Re: More weirdness from my doctors

[Guest guest]

Sher, you kind of scared me in to thinking. I go to Walgreens and Wal-mart for meds and neither one knows what the other is giving me. I feel so stupid. It is frustrating trying to find a primary to help me organize all my health issues but I won't give up. There has to be someone out there that can help me and would be willing to work with me to straighten out all the meds, can and cannot do list, can and cannot eat list, sun or no sun... There are so many conflicting instructions from the various doctors that sometimes I just throw up my hands and say whatever. Thanks for your continued support and advice. Keep it coming. Sunny

From: Sher Bauman

Sent: Saturday, May 02, 2009 10:58 AM

To: Breathe-Support

Subject: Re: More weirdness from my doctors

Sunny....I'm reading your posts and feel badly that you are going through so much.

Be careful of prozac/haldol. With some people it can effect cognitive processes rather severely.

The confusion I see here is that you don't appear to have a doc you can discuss your med problems with and none of us here can give medical advice beyond what has worked or not worked for us.

Ask your pharmacist about these two drugs and what you need to watch for in taking both of them....or even how compatible with any other meds you take.

As I told you, I've lived with chronic pain for dozens of years...and always w/side effects from meds.

I really understand the depression that comes from multiple meds and numerous med problems all at the same time. So do most of us on the board.

Your med history appears so tangled that you must be under tremendous stress trying to untangle it.

I'm confused, why would Spokane not be a good place for you?

Sunny, I do see one thing....you really need to get care and not just continued referrals to different docs.

I'm sorry I can't be more help....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sher, you kind of scared me in to thinking. I go to Walgreens and Wal-mart for meds and neither one knows what the other is giving me. I feel so stupid. It is frustrating trying to find a primary to help me organize all my health issues but I won't give up. There has to be someone out there that can help me and would be willing to work with me to straighten out all the meds, can and cannot do list, can and cannot eat list, sun or no sun... There are so many conflicting instructions from the various doctors that sometimes I just throw up my hands and say whatever. Thanks for your continued support and advice. Keep it coming. Sunny

From: Sher Bauman

Sent: Saturday, May 02, 2009 10:58 AM

To: Breathe-Support

Subject: Re: More weirdness from my doctors

Sunny....I'm reading your posts and feel badly that you are going through so much.

Be careful of prozac/haldol. With some people it can effect cognitive processes rather severely.

The confusion I see here is that you don't appear to have a doc you can discuss your med problems with and none of us here can give medical advice beyond what has worked or not worked for us.

Ask your pharmacist about these two drugs and what you need to watch for in taking both of them....or even how compatible with any other meds you take.

As I told you, I've lived with chronic pain for dozens of years...and always w/side effects from meds.

I really understand the depression that comes from multiple meds and numerous med problems all at the same time. So do most of us on the board.

Your med history appears so tangled that you must be under tremendous stress trying to untangle it.

I'm confused, why would Spokane not be a good place for you?

Sunny, I do see one thing....you really need to get care and not just continued referrals to different docs.

I'm sorry I can't be more help....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sunny

this makes me uncomfortable and obviously you are too

i can tell by the way you wrote the post

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: More weirdness from my doctorsTo: Breathe-Support Date: Friday, May 1, 2009, 6:45 PM

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about

not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sunny

this makes me uncomfortable and obviously you are too

i can tell by the way you wrote the post

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: More weirdness from my doctorsTo: Breathe-Support Date: Friday, May 1, 2009, 6:45 PM

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about

not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

sunny

sounds like you need a GI Doc

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: More weirdness from my doctorsTo: Breathe-Support Date: Friday, May 1, 2009, 10:41 PM

Beth, I am talking about the stomach surgery for the Aspiration. Once I thought it over I was shocked too. I am going to tell the surgeon everything and if he is not comfortable doing the surgery until my intestine straighten out then so be it. The scariest thing to me is him telling me not to tell the surgeon that I am on Prozac and Haldol. Both can suppress your respiration, I think so that is information they should most definitely have. I think I just get referred from one bad doctor to another. Is there a bad doctor club? They all take Fridays off so that must be their meeting day when they get together and decide all the weird things they are going to tell patients then the laugh and laugh. I am considering, since Rich is my witness, reporting this doctor to the AMA. I am that upset over his advice. They still don't know why my bowels are blocking and we

all no surgery can cause a backup so it seems to me he is endangering my life by telling me withhold this information. What do you think?

Sunny

From: Beth

Sent: Friday, May 01, 2009 5:29 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

Sunny,

OK I'm going to be really blunt here so pardon me in advance.

Do not under any circumstances conceal any medical information from the doctor is is going to be doing your lung biopsy. (I'm assuming that's the surgery you're talking about.) You need to tell the surgeon, along with the anesthesiologist when you talk to him/her everything about your medications and your medical history. Do not conceal anything.

If you understood him correctly and this is what he meant to say, it's the worst piece of advice I've ever heard. It's so bad it could endanger your life if you followed it.

I don't shock easily but a doctor encouraging you to conceal medical information from another doctor is just stunning.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: "rpickel1 (AT) msn (DOT) com" <rpickel1 (AT) msn (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, May 1, 2009 6:45:41 PMSubject: More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about

not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sunny.... as big a task as it is...YOU are your own advocate and figure-it-outer.

When you are given an Rx, that is the time to ask questions from doc AND/OR read the print out that comes with an Rx and that will give you lots of info. ALL of it may not apply to you specifically.

'Seek and ye shall find'....seek the reasons within yourself why you are so dependent on others telling you what to do... What if they're wrong??? You have to know yourself and what you're taking and why.

All the more important to find a pcp doc who can track most of your care. Then when you see ANOTHER doc, have HIM send notes to the pcp. It helps organize things but only you can keep track as carefully as you need to.

I am very careful and extremely organized and I still "went down" so to speak...became over medicated and got where I couldn't walk w/of help. I'm also the one who spotted the problem and saw my pcp and the meds were halved immediately and one other stopped entirely. I began to feel better.

You can do this Sunny, the rest of us here on the board do....

Keep on keepin' on.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sunny.... as big a task as it is...YOU are your own advocate and figure-it-outer.

When you are given an Rx, that is the time to ask questions from doc AND/OR read the print out that comes with an Rx and that will give you lots of info. ALL of it may not apply to you specifically.

'Seek and ye shall find'....seek the reasons within yourself why you are so dependent on others telling you what to do... What if they're wrong??? You have to know yourself and what you're taking and why.

All the more important to find a pcp doc who can track most of your care. Then when you see ANOTHER doc, have HIM send notes to the pcp. It helps organize things but only you can keep track as carefully as you need to.

I am very careful and extremely organized and I still "went down" so to speak...became over medicated and got where I couldn't walk w/of help. I'm also the one who spotted the problem and saw my pcp and the meds were halved immediately and one other stopped entirely. I began to feel better.

You can do this Sunny, the rest of us here on the board do....

Keep on keepin' on.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sunny

make a list of all of your meds on the computer, print it out and take it with you to all doctor appointments

try to put strengths of each med and how often you take them

save it in a file titled "Sunny's meds" or something like that

then when the meds change, you just need to update your file

if you are allergic to any meds, make a note in red example:

Allergies: xyz -- reaction was chills and fever

i hope this makes sense

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: More weirdness from my doctorsTo: Breathe-Support Date: Sunday, May 3, 2009, 3:02 PM

Sher, you kind of scared me in to thinking. I go to Walgreens and Wal-mart for meds and neither one knows what the other is giving me. I feel so stupid. It is frustrating trying to find a primary to help me organize all my health issues but I won't give up. There has to be someone out there that can help me and would be willing to work with me to straighten out all the meds, can and cannot do list, can and cannot eat list, sun or no sun... There are so many conflicting instructions from the various doctors that sometimes I just throw up my hands and say whatever. Thanks for your continued support and advice. Keep it coming. Sunny

From: Sher Bauman

Sent: Saturday, May 02, 2009 10:58 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

Sunny....I'm reading your posts and feel badly that you are going through so much.

Be careful of prozac/haldol. With some people it can effect cognitive processes rather severely.

The confusion I see here is that you don't appear to have a doc you can discuss your med problems with and none of us here can give medical advice beyond what has worked or not worked for us.

Ask your pharmacist about these two drugs and what you need to watch for in taking both of them....or even how compatible with any other meds you take.

As I told you, I've lived with chronic pain for dozens of years...and always w/side effects from meds.

I really understand the depression that comes from multiple meds and numerous med problems all at the same time. So do most of us on the board.

Your med history appears so tangled that you must be under tremendous stress trying to untangle it.

I'm confused, why would Spokane not be a good place for you?

Sunny, I do see one thing....you really need to get care and not just continued referrals to different docs.

I'm sorry I can't be more help....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about

not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Joyce, oh I have one and he is so special. He wants me to withhold information about my meds and bowel obstruction from the surgeon that will be fixing my aspiration problem so perhaps I will find another. I won't get in to it since I posted it before but he's a real gem and outa here.

Sunny

From: Joyce T Rosenberg

Sent: Sunday, May 03, 2009 3:52 PM

To: Breathe-Support

Subject: Re: More weirdness from my doctors

sunny

sounds like you need a GI Doc

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org--- On Fri, 5/1/09, rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com> wrote:

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: More weirdness from my doctorsTo: Breathe-Support Date: Friday, May 1, 2009, 10:41 PM

Beth, I am talking about the stomach surgery for the Aspiration. Once I thought it over I was shocked too. I am going to tell the surgeon everything and if he is not comfortable doing the surgery until my intestine straighten out then so be it. The scariest thing to me is him telling me not to tell the surgeon that I am on Prozac and Haldol. Both can suppress your respiration, I think so that is information they should most definitely have. I think I just get referred from one bad doctor to another. Is there a bad doctor club? They all take Fridays off so that must be their meeting day when they get together and decide all the weird things they are going to tell patients then the laugh and laugh. I am considering, since Rich is my witness, reporting this doctor to the AMA. I am that upset over his advice. They still don't know why my bowels are blocking and we all no surgery can cause a backup so it seems to me he is endangering my life by telling me withhold this information. What do you think?

Sunny

From: Beth

Sent: Friday, May 01, 2009 5:29 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

Sunny,

OK I'm going to be really blunt here so pardon me in advance.

Do not under any circumstances conceal any medical information from the doctor is is going to be doing your lung biopsy. (I'm assuming that's the surgery you're talking about.) You need to tell the surgeon, along with the anesthesiologist when you talk to him/her everything about your medications and your medical history. Do not conceal anything.

If you understood him correctly and this is what he meant to say, it's the worst piece of advice I've ever heard. It's so bad it could endanger your life if you followed it.

I don't shock easily but a doctor encouraging you to conceal medical information from another doctor is just stunning.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: "rpickel1 (AT) msn (DOT) com" <rpickel1 (AT) msn (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, May 1, 2009 6:45:41 PMSubject: More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sher, do you keep a notebook, diary or folder of some kind. I have seen people at my oncologist that have things like that and now I am thinking I should start one of my own. I have typed up and printed a copy of all of my meds, dosages and times I take them. That is in my purse. I have also typed up a list of all of my diagnoses, when and by who to keep with it. I did the same thing with all my allergies or weird reactions to meds. To answer your question, I don't know. I used to be so independent but I think when I first got diagnosed with Lupus something in me gave up and I just let everyone else run everything, did what they said and put up with whatever came. Thanks to wonderful people like those in this "Air Family" I am taking control again. I am a fighter and always have been and nothing not Lupus, PF, CAN, no nothing is going to make me give up. I feel like a fool because I have spent the last five years feeling sorry for myself because all of this hit in such a short time when I should have been aggressively looking for ways to feel better. Looking back Rich has been even more of a rock solid husband than I realized. And you know something else I realized because of all of you? I don't need antidepressants! What I needed was a firm kick in the backside, my Lord and to know others out there have the same problems and cope just fine. My new byword is "research". I will know everything there is to know about the many, many diseases I have and will know the best thing for them. I will not put up with being treated disrespectfully by another doctor either. Man, when I wuss out, I go full tilt. Thanks for the boot when I needed it Sher. Not a lot of people in this world care enough or have the courage enough to ask the tough questions and put the truth out there where it belongs. I read Rich your posts and he is your number one fan. It's hard for him to say what needs said because I get all defensive and weepy so kudos to you my friend. God Bless you.

Sunny, PF '09, Lupus,Sjogrens/Arthritis '04 Becoming like Mohammed Ali a little more every day, Idaho

From: Sher Bauman

Sent: Sunday, May 03, 2009 4:02 PM

To: Breathe-Support

Subject: Re: More weirdness from my doctors

Sunny.... as big a task as it is...YOU are your own advocate and figure-it-outer.

When you are given an Rx, that is the time to ask questions from doc AND/OR read the print out that comes with an Rx and that will give you lots of info. ALL of it may not apply to you specifically.

'Seek and ye shall find'....seek the reasons within yourself why you are so dependent on others telling you what to do... What if they're wrong??? You have to know yourself and what you're taking and why.

All the more important to find a pcp doc who can track most of your care. Then when you see ANOTHER doc, have HIM send notes to the pcp. It helps organize things but only you can keep track as carefully as you need to.

I am very careful and extremely organized and I still "went down" so to speak...became over medicated and got where I couldn't walk w/of help. I'm also the one who spotted the problem and saw my pcp and the meds were halved immediately and one other stopped entirely. I began to feel better.

You can do this Sunny, the rest of us here on the board do....

Keep on keepin' on.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sher, do you keep a notebook, diary or folder of some kind. I have seen people at my oncologist that have things like that and now I am thinking I should start one of my own. I have typed up and printed a copy of all of my meds, dosages and times I take them. That is in my purse. I have also typed up a list of all of my diagnoses, when and by who to keep with it. I did the same thing with all my allergies or weird reactions to meds. To answer your question, I don't know. I used to be so independent but I think when I first got diagnosed with Lupus something in me gave up and I just let everyone else run everything, did what they said and put up with whatever came. Thanks to wonderful people like those in this "Air Family" I am taking control again. I am a fighter and always have been and nothing not Lupus, PF, CAN, no nothing is going to make me give up. I feel like a fool because I have spent the last five years feeling sorry for myself because all of this hit in such a short time when I should have been aggressively looking for ways to feel better. Looking back Rich has been even more of a rock solid husband than I realized. And you know something else I realized because of all of you? I don't need antidepressants! What I needed was a firm kick in the backside, my Lord and to know others out there have the same problems and cope just fine. My new byword is "research". I will know everything there is to know about the many, many diseases I have and will know the best thing for them. I will not put up with being treated disrespectfully by another doctor either. Man, when I wuss out, I go full tilt. Thanks for the boot when I needed it Sher. Not a lot of people in this world care enough or have the courage enough to ask the tough questions and put the truth out there where it belongs. I read Rich your posts and he is your number one fan. It's hard for him to say what needs said because I get all defensive and weepy so kudos to you my friend. God Bless you.

Sunny, PF '09, Lupus,Sjogrens/Arthritis '04 Becoming like Mohammed Ali a little more every day, Idaho

From: Sher Bauman

Sent: Sunday, May 03, 2009 4:02 PM

To: Breathe-Support

Subject: Re: More weirdness from my doctors

Sunny.... as big a task as it is...YOU are your own advocate and figure-it-outer.

When you are given an Rx, that is the time to ask questions from doc AND/OR read the print out that comes with an Rx and that will give you lots of info. ALL of it may not apply to you specifically.

'Seek and ye shall find'....seek the reasons within yourself why you are so dependent on others telling you what to do... What if they're wrong??? You have to know yourself and what you're taking and why.

All the more important to find a pcp doc who can track most of your care. Then when you see ANOTHER doc, have HIM send notes to the pcp. It helps organize things but only you can keep track as carefully as you need to.

I am very careful and extremely organized and I still "went down" so to speak...became over medicated and got where I couldn't walk w/of help. I'm also the one who spotted the problem and saw my pcp and the meds were halved immediately and one other stopped entirely. I began to feel better.

You can do this Sunny, the rest of us here on the board do....

Keep on keepin' on.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sher, do you keep a notebook, diary or folder of some kind. I have seen people at my oncologist that have things like that and now I am thinking I should start one of my own. I have typed up and printed a copy of all of my meds, dosages and times I take them. That is in my purse. I have also typed up a list of all of my diagnoses, when and by who to keep with it. I did the same thing with all my allergies or weird reactions to meds. To answer your question, I don't know. I used to be so independent but I think when I first got diagnosed with Lupus something in me gave up and I just let everyone else run everything, did what they said and put up with whatever came. Thanks to wonderful people like those in this "Air Family" I am taking control again. I am a fighter and always have been and nothing not Lupus, PF, CAN, no nothing is going to make me give up. I feel like a fool because I have spent the last five years feeling sorry for myself because all of this hit in such a short time when I should have been aggressively looking for ways to feel better. Looking back Rich has been even more of a rock solid husband than I realized. And you know something else I realized because of all of you? I don't need antidepressants! What I needed was a firm kick in the backside, my Lord and to know others out there have the same problems and cope just fine. My new byword is "research". I will know everything there is to know about the many, many diseases I have and will know the best thing for them. I will not put up with being treated disrespectfully by another doctor either. Man, when I wuss out, I go full tilt. Thanks for the boot when I needed it Sher. Not a lot of people in this world care enough or have the courage enough to ask the tough questions and put the truth out there where it belongs. I read Rich your posts and he is your number one fan. It's hard for him to say what needs said because I get all defensive and weepy so kudos to you my friend. God Bless you.

Sunny, PF '09, Lupus,Sjogrens/Arthritis '04 Becoming like Mohammed Ali a little more every day, Idaho

From: Sher Bauman

Sent: Sunday, May 03, 2009 4:02 PM

To: Breathe-Support

Subject: Re: More weirdness from my doctors

Sunny.... as big a task as it is...YOU are your own advocate and figure-it-outer.

When you are given an Rx, that is the time to ask questions from doc AND/OR read the print out that comes with an Rx and that will give you lots of info. ALL of it may not apply to you specifically.

'Seek and ye shall find'....seek the reasons within yourself why you are so dependent on others telling you what to do... What if they're wrong??? You have to know yourself and what you're taking and why.

All the more important to find a pcp doc who can track most of your care. Then when you see ANOTHER doc, have HIM send notes to the pcp. It helps organize things but only you can keep track as carefully as you need to.

I am very careful and extremely organized and I still "went down" so to speak...became over medicated and got where I couldn't walk w/of help. I'm also the one who spotted the problem and saw my pcp and the meds were halved immediately and one other stopped entirely. I began to feel better.

You can do this Sunny, the rest of us here on the board do....

Keep on keepin' on.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sunny... yes, I do keep a little notebook going. I have to because I simply can't remember the way I used to.

At most Dr. offices you can pick up a record keeper for meds....I keep one of those in my purse all the time. Whip it out each time I need the info....change the info whenever I add or delete a med.

I also add on there the name/number of insurance, pcp/number and especially ALLERGIES. Once done, it's very easy to keep the info current and handy.

It's good if you no longer need antidepressants but if you should in the future don't beat yourself up. I take Cymbalta and wouldn't be without it.

Good for you to do the research. One day you will pass on to a newbie the things you have learned.

I'm glad I didn't push you away Sunny...

Sometimes I get such an urge to reach out and I had that urge with you. I usually see in others places I've been and things I've done in my own life...emotionally I mean...mentally.

If I have helped even a little bit then I'm glad I wrote you. Most of us here on the board have experiences to share.

Keep on keepin' on, you're getting the hang of it now.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sunny... yes, I do keep a little notebook going. I have to because I simply can't remember the way I used to.

At most Dr. offices you can pick up a record keeper for meds....I keep one of those in my purse all the time. Whip it out each time I need the info....change the info whenever I add or delete a med.

I also add on there the name/number of insurance, pcp/number and especially ALLERGIES. Once done, it's very easy to keep the info current and handy.

It's good if you no longer need antidepressants but if you should in the future don't beat yourself up. I take Cymbalta and wouldn't be without it.

Good for you to do the research. One day you will pass on to a newbie the things you have learned.

I'm glad I didn't push you away Sunny...

Sometimes I get such an urge to reach out and I had that urge with you. I usually see in others places I've been and things I've done in my own life...emotionally I mean...mentally.

If I have helped even a little bit then I'm glad I wrote you. Most of us here on the board have experiences to share.

Keep on keepin' on, you're getting the hang of it now.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sunny... yes, I do keep a little notebook going. I have to because I simply can't remember the way I used to.

At most Dr. offices you can pick up a record keeper for meds....I keep one of those in my purse all the time. Whip it out each time I need the info....change the info whenever I add or delete a med.

I also add on there the name/number of insurance, pcp/number and especially ALLERGIES. Once done, it's very easy to keep the info current and handy.

It's good if you no longer need antidepressants but if you should in the future don't beat yourself up. I take Cymbalta and wouldn't be without it.

Good for you to do the research. One day you will pass on to a newbie the things you have learned.

I'm glad I didn't push you away Sunny...

Sometimes I get such an urge to reach out and I had that urge with you. I usually see in others places I've been and things I've done in my own life...emotionally I mean...mentally.

If I have helped even a little bit then I'm glad I wrote you. Most of us here on the board have experiences to share.

Keep on keepin' on, you're getting the hang of it now.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sher - listen up! You have helped way more than a little bit. Don't you EVER change - you are perfect the way you are. I have heeded the advice of all of the wise people in my new "Air Family" but you most of all because something about you speaks to my heart. I spent mucho time listing all allergies & their reactions, meds inc. dosages, prescribing doctor with his phone number, all surgeries and every illness I have or have ever had. Why I never thought it was important to have this info on me at all times is beyond me. You would think I would have learned when I had my big stroke and was unconscious for 28 hours. Thank God Rich was there and knew most of it. I am also going to start journaling my symptoms day to day in detail because when I do get me new improved doctors I want to be able to communicate in a concise way without rambling. I am learning and growing. I so proud of me!!!!! Again thanks for the straight talk. Sunny

From: Sher Bauman

Sent: Monday, May 04, 2009 1:36 PM

To: Breathe-Support

Subject: Re: More weirdness from my doctors

Sunny... yes, I do keep a little notebook going. I have to because I simply can't remember the way I used to.

At most Dr. offices you can pick up a record keeper for meds....I keep one of those in my purse all the time. Whip it out each time I need the info....change the info whenever I add or delete a med.

I also add on there the name/number of insurance, pcp/number and especially ALLERGIES. Once done, it's very easy to keep the info current and handy.

It's good if you no longer need antidepressants but if you should in the future don't beat yourself up. I take Cymbalta and wouldn't be without it.

Good for you to do the research. One day you will pass on to a newbie the things you have learned.

I'm glad I didn't push you away Sunny...

Sometimes I get such an urge to reach out and I had that urge with you. I usually see in others places I've been and things I've done in my own life...emotionally I mean...mentally.

If I have helped even a little bit then I'm glad I wrote you. Most of us here on the board have experiences to share.

Keep on keepin' on, you're getting the hang of it now.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sher - listen up! You have helped way more than a little bit. Don't you EVER change - you are perfect the way you are. I have heeded the advice of all of the wise people in my new "Air Family" but you most of all because something about you speaks to my heart. I spent mucho time listing all allergies & their reactions, meds inc. dosages, prescribing doctor with his phone number, all surgeries and every illness I have or have ever had. Why I never thought it was important to have this info on me at all times is beyond me. You would think I would have learned when I had my big stroke and was unconscious for 28 hours. Thank God Rich was there and knew most of it. I am also going to start journaling my symptoms day to day in detail because when I do get me new improved doctors I want to be able to communicate in a concise way without rambling. I am learning and growing. I so proud of me!!!!! Again thanks for the straight talk. Sunny

From: Sher Bauman

Sent: Monday, May 04, 2009 1:36 PM

To: Breathe-Support

Subject: Re: More weirdness from my doctors

Sunny... yes, I do keep a little notebook going. I have to because I simply can't remember the way I used to.

At most Dr. offices you can pick up a record keeper for meds....I keep one of those in my purse all the time. Whip it out each time I need the info....change the info whenever I add or delete a med.

I also add on there the name/number of insurance, pcp/number and especially ALLERGIES. Once done, it's very easy to keep the info current and handy.

It's good if you no longer need antidepressants but if you should in the future don't beat yourself up. I take Cymbalta and wouldn't be without it.

Good for you to do the research. One day you will pass on to a newbie the things you have learned.

I'm glad I didn't push you away Sunny...

Sometimes I get such an urge to reach out and I had that urge with you. I usually see in others places I've been and things I've done in my own life...emotionally I mean...mentally.

If I have helped even a little bit then I'm glad I wrote you. Most of us here on the board have experiences to share.

Keep on keepin' on, you're getting the hang of it now.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sunny.... I keep 'notes' for my doc's....

after a visit I jot down questions or how I'm feeling and take to the next visit. Each doc has their own 'page'. I keep a small little notebook but it's so helpful to me. Also helps me to not to impose med problems on the docs who are specialists in another area. If I'm focused with each doc the time with him/her is better used.

I'm glad you are feeling good about yourself. Keep on keepin' on. ;o)

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sunny.... I keep 'notes' for my doc's....

after a visit I jot down questions or how I'm feeling and take to the next visit. Each doc has their own 'page'. I keep a small little notebook but it's so helpful to me. Also helps me to not to impose med problems on the docs who are specialists in another area. If I'm focused with each doc the time with him/her is better used.

I'm glad you are feeling good about yourself. Keep on keepin' on. ;o)

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

sunny

if he is such a gem, why doesn't he want you to share info with the surgeon

I already read the details, that's why i think you need a different GI

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: More weirdness from my doctorsTo: Breathe-Support Date: Monday, May 4, 2009, 3:08 PM

Joyce, oh I have one and he is so special. He wants me to withhold information about my meds and bowel obstruction from the surgeon that will be fixing my aspiration problem so perhaps I will find another. I won't get in to it since I posted it before but he's a real gem and outa here.

Sunny

From: Joyce T Rosenberg

Sent: Sunday, May 03, 2009 3:52 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

sunny

sounds like you need a GI Doc

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund. org

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: More weirdness from my doctorsTo: Breathe-Support@ yahoogroups. comDate: Friday, May 1, 2009, 10:41 PM

Beth, I am talking about the stomach surgery for the Aspiration. Once I thought it over I was shocked too. I am going to tell the surgeon everything and if he is not comfortable doing the surgery until my intestine straighten out then so be it. The scariest thing to me is him telling me not to tell the surgeon that I am on Prozac and Haldol. Both can suppress your respiration, I think so that is information they should most definitely have. I think I just get referred from one bad doctor to another. Is there a bad doctor club? They all take Fridays off so that must be their meeting day when they get together and decide all the weird things they are going to tell patients then the laugh and laugh. I am considering, since Rich is my witness, reporting this doctor to the AMA. I am that upset over his advice. They still don't know why my bowels are blocking and we

all no surgery can cause a backup so it seems to me he is endangering my life by telling me withhold this information. What do you think?

Sunny

From: Beth

Sent: Friday, May 01, 2009 5:29 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

Sunny,

OK I'm going to be really blunt here so pardon me in advance.

Do not under any circumstances conceal any medical information from the doctor is is going to be doing your lung biopsy. (I'm assuming that's the surgery you're talking about.) You need to tell the surgeon, along with the anesthesiologist when you talk to him/her everything about your medications and your medical history. Do not conceal anything.

If you understood him correctly and this is what he meant to say, it's the worst piece of advice I've ever heard. It's so bad it could endanger your life if you followed it.

I don't shock easily but a doctor encouraging you to conceal medical information from another doctor is just stunning.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: "rpickel1 (AT) msn (DOT) com" <rpickel1 (AT) msn (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, May 1, 2009 6:45:41 PMSubject: More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about

not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sher,

You have brought up some interesting things here at home. Rich just asked me last night why I always put myself down ie... I'm so stupid. Stuff like that. I used be such of confident person, bachelor's degree, well spoken, read a lot, stay up on current events, stay in contact with others but since I first got sick in 2004 I guess I have slowly become introverted and isolated. Maybe just fear of dying or hating that I can't bring in a paycheck or clean like I used to. I don't know but I feel like I have just woken up from a long bad dream where I was someone else. Now I have to struggle to become my old self again. Does this make any sense to you? I suppose serious illness effects us all in different ways emotionally, physically, mentally and spiritually. Thanks for listening.

Sunny

From: Sher Bauman

Sent: Monday, May 04, 2009 2:19 PM

To: Breathe-Support

Subject: Re: More weirdness from my doctors

Sunny.... I keep 'notes' for my doc's....

after a visit I jot down questions or how I'm feeling and take to the next visit. Each doc has their own 'page'. I keep a small little notebook but it's so helpful to me. Also helps me to not to impose med problems on the docs who are specialists in another area. If I'm focused with each doc the time with him/her is better used.

I'm glad you are feeling good about yourself. Keep on keepin' on. ;o)

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sunny...You describe what happens when we are in a deep depression and apparently the depression is either lifted or treated....Either way, I'm glad you feel like you are living again.

Depression is usually caused by two things: something we will not/can not face or something we will not/can not do. Of course this is a very simplified version but you wrote about fear of dying, no paycheck from you, housework and I'm sure other things that eventually turned you helpless. For many people, (including me) what we 'do' is tied up in our self esteem. If we don't 'do' anything or 'produce' anything then ~ we have no self worth or esteem. ( It took me about 2 years to work my way through no longer working). Add a fatal illness where we gradually 'do' less and less and feel worse and worse then depression is common.

Many here take antidepressants (including me).

This simplified version helps us to do what we can to identify areas where we can help ourselves and feel better but often depression is a chemical thing and needs to be treated with meds.Withdrawing and isolating are surely among the symptoms of depression.

Living with a fatal illness is overwhelming and you're right, we each are affected in a different way and thank God, depression is one area that can be treated and allow us to live our lives with some stability and sanity.

Knowing about depression helps me to understand myself...I fight depression and have all my life but with proper medication I function ok.

I share with you some of what I've learned along my personal journey and I've tried to keep it brief. ;o)

Keep on keepin' on Sunny!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

sunny

i have a loose leaf binder with the results of all of my tests -- labs, xrays, pfts, 6 minute walks, etc

whenever i go to the doctor, i ask for a copy of the results

some people even have copies of the xray disks and slides from the biopsies

this is important, especially if you see a variety of docs in different locations

they all need to be on the same wavelength when it comes to your care

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: More weirdness from my doctorsTo: Breathe-Support Date: Monday, May 4, 2009, 3:22 PM

Sher, do you keep a notebook, diary or folder of some kind. I have seen people at my oncologist that have things like that and now I am thinking I should start one of my own. I have typed up and printed a copy of all of my meds, dosages and times I take them. That is in my purse. I have also typed up a list of all of my diagnoses, when and by who to keep with it. I did the same thing with all my allergies or weird reactions to meds. To answer your question, I don't know. I used to be so independent but I think when I first got diagnosed with Lupus something in me gave up and I just let everyone else run everything, did what they said and put up with whatever came. Thanks to wonderful people like those in this "Air Family" I am taking control again. I am a fighter and always have been and nothing not Lupus, PF, CAN, no nothing is going to make me give up. I feel like

a fool because I have spent the last five years feeling sorry for myself because all of this hit in such a short time when I should have been aggressively looking for ways to feel better. Looking back Rich has been even more of a rock solid husband than I realized. And you know something else I realized because of all of you? I don't need antidepressants! What I needed was a firm kick in the backside, my Lord and to know others out there have the same problems and cope just fine. My new byword is "research". I will know everything there is to know about the many, many diseases I have and will know the best thing for them. I will not put up with being treated disrespectfully by another doctor either. Man, when I wuss out, I go full tilt. Thanks for the boot when I needed it Sher. Not a lot of people in this world care enough or have the courage enough to ask the tough questions and put the truth

out there where it belongs. I read Rich your posts and he is your number one fan. It's hard for him to say what needs said because I get all defensive and weepy so kudos to you my friend. God Bless you.

Sunny, PF '09, Lupus,Sjogrens/ Arthritis '04 Becoming like Mohammed Ali a little more every day, Idaho

From: Sher Bauman

Sent: Sunday, May 03, 2009 4:02 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

Sunny.... as big a task as it is...YOU are your own advocate and figure-it-outer.

When you are given an Rx, that is the time to ask questions from doc AND/OR read the print out that comes with an Rx and that will give you lots of info. ALL of it may not apply to you specifically.

'Seek and ye shall find'....seek the reasons within yourself why you are so dependent on others telling you what to do... What if they're wrong??? You have to know yourself and what you're taking and why.

All the more important to find a pcp doc who can track most of your care. Then when you see ANOTHER doc, have HIM send notes to the pcp. It helps organize things but only you can keep track as carefully as you need to.

I am very careful and extremely organized and I still "went down" so to speak...became over medicated and got where I couldn't walk w/of help. I'm also the one who spotted the problem and saw my pcp and the meds were halved immediately and one other stopped entirely. I began to feel better.

You can do this Sunny, the rest of us here on the board do....

Keep on keepin' on.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about

not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Joyce, do you know if they have to give you a copy of your test results at the doctor or ER? Because at the ER the other night I had to fight just to find out what the results said let alone get a copy. It would have helped a great deal when I saw my doctor the next day. If I am entitled to have a copy of everything I am going to do the same as some of you and get a loose leaf binder with tabs for each doc and their tests then an extra one with a copy of all tests. I think I would do much better and feel more confident in dealing with doctors if I had that. I could also research my questions before I go so that they can't poo pah me away. Thanks for the advise! God Bless.

Sunny

From: Joyce T Rosenberg

Sent: Wednesday, May 06, 2009 5:27 PM

To: Breathe-Support

Subject: Re: More weirdness from my doctors

sunny

i have a loose leaf binder with the results of all of my tests -- labs, xrays, pfts, 6 minute walks, etc

whenever i go to the doctor, i ask for a copy of the results

some people even have copies of the xray disks and slides from the biopsies

this is important, especially if you see a variety of docs in different locations

they all need to be on the same wavelength when it comes to your care

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org--- On Mon, 5/4/09, rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com> wrote:

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: More weirdness from my doctorsTo: Breathe-Support Date: Monday, May 4, 2009, 3:22 PM

Sher, do you keep a notebook, diary or folder of some kind. I have seen people at my oncologist that have things like that and now I am thinking I should start one of my own. I have typed up and printed a copy of all of my meds, dosages and times I take them. That is in my purse. I have also typed up a list of all of my diagnoses, when and by who to keep with it. I did the same thing with all my allergies or weird reactions to meds. To answer your question, I don't know. I used to be so independent but I think when I first got diagnosed with Lupus something in me gave up and I just let everyone else run everything, did what they said and put up with whatever came. Thanks to wonderful people like those in this "Air Family" I am taking control again. I am a fighter and always have been and nothing not Lupus, PF, CAN, no nothing is going to make me give up. I feel like a fool because I have spent the last five years feeling sorry for myself because all of this hit in such a short time when I should have been aggressively looking for ways to feel better. Looking back Rich has been even more of a rock solid husband than I realized. And you know something else I realized because of all of you? I don't need antidepressants! What I needed was a firm kick in the backside, my Lord and to know others out there have the same problems and cope just fine. My new byword is "research". I will know everything there is to know about the many, many diseases I have and will know the best thing for them. I will not put up with being treated disrespectfully by another doctor either. Man, when I wuss out, I go full tilt. Thanks for the boot when I needed it Sher. Not a lot of people in this world care enough or have the courage enough to ask the tough questions and put the truth out there where it belongs. I read Rich your posts and he is your number one fan. It's hard for him to say what needs said because I get all defensive and weepy so kudos to you my friend. God Bless you.

Sunny, PF '09, Lupus,Sjogrens/ Arthritis '04 Becoming like Mohammed Ali a little more every day, Idaho

From: Sher Bauman

Sent: Sunday, May 03, 2009 4:02 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

Sunny.... as big a task as it is...YOU are your own advocate and figure-it-outer.

When you are given an Rx, that is the time to ask questions from doc AND/OR read the print out that comes with an Rx and that will give you lots of info. ALL of it may not apply to you specifically.

'Seek and ye shall find'....seek the reasons within yourself why you are so dependent on others telling you what to do... What if they're wrong??? You have to know yourself and what you're taking and why.

All the more important to find a pcp doc who can track most of your care. Then when you see ANOTHER doc, have HIM send notes to the pcp. It helps organize things but only you can keep track as carefully as you need to.

I am very careful and extremely organized and I still "went down" so to speak...became over medicated and got where I couldn't walk w/of help. I'm also the one who spotted the problem and saw my pcp and the meds were halved immediately and one other stopped entirely. I began to feel better.

You can do this Sunny, the rest of us here on the board do....

Keep on keepin' on.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

[Guest guest]

Sunny

when the tests are done at the local hospital, a couple of days later, i go to medical records and request a copy, i am there anyway for rehab

my family doc gives me copies when i ask for them

i ask the resp techs for copies of the 6 min walk and pfts when they are complete

sometimes when checking out of the hospital, we have gotten copies of the results

when i see the pulmonary, i usually forget to ask for copies of test results done at Penn, but most labs are done locally

i do get annoyed when Penn does not send copies to my family doc

hope this helps

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: More weirdness from my doctorsTo: Breathe-Support Date: Saturday, May 9, 2009, 1:12 PM

Joyce, do you know if they have to give you a copy of your test results at the doctor or ER? Because at the ER the other night I had to fight just to find out what the results said let alone get a copy. It would have helped a great deal when I saw my doctor the next day. If I am entitled to have a copy of everything I am going to do the same as some of you and get a loose leaf binder with tabs for each doc and their tests then an extra one with a copy of all tests. I think I would do much better and feel more confident in dealing with doctors if I had that. I could also research my questions before I go so that they can't poo pah me away. Thanks for the advise! God Bless.

Sunny

From: Joyce T Rosenberg

Sent: Wednesday, May 06, 2009 5:27 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

sunny

i have a loose leaf binder with the results of all of my tests -- labs, xrays, pfts, 6 minute walks, etc

whenever i go to the doctor, i ask for a copy of the results

some people even have copies of the xray disks and slides from the biopsies

this is important, especially if you see a variety of docs in different locations

they all need to be on the same wavelength when it comes to your care

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund. org

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: More weirdness from my doctorsTo: Breathe-Support@ yahoogroups. comDate: Monday, May 4, 2009, 3:22 PM

Sher, do you keep a notebook, diary or folder of some kind. I have seen people at my oncologist that have things like that and now I am thinking I should start one of my own. I have typed up and printed a copy of all of my meds, dosages and times I take them. That is in my purse. I have also typed up a list of all of my diagnoses, when and by who to keep with it. I did the same thing with all my allergies or weird reactions to meds. To answer your question, I don't know. I used to be so independent but I think when I first got diagnosed with Lupus something in me gave up and I just let everyone else run everything, did what they said and put up with whatever came. Thanks to wonderful people like those in this "Air Family" I am taking control again. I am a fighter and always have been and nothing not Lupus, PF, CAN, no nothing is going to make me give up. I feel like

a fool because I have spent the last five years feeling sorry for myself because all of this hit in such a short time when I should have been aggressively looking for ways to feel better. Looking back Rich has been even more of a rock solid husband than I realized. And you know something else I realized because of all of you? I don't need antidepressants! What I needed was a firm kick in the backside, my Lord and to know others out there have the same problems and cope just fine. My new byword is "research". I will know everything there is to know about the many, many diseases I have and will know the best thing for them. I will not put up with being treated disrespectfully by another doctor either. Man, when I wuss out, I go full tilt. Thanks for the boot when I needed it Sher. Not a lot of people in this world care enough or have the courage enough to ask the tough questions and put the truth

out there where it belongs. I read Rich your posts and he is your number one fan. It's hard for him to say what needs said because I get all defensive and weepy so kudos to you my friend. God Bless you.

Sunny, PF '09, Lupus,Sjogrens/ Arthritis '04 Becoming like Mohammed Ali a little more every day, Idaho

From: Sher Bauman

Sent: Sunday, May 03, 2009 4:02 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

Sunny.... as big a task as it is...YOU are your own advocate and figure-it-outer.

When you are given an Rx, that is the time to ask questions from doc AND/OR read the print out that comes with an Rx and that will give you lots of info. ALL of it may not apply to you specifically.

'Seek and ye shall find'....seek the reasons within yourself why you are so dependent on others telling you what to do... What if they're wrong??? You have to know yourself and what you're taking and why.

All the more important to find a pcp doc who can track most of your care. Then when you see ANOTHER doc, have HIM send notes to the pcp. It helps organize things but only you can keep track as carefully as you need to.

I am very careful and extremely organized and I still "went down" so to speak...became over medicated and got where I couldn't walk w/of help. I'm also the one who spotted the problem and saw my pcp and the meds were halved immediately and one other stopped entirely. I began to feel better.

You can do this Sunny, the rest of us here on the board do....

Keep on keepin' on.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about

not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho