Guest guest Posted May 18, 2009 Report Share Posted May 18, 2009 PGales when first prescribed Cellcept, i think it was filled without any problem then after i changed insurance companies, it took several weeks to get it filled insurance company needed prior authorization from Doc, lots of phone calls, emails, waiting on hold, it was finally approved and i started receiving it very expensive medicare prescriptions: mepron, the antibiotic that i take with it, put me in the donut hole cellcept put me in the catastrophic stage talk to your doc, let her know about the insurance company Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: CytaxanTo: Breathe-Support Date: Monday, May 18, 2009, 12:23 PM Don't you LOVE having the insurance company tell you what you can andcannot have? I try very hard not to hate these idiots since that onlyhurts me, but I wish each and everyone of them should spend a week inour shoes!Dyane Phoenix IPF 02>> I have taking cytaxan many of time and I have not had any side effectsat all. It did good over a period of time but the last time that I hadit which was last year. The test show that it really did not help me fora the lungs but my coughing did stop for a while. My doctor said that Ihave taking my limite of it. I only had it through IV not pills now mydoctor want me to try Cellcept (mycophenolate) but my ins. don't what topay for it.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2009 Report Share Posted May 18, 2009 Pink, I did not remember you taking Mepron before.Isn't it the ugliest and most nasty tasting liquid med! I used to take it when the Prednisone daily dosage was higher than 10mg. Now I'm no longer taking it. I still take Imuran ( 50mg) with the Prednisone (10mg). You're right about the Mepron cost...it sent me into the donut hole after just two months!!!. How are you? How's Jerry? Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Joyce T Rosenberg wrote: PGales when first prescribed Cellcept, i think it was filled without any problem then after i changed insurance companies, it took several weeks to get it filled insurance company needed prior authorization from Doc, lots of phone calls, emails, waiting on hold, it was finally approved and i started receiving it very expensive medicare prescriptions: mepron, the antibiotic that i take with it, put me in the donut hole cellcept put me in the catastrophic stage talk to your doc, let her know about the insurance company Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org From: dyanebillings <dyane.billings (AT) ball-mcgraw (DOT) com> Subject: Re: Cytaxan To: Breathe-Support Date: Monday, May 18, 2009, 12:23 PM Don't you LOVE having the insurance company tell you what you can and cannot have? I try very hard not to hate these idiots since that only hurts me, but I wish each and everyone of them should spend a week in our shoes! Dyane Phoenix IPF 02 > > I have taking cytaxan many of time and I have not had any side effects at all. It did good over a period of time but the last time that I had it which was last year. The test show that it really did not help me for a the lungs but my coughing did stop for a while. My doctor said that I have taking my limite of it. I only had it through IV not pills now my doctor want me to try Cellcept (mycophenolate) but my ins. don't what to pay for it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 i've been on Mepron since december, shortly after starting Cellcept the doc described the taste the way you do actually, the taste reminds me of bubble gum, so i don't mind taking it with the increased prednisone, followed by cellcept and the decrease in prednisone (down to 10 mgs daily and holding) i am doing ok they changed my diagnosis -- probably for insurance purposes -- because IPF is not supposed to rrespond to any treatment -- my disease is responsive the new diagnosis is idiopathic fibrosing alveolitis -- when i looked it up -- it was just another way of saying IPF -- the code numbers are different, so i guess that's why they changed it jerry is doing very well how is mike and how is your daughter doing with her new situation? Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: CytaxanTo: Breathe-Support Date: Monday, May 18, 2009, 11:21 PM Pink, I did not remember you taking Mepron before.Isn't it the ugliest and most nasty tasting liquid med! I used to take it whenthe Prednisone daily dosage was higher than 10mg. Now I'm no longer taking it. I still takeImuran ( 50mg) with the Prednisone (10mg). You're right about the Mepron cost...it sent me into the donut holeafter just two months!!!.How are you? How's Jerry? Z 65, fibriotic NSIP/05/PA And “mild†PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion†Bob Marley Vinca Minor-periwinkle is my flower Joyce T Rosenberg wrote: PGales when first prescribed Cellcept, i think it was filled without any problem then after i changed insurance companies, it took several weeks to get it filled insurance company needed prior authorization from Doc, lots of phone calls, emails, waiting on hold, it was finally approved and i started receiving it very expensive medicare prescriptions: mepron, the antibiotic that i take with it, put me in the donut hole cellcept put me in the catastrophic stage talk to your doc, let her know about the insurance company Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: dyanebillings <dyane.billings@ ball-mcgraw. com>Subject: Re: CytaxanTo: Breathe-Support@ yahoogroups. comDate: Monday, May 18, 2009, 12:23 PM Don't you LOVE having the insurance company tell you what you can andcannot have? I try very hard not to hate these idiots since that onlyhurts me, but I wish each and everyone of them should spend a week inour shoes!Dyane Phoenix IPF 02>> I have taking cytaxan many of time and I have not had any side effectsat all. It did good over a period of time but the last time that I hadit which was last year. The test show that it really did not help me fora the lungs but my coughing did stop for a while. My doctor said that Ihave taking my limite of it. I only had it through IV not pills now mydoctor want me to try Cellcept (mycophenolate) but my ins. don't what topay for it.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Pink. Mike is doing fine...golfing as I write! and Kurt are going to couples counseling...I hope that someday they may get back together. I don't see that happening soon...she's so hurt! He's moved into his folks' house for now...he'll probably find an apartment. will not give up the house and he doen's seem to want her to either. It's such an unhappy feeling all around!!! Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild†PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara     “I’m gonna be iron like a lion in Zionâ€Â Bob Marley Vinca Minor-periwinkle is my flower   Joyce T Rosenberg wrote: i've been on Mepron since december, shortly after starting Cellcept the doc described the taste the way you do actually, the taste reminds me of bubble gum, so i don't mind taking it  with the increased prednisone, followed by cellcept and the decrease in prednisone (down to 10 mgs daily and holding) i am doing ok  they changed my diagnosis -- probably for insurance purposes -- because IPF is not supposed to rrespond to any treatment -- my disease is responsive  the new diagnosis is idiopathic fibrosing alveolitis -- when i looked it up -- it was just another way of saying IPF -- the code numbers are different, so i guess that's why they changed it  jerry is doing very well how is mike  and how is your daughter doing with her new situation?  Pink Joyce (IPF 3/06)  IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org From: dyanebillings <dyane.billings@ ball-mcgraw. com> Subject: Re: Cytaxan To: Breathe-Support@ yahoogroups. com Date: Monday, May 18, 2009, 12:23 PM Don't you LOVE having the insurance company tell you what you can and cannot have? I try very hard not to hate these idiots since that only hurts me, but I wish each and everyone of them should spend a week in our shoes! Dyane Phoenix IPF 02 > > I have taking cytaxan many of time and I have not had any side effects at all. It did good over a period of time but the last time that I had it which was last year. The test show that it really did not help me for a the lungs but my coughing did stop for a while. My doctor said that I have taking my limite of it. I only had it through IV not pills now my doctor want me to try Cellcept (mycophenolate) but my ins. don't what to pay for it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Pink. Mike is doing fine...golfing as I write! and Kurt are going to couples counseling...I hope that someday they may get back together. I don't see that happening soon...she's so hurt! He's moved into his folks' house for now...he'll probably find an apartment. will not give up the house and he doen's seem to want her to either. It's such an unhappy feeling all around!!! Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild†PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara     “I’m gonna be iron like a lion in Zionâ€Â Bob Marley Vinca Minor-periwinkle is my flower   Joyce T Rosenberg wrote: i've been on Mepron since december, shortly after starting Cellcept the doc described the taste the way you do actually, the taste reminds me of bubble gum, so i don't mind taking it  with the increased prednisone, followed by cellcept and the decrease in prednisone (down to 10 mgs daily and holding) i am doing ok  they changed my diagnosis -- probably for insurance purposes -- because IPF is not supposed to rrespond to any treatment -- my disease is responsive  the new diagnosis is idiopathic fibrosing alveolitis -- when i looked it up -- it was just another way of saying IPF -- the code numbers are different, so i guess that's why they changed it  jerry is doing very well how is mike  and how is your daughter doing with her new situation?  Pink Joyce (IPF 3/06)  IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org From: dyanebillings <dyane.billings@ ball-mcgraw. com> Subject: Re: Cytaxan To: Breathe-Support@ yahoogroups. com Date: Monday, May 18, 2009, 12:23 PM Don't you LOVE having the insurance company tell you what you can and cannot have? I try very hard not to hate these idiots since that only hurts me, but I wish each and everyone of them should spend a week in our shoes! Dyane Phoenix IPF 02 > > I have taking cytaxan many of time and I have not had any side effects at all. It did good over a period of time but the last time that I had it which was last year. The test show that it really did not help me for a the lungs but my coughing did stop for a while. My doctor said that I have taking my limite of it. I only had it through IV not pills now my doctor want me to try Cellcept (mycophenolate) but my ins. don't what to pay for it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009  ...I'm so sorry about and Kurt. Even tho' I wrote you before I still feel sad about their little family. I am glad that she is remaining in their home. Let's hope he may return .... It hurts the whole family. I know. I've been there. I still miss my ex son-in-law. He was a cheater too but there were many good things about him that I miss. "Our" relationship was broken too. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: CytaxanTo: Breathe-Support@ yahoogroups. comDate: Monday, May 18, 2009, 12:23 PM Don't you LOVE having the insurance company tell you what you can andcannot have? I try very hard not to hate these idiots since that onlyhurts me, but I wish each and everyone of them should spend a week inour shoes!Dyane Phoenix IPF 02>> I have taking cytaxan many of time and I have not had any side effectsat all. It did good over a period of time but the last time that I hadit which was last year. The test show that it really did not help me fora the lungs but my coughing did stop for a while. My doctor said that Ihave taking my limite of it. I only had it through IV not pills now mydoctor want me to try Cellcept (mycophenolate) but my ins. don't what topay for it.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009  ...I'm so sorry about and Kurt. Even tho' I wrote you before I still feel sad about their little family. I am glad that she is remaining in their home. Let's hope he may return .... It hurts the whole family. I know. I've been there. I still miss my ex son-in-law. He was a cheater too but there were many good things about him that I miss. "Our" relationship was broken too. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: CytaxanTo: Breathe-Support@ yahoogroups. comDate: Monday, May 18, 2009, 12:23 PM Don't you LOVE having the insurance company tell you what you can andcannot have? I try very hard not to hate these idiots since that onlyhurts me, but I wish each and everyone of them should spend a week inour shoes!Dyane Phoenix IPF 02>> I have taking cytaxan many of time and I have not had any side effectsat all. It did good over a period of time but the last time that I hadit which was last year. The test show that it really did not help me fora the lungs but my coughing did stop for a while. My doctor said that Ihave taking my limite of it. I only had it through IV not pills now mydoctor want me to try Cellcept (mycophenolate) but my ins. don't what topay for it.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 glad Mike is doing well if the counseling doesn't help them get back together, it should help them adjust into their new lives things will improve, it takes time Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: CytaxanTo: Breathe-Support Date: Tuesday, May 19, 2009, 5:44 PM Pink. Mike is doing fine...golfing as I write! and Kurt are going to couples counseling.. .I hope that someday they mayget back together. I don't see that happening soon...she's so hurt!He's moved into his folks' house for now...he'll probably find an apartment. will not give up the house and he doen's seem to want her to either.It's such an unhappy feeling all around!!! Z 65, fibriotic NSIP/05/PA And “mild†PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion†Bob Marley Vinca Minor-periwinkle is my flower Joyce T Rosenberg wrote: i've been on Mepron since december, shortly after starting Cellcept the doc described the taste the way you do actually, the taste reminds me of bubble gum, so i don't mind taking it with the increased prednisone, followed by cellcept and the decrease in prednisone (down to 10 mgs daily and holding) i am doing ok they changed my diagnosis -- probably for insurance purposes -- because IPF is not supposed to rrespond to any treatment -- my disease is responsive the new diagnosis is idiopathic fibrosing alveolitis -- when i looked it up -- it was just another way of saying IPF -- the code numbers are different, so i guess that's why they changed it jerry is doing very well how is mike and how is your daughter doing with her new situation? Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: dyanebillings <dyane.billings@ ball-mcgraw. com>Subject: Re: CytaxanTo: Breathe-Support@ yahoogroups. comDate: Monday, May 18, 2009, 12:23 PM Don't you LOVE having the insurance company tell you what you can andcannot have? I try very hard not to hate these idiots since that onlyhurts me, but I wish each and everyone of them should spend a week inour shoes!Dyane Phoenix IPF 02>> I have taking cytaxan many of time and I have not had any side effectsat all. It did good over a period of time but the last time that I hadit which was last year. The test show that it really did not help me fora the lungs but my coughing did stop for a while. My doctor said that Ihave taking my limite of it. I only had it through IV not pills now mydoctor want me to try Cellcept (mycophenolate) but my ins. don't what topay for it.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 glad Mike is doing well if the counseling doesn't help them get back together, it should help them adjust into their new lives things will improve, it takes time Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: CytaxanTo: Breathe-Support Date: Tuesday, May 19, 2009, 5:44 PM Pink. Mike is doing fine...golfing as I write! and Kurt are going to couples counseling.. .I hope that someday they mayget back together. I don't see that happening soon...she's so hurt!He's moved into his folks' house for now...he'll probably find an apartment. will not give up the house and he doen's seem to want her to either.It's such an unhappy feeling all around!!! Z 65, fibriotic NSIP/05/PA And “mild†PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion†Bob Marley Vinca Minor-periwinkle is my flower Joyce T Rosenberg wrote: i've been on Mepron since december, shortly after starting Cellcept the doc described the taste the way you do actually, the taste reminds me of bubble gum, so i don't mind taking it with the increased prednisone, followed by cellcept and the decrease in prednisone (down to 10 mgs daily and holding) i am doing ok they changed my diagnosis -- probably for insurance purposes -- because IPF is not supposed to rrespond to any treatment -- my disease is responsive the new diagnosis is idiopathic fibrosing alveolitis -- when i looked it up -- it was just another way of saying IPF -- the code numbers are different, so i guess that's why they changed it jerry is doing very well how is mike and how is your daughter doing with her new situation? Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: dyanebillings <dyane.billings@ ball-mcgraw. com>Subject: Re: CytaxanTo: Breathe-Support@ yahoogroups. comDate: Monday, May 18, 2009, 12:23 PM Don't you LOVE having the insurance company tell you what you can andcannot have? I try very hard not to hate these idiots since that onlyhurts me, but I wish each and everyone of them should spend a week inour shoes!Dyane Phoenix IPF 02>> I have taking cytaxan many of time and I have not had any side effectsat all. It did good over a period of time but the last time that I hadit which was last year. The test show that it really did not help me fora the lungs but my coughing did stop for a while. My doctor said that Ihave taking my limite of it. I only had it through IV not pills now mydoctor want me to try Cellcept (mycophenolate) but my ins. don't what topay for it.> Quote Link to comment Share on other sites More sharing options...
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