Guest guest Posted May 17, 2009 Report Share Posted May 17, 2009 , to be honest this is all so scary and everything is happening so fast now. For the past two days I have had horrible sweats even when sitting still. I just suddenly start sweating profusely. My pulse hits 186 and my O2 drops below 86. The on call person at the local urgency care center said I was diaphoretic and if it continued or I felt nauseous or had chest pain arm pain or shoulder pain???? to go directly to the ER. So far it's just the disgusting sweating but I feel like I can't take one more kick right now. Am I the only one who feels that way? Having all of the different diseases that have developed over the last four years was scary enough now they are acting like my heart could go whacko because my pulse rate is so high because my heart is trying to distribute oxygen because my lungs are 60% scarred because my stomach acid is going into my lungs because, because because.... Sorry, I guess I am as cranky as a 10 month pregnant woman. That is the funny thing. I never had edema when I was pregnant with any of our kids but now my feet, ankles and hands look like cartoon figures. I keep praying for a breather. Just a few days with no new symptoms or scary news. I got it! I won't go to the doctor and he won't be able to tell be bad news!? Nuts! I know all of you are saying WHAT? I'm kidding. If I didn't spend thousands of my insurance companies dollars at specialist every week what would they do with all that money. I am having blood work done tomorrow. Doc gave it to me last week but I was scared to have it done because I didn't want any more bad news. The test is Beta Naturetic Peptide and a whole slew of other things I don't know what are like lipid, cmpa, ld , phos, ric, cbcp2,t4,t6,tsh, inw17, igec, ediol, proges, testot, dheas. I wish it wasn't all code so I would a least know what he's looking for. Hmmm, does anyone know of a web site where you can look up lab codes. If you do please let me know as I am tired of being in the dark and being a passive observer when it comes to my medical care. Yes, I do know that it can move very fast and I also know that it took 2 years for pulmo jerk to figure it out so I am sure I have had IPF for at least that amount of time. I do appreciate your suggestions and your care. If anyone has any thoughts on how I can stay healthier longer I am wide open to suggestions. But shoot, I hate giving up my Dr. Pepper. Choices: clown shoes and soda pop or regular shoes and water? I vote water. Sunny PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, Barrett's Disease '08, Hyperthyroid '08, CAN "09, Idaho From: hunnybunnybinky Sent: Saturday, May 16, 2009 6:42 PM To: Breathe-Support Subject: Re: Fat feet and hands Hi Sunny,I'm sorry your swelling hasn't gone down. It sometimes takes a few days for diuretics like furosemide to start working. Be sure in the mean time try to only drink when you are thirsty and stay away from salt, sodium, and sodas as much as possible. Being the doctor feels it is heart related it is very important to take it seriously. When you retain fluids this way it can be very rough on your heart. And the swelling ain't fun. I've had swelling like this many times and haven't been diagnosed with an auto immune disease as of yet.The drug he prescribed is a diuretic commonly used to treat "congestive heart failure." There are many other things that could have caused the swelling but anytime you are retaining fluid like this it usually leads back to the heart whether it be the cause of fluid retention or the result of the fluid retention. Sometime if I get so swollen that I'm in pain I will get my O2 and walk on the treadmill to work up a sweat. It actually worked for me. Keep in mind that although you've been on prednisone for a while with little negative side effects it is possible to develope them long after starting the medication. Also, keep in mind your body went through quite an ordeal when you were without prednisone last weekend. I don't mean to scare you but, as to PF being a slowly progressive disease: It truely depends on the patient. I do pray you have a slow progression. There are some of us whom experience much faster progression than others. About Your Heart: Our heart and lungs work together to deliver oxygen to our blood and on to our other organs. When our lungs are scarred like this the right side of our heart works harder and faster to make up for the work our lungs are unable to do. It is never "too early" for the heart to be effected by PF. This is why it is so important for us to use our oxygen and medcications as they are prescribed. By keeping our O2 saturation up helps to take some of the burden off our lungs and our heart. I'll keep you in my prayers! 33 FLIPF dx 1/06>> Good day to everyone in my "Air Family",> > I am finally feeling a little better now that I am back on my prednisone. The lfurosemide doesn't seem to be taking the much of the swelling out of my feet or hands but maybe it takes a while to start working. I have only been on it a few days. Primary seems pretty confident that this is heart related and didn't want to guess further than that. Wondered if any of you knew any other reason a PF person with autoimmune diseases would swell up like this. Since I was only recently diagnosed and it appears that pulmonary fibrosis is a slow moving disease I am having a hard time believing that it is already affecting the right side of my heart. Anybody, ideas, please. As always you are all in my prayers and thoughts.> Sunny PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, Barrett's Disease '08, Hyperthyroid '08, CAN "09, Idaho> B Quote Link to comment Share on other sites More sharing options...
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