Re: Re: Hi I am new to the group

[Guest guest]

Hi Hughena (Is that your first name)? Welcome to the group. It is always nice to see another Canadian on the board although I am truly sorry that you need to be here. I am guessing that you see a doctor in Halifax, is that right. There should be a lot of good respirologists there. I am just 45 minutes from Fredericton and my daughter lives in Shediac. We are not a very long way from Nova Scotia. If you need anything or have any questions, I would be happy to answer them and there is a wealth of knowledge on this board for any questions you may have. Stay happy,

Diane IPF June 07New Brunswick, Canada

To: Breathe-Support Sent: Monday, May 4, 2009 7:24:32 PMSubject: Re: Hi I am new to the group

-Hi, No I don't have to use 02 as I am alright unless I exert myself. I work as a counsellor with mentally challanged adults in a group home. So far I have been able to do my work but it takes a bit longer than before and I need lots of rest breaks. I am lucky that I work with a good group of workers and they don't put a lot of demands on me.I have some pulmonary tests on the 27th and I see the Dr. on June 12th. He thinks I would be a good canidate for expermental tests on a new drug at our hospital. He says it appears to slow down the scarring so we will have to see.-- In Breathe-Support@ yahoogroups. com, "Sher Bauman" wrote:>> Hughena.... I think everyone has that instant reaction that we're going to die before the month is over and I'm sure because of your mother's

death it would be even more fearful.> You are in a good place here. Lots of support and always someone to answer a question.> I hope you are seeing a good pulmonologist and taking questions to him so you are learning more about PF.> Apparently you are not using O2....> What type of work do you do?> Nice to have you with us....> God Bless.> > > > > MamaSher; 70, IPF 3-06, OR. > Nasturtiums> Don't fret about tomorrow, God is already there!> > Hi I am new to the group> > > > > > > > > > > > > > > > > > I have been reading the message board for the last couple of weeks and it has helped to put my mind at rest. My mother died 15 years ago, she had PF and only lived for 2 years after she found out about it. When my Dr. told me I had

PF all I could think of was that I only had a couple of years and they were not going to be good ones. I just wanted to say the message board has been a lifesaver for me.> > >> >>

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[Guest guest]

Hey Bruce:

I have been laying low. Had another steroid pulse therapy but the positive effects didn't last too long and seemed to cause a lot of problems with joints and muscles. I hope you have been well. I suppose you and are all moved now? I hope everything is going well. Diane IPF June 07New Brunswick, Canada

To: Breathe-Support Sent: Thursday, May 7, 2009 9:10:14 PMSubject: Re: Hi I am new to the group

DianeWhere have you been hiding? Well, most importantly, how are you doing?> > > >> > > > So glad the board has helped you. That's what we do, is helpeach other.> > > > Stay with us, tell us in what State you live, when you

weredx(diagnosed) and how.> > > > Do you have good support for you?> > > > I'm so sorry to hear about your mom. It does seem we hear moreand more about familial PF.> > > > God Bless you,> > > > MamaSher; 70, IPF 3-06, OR.> > > > Nasturtiums> > > > Don't fret about tomorrow, God is already there!> > > >> > > > Hi I am new to the group> > > >> > > >> > > >> > > >> > > >> > > > I have been reading the message board for the last couple ofweeks and it has helped to put my mind at rest. My

mother died 15 yearsago, she had PF and only lived for 2 years after she found out about it.When my Dr. told me I had PF all I could think of was that I only had acouple of years and they were not going to be good ones. I just wantedto say the message board has been a lifesaver for me.> > > >> > >> >>>>>>> ____________ _________ _________ _________ _________ _________ _> Looking for the perfect gift? Give the gift of Flickr!>> http://www.flickr. com/gift/>

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