.

> > Nasturtiums

> > Don't fret about tomorrow, God is already there!

> >

> > My adventures today

> >

> >

> >

> >

> >

> > Well good news all. The mammogram ultrasound only showed fatty

tissue growth and not cancer. They didn't know why it grew so fast and I

really don't care. It's just yet another thing that hurts that I have to

live with.

> >

> > Then I was priviledged to ride in one of the special pretty

red buses this afternoon from the doctor's office and spend a little

time in the big house. I had another TIA but thankfully that is all it

was. The doctor let me come home to rest instead of making me stay

overnight. They don't fool around if they even suspect stroke. But all

is well. My voice is returning to normal and my head does not hurt much.

> >

> > Bruce glad to read your move went well.

> >

> > We nearly got hailed to hell around here yesterday. And there

were a few funnels that formed but nothing touched the ground in

Lubbock. Gotta love West Texas in the springtime. Sherman's car had one

little place where the hail went through his backup light but that is

not bad for what collected in the backyard.

> >

> > The dogs were funny running around the backyard in the

icewater. Henry, who is a labrador, came to realize he is a water dog.

Funny stuff.

> >

> > Hope all have a good weekend.

> > S, Lubbock, TX

> > NSIP w/PF 12/2006 et al

> >

>

[Guest guest]

Sher

As to Fibromyalgia, while rheumatologists generally do diagnose it

because they are eliminating autoimmune diseases, it is a neurological

disorder so if your rheumatologist doesn't treat it, always possible to

see your neurologist if you have one or find one.

> >

> > ... Such good news about the good results!

> > And I'm glad to returned home safe and sound. Your dogs

running around in the icewater present a funny picture in my mind.

> >

> > MamaSher; 70, IPF 3-06, OR.

> > Nasturtiums

> > Don't fret about tomorrow, God is already there!

> >

> > My adventures today

> >

> >

> >

> >

> >

> > Well good news all. The mammogram ultrasound only showed fatty

tissue growth and not cancer. They didn't know why it grew so fast and I

really don't care. It's just yet another thing that hurts that I have to

live with.

> >

> > Then I was priviledged to ride in one of the special pretty

red buses this afternoon from the doctor's office and spend a little

time in the big house. I had another TIA but thankfully that is all it

was. The doctor let me come home to rest instead of making me stay

overnight. They don't fool around if they even suspect stroke. But all

is well. My voice is returning to normal and my head does not hurt much.

> >

> > Bruce glad to read your move went well.

> >

> > We nearly got hailed to hell around here yesterday. And there

were a few funnels that formed but nothing touched the ground in

Lubbock. Gotta love West Texas in the springtime. Sherman's car had one

little place where the hail went through his backup light but that is

not bad for what collected in the backyard.

> >

> > The dogs were funny running around the backyard in the

icewater. Henry, who is a labrador, came to realize he is a water dog.

Funny stuff.

> >

> > Hope all have a good weekend.

> > S, Lubbock, TX

> > NSIP w/PF 12/2006 et al

> >

>

[Guest guest]

Sunny, I had that problem before the O2. Now that I have it I have a humidifier on my concentrator so it is better. I was diagnosed with fibro so many years ago that it was then called fibrositis. I didn't have to go through what so many people did with the belief that it was all in the head. I have also had remission which some people who have it don't believe in. It has come back but never as severe as in the beginning. I feel very fortunate about that. Beverley Joy, IPF 09, Idaho

My adventures today> > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > Bruce glad to read your move went well.> > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > Hope all have a good weekend.> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Sunny, I had that problem before the O2. Now that I have it I have a humidifier on my concentrator so it is better. I was diagnosed with fibro so many years ago that it was then called fibrositis. I didn't have to go through what so many people did with the belief that it was all in the head. I have also had remission which some people who have it don't believe in. It has come back but never as severe as in the beginning. I feel very fortunate about that. Beverley Joy, IPF 09, Idaho

My adventures today> > > > > > Well good news all. The mammogram ultrasound only showed fatty tissue growth and not cancer. They didn't know why it grew so fast and I really don't care. It's just yet another thing that hurts that I have to live with.> > Then I was priviledged to ride in one of the special pretty red buses this afternoon from the doctor's office and spend a little time in the big house. I had another TIA but thankfully that is all it was. The doctor let me come home to rest instead of making me stay overnight. They don't fool around if they even suspect stroke. But all is well. My voice is returning to normal and my head does not hurt much.> > Bruce glad to read your move went well.> > We nearly got hailed to hell around here yesterday. And there were a few funnels that formed but nothing touched the ground in Lubbock. Gotta love West Texas in the springtime. Sherman's car had one little place where the hail went through his backup light but that is not bad for what collected in the backyard.> > The dogs were funny running around the backyard in the icewater. Henry, who is a labrador, came to realize he is a water dog. Funny stuff.> > Hope all have a good weekend.> S, Lubbock, TX> NSIP w/PF 12/2006 et al>

[Guest guest]

Bruce....FMS has been 'caused' by so many different things over the years I've been amazed. I've not heard this one....

neurological disorder. I think waaayyy back it was called a neuro disorder but can't remember.

Anyway, thanks for the info.

Hope you are enjoying the new place....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

My adventures today> >> >> >> >> >> > Well good news all. The mammogram ultrasound only showed fattytissue growth and not cancer. They didn't know why it grew so fast and Ireally don't care. It's just yet another thing that hurts that I have tolive with.> >> > Then I was priviledged to ride in one of the special prettyred buses this afternoon from the doctor's office and spend a littletime in the big house. I had another TIA but thankfully that is all itwas. The doctor let me come home to rest instead of making me stayovernight. They don't fool around if they even suspect stroke. But allis well. My voice is returning to normal and my head does not hurt much.> >> > Bruce glad to read your move went well.> >> > We nearly got hailed to hell around here yesterday. And therewere a few funnels that formed but nothing touched the ground inLubbock. Gotta love West Texas in the springtime. Sherman's car had onelittle place where the hail went through his backup light but that isnot bad for what collected in the backyard.> >> > The dogs were funny running around the backyard in theicewater. Henry, who is a labrador, came to realize he is a water dog.Funny stuff.> >> > Hope all have a good weekend.> > S, Lubbock, TX> > NSIP w/PF 12/2006 et al> >>

[Guest guest]

Bruce....FMS has been 'caused' by so many different things over the years I've been amazed. I've not heard this one....

neurological disorder. I think waaayyy back it was called a neuro disorder but can't remember.

Anyway, thanks for the info.

Hope you are enjoying the new place....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

My adventures today> >> >> >> >> >> > Well good news all. The mammogram ultrasound only showed fattytissue growth and not cancer. They didn't know why it grew so fast and Ireally don't care. It's just yet another thing that hurts that I have tolive with.> >> > Then I was priviledged to ride in one of the special prettyred buses this afternoon from the doctor's office and spend a littletime in the big house. I had another TIA but thankfully that is all itwas. The doctor let me come home to rest instead of making me stayovernight. They don't fool around if they even suspect stroke. But allis well. My voice is returning to normal and my head does not hurt much.> >> > Bruce glad to read your move went well.> >> > We nearly got hailed to hell around here yesterday. And therewere a few funnels that formed but nothing touched the ground inLubbock. Gotta love West Texas in the springtime. Sherman's car had onelittle place where the hail went through his backup light but that isnot bad for what collected in the backyard.> >> > The dogs were funny running around the backyard in theicewater. Henry, who is a labrador, came to realize he is a water dog.Funny stuff.> >> > Hope all have a good weekend.> > S, Lubbock, TX> > NSIP w/PF 12/2006 et al> >>

[Guest guest]

Bruce....FMS has been 'caused' by so many different things over the years I've been amazed. I've not heard this one....

neurological disorder. I think waaayyy back it was called a neuro disorder but can't remember.

Anyway, thanks for the info.

Hope you are enjoying the new place....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

My adventures today> >> >> >> >> >> > Well good news all. The mammogram ultrasound only showed fattytissue growth and not cancer. They didn't know why it grew so fast and Ireally don't care. It's just yet another thing that hurts that I have tolive with.> >> > Then I was priviledged to ride in one of the special prettyred buses this afternoon from the doctor's office and spend a littletime in the big house. I had another TIA but thankfully that is all itwas. The doctor let me come home to rest instead of making me stayovernight. They don't fool around if they even suspect stroke. But allis well. My voice is returning to normal and my head does not hurt much.> >> > Bruce glad to read your move went well.> >> > We nearly got hailed to hell around here yesterday. And therewere a few funnels that formed but nothing touched the ground inLubbock. Gotta love West Texas in the springtime. Sherman's car had onelittle place where the hail went through his backup light but that isnot bad for what collected in the backyard.> >> > The dogs were funny running around the backyard in theicewater. Henry, who is a labrador, came to realize he is a water dog.Funny stuff.> >> > Hope all have a good weekend.> > S, Lubbock, TX> > NSIP w/PF 12/2006 et al> >>