Re: More weirdness from my doctors

May 11, 2009

Joyce,

I was talking to someone in my Lupus group and she has a little hard drive thingy. Can't remember what she said, maybe thumb drive or something, anyway she keeps it in her purse and whenever she goes to the doctor has them download her info and results in to it. That days stuff isn't there but she sets herself a reminder and gets another update 7 days later. She has all her results, doctor's notes, surgical notes, everything. It's unbelievable the scope of information she has about her disease. She is like me and sees multiple docs for multiple diseases. The thingy (if I get to technical let me know) plugs into her USB (I even know what that is!) port and downloads it to her computer. Then she goes over everything that has been tested or happened since she last looked and takes notes on anything she doesn't understand or is incorrect. She told me she has found allergy errors in her records, test results that she never knew were ordered and actual mistakes. She's my hero of the day. So my new plan is to buy one of those thingy's (should that be a capital T) and start doing as she does. She warned me that some offices will try and stonewall you but if you insist they will do it and it only takes a second plus she tells them if they don't want to do that then she wants a copy of her ENTIRE file. I've seen mine and if hers is half as big the receptionist runs screaming and can't fill up her thingy fast enough. Has anyone else ever heard about the Thingy? I am pathetic when it comes to computer hardware. I am still looking for my ANY key and when I press ESC I am still sitting here sick. Have a great day everyone and laugh when you feel like crying. Cry and the cat will try and lick the salt off your cheeks. Yucky.

Sunny, PF '09, SLE/Sjogrens/Arthritis '04, common sense deficiency '09, Idaho

From: Joyce T Rosenberg

Sent: Monday, May 11, 2009 9:51 AM

To: Breathe-Support

Subject: Re: More weirdness from my doctors

Sunny

when the tests are done at the local hospital, a couple of days later, i go to medical records and request a copy, i am there anyway for rehab

my family doc gives me copies when i ask for them

i ask the resp techs for copies of the 6 min walk and pfts when they are complete

sometimes when checking out of the hospital, we have gotten copies of the results

when i see the pulmonary, i usually forget to ask for copies of test results done at Penn, but most labs are done locally

i do get annoyed when Penn does not send copies to my family doc

hope this helps

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org--- On Sat, 5/9/09, rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com> wrote:

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: More weirdness from my doctorsTo: Breathe-Support Date: Saturday, May 9, 2009, 1:12 PM

Joyce, do you know if they have to give you a copy of your test results at the doctor or ER? Because at the ER the other night I had to fight just to find out what the results said let alone get a copy. It would have helped a great deal when I saw my doctor the next day. If I am entitled to have a copy of everything I am going to do the same as some of you and get a loose leaf binder with tabs for each doc and their tests then an extra one with a copy of all tests. I think I would do much better and feel more confident in dealing with doctors if I had that. I could also research my questions before I go so that they can't poo pah me away. Thanks for the advise! God Bless.

Sunny

From: Joyce T Rosenberg

Sent: Wednesday, May 06, 2009 5:27 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

sunny

i have a loose leaf binder with the results of all of my tests -- labs, xrays, pfts, 6 minute walks, etc

whenever i go to the doctor, i ask for a copy of the results

some people even have copies of the xray disks and slides from the biopsies

this is important, especially if you see a variety of docs in different locations

they all need to be on the same wavelength when it comes to your care

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund. org

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: More weirdness from my doctorsTo: Breathe-Support@ yahoogroups. comDate: Monday, May 4, 2009, 3:22 PM

Sher, do you keep a notebook, diary or folder of some kind. I have seen people at my oncologist that have things like that and now I am thinking I should start one of my own. I have typed up and printed a copy of all of my meds, dosages and times I take them. That is in my purse. I have also typed up a list of all of my diagnoses, when and by who to keep with it. I did the same thing with all my allergies or weird reactions to meds. To answer your question, I don't know. I used to be so independent but I think when I first got diagnosed with Lupus something in me gave up and I just let everyone else run everything, did what they said and put up with whatever came. Thanks to wonderful people like those in this "Air Family" I am taking control again. I am a fighter and always have been and nothing not Lupus, PF, CAN, no nothing is going to make me give up. I feel like a fool because I have spent the last five years feeling sorry for myself because all of this hit in such a short time when I should have been aggressively looking for ways to feel better. Looking back Rich has been even more of a rock solid husband than I realized. And you know something else I realized because of all of you? I don't need antidepressants! What I needed was a firm kick in the backside, my Lord and to know others out there have the same problems and cope just fine. My new byword is "research". I will know everything there is to know about the many, many diseases I have and will know the best thing for them. I will not put up with being treated disrespectfully by another doctor either. Man, when I wuss out, I go full tilt. Thanks for the boot when I needed it Sher. Not a lot of people in this world care enough or have the courage enough to ask the tough questions and put the truth out there where it belongs. I read Rich your posts and he is your number one fan. It's hard for him to say what needs said because I get all defensive and weepy so kudos to you my friend. God Bless you.

Sunny, PF '09, Lupus,Sjogrens/ Arthritis '04 Becoming like Mohammed Ali a little more every day, Idaho

From: Sher Bauman

Sent: Sunday, May 03, 2009 4:02 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

Sunny.... as big a task as it is...YOU are your own advocate and figure-it-outer.

When you are given an Rx, that is the time to ask questions from doc AND/OR read the print out that comes with an Rx and that will give you lots of info. ALL of it may not apply to you specifically.

'Seek and ye shall find'....seek the reasons within yourself why you are so dependent on others telling you what to do... What if they're wrong??? You have to know yourself and what you're taking and why.

All the more important to find a pcp doc who can track most of your care. Then when you see ANOTHER doc, have HIM send notes to the pcp. It helps organize things but only you can keep track as carefully as you need to.

I am very careful and extremely organized and I still "went down" so to speak...became over medicated and got where I couldn't walk w/of help. I'm also the one who spotted the problem and saw my pcp and the meds were halved immediately and one other stopped entirely. I began to feel better.

You can do this Sunny, the rest of us here on the board do....

Keep on keepin' on.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

May 12, 2009

Sunny

that is a great idea

i do have a little thingy that i use to store stuff, off of the computer -- too much stuff on the computer slows it down

i should get another one to use just for medical records

the docs at Penn are all computerized

i forget what the thingy is called, maybe a usb, the one i have is by lexar 2GB [the size]

thanks for a great idea Sunny

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: More weirdness from my doctorsTo: Breathe-Support Date: Monday, May 11, 2009, 6:23 PM

Joyce,

I was talking to someone in my Lupus group and she has a little hard drive thingy. Can't remember what she said, maybe thumb drive or something, anyway she keeps it in her purse and whenever she goes to the doctor has them download her info and results in to it. That days stuff isn't there but she sets herself a reminder and gets another update 7 days later. She has all her results, doctor's notes, surgical notes, everything. It's unbelievable the scope of information she has about her disease. She is like me and sees multiple docs for multiple diseases. The thingy (if I get to technical let me know) plugs into her USB (I even know what that is!) port and downloads it to her computer. Then she goes over everything that has been tested or happened since she last looked and takes notes on anything she doesn't understand or is incorrect. She told me she has found allergy errors in

her records, test results that she never knew were ordered and actual mistakes. She's my hero of the day. So my new plan is to buy one of those thingy's (should that be a capital T) and start doing as she does. She warned me that some offices will try and stonewall you but if you insist they will do it and it only takes a second plus she tells them if they don't want to do that then she wants a copy of her ENTIRE file. I've seen mine and if hers is half as big the receptionist runs screaming and can't fill up her thingy fast enough. Has anyone else ever heard about the Thingy? I am pathetic when it comes to computer hardware. I am still looking for my ANY key and when I press ESC I am still sitting here sick. Have a great day everyone and laugh when you feel like crying. Cry and the cat will try and lick the salt off your cheeks. Yucky.

Sunny, PF '09, SLE/Sjogrens/ Arthritis '04, common sense deficiency '09, Idaho

From: Joyce T Rosenberg

Sent: Monday, May 11, 2009 9:51 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

Sunny

when the tests are done at the local hospital, a couple of days later, i go to medical records and request a copy, i am there anyway for rehab

my family doc gives me copies when i ask for them

i ask the resp techs for copies of the 6 min walk and pfts when they are complete

sometimes when checking out of the hospital, we have gotten copies of the results

when i see the pulmonary, i usually forget to ask for copies of test results done at Penn, but most labs are done locally

i do get annoyed when Penn does not send copies to my family doc

hope this helps

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund. org

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: More weirdness from my doctorsTo: Breathe-Support@ yahoogroups. comDate: Monday, May 4, 2009, 3:22 PM

Sher, do you keep a notebook, diary or folder of some kind. I have seen people at my oncologist that have things like that and now I am thinking I should start one of my own. I have typed up and printed a copy of all of my meds, dosages and times I take them. That is in my purse. I have also typed up a list of all of my diagnoses, when and by who to keep with it. I did the same thing with all my allergies or weird reactions to meds. To answer your question, I don't know. I used to be so independent but I think when I first got diagnosed with Lupus something in me gave up and I just let everyone else run everything, did what they said and put up with whatever came. Thanks to wonderful people like those in this "Air Family" I am taking control again. I am a fighter and always have been and nothing not Lupus, PF, CAN, no nothing is going to make me give up. I feel like

a fool because I have spent the last five years feeling sorry for myself because all of this hit in such a short time when I should have been aggressively looking for ways to feel better. Looking back Rich has been even more of a rock solid husband than I realized. And you know something else I realized because of all of you? I don't need antidepressants! What I needed was a firm kick in the backside, my Lord and to know others out there have the same problems and cope just fine. My new byword is "research". I will know everything there is to know about the many, many diseases I have and will know the best thing for them. I will not put up with being treated disrespectfully by another doctor either. Man, when I wuss out, I go full tilt. Thanks for the boot when I needed it Sher. Not a lot of people in this world care enough or have the courage enough to ask the tough questions and put the truth

out there where it belongs. I read Rich your posts and he is your number one fan. It's hard for him to say what needs said because I get all defensive and weepy so kudos to you my friend. God Bless you.

Sunny, PF '09, Lupus,Sjogrens/ Arthritis '04 Becoming like Mohammed Ali a little more every day, Idaho

From: Sher Bauman

Sent: Sunday, May 03, 2009 4:02 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

Sunny.... as big a task as it is...YOU are your own advocate and figure-it-outer.

When you are given an Rx, that is the time to ask questions from doc AND/OR read the print out that comes with an Rx and that will give you lots of info. ALL of it may not apply to you specifically.

'Seek and ye shall find'....seek the reasons within yourself why you are so dependent on others telling you what to do... What if they're wrong??? You have to know yourself and what you're taking and why.

All the more important to find a pcp doc who can track most of your care. Then when you see ANOTHER doc, have HIM send notes to the pcp. It helps organize things but only you can keep track as carefully as you need to.

I am very careful and extremely organized and I still "went down" so to speak...became over medicated and got where I couldn't walk w/of help. I'm also the one who spotted the problem and saw my pcp and the meds were halved immediately and one other stopped entirely. I began to feel better.

You can do this Sunny, the rest of us here on the board do....

Keep on keepin' on.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about

not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

May 12, 2009

Sunny

that is a great idea

i do have a little thingy that i use to store stuff, off of the computer -- too much stuff on the computer slows it down

i should get another one to use just for medical records

the docs at Penn are all computerized

i forget what the thingy is called, maybe a usb, the one i have is by lexar 2GB [the size]

thanks for a great idea Sunny

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: More weirdness from my doctorsTo: Breathe-Support Date: Monday, May 11, 2009, 6:23 PM

Joyce,

I was talking to someone in my Lupus group and she has a little hard drive thingy. Can't remember what she said, maybe thumb drive or something, anyway she keeps it in her purse and whenever she goes to the doctor has them download her info and results in to it. That days stuff isn't there but she sets herself a reminder and gets another update 7 days later. She has all her results, doctor's notes, surgical notes, everything. It's unbelievable the scope of information she has about her disease. She is like me and sees multiple docs for multiple diseases. The thingy (if I get to technical let me know) plugs into her USB (I even know what that is!) port and downloads it to her computer. Then she goes over everything that has been tested or happened since she last looked and takes notes on anything she doesn't understand or is incorrect. She told me she has found allergy errors in

her records, test results that she never knew were ordered and actual mistakes. She's my hero of the day. So my new plan is to buy one of those thingy's (should that be a capital T) and start doing as she does. She warned me that some offices will try and stonewall you but if you insist they will do it and it only takes a second plus she tells them if they don't want to do that then she wants a copy of her ENTIRE file. I've seen mine and if hers is half as big the receptionist runs screaming and can't fill up her thingy fast enough. Has anyone else ever heard about the Thingy? I am pathetic when it comes to computer hardware. I am still looking for my ANY key and when I press ESC I am still sitting here sick. Have a great day everyone and laugh when you feel like crying. Cry and the cat will try and lick the salt off your cheeks. Yucky.

Sunny, PF '09, SLE/Sjogrens/ Arthritis '04, common sense deficiency '09, Idaho

From: Joyce T Rosenberg

Sent: Monday, May 11, 2009 9:51 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

Sunny

when the tests are done at the local hospital, a couple of days later, i go to medical records and request a copy, i am there anyway for rehab

my family doc gives me copies when i ask for them

i ask the resp techs for copies of the 6 min walk and pfts when they are complete

sometimes when checking out of the hospital, we have gotten copies of the results

when i see the pulmonary, i usually forget to ask for copies of test results done at Penn, but most labs are done locally

i do get annoyed when Penn does not send copies to my family doc

hope this helps

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund. org

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: More weirdness from my doctorsTo: Breathe-Support@ yahoogroups. comDate: Monday, May 4, 2009, 3:22 PM

Sher, do you keep a notebook, diary or folder of some kind. I have seen people at my oncologist that have things like that and now I am thinking I should start one of my own. I have typed up and printed a copy of all of my meds, dosages and times I take them. That is in my purse. I have also typed up a list of all of my diagnoses, when and by who to keep with it. I did the same thing with all my allergies or weird reactions to meds. To answer your question, I don't know. I used to be so independent but I think when I first got diagnosed with Lupus something in me gave up and I just let everyone else run everything, did what they said and put up with whatever came. Thanks to wonderful people like those in this "Air Family" I am taking control again. I am a fighter and always have been and nothing not Lupus, PF, CAN, no nothing is going to make me give up. I feel like

a fool because I have spent the last five years feeling sorry for myself because all of this hit in such a short time when I should have been aggressively looking for ways to feel better. Looking back Rich has been even more of a rock solid husband than I realized. And you know something else I realized because of all of you? I don't need antidepressants! What I needed was a firm kick in the backside, my Lord and to know others out there have the same problems and cope just fine. My new byword is "research". I will know everything there is to know about the many, many diseases I have and will know the best thing for them. I will not put up with being treated disrespectfully by another doctor either. Man, when I wuss out, I go full tilt. Thanks for the boot when I needed it Sher. Not a lot of people in this world care enough or have the courage enough to ask the tough questions and put the truth

out there where it belongs. I read Rich your posts and he is your number one fan. It's hard for him to say what needs said because I get all defensive and weepy so kudos to you my friend. God Bless you.

Sunny, PF '09, Lupus,Sjogrens/ Arthritis '04 Becoming like Mohammed Ali a little more every day, Idaho

From: Sher Bauman

Sent: Sunday, May 03, 2009 4:02 PM

To: Breathe-Support@ yahoogroups. com

Subject: Re: More weirdness from my doctors

Sunny.... as big a task as it is...YOU are your own advocate and figure-it-outer.

When you are given an Rx, that is the time to ask questions from doc AND/OR read the print out that comes with an Rx and that will give you lots of info. ALL of it may not apply to you specifically.

'Seek and ye shall find'....seek the reasons within yourself why you are so dependent on others telling you what to do... What if they're wrong??? You have to know yourself and what you're taking and why.

All the more important to find a pcp doc who can track most of your care. Then when you see ANOTHER doc, have HIM send notes to the pcp. It helps organize things but only you can keep track as carefully as you need to.

I am very careful and extremely organized and I still "went down" so to speak...became over medicated and got where I couldn't walk w/of help. I'm also the one who spotted the problem and saw my pcp and the meds were halved immediately and one other stopped entirely. I began to feel better.

You can do this Sunny, the rest of us here on the board do....

Keep on keepin' on.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

More weirdness from my doctors

Beth, Sher or whoever I have a serious concern about my GI doc. It didn't really hit me until today what he said yesterday. When he was telling me about the surgery and the surgeon he told me if I wanted the surgery not to mention my bowel problems, weight loss or the fact I have trouble eating. He also said "it would probably best if you didn't mention that you are anti-depressants. I was under the impression that you were supposed to tell your surgeon everything especially any meds you take but maybe since they might do it under twilight sleep it doesn't matter. Anyway the GI doc doesn't think the surgeon will operate if he knows I have been really sick with my intestines for the past 13 weeks and have lost over 45 pounds in that time. Does any of this sound right to you? I have always trusted Dr. Craig but after yesterday I am having serious doubts. When I told him about

not being able to have regular bowel movements he said "cause you don't eat. Eat then you'll then your bowels will move." When I told him how sick and in pain I get when I eat.... HE SHRUGGED! "One thing at a time. Let's get your lungs taken care of then if you still have a problem come back and we will talk about it then." WHAT!!!!!! Feed back from whoever please and yes I can sure pick 'em when it comes to doctors.

Sunny PF'09, CAN '09 AND ect... Idaho

May 12, 2009

You guys are too cute. The little thingy is sometimes called a Jump

Drive or Flash Drive.

and yes it plugs into the USB port. Sounds like a great idea!

Dyane Phoenix IPF 02

>

> From: rpickel1 (AT) msn (DOT) com rpickel1 (AT) msn (DOT) com>

> Subject: Re: More weirdness from my doctors

> To: Breathe-Support@ yahoogroups. com

> Date: Monday, May 4, 2009, 3:22 PM

>

> Sher, do you keep a notebook, diary or folder of some kind.ï¿½ I

have seen people at my oncologist that have things like that and now I

am thinking I should start one of my own.ï¿½ I have typed up and

printed a copy of all of my meds, dosages and times I take them.ï¿½

That is in my purse.ï¿½ I have also typed up a list of all of my

diagnoses, when and by who to keep with it.ï¿½ I did the same thing

with all my allergies or weird reactions to meds.ï¿½ To answer your

question, I don't know.ï¿½ I used to be so independent but I think

when I first got diagnosed with Lupus something in me gave up and I just

let everyone else run everything, did what they said and put up with

whatever came.ï¿½ Thanks to wonderful people like those in this " Air

Family " I am taking control again.ï¿½ I am a fighter and always have

been and nothing not Lupus, PF, CAN, no nothing is going to make me give

up.ï¿½ I feel like a fool because I have spent the last five years

feeling sorry for

> myself because all of this hit in such a short time when I should

have been aggressively looking for ways to feel better.ï¿½ Looking

back Rich has been even more of a rock solid husband than I

realized.ï¿½ And you know something else I realized because of all of

you?ï¿½ I don't need antidepressants!ï¿½ What I needed was a firm

kick in the backside, my Lord and to know others out there have the same

problems and cope just fine.ï¿½ My new byword is " research " .ï¿½ I

will know everything there is to know about the many, many diseases I

have and will know the best thing for them.ï¿½ I will not put up with

being treated disrespectfully by another doctor either.ï¿½ Man, when

I wuss out, I go full tilt.ï¿½ Thanks for the boot when I needed it

Sher.ï¿½ Not a lot of people in this world care enough or have the

courage enough to ask the tough questions and put the truth out there

where it belongs.ï¿½ I read Rich your posts and he is your number one

fan.ï¿½ It's hard for him

> to say what needs said because I get all defensive and weepy so kudos

to you my friend. God Bless you.

> ï¿½

> Sunny, PF '09, Lupus,Sjogrens/ Arthritis '04 Becoming like Mohammed

Ali a little more every day, Idaho

>

> From: Sher Bauman

> Sent: Sunday, May 03, 2009 4:02 PM

> To: Breathe-Support@ yahoogroups. com

> Subject: Re: More weirdness from my doctors

>

> Sunny.... as big a task as it is...YOU are your own advocate and

figure-it-outer.

> When you are given an Rx, that is the time to ask questions from

docï¿½AND/OR read the print out that comes with an Rx and that will

give you lots of info. ALL of it may not apply to you specifically.

> 'Seek and ye shall find'....seek the reasons within yourself why you

are so dependent on others telling you what to do... What if they're

wrong??? You have to know yourself and what you're taking and why.

> All the more important to find a pcp doc who can track most of your

care. Then when you see ANOTHER doc, have HIM send notes to the

pcp.ï¿½ It helps organize things but only you can keep track as

carefully as you need to.

> I am very careful and extremely organized and I still " went down " so

to speak...became over medicated and got where I couldn't walk w/of

help.ï¿½ I'm also the one who spotted the problem and saw my pcp and

the meds were halved immediately and one other stopped entirely.ï¿½ I

began to feel better.

> You can do this Sunny, the rest of us here on the board do....

> Keep on keepin' on.

> ï¿½

> MamaSher; 70,ï¿½ IPF 3-06, OR.ï¿½ï¿½

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

> More weirdness from my doctors

>

> Beth, Sher or whoever I have a serious concern about my GI

doc.ï¿½ It didn't really hit me until today what he said

yesterday.ï¿½ When he was telling me about the surgery and the

surgeon he told me if I wanted the surgery not to mention my bowel

problems, weight loss or the fact I have trouble eating.ï¿½ He also

said " it would probably best if you didn't mention that you are

anti-depressants.ï¿½ I was under the impression that you were

supposed to tell your surgeon everything especially any meds you take

but maybe since they might do it under twilight sleep it doesn't

matter.ï¿½ Anyway the GI doc doesn't think the surgeon will operate

if he knows I have been really sick with my intestines for the past 13

weeks and have lost over 45 pounds in that time.ï¿½ Does any of this

sound right to you?ï¿½ I have always trusted Dr. Craig but after

yesterday I am having serious doubts.ï¿½ When I told him about not

being able to have regular bowel movements he said

> " cause you don't eat. Eat then you'll then your bowels will

move. " ï¿½ When I told him how sick and in pain I get when I eat....

HE SHRUGGED!ï¿½ " One thing at a time. Let's get your lungs taken care

of then if you still have a problem come back and we will talk about it

then. " ï¿½ WHAT!!!!!!ï¿½ Feed back from whoever please and yes I

can sure pick 'em when it comes to doctors.

> ï¿½

> Sunny PF'09, CAN '09 AND ect... Idaho

>

May 12, 2009