Re: Hi I am new to the group

[Guest guest]

So glad the board has helped you. That's what we do, is help each other.

Stay with us, tell us in what State you live, when you were dx(diagnosed) and how.

Do you have good support for you?

I'm so sorry to hear about your mom. It does seem we hear more and more about familial PF.

God Bless you,

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi I am new to the group

I have been reading the message board for the last couple of weeks and it has helped to put my mind at rest. My mother died 15 years ago, she had PF and only lived for 2 years after she found out about it. When my Dr. told me I had PF all I could think of was that I only had a couple of years and they were not going to be good ones. I just wanted to say the message board has been a lifesaver for me.

[Guest guest]

So glad the board has helped you. That's what we do, is help each other.

Stay with us, tell us in what State you live, when you were dx(diagnosed) and how.

Do you have good support for you?

I'm so sorry to hear about your mom. It does seem we hear more and more about familial PF.

God Bless you,

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi I am new to the group

I have been reading the message board for the last couple of weeks and it has helped to put my mind at rest. My mother died 15 years ago, she had PF and only lived for 2 years after she found out about it. When my Dr. told me I had PF all I could think of was that I only had a couple of years and they were not going to be good ones. I just wanted to say the message board has been a lifesaver for me.

[Guest guest]

I am from Nova Scotia Canada and was diagnosed a few months ago but I have had

PF for more than 2 years. X-rays that were taken 2 years ago shows scarring but

my Dr. didn't tell me about it untill I had to see him this winter. I had a

cough that I couldn't get rid of and the least little thing caused me to be out

of breath. My husband had been helping me deal with this but I haven't told my

children yet.

>

> So glad the board has helped you. That's what we do, is help each other.

> Stay with us, tell us in what State you live, when you were dx(diagnosed) and

how.

> Do you have good support for you?

> I'm so sorry to hear about your mom. It does seem we hear more and more about

familial PF.

> God Bless you,

> MamaSher; 70, IPF 3-06, OR.

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

> Hi I am new to the group

>

>

>

>

>

> I have been reading the message board for the last couple of weeks and it

has helped to put my mind at rest. My mother died 15 years ago, she had PF and

only lived for 2 years after she found out about it. When my Dr. told me I had

PF all I could think of was that I only had a couple of years and they were not

going to be good ones. I just wanted to say the message board has been a

lifesaver for me.

>

[Guest guest]

First...what is your name?

I'm glad to hear your husband is support for you. How old are your children and how many do you have?

I was dx March, 2006 and have remained fairly stable since. I've had two dips of progression and I'm on O2 during the day, if needed and always at night.

Others will answer you too. Weekends are sometimes slow on the board.

Check out the Files section on the web site and there are even photos to look at so you who's who....

I live in Oregon but I think Canada is so beautiful.

Later....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi I am new to the group> > > > > > I have been reading the message board for the last couple of weeks and it has helped to put my mind at rest. My mother died 15 years ago, she had PF and only lived for 2 years after she found out about it. When my Dr. told me I had PF all I could think of was that I only had a couple of years and they were not going to be good ones. I just wanted to say the message board has been a lifesaver for me.>

[Guest guest]

-Hi, my nane is Hughena and I have 2 children, a girl and a boy. They are both

married and my daughter has 3 children. My son lives in Alberta so we don't see

him much. We are hoping to go out there this summer. I am still working so it

will depend if I can get the vacation time. Thanks for the suggestion about the

files I will definately check it out. Week ends are about the only time I get

on the computer because when I get home from work I haven't got the energy to do

anything.

-- In Breathe-Support , " Sher Bauman " wrote:

>

> First...what is your name?

> I'm glad to hear your husband is support for you. How old are your children

and how many do you have?

> I was dx March, 2006 and have remained fairly stable since. I've had two dips

of progression and I'm on O2 during the day, if needed and always at night.

> Others will answer you too. Weekends are sometimes slow on the board.

> Check out the Files section on the web site and there are even photos to look

at so you who's who....

> I live in Oregon but I think Canada is so beautiful.

> Later....

> MamaSher; 70, IPF 3-06, OR.

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

> Hi I am new to the group

> >

> >

> >

> >

> >

> > I have been reading the message board for the last couple of weeks and it

has helped to put my mind at rest. My mother died 15 years ago, she had PF and

only lived for 2 years after she found out about it. When my Dr. told me I had

PF all I could think of was that I only had a couple of years and they were not

going to be good ones. I just wanted to say the message board has been a

lifesaver for me.

> >

>

[Guest guest]

Hi Hughena and welcome! I'm sorry you have reason to need a group like this but since you do I'm awfully glad you found us. My name is Beth and I was diagnosed with NSIP (non-specific interstitial pneumonitis) nearly 3 years ago. I'm on oxygen all the time and am still fairly active. I'm 49.

My Dad's family is ish and came to the US from Scotland by way of Nova Scotia. In fact I still have many cousins in Antigonish in northern Nova Scotia.

Again, welcome. Please feel free to join in or just read or any combination that makes you feel comfortable.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Sunday, May 3, 2009 2:10:31 PMSubject: Re: Hi I am new to the group

-Hi, my nane is Hughena and I have 2 children, a girl and a boy. They are both married and my daughter has 3 children. My son lives in Alberta so we don't see him much. We are hoping to go out there this summer. I am still working so it will depend if I can get the vacation time. Thanks for the suggestion about the files I will definately check it out. Week ends are about the only time I get on the computer because when I get home from work I haven't got the energy to do anything.-- In Breathe-Support@ yahoogroups. com, "Sher Bauman" wrote:>> First...what is your name?> I'm glad to hear your husband is support for you. How old are your children and how many do you have?> I was dx March, 2006 and have remained fairly stable since. I've had two dips of progression and I'm

on O2 during the day, if needed and always at night.> Others will answer you too. Weekends are sometimes slow on the board.> Check out the Files section on the web site and there are even photos to look at so you who's who....> I live in Oregon but I think Canada is so beautiful.> Later....> MamaSher; 70, IPF 3-06, OR. > Nasturtiums> Don't fret about tomorrow, God is already there!> > Hi I am new to the group> > > > > > > > > > > > I have been reading the message board for the last couple of weeks and it has helped to put my mind at rest. My mother died 15 years ago, she had PF and only lived for 2 years after she found out about it. When my Dr. told me I had PF all I could think of was that I only had a couple of years and they were not going to be good ones. I just wanted to say the message board has been a lifesaver for me.>

>>

[Guest guest]

welcome aboard, sorry you need us, glad you found us, as peggy says: "there is no expiration date on your behind"

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Hi I am new to the groupTo: Breathe-Support Date: Saturday, May 2, 2009, 3:31 PM

I have been reading the message board for the last couple of weeks and it has helped to put my mind at rest. My mother died 15 years ago, she had PF and only lived for 2 years after she found out about it. When my Dr. told me I had PF all I could think of was that I only had a couple of years and they were not going to be good ones. I just wanted to say the message board has been a lifesaver for me.

[Guest guest]

Hughena.... I think everyone has that instant reaction that we're going to die before the month is over and I'm sure because of your mother's death it would be even more fearful.

You are in a good place here. Lots of support and always someone to answer a question.

I hope you are seeing a good pulmonologist and taking questions to him so you are learning more about PF.

Apparently you are not using O2....

What type of work do you do?

Nice to have you with us....

God Bless.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi I am new to the group> > > > > > > > > > > > I have been reading the message board for the last couple of weeks and it has helped to put my mind at rest. My mother died 15 years ago, she had PF and only lived for 2 years after she found out about it. When my Dr. told me I had PF all I could think of was that I only had a couple of years and they were not going to be good ones. I just wanted to say the message board has been a lifesaver for me.> >>

[Guest guest]

-Hi, No I don't have to use 02 as I am alright unless I exert myself.

I work as a counsellor with mentally challanged adults in a group home. So

far I have been able to do my work but it takes a bit longer than before and I

need lots of rest breaks. I am lucky that I work with a good group of workers

and they don't put a lot of demands on me.

I have some pulmonary tests on the 27th and I see the Dr. on June 12th. He

thinks I would be a good canidate for expermental tests on a new drug at our

hospital. He says it appears to slow down the scarring so we will have to see.

-- In Breathe-Support , " Sher Bauman " wrote:

>

> Hughena.... I think everyone has that instant reaction that we're going to

die before the month is over and I'm sure because of your mother's death it

would be even more fearful.

> You are in a good place here. Lots of support and always someone to answer a

question.

> I hope you are seeing a good pulmonologist and taking questions to him so you

are learning more about PF.

> Apparently you are not using O2....

> What type of work do you do?

> Nice to have you with us....

> God Bless.

>

>

>

>

> MamaSher; 70, IPF 3-06, OR.

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

> Hi I am new to the group

> > >

> > >

> > >

> > >

> > >

> > > I have been reading the message board for the last couple of weeks and

it has helped to put my mind at rest. My mother died 15 years ago, she had PF

and only lived for 2 years after she found out about it. When my Dr. told me I

had PF all I could think of was that I only had a couple of years and they were

not going to be good ones. I just wanted to say the message board has been a

lifesaver for me.

> > >

> >

>

[Guest guest]

What you just said is contradictory. I am " alright unless I exert

myself. " That would indicate you do need oxygen when you exert yourself.

Have you checked your saturation under heavy exertion?

> > > >

> > > > So glad the board has helped you. That's what we do, is help

each other.

> > > > Stay with us, tell us in what State you live, when you were

dx(diagnosed) and how.

> > > > Do you have good support for you?

> > > > I'm so sorry to hear about your mom. It does seem we hear more

and more about familial PF.

> > > > God Bless you,

> > > > MamaSher; 70, IPF 3-06, OR.

> > > > Nasturtiums

> > > > Don't fret about tomorrow, God is already there!

> > > >

> > > > Hi I am new to the group

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > I have been reading the message board for the last couple of

weeks and it has helped to put my mind at rest. My mother died 15 years

ago, she had PF and only lived for 2 years after she found out about it.

When my Dr. told me I had PF all I could think of was that I only had a

couple of years and they were not going to be good ones. I just wanted

to say the message board has been a lifesaver for me.

> > > >

> > >

> >

>

[Guest guest]

What you just said is contradictory. I am " alright unless I exert

myself. " That would indicate you do need oxygen when you exert yourself.

Have you checked your saturation under heavy exertion?

> > > >

> > > > So glad the board has helped you. That's what we do, is help

each other.

> > > > Stay with us, tell us in what State you live, when you were

dx(diagnosed) and how.

> > > > Do you have good support for you?

> > > > I'm so sorry to hear about your mom. It does seem we hear more

and more about familial PF.

> > > > God Bless you,

> > > > MamaSher; 70, IPF 3-06, OR.

> > > > Nasturtiums

> > > > Don't fret about tomorrow, God is already there!

> > > >

> > > > Hi I am new to the group

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > I have been reading the message board for the last couple of

weeks and it has helped to put my mind at rest. My mother died 15 years

ago, she had PF and only lived for 2 years after she found out about it.

When my Dr. told me I had PF all I could think of was that I only had a

couple of years and they were not going to be good ones. I just wanted

to say the message board has been a lifesaver for me.

> > > >

> > >

> >

>

[Guest guest]

Diane

Where have you been hiding? Well, most importantly, how are you doing?

> > > >

> > > > So glad the board has helped you. That's what we do, is help

each other.

> > > > Stay with us, tell us in what State you live, when you were

dx(diagnosed) and how.

> > > > Do you have good support for you?

> > > > I'm so sorry to hear about your mom. It does seem we hear more

and more about familial PF.

> > > > God Bless you,

> > > > MamaSher; 70, IPF 3-06, OR.

> > > > Nasturtiums

> > > > Don't fret about tomorrow, God is already there!

> > > >

> > > > Hi I am new to the group

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > I have been reading the message board for the last couple of

weeks and it has helped to put my mind at rest. My mother died 15 years

ago, she had PF and only lived for 2 years after she found out about it.

When my Dr. told me I had PF all I could think of was that I only had a

couple of years and they were not going to be good ones. I just wanted

to say the message board has been a lifesaver for me.

> > > >

> > >

> >

>

>

>

>

>

>

__________________________________________________________________

> Looking for the perfect gift? Give the gift of Flickr!

>

> http://www.flickr.com/gift/

>

[Guest guest]

Diane

Sorry this one didn't seem to go as well. Did they have an explanation?

Just sometimes goes better than others or the accumulation? Or perhaps

you didn't need another one yet? Just curious since the pulse is used so

little in the US and you're the only one I personally know who has

gotten it.

We're moved but far from unpacked. I'm doing fine. Some progression of

the disease but nothing causing me any problems at this time.

> > > > >

> > > > > So glad the board has helped you. That's what we do, is help

> each other.

> > > > > Stay with us, tell us in what State you live, when you were

> dx(diagnosed) and how.

> > > > > Do you have good support for you?

> > > > > I'm so sorry to hear about your mom. It does seem we hear more

> and more about familial PF.

> > > > > God Bless you,

> > > > > MamaSher; 70, IPF 3-06, OR.

> > > > > Nasturtiums

> > > > > Don't fret about tomorrow, God is already there!

> > > > >

> > > > > Hi I am new to the group

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > I have been reading the message board for the last couple of

> weeks and it has helped to put my mind at rest. My mother died 15

years

> ago, she had PF and only lived for 2 years after she found out about

it.

> When my Dr. told me I had PF all I could think of was that I only had

a

> couple of years and they were not going to be good ones. I just wanted

> to say the message board has been a lifesaver for me.

> > > > >

> > > >

> > >

> >

> >

> >

> >

> >

> >

> ____________ _________ _________ _________ _________ _________ _

> > Looking for the perfect gift? Give the gift of Flickr!

> >

> > http://www.flickr. com/gift/

> >

>

>

>

>

>

>

__________________________________________________________________

> Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark

your favourite sites. Download it now

> http://ca.toolbar.yahoo.com.

>

[Guest guest]

Diane

Sorry this one didn't seem to go as well. Did they have an explanation?

Just sometimes goes better than others or the accumulation? Or perhaps

you didn't need another one yet? Just curious since the pulse is used so

little in the US and you're the only one I personally know who has

gotten it.

We're moved but far from unpacked. I'm doing fine. Some progression of

the disease but nothing causing me any problems at this time.

> > > > >

> > > > > So glad the board has helped you. That's what we do, is help

> each other.

> > > > > Stay with us, tell us in what State you live, when you were

> dx(diagnosed) and how.

> > > > > Do you have good support for you?

> > > > > I'm so sorry to hear about your mom. It does seem we hear more

> and more about familial PF.

> > > > > God Bless you,

> > > > > MamaSher; 70, IPF 3-06, OR.

> > > > > Nasturtiums

> > > > > Don't fret about tomorrow, God is already there!

> > > > >

> > > > > Hi I am new to the group

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > I have been reading the message board for the last couple of

> weeks and it has helped to put my mind at rest. My mother died 15

years

> ago, she had PF and only lived for 2 years after she found out about

it.

> When my Dr. told me I had PF all I could think of was that I only had

a

> couple of years and they were not going to be good ones. I just wanted

> to say the message board has been a lifesaver for me.

> > > > >

> > > >

> > >

> >

> >

> >

> >

> >

> >

> ____________ _________ _________ _________ _________ _________ _

> > Looking for the perfect gift? Give the gift of Flickr!

> >

> > http://www.flickr. com/gift/

> >

>

>

>

>

>

>

__________________________________________________________________

> Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark

your favourite sites. Download it now

> http://ca.toolbar.yahoo.com.

>